My Concern for MND/ALS Protocol and MND/ALS Hotline In the past several months I have experienced some very important concerns of ALS patients being admitted into local hospitals under pneumonia and other Flu like symptoms. Over 17 ALS patients in the past 4 months have died. In many cases th
Israel's BrainStorm Cell Therapeutics is seeking early approval in Canada for its adult stem cell treatment for patients with amyotrophic lateral sclerosis (ALS), a neuro-degenerative disease, even before it completes late-stage clinical trials.
A smartphone app called GazeSpeak uses eye movements to predict the words you want to say, allowing people with motor disabilities to communicate faster
SALEM — Salem Congressman Seth Moulton has helped introduce a bipartisan bill to accelerate benefits for those diagnosed with amyotrophic lateral sclerosis, or ALS.
A blood test may be as accurate as a spinal fluid test for differentiating Parkinson's disease from atypical parkinsonism disorders, according to a new study.
The ModelTalker System is a revolutionary speech synthesis softwarepackage developed by the Nemours Speech Research Laboratory and designed to benefit people who are losing or who have already lost their ability to speak. It allows people who use a Speech Generating Device (SGD) to communicate with a unique personal synthetic voice that is representative of their own voice.
To learn more, see the FAQ section under Help, or select an option under our Voices menu to get started right away!
June 7, 1951 – Feb. 3, 2017 Michael J. Maloney, who worked closely with families as he helped lead some of the region’s top senior living communities, and who became known in recent years for his advocacy and fundraising for ALS research and treatment, died early Friday from a complication of the neurodegenerative condition, also known as Lou Gehrig’s disease. He…
Ramón Cacabelos, one of the best specialists in the world in the neuro-degenerative disorders and genomic medicine, and his team have completed preclinical and clinical studies with a nutraceutical…
Creating art has sustained Tari Eilbeck as she’s been the primary caregiver for Ed, her husband of 53 years, during his decline due to Parkinson’s disease.
Researchers have identified a potential biological connection between gut microbiome and Parkinson's disease, suggesting that the incurable neurodegenerative disease may have originated in the gut and not only in the brain as had been previously thought.
This study is a major step for PD research as it is the first drug trial where one's genetic information determines eligibility and is testing a potential therapy to slow or stop disease progression.
Thanks to advances and breakthroughs in hardware, software and artificial intelligence, eye tracking technology has progressed immensely in the past year, and is now drawing the attention of tech industry’s biggest players. The acquisition of eye tracking companies EyeFluence and Eye Tribe by Google and Facebook respectively, as well as the move toward mobile eye …
VocaliD is on a missionto humanize the voice within AAC devices. Founded by Dr. Rupal Patel in 2014, VocaliD leverages its Human Voicebank of over 15,000+ members from over 110 countries that together have contributed upwards of 6 million sentences and the company’s proprietary voice blending technology to create unique vocal persona for every AAC use
HACKENSACK, N.J. and PETACH TIKVAH, Israel, Feb. 6, 2017 /PRNewswire/ -- BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI), a leading developer of adult stem cell technologies for neurodegenerative diseases, announced today that Chaim Lebovits, Chief Executive Officer, will provide a corporate overview at BIO CEO & Investor Conference, being held on February 13-14, 2017 at the Waldorf Astoria in New York City.
In 2016, a significant number of ALS research discoveries, advances in clinical trials, collaborations and strategic initiatives all accelerated the pace of discovery in finding treatments and a cure for ALS. We’ve pulled together what we think are 10 of 2016’s biggest advances in ALS research that gave us, and people living with ALS,…
An ALS patient wanted to donate his organs when he died. He asked to be admitted to the hospital specifically to end his life. And despite the planning, his request made some people uncomfortable.
Santa Fe Realtors were busy over the last few months hosting events to enhance the community while devoting many volunteer hours to raise funds for charity. In October, the Santa Fe Association of Realtors' Community Services Committee hosted the Third Annual Richard Jay ALS Research Benefit, raising more than $17,000. Melissa Pippin-Carson, Richard Jay Golf Tournament Committee co-chair and SFAR president-elect, noted that this year’s funds will go directly to the ALS New Mexico Chapter to purchase iPads and amplifiers to help patients with breathing, swallowing, and the ability to speak. The event was named in honor of Richard Jay, a local Realtor diagnosed with ALS (also known as Lou Gehrig’s disease) who passed away in the fall of 2014.
As we have reported, the Center has been hearing more and more about people who meet Medicare criteria but cannot obtain, or retain, necessary home health care ordered by their physicians. In particular, people living with long-term and debilitating conditions such as ALS, MS, paralysis and Parkinson’s disease find themselves without necessary home care. For example, patients have been told that Medicare will only cover 1 to 5 hours per week of home health aide care, or only one bath per week, or that they must first decline before therapy can commence (or recommence). Individuals and their families are struggling as a result of these inappropriate limitations with too little care, or no care at all.
To respond to this crisis, the Center is building a coalition to support a Home Health Access Initiative. The Initiative will oppose inappropriate restrictions on Medicare to open doors to Medicare-covered, necessary home care...............
The Center for Medicare Advocacy, Inc., established in 1986, is a national nonprofit, nonpartisan law organization that provides education, advocacy and legal assistance to help older people and people with disabilities obtain fair access to Medicare and quality health care. The Center is headquartered in Connecticut and Washington, DC with offices throughout the country.
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