Unable to make it to Washington D.C. to participate in National ALS Advocacy Day on May 10? That’s okay, you can make your voice heard on Capitol Hill no matter where you are!
Did you know? Nearly every single Member of Congress is active on Twitter. You can help amplify our message by tweeting your representatives on National ALS Advocacy Day!
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.
All fundraising and donation proceeds will benefit the ALS Center at Emory University.Amyotrophic Lateral Sclerosis (ALS) can strike anyone; in fact it happens to 15 people each day in the U.S. The average life expectancy is only 2-5 years from the time of diagnosis. ALS slowly takes away the ability to move, speak, swallow, and ultimately breathe. There is no cure for ALS so there are no survivors to tell their stories. For the 10th year the Emory ALS Center is the beneficiary of 100% of the proceeds from the FIESTA 5k/15k Challenge. The Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS and related disorders. Emorys physician-scientists continue to perform groundbreaking research, including developing surgical methods for delivery of therapeutics to the spinal cord. They search tirelessly for a cure for this devastating disease, focusing on basic mechanisms of motor neuron degeneration, genetics of ALS, and new experimental treatments. As the name suggests, the FIESTA 15k/5k Challenge is not your ordinary race. With two distances, we draw causal runners and walkers for the 5k and endurance runners for the 15k. The FIESTA 15k/5k Challenge brings entire families out for a morning of health & fitness, awareness for ALS, community outreach, and a celebration of life. Thank you for your generous support and for joining us to Celebrate Life...Imagine a Cure If you would like to volunteer or register for the FIESTA 5k/15k Challenge visit FiestaRunGA.com .
Register for one of the three webinars being held over the next few weeks to learn how to access your Medicare home care benefits (aka home health services).
As a result of our successful petition and advocacy efforts, the ALS Association has partnered with the Center for Medicare Advocacy to create and host educational webinars. The first one is scheduled to be held this Thursday, and you must register in advance to participate. I have provided the email I received from the ALS Association today, which contains the details. Please spread the word!!! Let's get the ALS community the information and resources needed to access their Medicare home care benefits already in place...
ALS Association email:
Are you eligible for Medicare Home Health Benefits? Do you have questions about Medicare Home Health Benefits? Are you having problems accessing Medicare Home Health Benefits? If you answered “yes” to any of these questions, you will find these webinars very valuable!
The ALS Association is working with the Center for Medicare Advocacy (CMA) to better help people living with ALS navigate the complexities of Medicare home health benefits. As part of this collaboration, the CMA will be presenting a webinar that will discuss topics including: an overview of the Medicare program with particular focus on the home health benefit, Medicare eligibility and enrollment, and Medicare payment rules and assistance.
This webinar will be presented on three separate dates with a 30 minute live Q&A following each session. For more information and to register for a session, click the links below.
Researchers at WSU Spokane's College of Pharmacy said they may have found a potential breakthrough in the battle against diseases such as ALS, Parkinson's, and Alzheimer's.
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues. There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare. There is also a great disparity between...
Calling his battle with ALS “an opportunity, not a tragedy,” former NFL linebacker Tim Shaw hopes to inspire people as he learns to adjust his own expectatio...
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues. There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare. There is also a great disparity between...
The Third Thursday interactive webinar series provides access to expert information in Parkinson’s disease (PD) for patients, family members, caregivers and healthcare providers.
Hope married Steve Dezember II despite a grim ALS diagnosis at a young age. But he taught her the "beautiful gift" of realizing she is capable of doing anything.
For many people with disabilities, emergencies and disasters present a challenge. The Red Cross offers preparedness tips for persons with disabilities.
Free Registration is Required for All Informational Webinars
The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and necessary health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:
"Zebrafish are vertebrates and during the embryo stage, they're transparent, making them ideal subjects to observe and manipulate. Their embryonic development is "remarkably similar" to humans, according to the school's website, presenting many research opportunities."
EXCLUSIVE: Amazon Studios is closing a deal for all U.S. rights to Gleason, one of the most acclaimed documentaries to premiere at this year's Sundance Film Festival.
Researchers announced today that they have essentially stopped the progression of amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, for nearly two years in one type of mouse model used to study the disease -- allowing the mice to approach their normal lifespan. The findings are compelling and promising, scientists say.
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