#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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March 7, 2013 8:43 PM
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ALS Assistive Technology|iPads open up new world for people with disabilities

ALS Assistive Technology|iPads open up new world for people with disabilities | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

ALS Assistive Technology Blog by Alisa Brownlee, ATP.

Email abrownlee@alsa-national.org.

 

This blog offers recent articles and web information on assistive technology--augmentative/alternative communication (AAC), computer access, and other electronic devices that can impact and improve the quality of life for people with ALS.

 

*Follow me on Twitter @alsassistivetec #AAC, #augcomm, #assistivetech #als #mnd #lougehrig's disease 

sophie leake's curator insight, March 8, 2013 5:44 AM

I think this is amazing people with disabilities can use ipads to help them learn and much more

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March 7, 2013 6:21 PM
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Maryland and Florida Scientists Win Sheila Essey Award for ALS Research -- American Academy of Neurology

Maryland and Florida Scientists Win Sheila Essey Award for ALS Research -- American Academy of Neurology | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The American Academy of Neurology and the ALS Association are awarding the 2013 Sheila Essey Award: An Award for ALS Research to Bryan Traynor, MD, with the National Institute on Aging in Bethesda, Md., and Rosa Rademakers, PhD, with the Mayo...
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March 6, 2013 6:01 PM
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Colonial Middle School raises money for Greater Philadelphia ALS Association

Colonial Middle School raises money for Greater Philadelphia ALS Association | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
PLYMOUTH — Donning handmade uniforms, more than 150 eighth-graders at Colonial Middle School tried to reach the Sweet 16 of the annual 4 on 4 for a Cure basketball tournament to raise money for the Greater Philadelphia Chapter of the ALS...
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March 5, 2013 5:11 PM
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GEN | News Highlights:Life Tech Gains Rights to Harvard’s Stem Cell Assays

GEN | News Highlights:Life Tech Gains Rights to Harvard’s Stem Cell Assays | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Life Technologies signed a research and license agreement with Harvard University under which the firm has acquired exclusive rights to develop a panel of characterization assays designed to rapidly evaluate human pluripotent stem (hPS) cells for...
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March 5, 2013 4:41 PM
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Nell Hardy: ALS gives me patience

Nell Hardy: ALS gives me patience | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A group of women met at my house two weekends ago for a silent retreat. They surrendered commitments, cell phones and schedules for six hours. Gingerly, each woman dipped a toe or fingertip in the quiet before immersing themselves in the silence.
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March 5, 2013 2:34 PM
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‘Junk’ DNA clue boosts hope for Parkinson’s treatment

‘Junk’ DNA clue boosts hope for Parkinson’s treatment | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
‘Junk’ DNA clue boosts hope for Parkinson’s treatment
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March 3, 2013 6:04 PM
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Researchers Funded by The ALS Association Find How Gene Mutations Cause ALS and Other Brain, Muscle & Bone Diseases

Researchers Funded by The ALS Association Find How Gene Mutations Cause ALS and Other Brain, Muscle & Bone Diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
/PRNewswire-USNewswire/ --  Researchers supported by The ALS Association have discovered how mutations in new amyotrophic lateral sclerosis (ALS) genes cause not only ALS but also other diseases of the brain, muscle and bone.
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February 27, 2013 4:09 PM
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We All Owe Dr.Glass l EMORY Univ. a Debt of Gratitude

We All Owe Dr.Glass l EMORY Univ. a Debt of Gratitude | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Neuralstem is developing neural stem cell therapy and pharmaceuticals for the treatment of diseases and conditions of the CNS, including ALS, chronic spinal cord injury, chronic stroke, major depression…...
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February 26, 2013 7:41 PM
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Allman Brothers Band Guitarist Dies From ALS: What Is It?| Thank You Huff Post for SHARING ALS AWARENESS!

Allman Brothers Band Guitarist Dies From ALS: What Is It?| Thank You Huff Post for SHARING ALS AWARENESS! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dan Toler, who played guitar in the Allman Brothers Band, has passed away from amyotrophic lateral sclerosis, according to news reports. He was 65.
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February 25, 2013 9:36 PM
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Former Allman Brothers band member dies in Florida of ALS | Lou Gehrigs Disease

Former Allman Brothers band member dies in Florida of ALS | Lou Gehrigs Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Former Allman Brothers Band guitarist Dan Toler has died following a two-year battle with amyotrophic lateral sclerosis, otherwise known as ALS or Lou Gehrig's disease. He was 65.
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February 24, 2013 8:06 AM
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Montgomery, Alabama Citizens Give Record Level Of Support For Local Hero Kevin Turner

Montgomery, Alabama Citizens Give Record Level Of Support For Local Hero Kevin Turner | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Montgomery, Alabama Citizens Give Record Level Of Support For Local Hero Kevin Turner.
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February 21, 2013 3:32 PM
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Statement on Results of Recent Cogane Clinical Trial for Parkinson's

Statement on Results of Recent Cogane Clinical Trial for Parkinson's | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The manufacturer Phytopharm has announced that a clinical study of CoganeTM, an experimental treatment being tested for use in early Parkinson's disease, has been unsuccessful....................

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February 20, 2013 6:30 PM
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Apple launches dedicated ‘Apps for Healthcare Professionals’ collection

Apple launches dedicated ‘Apps for Healthcare Professionals’ collection | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Apple launches dedicated 'Apps for Healthcare Professionals' collection
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March 7, 2013 8:30 PM
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Biogen Asked in Suit to Return ALS Biosamples to Knopp

Biogen Asked in Suit to Return ALS Biosamples to Knopp | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Knopp Neurosciences Inc. asked a federal judge to order Biogen Idec Inc., its partner in a failed attempt to develop a drug for Lou Gehrig’s disease, to turn over to Knopp biosamples from patient tests.
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March 7, 2013 5:52 PM
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ALS Crisis Of Conscience At FDA Spells Opportunity For Neuralstem, Brainstorm

ALS Crisis Of Conscience At FDA Spells Opportunity For Neuralstem, Brainstorm | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Ted Harada became something of a mini celebrity back in March 2011 when he became the final patient of 15 in a phase I trial for NSI-566, Neuralstem's (CUR) flagship experimental ALS stem cell treatment.
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March 5, 2013 5:15 PM
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Devices aim to deliver on stem-cell therapies

Devices aim to deliver on stem-cell therapies | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Bendable needle increases reach of a single injection to the brain.

 

Several laboratories are investigating ways to treat neurological diseases by injecting cells into patients’ brains, and clinical trials are being conducted for Parkinson’s disease, stroke and other neurodegenerative diseases. These studies follow experiments showing dramatic improvements

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March 5, 2013 4:47 PM
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New Effort to Identify Parkinson’s Biomarkers

New Effort to Identify Parkinson’s Biomarkers | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 Last month, the National Institutes of Health announced a new collaborative initiative that aims to accelerate the search for biomarkers -- changes in the body that can be used to predict, diagnose ormonitor a disease -- in Parkinson's disease, in part by improving collaboration among researchers and helping patients get involved in clinical studies. As part of this program, launched by theNational Institute of Neurological Disorders and Stroke (NINDS), part of the NIH, Clemens Scherzer, MD, a neurologist and researcher at Brigham and Women's Hospital (BWH), was awarded $2.6.......

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March 5, 2013 4:27 PM
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Free downloadable letterboards and eye gaze boards. Never be without an easy way to communicate

Free downloadable letterboards and eye gaze boards.  Never be without an easy way to communicate | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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March 4, 2013 6:13 PM
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Positive results from NeuroDerm ND0612 Phase I trial on Parkinson's

Positive results from NeuroDerm ND0612 Phase I trial on Parkinson's | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
NeuroDerm, Ltd. announced today the results of a Phase I safety and pharmacokinetic trial of ND0612, a novel drug formulation for the treatment of Parkinson's disease.
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February 28, 2013 6:37 PM
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Available-FDA- ALS-Lou Gehrigs Disease Public Hearing Webcast of Meeting

Available-FDA- ALS-Lou Gehrigs Disease Public Hearing Webcast of Meeting | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Webcast of the Meeting Now Available:

http://www.fda.gov/Drugs/NewsEvents/ucm339833.htm

 

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February 26, 2013 11:03 PM
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White House Grants Aaron Swartz's Wish, In Part | Making federally-funded research freely available to the public

White House Grants Aaron Swartz's Wish, In Part | Making federally-funded research freely available to the public | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The White House directed federal agencies on Friday to make the results of federally-funded research freely available to the public within one year of publication. The new policy came after more than 65,000 people signed a petition asking for expanded public access to the results of studies paid for by taxpayers.

"Americans should have easy access to the results of research they help support," John P. Holdren, the president's senior advisor on science and technology, said in a memo announcing the new open-access policy. 

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February 26, 2013 10:03 AM
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ALS Patients Needed to test Biomarker Device

ALS Patients Needed to test Biomarker Device | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

ALS Patients Needed to test Biomarker Device

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February 25, 2013 9:25 PM
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RWJF Awards $1.9 Million Grant to PatientsLikeMe

RWJF Awards $1.9 Million Grant to PatientsLikeMe | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.
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February 23, 2013 2:12 PM
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Google Glasses l Wearable Computer l 2013 Consumer Release, Price Tag Under $1,500 l

Google Glasses l Wearable Computer l 2013 Consumer Release, Price Tag Under $1,500 l | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Google seems to be looking to bring its ambitious Google Glass wearable computer to market much faster than many likely anticipated, according to......
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February 21, 2013 3:25 AM
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Sarah Ezekiel | Inspire Me Today | Enjoy Life!

Sarah  Ezekiel | Inspire Me Today | Enjoy Life! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

If I could share 500 words of wisdom to summarize what I've learned so far in life, these are the important things I'd want to pass along to others...

Imagine being told that your life is going to end very soon. Then imagine being told that before you die you are going to become progressively disabled.

This is what I was confronted with ten years ago. This is not the type of news that most people will ever have to deal with, thankfully. But everyone will be challenged in their lives at some point,

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