We are Team O'Donnell Ames! We are running in honor of my brother, Kevin G. O'Donnell and the mother of my niece and nephew, Tina Singer Ames.
Kevin was instrumental in spearheading a law enabling ALS patients to receive their benefits without the prerequisite waiting period. Getting that legislation passed was his greatest gift to others. Some families don't have the resources to take care of their loved one, this bill makes their lives just a little easier.
Kevin also appeared on Capitol Hill many times to appeal for ALS awareness. He testified in front of the FDA (Food and Drug Administration) many times in an attempt to get early approval of drugs that were thought to combat the effects of ALS. He loved the Phillies and was thrilled to be asked to speak with the rookies every year. He appealed to them to become involved in ALS fundraisers, especially the Phillies Autograph Night and Curt (Schillings) Pitch for ALS. He was also very active in many support groups and message boards and offered his advice and insight to many others who also suffered from ALS.