#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Rescooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS from ALS Awareness
April 9, 2015 8:15 PM
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Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge

Run LOCO for ALS in One Month at 9th Annual FIESTA 5k/15k Challenge | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Via Cure for ALS
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS's insight:
VIA: Cure for ALS's insight:

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
Cure for ALS's curator insight, April 2, 2015 10:27 AM

There is a lot of important information here so please make sure you read all the way through. At the top of the news is that entry fees will increase on Friday, April 17. Also, if you want to guarantee you’ll receive a t-shirt in the size you want you, make sure you are registered before April 17.

 

Race day is Saturday, May 2, 2015 at the Forsyth Conference Center at Lanier Tech in Cumming. Important details will be posted on the main website and registration page so be sure to check them often for any announcements.

 

REGISTRATION: https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge ;

 

MAIN WEBSITE: www.FiestaRunGA.com 

 

CAN'T JOIN US THIS YEAR? MAKE A DONATION AT https://www.crowdrise.com/2015fiesta5k15kALS

 

THINGS TO REMEMBEREntry fees increase for the 15k and 5k on April 17.You must be registered by April 16 to guarantee a race t-shirt. Chip timing for the 15k and 5k races.The FIESTA 5k course is a certified Peachtree Road Race qualifying course.START TIMES: FIESTA 15k starts at 7:45am. FIESTA 5k starts at 8:05am. **Ronald Reagan Blvd. will close at7:30am so make sure to arrive for all races before road closure**

Awards for 15k:

Top 3 Overall Male/Female will receive a TIMEX Ironman watchAdditional awards presented to: Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year incrementsAll 15k finishers receive a Custom Finisher Medal

Awards for 5k:

Overall Male/Female, Overall Masters Male/Female, and Top 3 in Age Groups of 5 year increments.

Awards are not presented in the Fun Run but those registered do receive a t-shirt with their entry.

Lots of parking, great post-race party, music, refreshments, and FUN!

100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu 

 

COMING SOON: Be on the lookout for an announcement for a 21 Day Fitness Challenge for you to 1) make sure you are ready for your best FiestaRun ever, and 2) keep fit and healthy beyond the Fiesta 5k/15k Challenge.

 

PACKET PICK UP TIMES:

Friday, May 1 from 11am to 7pm at Totally Running - 405 Peachtree Pkwy, Suite 105, Cumming, GA 30041. Registration also available.Saturday, May 2 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.EET'S NACHO ORDINARY RUN!Celebrate Life...Imagine a Cure. Run LOCO to stop ALS!
Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 27, 2015 2:42 PM
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Congress must increase funding for medical research

Congress must increase funding for medical research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
  • For decades, medical research — and the cures and treatments it has discovered — have meant hope for millions of Americans living with disease and disability. But in recent years, those hopes have been clouded as Congress continues to significantly underfund the National Institutes of Health. The funding agreement for the 2015 fiscal year that Congress approved recently does little to.........................
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 22, 2015 2:48 PM
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Food and Drug Administration: FDA Accelerated Approval (Phase 4) of Genervon's GM6 for Use In ALS

Food and Drug Administration: FDA Accelerated Approval (Phase 4) of Genervon's GM6 for Use In ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

My name is Nick, I am 54-years old and in October 2011, I was diagnosed with ALS. Today, I am in a wheelchair and cannot walk or stand. My arms grow weaker almost every day and my breathing is starting to be affected. I used to be very active but now I can only leave my home when I have someone with me who's strong enough to lift me into my wheelchair once I'm done scooting down to the bottom of the stairs on my butt. It can feel like I'm a 100-year old man who can't do things for himself anymore. At 54, I should still be a vibrant part of my community, but this disease is kicking me where it hurts.
Through the enthusiasm generated by the Ice Bucket Challenge, many people now know that ALS is a degenerative neurological disease that currently affects over 30,000 Americans, and as it stands the disease is always fatal. Most people with ALS are given only 2-5 years to live. When I was diagnosed, I was devastated - it took me months to accept it. Although I am now resolved, I have not lost hope.
Currently, there is only one drug available to treat ALS (riluzole).........


To view trial results, please see "Genervon Announces ALS and PD Phase 2a Trial Results" and "Genervon Announces ALS Compassionate Use Results" at the link below.
http://www.genervon.com/genervon/about_pressreleasestxt.php
 
 

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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 10, 2015 7:17 AM
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"EMPIRE" star Terrence Howard's role includes being diagnosed with ALS.

Watch a special preview of FOX's new hip hop drama Empire,starring Terrence Howard and Taraji P. Henson. Welcome to EMPIRE, a sexy and powerful new drama abo...
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 7, 2015 2:16 PM
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BrainStorm Announces Final Analysis of Phase 2a ALS Study Showing Nearly All Subjects Experienced Clinical Benefit from NurOwn

BrainStorm Announces Final Analysis of Phase 2a ALS Study Showing Nearly All Subjects Experienced Clinical Benefit from NurOwn | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Autologous Stem Cell Therapy for neurodegenerative diseases such as ALS, using bone marrow-derived, neurotrophic factor-secreting mesenchymal stem cells.
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 3, 2015 4:27 PM
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USA - Project MinE | Make it Yours in 2015! A Cure for ALS/MND

USA - Project MinE | Make it Yours in 2015! A Cure for ALS/MND | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Through its Translational Research Advancing Therapies for ALS (TREAT ALS™) program, The ALS Association’s global research program has funded more …
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
December 19, 2014 3:41 AM
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Researchers develop new eye tracking technology that can assess impact of brain injury

Researchers develop new eye tracking technology that can assess impact of brain injury | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers at NYU Langone Medical Center have developed new technology that can assess the location and impact of a brain injury merely by tracking the eye movements of patients as they watch music videos for less than four minutes, according to a study published Friday on-line in the Journal of Neurosurgery.
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
December 19, 2014 3:21 AM
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Kevin Turner, leading plaintiff in NFL concussions lawsuit, battles ALS

Kevin Turner, leading plaintiff in NFL concussions lawsuit, battles ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Kevin Turner is a plaintiff in the massive lawsuit against the league but his condition is worsening by the day.
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December 10, 2014 3:18 PM
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Fund The Prize: Solve ALS Together

Fund The Prize: Solve ALS Together | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
FUND THE PRIZE! A competition using technology and open science to accelerate a cure for ALS.
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December 10, 2014 2:53 PM
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Ice Bucket star on ALS fight: 'I want to grow old with my wife'

Ice Bucket star on ALS fight: 'I want to grow old with my wife' | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
This month, hear from the newsmakers behind some of TODAY.com's biggest moments of the year in "2014 Voices," a special series of essays...
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December 3, 2014 3:35 PM
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It’s a girl - firefighter with ALS gives birth to Arabella Grace

It’s a girl - firefighter with ALS gives birth to Arabella Grace | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Shoreline Times is your source for all Shoreline region 24-hour breaking news, local news, sports, entertainment and more. View weather updates, watch videos and photos. Keep up with News and local Sports. Find restaurants, entertainment, cars, homes and jobs at Shoreline Times.
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November 26, 2014 12:04 AM
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Anthony Carbajal, ALS Ice Bucket Challenge Viral Star, Shares Touching Wedding Photos

Anthony Carbajal, ALS Ice Bucket Challenge Viral Star, Shares Touching Wedding Photos | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
See touching photos from Anthony Carbajal's (ALS ice bucket challenge viral star) wedding...
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Scooped by TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
November 20, 2014 8:07 AM
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A New ALS Medication: MicroNeurotrophins

A New ALS Medication: MicroNeurotrophins | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Help bring a promising ALS/MND medication to a Phase 1 Human Clinical Trial in just 12 to 18 months!
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January 27, 2015 4:51 PM
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TV anchor shares personal news in heartbreaking video: 'I have ALS'

TV anchor shares personal news in heartbreaking video: 'I have ALS' | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Larry Stogner, a retiring news anchor for an ABC affiliate in North Carolina, stunned viewers on Friday when he revealed he has ALS. "For...
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January 27, 2015 2:17 PM
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FDA January Approvals Bring New Parkinson's Therapies to U.S. Market | Michael J. Fox Foundation

FDA January Approvals Bring New Parkinson's Therapies to U.S. Market | Michael J. Fox Foundation | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
This past month the U.S. Food and Drug Administration (FDA) approved two new formulations of traditional Parkinson's therapy levodopa/carbidopa. Both therapies are designed to avoid "off" time in Parkinson's — when symptoms return before another dose of medication is due.
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January 16, 2015 8:26 PM
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Steve Gleason to Join Vitter as State of the Union Guest

U.S. Senator David Vitter (R-La.) today announced that Steve Gleason will join him as his guest to President Obama’s State of the Union address to Congress.
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January 8, 2015 3:26 AM
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Simi Valley couple write book about life with Lou Gehrig's disease | "One Blink at a Time"

Simi Valley couple write book about life with Lou Gehrig's disease | "One Blink at a Time" | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Sometimes it took two days to write one page of “One Blink at a Time,” a book about a Simi Valley man who has lived for 30 years with Lou Gehrig’s disease, according to Ismail and Cheryl Tsieprati, the authors who recently celebrated their 44th wedding anniversary.
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January 8, 2015 2:52 AM
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Finance assistant admits stealing £100,000 from MND Association in Northampton

Finance assistant admits stealing £100,000 from MND Association in Northampton | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A former finance assistant for The Motor Neurone Disease (MND) Association in Northampton has admitted stealing more than £100,000 from the charity.
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December 19, 2014 5:24 PM
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SENATE provides new incentives and opportunities to develop treatments for ALS.

SENATE provides new incentives and opportunities to develop treatments for ALS. | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Just before Congress adjourned for the year this week, Senators Michael Bennet (D-CO) and Orrin Hatch (R-UT) introduced the Senate version of the MODDERN Cures Act, legislation that would provide new incentives and opportunities to develop treatments for ALS.  Moreover, nearly 100 Representatives had cosponsored the House bill. These are significant milestones that not only indicate the legislation is gaining momentum, but also that Congress could take action on the bill early in 2015. 
    
Earlier this week, the President signed into law H.R. 83, the Consolidated and Further Continuing Appropriations Act, 2015, to fund the federal government through September 2015.  
 
As we reported in previous Advocacy Updates, the law provides $7,820,000 for the National ALS Registry in FY 2015, a more than 30% increase over last year! Additionally, the law includes $7,500,000 in continued funding for the ALS Research Program (ALSRP) at the Department of Defense.  The law provides $30 billion for the National Institutes of Health (NIH), $150 million more than last year, and specifically supports funding for ALS research.  Moreover, the law provides $1.6 billion for the National Institute of Neurological Disorders and Stroke (NINDS), which is $17 million more than last year. 
 
Thank you to everyone who reached out to Congress this year to make these and other successes possible!!!  

Happy Holidays!
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December 19, 2014 3:34 AM
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New Grants Will Address Unmet Needs in ALS Care - The ALS Association

New Grants Will Address Unmet Needs in ALS Care - The ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
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December 10, 2014 3:35 PM
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Ismail Tsieprati and His Wife Cheryl Tsieprati Publish Inspirational Memoir “One Blink at a Time”

Ismail Tsieprati and His Wife Cheryl Tsieprati Publish Inspirational Memoir “One Blink at a Time” | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Simi Valley, Calif., resident Ismail Tsieprati, who, along with his wife Cheryl, wrote “One Blink at a Time,” a book which will inspire people living with incurable, life-threateni
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December 10, 2014 3:07 PM
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Genes may play greater role in Lou Gehrig's disease

Genes may play greater role in Lou Gehrig's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In most cases of Lou Gehrig's disease, or amyotrophic lateral sclerosis (ALS), it's not known what caused the condition, but a new study finds genes may play a larger role than previously thought.
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December 3, 2014 4:25 PM
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ALS solution may come closer with Israeli-made app

ALS solution may come closer with Israeli-made app | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
After Ice Bucket Challenge, volunteers at Israel's SAP lab are hacking away at a big data project aimed at the dread disease
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December 3, 2014 3:32 PM
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Steve Gleason: "I have no intention of fading away"

Steve Gleason: "I have no intention of fading away" | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Steve Gleason may have lost his voice to ALS, but his message of hope and perseverance was heard loud and clear by players at his Alma mater, Washington State University, at the Apple Cup.
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November 20, 2014 8:25 AM
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Nancy Frates: Why my family started the ALS Ice Bucket Challenge. The rest is history - YouTube

When 27-year-old Pete Frates injured his wrist in a baseball game, he got an unexpected diagnosis: it wasn’t a broken bone, it was ALS. Better known as Lou G...
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