 Your new post is loading...
Your new post is loading...
Scoop.it!
Doctors who expected him to die five decades ago were way off. 
No comment yet.
Sign up to comment
Scoop.it!
DURHAM -- Duke University announced Thursday a major medical breakthrough in the fight against ALS.
Scoop.it!
Husbands and wives, parents and children, siblings and others are taking on the role of caregiver for family members who are unable to care for themselves due to disabilities, chronic health conditions or the challenges related to aging. In fact, more than 90 million caregivers – two out of five adults – are now providing that daily care, an increase of 30% since 2010.
Scoop.it!
It's a new Silicon Valley frontier: Just as marketing companies are mining your Internet browsing habits to design the killer ad, new technologies are allowing pharmaceutical companies like Genentech to mine our DNA to create the next generation of drugs.
Scoop.it!
Nancy Frates, co-founder of the ALS Ice Bucket Challenge, was in Mumbai to address the Nasscom Leadership Forum 2015, an annual summit, on ‘making ideas go viral’
Scoop.it!
From
ktla
A man stricken with ALS married his longtime girlfriend Friday in a special ceremony that was held at the San Diego-area nursing home where he is a patient. The staff at the Villa Pomerado facility...
Scoop.it!
The parents of ALS Ice Bucket Challenge pioneer Peter Frates admire their son's legacy.
Scoop.it!
Former linebacker Tim Shaw's courageous battle with ALS.
Scoop.it!
Join the fight against Amyotrophic Lateral Sclerosis (ALS).
Scoop.it!
When Daniel Berry pulled a muscle in his back it was the beginning of the end. But his death led to a discovery that may affect the health and future of everyone living around Portland.
Fed-hazmat-watchdog-OHA-reviewing-KATU-report-on-ALS-deaths-among-Intel Workers
Scoop.it!
Detroit Red Wings legend Gordie Howe has made such a dramatic recovery after having stem cell therapy in December in Tijuana, Mexico, that he's heading to Saskatchewan this weekend for a fund-raiser.
Scoop.it!
New England Patriots owner Robert Kraft personally invited Pete Frates and his wife to be his guests at the Super Bowl in Arizona, however they cannot attend.
Scoop.it!
Let's make a difference together! Please share, like, favorite & subscribe! Any & all donation to our family's medical & living expenses is insanely apprecia...
|
Scoop.it!
He wasn't at the Oscars on Sunday in Los Angeles, but Stephen Hawking let the world know Monday morning how proud he was of Eddie Redmayne.
Scoop.it!
Using advanced DNA sequencing methods, researchers have identified a new gene that is associated with sporadic amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease.
Scoop.it!
Scientists from the Florida campus of The Scripps Research Institute have for the first time discovered a killing mechanism that could underpin a range of the most intractable neurodegenerative diseases such as Alzheimer's, Parkinson's and ALS. The new study revealed the mechanism of toxicity of a misfolded form of the protein that underlies prion diseases, such as bovine spongiform encephalopathy ('mad cow disease') and its human equivalent, Creutzfeldt-Jakob disease.
Scoop.it!
|
|
Rescooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
from ALS Awareness
February 10, 2015 4:18 PM
|
Scoop.it!
Via CURE FOR ALS : Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.
Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.
When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.
Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath. I met my Goliath when I was diagnosed with ALS in January 2012. ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."
Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;
To find out more about the Emory ALS Center visit www.als.emory.edu.
Raise a Glass to Kick ALS’s Ass was a terrific party! Host Becky Kidd’s goal for the evening was to thank the Emory ALS Clinic team for their dedication to help her and others living with ALS manage the disease and appreciate every day. A crowd of 150 came out to the Famous Pub in Atlanta for the event. While fundraising wasn’t the main task of the evening, a raffle and donations resulted in nearly $4,000 being raised to benefit the Emory ALS Center.
Becky kicked off the evening by welcoming everyone and showing a thank you film that was a compilation of videos sent in by pALS (people with ALS) and friends. Comedian, James Rodatus was up next and had everyone laughing for the next 25 minutes. Also living with ALS, James quickly made all comfortable with realizing that humor plays a big part in life – even when life is hard. He is like many others I see living with ALS who keep a positive attitude and live life to the fullest each and every day.
When James completed his act, local band Secret Sauce took the stage for the first of three music sets. It didn’t take long for the dance floor to become full as the happy crowd got into the music from the 80’s, 90’s and today. Between sets, Dr. Jonathan Glass, Director of the Emory ALS Center, and Dr. Christina Fournier, Emory ALS Center Neurologist, drew the raffle winners and received well-deserved raised glass toasts from the attendees.
Becky shares, “We call ourselves team 5 Smooth Stones for the story of David & Goliath. I met my Goliath when I was diagnosed with ALS in January 2012. ALS is a part of my life, but I refuse to allow it become my life. Every day for all of us is a gift, an honor and opportunity to live with joy...ALS does not have to change that. We will live with Courage, Confidence, Preparation and Trust until Victory has been achieved."
Good friends of Becky’s are riding as Team 5 Smooth Stones in the Snake Gap Time Trials. The Snake Gap Time Trials is a time trial series event along the Pinhoti Trail through National Forest Lands in Dalton, GA. It takes place on January 3, February 3, and March 7, 2015. Team 5 Smooth Stones has been fundraising during the series in honor of Becky. With one more ride left in the series they are half way to their goal of raising $5,000 for the Emory ALS Center. If you would like to help them reach their goal, you can make a donation at www.crowdrise.com/5smoothstones. ;
To find out more about the Emory ALS Center visit www.als.emory.edu.
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 10, 2015 7:33 AM
|
Scoop.it!
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 9, 2015 6:09 PM
|
Scoop.it!
The Ice Bucket Challenge raised $115 million for the ALS Association last summer. A look at how those donations were used.
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 7, 2015 6:51 PM
|
Scoop.it!
A Norfolk man says he has insurance coverage for his wife who has ALS but can't get the benefits he needs.
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 7, 2015 5:43 PM
|
Scoop.it!
On Feb 5, 2015, the University of Pittsburgh announced the creation of the Live Like Lou Center for ALS Research. An O’Hara Township couple, Neil and Suzanne...
|
|
Rescooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
from Sustain Our Earth
February 5, 2015 4:47 PM
|
Scoop.it!
A device that measures movement and balance can effectively help assess and track the progression of Parkinson's disease, even when medications are used to reduce Parkinson's symptoms, UT Southwestern Medical Center research found.
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
February 1, 2015 2:38 PM
|
Scoop.it!
|
|
Scooped by
TEAM Mike Lopez Memorial Foundation |Find us on Twitter:@TEAMCUREALS
January 29, 2015 5:14 PM
|
Scoop.it!
Today Senator David Vitter (R-LA) introduced the Steve Gleason Act, legislation that will help preserve access to speech generating devices (SGDs) and eye tracking technology for people with ALS! U.S. Representative Cathy McMorris Rodgers (R-WA) will be introducing a companion bill in the House. We urge you to contact your Senators and Representative and ask them to cosponsor the Steve Gleason Act! A sample email that you can personalize and send is available in our Advocacy Action Center here.
