Our friend Ted Harada passed away this week. Many of you may have known him. Ted was first diagnosed with ALS in August 2010 and immediately became a tireless advocate, volunteer, and voice of the ALS community. He had served on The ALS Association Board of Trustees and on the board of directors for the…
This Sunday David McNeicewill be running the Chicago Marathon for the ALS ASSOCIATION and for many pALS in the continued fight and in Memory of those that have lost their courageous fight. David is checked in and ready to hit the road for ALS tomorrow!
We are truly grateful and honored that David has included Michael Lopez Jr. in his mission and dedication. Thank You David from the Lopez Family for all you do for ALS and finding a Cure for ALS. Michael will be right along with you and cheering you on from above.
David is running in Memoryof his own Courageous Mother that lost her battle with ALS as well at those that continue to inspire Davids Dedication in finding a cure for ALS:
Michael Lopez Jr.
Carey Hinkley
John Keator
Mary Lupo Ciotto
Doug Tremlett
Paul Dowd
Bob O'Neil
We must find a cure!!! Join the search:
Please consider making a donation to David's Chicago Marathon/ ALS Association-
In this webinar, our panelists will discuss how doctors and patients work together to choose what medications to start, adjust or discontinue. We'll also answer common medication questions, including "When should one start levodopa?" and "What does prescribing off label mean?"
A 41-year-old artist with ALS, or Lou Gehrig's disease, held a 2-day gathering to say goodbye before becoming one of the first Californians to take a lethal dose of drugs under the state's new doctor-assisted suicide law for the terminally ill.
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
In “Gleason,” the documentary about the former NFL hero who has ALS, his wife, Michel Varisco, emerges as the star. “I just want to be a real person,” she says.
Steve Gleason made it his mission to record hundreds of videos for their unborn son, sharing life lessons he had learned along the way, while Gleason could still speak.
ALSA SURVEY NOW OPEN TO EVERYONE IN ALS COMMUNITY - The ALS Association Care Services Survey is now available. Every member of the ALS community is urged to participate and provide their input to help prioritize our needs. The results will be shared with us at some point in the near future.
The deadline to provide your feedback is Thursday, July 14th.
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:
Those suffering from motor neuron disease such as Lou Gehrig's struggle to turn thoughts into words. A scientist from University of California, Berkeley, aims to overcome this through advanced technology.
Today, The ALS Association joins the Pharmaceutical Research and Manufacturers of America (PhRMA) in releasing a new report, “Medicines in Development for Rare Diseases,” which finds that America’s biopharmaceutical research companies are currently developing more than 560 medicines for patients with rare diseases, including amyotrophic lateral sclerosis (ALS).
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.
Pete Frates’ story, entitled Challenge, is due out in Fall, 2017.
Pete Frates and the Ice Bucket Challenge can now add another accomplishment to its ever-growing list.
With news rolling in about new breakthroughs in the fight against ALS and another year of challenges working its way through August, Frates’ story is set to become the topic of a new book, per an announcement on social media over the weekend.
Tour players come out to support ALS at Travelers championship in hartford, ct
“To have this kind of event held in Bruce’s honor, raising money that will help us treat and hopefully beat ALS, is inspiring,” Tom Watson said. “Bruce would be very proud of what we’ve been able to accomplish, coming together and putting the focus on finding a cure for such a terrible disease.”
At the age of 34, former New Orleans Saints defensive back Steve Gleason was diagnosed with ALS and given a life expectancy of two to five years. Weeks later, Gleason found out his wife, Michel, was expecting their first child. A video journal that began as a gift for his unborn son expands to chronicle Steve’s determination to get his relationships in order, build a foundation to provide other ALS patients with purpose, and adapt to his declining physical condition—utilizing medical technologies that offer the means to live as fully as possible. Gleason is not only about Steve’s resilience but also the complications of love between fathers and sons, and husbands and wives, in the face of a devastating illness. The film is bolstered by its subject’s unwavering candor and surprising humor. Told through the lens of an NFL icon, the film grapples with the nature of heroism as Steve recasts his legacy into something quite antithetical to—but no less inspirational than—his on-field shows of strength and dominance.
The United States Food and Drug Administration FDA has granted orphan designation for Herantis Pharma Plc’s (“Herantis”) CDNF for treatment of amyotrophic lateral sclerosis (ALS). Earlier this year the European Medicines Agency EMA issued a corresponding positive decision.
Transplanting human stem cells into the spinal cord of people with amyotrophic lateral sclerosis (ALS) may be safely accomplished, according to the results of a Phase 2 clinical trial. The study, led by researchers at the Emory University School of Medicine and the Nell Hodgson Woodruff School of Nursing in Atlanta, was not designed to …
I am asking every ALS patient, as well as their caretakers and loved ones, to speak up for our community this Tuesday. Barbara Newhouse and members of the National Board of Trustees are holding a live virtual listening event to allow us to voice our needs, thoughts and suggestions. It is scheduled for THIS TUESDAY, June 21st, 1pm ET or 10am PT. We’ve all been asking for this, and now we have been given the opportunity. Let’s make it count!!! Since it is a WebEx event, it is my assumption we will be able to provide our comments by either typing or verbally. It is two hours in duration, and you must register to attend. We are requested to REGISTER BY TOMORROW, Monday, June 20th. I’ve never seen such a long hyperlink, but here is where you register:
Global ALS Awareness Day is Tuesday, June 21, and we’re commemorating the special day with a virtual listening tour event! People living with ALS and their caregivers are invited to join ALS Association CEO, Barbara Newhouse, and members of the National Board of Trustees from 1-3 PM EDT to express their thoughts and ideas that will help advance our quest to treat ALS once and for all! Your participation is greatly appreciated.
Jenni was diagnosed with ALS seven years ago and wasn't supposed to live more than two years. Watch as she prepares for her 40th birthday party with 170 of her closest friends and family.
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