#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 29, 2012 10:01 AM
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BrainAble project to offer benefits for people with motor disabilities

BrainAble project to offer benefits for people with motor disabilities | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

By combining BCI and other assistive technologies, the researchers have developed an application so a user can remotely control a robot with telepresence features. They can manoeuvre the robot around the house, perform different actions and even communicate with people, all while remaining in bed. Similar technology also enables the user to operate an avatar in a virtual reality environment, either to train them to control a wheelchair or robot in a real environment, or for social interaction.

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February 28, 2012 8:02 PM
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BMAA Neurotoxin Found In Shark Fins Linked To Alzheimer’s Disease & ALS

BMAA Neurotoxin Found In Shark Fins Linked To Alzheimer’s Disease & ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Researchers at the University of Miami have discovered high concentrations of β-N-Methylamino-L-alanine (BMAA) in shark fins, a neurotoxin linked to neurodegenerative diseases in humans including Alzheimer’s and Lou Gehrig disease (also known as Amyotrophic lateral sclerosis, ALS).

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February 25, 2012 5:30 PM
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Impact the World - ALS-MND| Northwestern's Dr. Teepu Siddique

For the last 30 years, Northwestern's Dr. Teepu Siddique has dedicated himself to researching the disease and working with patients with Amyotrophic Lateral ...
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February 20, 2012 7:53 PM
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A Fathers Heartbreaking Battle|The ultimate battle with MND|ALS| 2 Part Video Series

A Fathers Heartbreaking Battle|The ultimate battle with MND|ALS| 2 Part Video Series | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*A Fathers Heartbreaking Battle*

Scott Sullivan was diagnosed with Motor Neurone Disease|ALS at age 39.

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February 18, 2012 7:59 AM
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Study Aims to Prevent Brain Damage in Boxers - Parkinson's Disease Center - EverydayHealth.com

Study Aims to Prevent Brain Damage in Boxers - Parkinson's Disease Center - EverydayHealth.com | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Muhammad Ali is in the fight of his life against Parkinson's disease. Can new research keep other professional boxers from suffering the same neurological fate?
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February 16, 2012 9:20 PM
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There is a broad movement to use social media tools to find patients for clinical trials

There is a broad movement to use social media tools to find patients for clinical trials | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Recruitment of patients to fill clinical trials is a time consuming and project-limiting task required for the completion of a medical study. With advances in information technology being made across all areas of health care-from business practices in the C-suite to patient safety at the bed side, it would be logical to apply similar advances to the clinical trial process.

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February 14, 2012 6:15 PM
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12 Handy Apps for Caregivers - AgingCare.com

12 Handy Apps for Caregivers - AgingCare.com | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Your smartphone or tablet may not seem like the go-to resource for caregiving assistance, but there are some apps that may help you take care of an elderly or disabled loved one. Here's a list of 12 apps for caregivers.

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February 13, 2012 2:51 PM
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U.S. Biotech giant Monsanto is found guilty of chemical poisoning in France. Farmers suffer neurological problems

U.S. Biotech giant Monsanto is found guilty of chemical poisoning in France. Farmers suffer neurological problems | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A French court on Monday declared U.S. biotech giant Monsanto(MON.N) guilty of chemical poisoning of a French farmer, a judgment that could lend weight to other health claims against pesticides.

 

The social security's farming branch this year is due to add Parkinson's disease to its list of conditions related to pesticide use after already recognizing some cases of blood cancers and bladder and respiratory problems.

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February 12, 2012 7:23 PM
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Beer is brewed in Steve Gleason's honor|CHEERS to Saint Gleason Imperial Red Ale|ALL FOR ALS!

Beer is brewed in Steve Gleason's honor|CHEERS to Saint Gleason Imperial Red Ale|ALL FOR ALS! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Steve Gleason received an honor specially brewed just for him. Thursday night at the Hyatt Hotel, Abita Beer released a special brew as a tribute to the former Saint. It started as a Facebook contest, and the name selected as the winning label: Saint Gleason Imperial Red Ale. The ladies who suggested the winning name dinned as special guests of the Gleason family at Thursday night's event. Abita Beer will donate 25 cents from the sale of each pint of beer to the Gleason Family Trust.

[T.E.A.M.-Together Everyone Accomplishes More!]

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February 11, 2012 11:25 PM
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The Ghost in your Genes|The Science of Inheritance |Genetic Faults|Neurological Links?

Our genes carry unbelievable information of our past and how does this genetic information affect our present is revealed in this film.The only way forward is to look into the past.
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February 10, 2012 5:02 PM
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ALS Medicare Eligibility Guidance

Medicare Eligibility Guidance

For Patients with Amyotrophic Lateral Sclerosis (ALS)

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February 6, 2012 11:00 PM
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Thank You Steve|Michelle|Rivers for sharing your Courageous Story with the World!| TEAM GLEASON & ALS AWARENESS at its BEST!

Superbowl Pre-Game Show|Feb. 5, 2012

 

Steve Gleason is Elevating his mission to raise ALS AWARENESS and the Determination of living with ALS.

 

[T.E.A.M.-Together Everyone Accomplishes More!]

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February 5, 2012 12:54 PM
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One doctor's experience with ALS: His own - CBS News Video-2|5|2012

One doctor's experience with ALS: His own - CBS News Video-2|5|2012 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

CBS News video: One doctor's experience with ALS: His own -2|5|2012

 

Amyotrophic Lateral Sclerosis - commonly called Lou Gehrig's disease - is a rare but terrible disease. So what are the odds that one of our country's leading authorities on ALS would be struck down by it himself? John Blackstone has a follow-up to the visit he paid to a very brave and very determined physician.

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February 28, 2012 10:31 PM
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Cell study may aid bid for motor neurone therapies

Cell study may aid bid for motor neurone therapies | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 

The quest for treatments for motor neurone disease, spinal cord injury and strokes could be helped by new research that shows how key cells are produced.

Scientists at the University of Edinburgh have been able to manipulate the production of motor neurones – which control all muscle activity – in zebrafish.

Zebrafish are important in helping scientists understand how motor neurones are produced, because unlike mammals, they are able to create new motor neurones as adults.

Humans can generate motor neurones during embryonic development but lose the ability to generate these cells, which are important for speaking, walking and breathing, after birth.

This means that the body is unable to replace these cells if they become damaged as a result of motor neurone disease, stroke or spinal cord injury.

The study, published in the Journal of Neuroscience, found that motor neurone production could be increased in adult zebrafish with a drug that inhibits the so-called notch-signalling pathway.

Dr Catherina Becker, from the University of Edinburgh's Centre for Neuroregeneration, said: "If we can find out more about the cell mechanisms involved in zebrafish to make motor neurones, we could potentially manipulate these pathways in humans with the hope of being able to generate new motor neurones."

The research focussed on early stage cells – known as progenitor cells – in zebrafish, which have the ability to generate motor neurones.

Scientists found that when a protein – called Notch 1¬ – was expressed, signals were sent that stopped the progenitor cells from making motor neurones.

Stopping the Notch1 protein from sending these signals meant that researchers were able to increase the production of progenitor cells and motor neurones in the zebrafish.

Humans have progenitor cells, very similar to those found in zebrafish, which are located in the central nervous system. However, after embryonic development, these cells lose the ability to become motor neurones in humans.

The study could help research to find ways to turn progenitor cells into motor neurons following damage caused by motor neuron disease, spinal cord injury or stroke.

Source: University of Edinburgh

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February 26, 2012 4:57 AM
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Researchers Develop An Algorithm To Predict How And When Proteins Misfold

Researchers Develop An Algorithm To Predict How And When Proteins Misfold | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Several neurodegenerative diseases - including Alzheimer's and ALS (Lou Gehrig's disease) - are caused when the body's own proteins fold incorrectly, recruit and convert healthy proteins to the misfolded form, and aggregate in large clumps that gum up the works of the nervous system.

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February 23, 2012 6:51 PM
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Muhammad Ali Joins 23andMe In Search for Parkinson's Disease Cure

Muhammad Ali Joins 23andMe In Search for Parkinson's Disease Cure | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Legendary Boxer Encourages Those with Parkinson's Disease To Join Research Efforts

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February 20, 2012 7:05 PM
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There is a Purpose for Everyone|CNN Belief Blog|Facing death, a top pastor rethinks what it means to be Christian –

There is a Purpose for Everyone|CNN Belief Blog|Facing death, a top pastor rethinks what it means to be Christian – | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

A former pastor, onetime Christian Right operative and an icon among religious leaders, Dobson has Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. When he was diagnosed, doctors gave him 3 to 5 years to live.

That was 11 years ago.

 

 

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February 17, 2012 12:26 AM
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Atlanta,GA. Mother is leading by Living from the Heart & acting on Dreams|Meet Karen Duffy & Family

“Live your beliefs and you can turn the world around.”..........Thoreau
There was a time when Karen Duffy and her family did not know a single person
living with ALS. Their only connection to the disease (commonly referred to
as “Lou Gehrig’s) was a NBC television spot that featured special education
teacher and “warrior poet”, Jonathan Blais, as he competed in the 2005 World Ironman


At the time, Duffy’s then 12 year old son Brian, a triathlete himself, was powerfully
moved by Blais’ story. In the days and weeks that followed, the young man worked
to convince his mother that the family needed to “do something” to help the cause of
ALS. Eventually, the busy mother of two relented and Brian took up a letter writing
campaign that earned some $2,000. Reflecting on that time, Karen advises people to "listen to your kids"help them act upon their dreams. If something touches your heart, do something about it. This simple wisdom was gained first hand. The Duffy family did do something about it.....................Read their impressive Story!

 

Join the Duffy Family and the ALS Run for Life 5K|May 5, 2012|Cumming,Georgia

Sign Up or Donate: http://alsrunforlife5k.com/race-details/

 

 

 

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February 16, 2012 7:39 AM
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Love Letters|Steve Gleason Part 1 & Part 2|Infinate Joy-One Small Step at a Time

Love Letters|Steve Gleason Part 1 & Part 2|Infinate Joy-One Small Step at a Time | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

His play inspired New Orleans Saints fans, his life inspires us all. Jennifer Hale tells the story of Steve Gleason & his family like you’ve never experienced.

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February 13, 2012 3:35 PM
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Power of Giving|Providing People with ALS a Voice|Donate or Volunteer

Voice For Joanie ( VFJ ) is a group of volunteers providing computer technology and assistance so that people with ALS have a "voice". To date, VFJ has helped 850 PALS.

 

Ask Shirley Fredlund why what she does is important, and she'll give you a simple task. Sit still for 10 minutes. Don't move a muscle, not even to scratch an itch. Don't speak. Don't smile. Don't laugh.

Don't snap your fingers to get the attention of the people all around you, carrying on as if you don't exist. But you can blink your eyes. That is all a person with advanced amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, can do.

"After a while, it starts to hit home," said Fredlund of her silent-still exercise. "If a person can't talk, people ignore them."

 

Voice for Joanie Website: http://www.voiceforjoanie.org/index.htm

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February 12, 2012 8:50 PM
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A Photo is worth a Thousand Words|Steve Gleason in his Sacred Place

A Photo is worth a Thousand Words|Steve Gleason in his Sacred Place | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Via Twitter|Steve Gleason

 

"Where is ur sacred place? Ur free 2B creative, happy, angry, alone, present, insane, weird, normal!" -SG

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February 12, 2012 8:12 AM
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What is compassionate use of experimental drugs?|Mayo Clinic

What is compassionate use of experimental drugs?|Mayo Clinic | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Compassionate use is a way for people with life-threatening illnesses to get access to experimental treatments.

 

In certain situations, the Food and Drug Administration (FDA) allows companies to provide their experimental drugs to people outside of clinical trials. This is referred to as compassionate use. But getting access to not-yet-approved drugs through a compassionate use request can be a long and challenging process.

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February 10, 2012 5:04 PM
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The NeuRx Diaphragm Pacing System for those with ALS|Respiratory Problems

The NeuRx Diaphragm Pacing System for those with ALS|Respiratory Problems | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

What is the NeuRx Diaphragm Pacing System (DPS)

The NeuRx DPS® is a groundbreaking neurostimulation technology approved by the U.S. Food and Drug Administration (FDA) for treating people with both ALS and other breathing problems

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February 8, 2012 7:12 PM
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Statement on Compassionate Use - The ALS Association

Statement on Compassionate Use - The ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

In our quest to create a world without ALS, The ALS Association believes that people with ALS should have access to effective treatments as quickly as possible. Our primary core value is that people with ALS and their families come first in everything we do. When it comes to advancing therapies for ALS, we work with all stakeholders in an effort to find the best path forward.

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February 6, 2012 5:19 AM
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Multiple Intravenous Administrations of Human Umbilical Cord Blood Cells Benefit in a Mouse Model of ALS

Multiple Intravenous Administrations of Human Umbilical Cord Blood Cells Benefit in a Mouse Model of ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

A promising therapeutic strategy for amyotrophic lateral sclerosis (ALS) is the use of cell-based therapies that can protect motor neurons and thereby retard disease progression. We recently showed that a single large dose (25×106 cells) of mononuclear cells from human umbilical cord blood (MNC hUCB) administered intravenously to pre-symptomatic G93A SOD1 mice is optimal in delaying disease progression and increasing lifespan. However, this single high cell dose is impractical for clinical use. The aim of the present pre-clinical translation study was therefore to evaluate the effects of multiple low dose systemic injections of MNC hUCB cell into G93A SOD1 mice at different disease stages.

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