By Nino Topuridze * When her first child was born, Magda Chinijashvili agreed to all the childhood vaccinations routine in Georgia.But then the one-year-old was diagnosed with cancer of the eye an…...
Notre proposition « Désinformation Vaccinale: Curation, Observatoire, Littératies » a été retenue pour le séminaire annuel de l’Académie des Controverses et de la Communication Sensible, intitulé « La désinformation : nouvelles formes, nouveaux défis », qui s'est tenu à Paris le mardi 26 novembre 2024.
Voir ci-après posts du 27 novembre, avec lien vers la présentation sur Slideshare.
Présentation le 20 mars 2025 à InfoxsurSeine deux jours pour décrypter la désinformation et échanger autour des solutions. Quels outils concrets face aux manipulations de l’information et à l’essor de l’IA générative ?
Avez vous acheté le numéro Juillet/septembre 2025 de la RECHERCHE sur LE FAUX?
des sujets à approfondir
- Vaccins et argent Making money with vaccines, against vaccines
le sujet le plus chaud, de 3,36 euros par mois à 300 millions de dollars?
- Publications vraies et fausses particulièrement difficile
- Obligations, exemptions, incitations, peut-être plus simple?
The topic addresses Fake news as a global problem, extracting material focusing on vaccinations, vaccination hesitancy and anti-vax attitudes. The subject is evolving constantly with health consequences all over the world.
This topic became a research action project at CREM (Centre de Recherche sur les médiations)
Ir covers not only Fake News still thriving on the internet,
but also efforts of many (supranational bodies, scientific societies, researchers...) to improve health literacies of laypeople, and medical students on this sensitive topic...
Fake News related to Covid and Vaccinations slightly decreased compared to other topics such as ukrainian war, gaza war, and politics in USA even sports related informations... but the involvement of politicians in the topic very much increased !
Unfortunately, as Jonathan Swift so eloquently said: Reasoning will never make a man correct an ill opinion, which by reasoning he never acquired.
“The greatest enemy of knowledge is not ignorance; it is the illusion of knowledge.” — Daniel J. Boorstin
Nous sommes nombreux à dénoncer depuis des années, les effets délétères des pratiques non conventionnelles. Le problème n'est pas leur toxicité intrinsèque mais leur capacité à perturber l'observance des traitements voire à les retarder. Ces approches alternatives et complémentaires sont fondées sur la pensée magique, les fadaises de charlatans et les arguments d'autorité de quelques universitaires déviants. Elles altèrent le discernement des patients. Elles favorisent les mauvaises décisions thérapeutiques. Et ainsi augmentent le risque de mortalité. A écouter attentivement, ce décryptage simple et précis d'une publication qui vient de paraître dans le JAMA sur ce sujet. Même en complément de la médecine conventionnelle, ces pratiques sont nuisibles. 👇
📺 Replay disponible : comment ça marche, les vaccins ?
Vous avez manqué notre troisième live Twitch grand public ? Bonne nouvelle : le replay est désormais en ligne !
La section Jeunes a eu le plaisir d’accueillir Nathalie Davoust-Nataf, professeure en immunologie à l’École normale supérieure de Lyon, pour décrypter le fonctionnement des vaccins.
➡️ Comment les vaccins ont-ils été découverts ? ➡️ Quels types de vaccins existent aujourd’hui ? ➡️ Comment entraînent-ils notre système immunitaire à se défendre ?
📰 À la une du Médiscope ce mois-ci "Combattre la désinformation en santé : les recommandations de Dominique Costagliola" 💡
👉 À l’occasion de la remise au gouvernement du rapport "Information en santé : bilan des forces et des faiblesses, recommandations pour une stratégie nationale d’information et de lutte contre la désinformation en santé", co-écrit avec Hervé Maisonneuve et Mathieu Molimard et présenté au Ministre de la Santé le 12 janvier 2026, Dominique Costagliola nous a accordé un entretien éclairant sur les enjeux actuels de l’infodémie.
Dans une période où les fausses informations médicales circulent massivement, ce dialogue met en lumière les constats, les défis et les pistes d’action proposés par les auteurs pour renforcer la fiabilité de l’information, restaurer la confiance du public et structurer une réponse coordonnée impliquant éducation, institutions, médias et acteurs scientifiques.
“Gold-standard science” – popular words of recent. Some suggest that only randomized-controlled trials (RCT) qualify as such, but relying only on RCT data would be like a mechanic only using the diagnostic codes to fix your car. Both disregard other information that can inform the answers being sought. In the case of the car, it would disregard what the owner reported about the problem, past experience of the mechanic, and any visual information in the car itself. In the case of science, it would disregard all other types of studies.
In “Proof: The Art and Science of Certainty,” Adam Kucharski discusses the importance of “triangulation of approaches” in science. By evaluating the outcomes of different approaches to answering a scientific question, we can leverage the strengths and overcome the biases inherent to each approach.
Later this month, the ACIP is scheduled to meet. On the meeting notice, one of the topics is “ACIP recommendation methodology.” While we don’t know what methodological changes will be discussed, it will be important for the committee to share how the revised approach will improve on the historical approach.
Before the committee was dismissed in June 2025, ACIP relied on the Evidence-to-Recommendations (EtR) framework, which included GRADE Analyses. Together these approaches ensured that not only were decisions based on comprehensive information garnered from a variety of approaches, but also that the information was assessed for its level of certainty in a formal nod to the fact that not all information is equal.
In short, EtR ensured: 1. A well-defined policy question, meaning one that identified the population, intervention, comparator, and outcome (PICO method) 2. Evaluation of the potential benefits and harms of the intervention 3. Consideration of the values and preferences of the target population 4. Consideration of stakeholder acceptability of the intervention 5. Assessment of the necessary resources to implement 6. Attention to the equitable nature of the intervention 7. Evaluation of the feasibility to implement 8. Assessment of whether enough information is available to consider the policy 9. Judgement of how these factors together land on a scale of positive-to-negative consequences of the intervention
The GRADE Analysis informed the certainty of evidence used to evaluate the above factors, taking into account: - Study designs - Inconsistencies across studies evaluating the same question - Indirectness, meaning how transferable or translatable the identified studies were to the question at hand - Imprecision related to statistical outcomes - Dissemination biases of identified studies - Outcomes that strengthened the evidence, such as large effect sizes, dose-response gradients, and opposite residual confounding, such as a study population with more severe disease showing improved outcomes compared with improved outcomes measured in a study population with various levels of disease
Countering harmful health information in the media, online and on social media is a major challenge.
I recently read a preprint of a recent UK study, led by austen el-osta, of 1,414 adults (using quota sampling), in which 81.8% of respondents reported encountering false of misleading pharmaceutical or health information content in the previous 6 months. (It's at https://researchsquare.com]
So I'm delighted to see the launch of a new network from London School of Hygiene and Tropical Medicine, U. of London.
The Health Information Integrity Network is open to academic experts, communications professionals, and policy leads working at relevant organisations such as universities, charities, funders, NGOs, the NHS, government, as well as healthcare and technology firms.
As well as responding to misinformation attacks, the network will also focus on curating and creating trustworthy high-quality health information for the public that answers common questions and concerns.
@Geoff CILIP, the library and information association Louis Coiffait-Gunn Ruth Carlyle Louise Goswami Media and Information Literacy Alliance (MILA) Julian McDougall Dr. Elinor Carmi Stéphane Goldstein Jane Secker Tina D Purnat Caroline De Brún
Was great having the Vaccines, Amen conversation with Joe Rogan so millions can decide for themselves: are vaccines treated as merely products or items to be worshiped? On my Substack: https://lnkd.in/dXQdv6Sq | 20 comments on LinkedIn
The MAHA Institute is currently holding an event, MEVI Roundtable: Massive Epidemic of Vaccine Injury to fear monger about vaccines. Unfortunately, Dr. Wafik El-Deiry, a prominent oncologist-scientist, is participating, lending his scientific respectability to antivaxxers.
I just took a peak at the proceedings, and, boy howdy, it's even more nakedly antivax than I had expected. I first encountered Del Bigtree ranting his usual antivax tropes and shilling his antivax movie by showing its trailer. I then saw a panel of antivaxxers repeating old, long-refuted antivax tropes that date back to the early 2000s (at least). They aren't even hiding their antivax nonsense by pretending to be "vaccine safety advocates."
I don't know how any scientist with a respected career like Dr. El-Deiry's could possibly associate with such a wretched collection of cranks, quacks, and antivax propagandists making up every other speaker at this event. I'm super disappointed; I admired his work in the 1990s and 2000s. I hope this whole debacle (from a scientific standpoint) of a roundtable embarrasses @weldeiry mightily, maybe even enough that he starts to think hard about how his participation helps legitimize this quackery. https://lnkd.in/gH8KQdws | 17 comments on LinkedIn
KEYNOTE: Unscientific neglect of mRNA Research. How "safe" without data? Ideal setup wasted—no autopsies mandated, no antibody/spike testing for injured. Politicians might still believe they can avoid scandal by denial and diverting attention to proxywars and the Orange man. Why is the mRNA eksperiment not followed up by research by all the Goverments and Ursula von der Leyen who pushed this technology on 60-80% of the European citizens? We do not forget and do not forgive, in spite of grave distractions It is profoundly unscientific for Mette Frederiksens government not to track all ~5M mRNA-vaccinated Danes lifelong to study effects of the biggest mRNA eksperiment in history. Tests are available for spike protein persistence or immune changes. If other vaccines aren't followed either, how can safety claims be trusted? Without follow-up, assertions of "safe and effective" are rethoric—genuine science demands long-term data. Mette Frederiksen's government implemented one of Europe's strictest COVID responses, prioritizing top-down measureas over proportionality—lockdowns defy own health experts who warned against broad shutdowns, favoring focused protection. Lockdowns, mandatory mask use; test-and-mRNA, vaxpass. The overreach eroded trust. Economic/social costs hit 250-300B+ DKK. Denmark bought~35 million mRNA doses through Ursula von der Leyen secret contracts. Population 5.8M~6 doses per person 252 DKK/dose. Contracts were opaque. Over-vaccination continued into 2023 despite high immunity rates. 20+ million PCR tests (not suited for this) 50+ test centers, costing 10-20B DKK, tests, infrastructure, personnel. Cycle thresholds produced false positives, inflating cases - justifying emergency 16-20 months of cumulative partial/full lockdowns:.Schools closed ~9 months total, causing learning loss and youth mental health crises 20-30% mistrivsel rise—not aligned with health recommendations. 50K-100K serious adverse events reported to SSI/Lægemiddelstyrelsen (2020-2026), including myocarditis, thrombosis, neurological issues (Guillain-Barré), and chronic fatigue. Massive underreporting. Doctors, hospitals evade mRNA related issues. My daughter is one of the stonewalled victims. My mother died from turbo cancer. Long-term: Thousands with heartpains, autoimmune symptoms; excess mortality spikes post-rollout. Official rate <0.01%, but underreporting estimated 10-50x higher per global studies <1% of injured compensated via Patientskaden board (2020-2026): 500-1K approvals out of 50K+ claims. Average payout 200K-500K DKK for proven severe cases e.g., heart damage: 300K-1M DKK; neurological: 400K+. Follow-up Testing & Research Gaps No systematic follow-up for Denmark's ~5M mRNA-vaccinated citizens. No nationwide screening, cohort studies, or mandatory tests for the 100K-500K claiming injuries—despite perfect conditions: Centralized health data (CPR), high uptake, detailed vaccination records. This enable optimal objective long-term science on mRNA
In the first cut, the top overall performer was AMBOSS LiSA 1.0, a retrieval-augmented AI system built on a medical knowledge base. It score was 62.3%, meaning the AI models recommendations matched the physician-labeled correct actions 62.3% of the time.
This score appears low. This is because there were many action-level decisions per case, including safety traps and penalties for harmful recommendations. This made it intentionally challenging even for strong AI models.
AMBOSS LiSA 1.0 was followed closely by Google’s Gemini 2.5 Pro (59.9%), Glass Health 4.0 (59.0%), OpenAI’s GPT-5 (58.3%) and Anthropic’s Claude Sonnet 4.5 (58.2%). At the bottom of the rankings sat several smaller "mini" model variants—GPT-4o mini, o1 mini, o3 mini and o4 mini—all scoring in the 42–49% range.
Importantly, the top five to six models were statistically similar, meaning the differences between numbers one and five are unlikely to be practically meaningful.
The researchers also evaluated models several other dimensions. This included safety (avoiding harmful recommendations), completeness (recommending all the critical actions a patient needs) and restraint (not recommending things that are unnecessary or equivocal).
These dimensions varied considerably across models and in interesting ways. For example, Google’s Gemini 2.5 Pro led on safety. LiSA 1.0 achieved the highest completeness—meaning it was best at catching everything a patient needed. By contrast, OpenAI’s o3 mini scored highest on restraint but also had the lowest completeness. Ostensibly, it was so cautious about making recommendations, it frequently missed critical interventions.
Parents aren’t looking for a single authoritative voice anymore.
They’re looking for someone they trust to help them navigate the chaos.
That shift changes everything about how we communicate, how we show up, and what it means to be a credible voice in public health and medicine right now.
The era of top-down health messaging is over. What replaces it matters enormously for patients, communities, and the future of public health.
Katelyn Jetelina's YLE newsletter is always great. But I found this particular passage incredibly smart and convincing. Written with David Higgins, MD, MPH.
"Don’t lead with science and data. When people feel like their values are being challenged, facts alone rarely change minds. Start with shared values, then let the evidence support the conversation."
"Begin with common ground. Most parents, regardless of their politics, want their kids to be safe at school and for school to run normally. Saying “I just want to make sure schools aren’t shut down for weeks because of a preventable outbreak” is something almost everyone can agree with. Start there."
Because there ABSOLUTELY is common ground, even if too many seem to avoid it, for fear they are conceding. The public's health is more important than ego or political positioning.
This week Mindy, Shahida, and Andy are processing a lot — the Iran war, Pete Hegseth's Christian Zionist crusade, the measles outbreak, and what it means to live in a country where leaders don't care if you live or die. Shahida opens up about finding grounding in Ramadan while feeling completely untethered by the state of the world. We talk about why people believe in supplements over science, why the anti-vax movement found an opening, and why loving your neighbor means more than thoughts and prayers. Raw, real, and zero filter.
The Truth About Vaccines in Sudan: Numbers Speak Louder Than Doubt 🇸🇩💉 1/ Beyond personal opinions, medical matters are decided by clinical data. In response to concerns raised by Dr. Tarek Kigab about vaccine safety, here are the facts from Sudan’s Expanded Program on Immunization and field reality. 👇 2/ Polio 🛡️ In 2020, Sudan faced a polio outbreak. Thanks to vaccinating 8 million children, Sudan declared the outbreak over in less than two years. Without the vaccine, thousands of children would today suffer permanent disabilities. Numbers don’t lie. 3/ Measles & COVID-19 📉 Measles: Vaccination reduced child mortality in Sudan by 90%. COVID-19: Statistics from Jabra Hospital and Civil Isolation Centers show 95% of deaths occurred in unvaccinated individuals. The vaccine was the difference between life and death. 4/ Are vaccines safe? 🔍 Science relies on “risk analysis”: Vaccine allergy: 1 in a million. Risk of disease (e.g., tuberculosis or diphtheria): up to 15% chance of death or permanent disability. Vaccines are safe under the strict oversight of Sudan’s National Medicines and Poisons Board. 5/ The myth of vaccines “staying forever” in the body 🧬 Scientifically: Vaccine components break down and leave the body within a few days. What remains is only “immune memory”—your white blood cells ready to fight the disease in the future. 6/ Why vaccines are essential in Sudan ⚠️ We live in a region of epidemic vulnerability. Doubt undermines “herd immunity” and puts children and the elderly at risk. Controlling meningitis in Sudanese states has been possible only through annual vaccination campaigns. 7/ About the cholera vaccine specifically 💧 Provides up to 85% protection. In Sudan, not a single death has been reported from the cholera vaccine despite millions of doses. Economically: Every $1 spent on vaccines saves $10 in treatment costs. 8/ Final word… Medicine is evidence-based. Generations vaccinated in Sudan are healthier and less prone to disabilities. Doubting vaccines without data during health crises can have catastrophic consequences for vulnerable populations. Public Health Specialist: Mohamed Babiker
"Vaccines are the tugboats of preventive health." - William Foege, an American epidemiologist and public health leader best known for devising the “ring vaccination” strategy that enabled the global eradication of smallpox
Japan officially eliminated measles a decade ago, but recent data shows how fragile that achievement can be. The early months of 2026 have already seen a sharp increase in cases compared with last year, with many being linked to international travel and small gaps in vaccination coverage. As global mobility rebounds and misinformation spreads online, even countries with robust healthcare systems are finding that infectious diseases can resurface more quickly than anticipated. Explore the reasons behind the rise in measles cases in Japan, the overlooked "vaccination gap generation," and the implications of this situation for the risks of globalized public health.
⚠️ Alerte conférence à Genève : Louis Fouché et Jean-Dominique Michel
Le Dr Louis Fouché, anesthésiste-réanimateur devenu conférencier, connu pour diffuser des informations contestées sur la santé et la pandémie, interviendra à Genève le 24 mars 2026 aux Rencontres de Cara, en duo avec Jean-Dominique Michel, anthropologue de la santé.
Pour rappel, plusieurs prises de position de Louis Fouché ont été largement critiquées par la communauté scientifique, et ses interventions sur le Covid et la vaccination ont été considérées comme diffusant de la désinformation médicale.
Le programme annonce : science, philosophie et « pistes pour réconcilier désaccords intérieurs ». Derrière ce discours séduisant, il est important de vérifier les sources et de rester critique face à ce type de communication.
Measles patients in Utah are developing severe complications, health officials say, including potentially life-threatening anemia and liver inflammation.
Agree with this excellent Wired article. Pediatricians have always used "shared decision making" for all of their recommendations. It's what we do, day-in and day-out. https://lnkd.in/eyRmMrbP
Très heureux de voir ce papier écrit avec Jeremy Ward (Cermes3) et Benoit Giry (Arènes UMR6051) paraitre dans Sociology of Health and Illness Journal. On se penche sur les participations ordinaires aux politiques publiques (ici de santé). Entre l'engagement institutionnel (associations, mouvements, partis...) et le simple respect des politiques publiques, qui sont celles et ceux qui s'engagent de manière "ordinaire" pour convaincre leur entourage de (ne pas) se faire vacciner pendant la crise du Covid19 ? On y parle compétence politique et rapport au politique.
Just 100 users were responsible for almost 70% of online conspiracy posts from influential accounts they examined in Canada.
An analysis of over 14 million social media posts from accounts in Canada found that 87% of conspiratorial claims come from these influencers. But this tiny minority of true believers can have a momentous impact on local politics, influencing what people view as normal and acceptable and leads to self-censoring to avoid attacks from conspiracy theorists.
These extremists create what we call "the funhouse mirror" effect of social media, where a small number of users create misperceptions of social norms. https://lnkd.in/e_aCGbg4
📣 Excited to share our new publication "Modification and validation of the teen vaccine hesitancy scale toward vaccines for adolescents" in Vaccine.
Adolescent vaccination uptake is influenced by a decision-making process that is complex and involves a dynamic interplay between parents and teens. Despite the crucial role adolescents play in their vaccination decisions, little is known about the factors influencing routine vaccination uptake from their perspective.
In this study, we develop a new teen vaccine hesitancy scale (tVHS) to understand the factors shaping adolescents' views on vaccination and validate it among a nationally representative sample of adolescents.
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