#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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March 21, 2014 9:12 PM
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Scientists Create Humanized Model of Sporadic ALS : Neurology Today

Scientists Create Humanized Model of Sporadic ALS : Neurology Today | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Investigators were able to use astrocytes grown from amyotrophic lateral sclerosis (ALS) patients' post-mortem cerebral cortex and/or spinal cord samples and human embryonic stem cell-derived motor neurons to create a novel model for sporadic ALS. The technique......

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March 20, 2014 5:38 PM
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Cook & Duffy: Emory ALS Center & Cure for ALS

1/31/14 Sports Journalist, Karon Cook hosts Legacy Leaders Radio with guests Karen Duffy (Cure for ALS) and Steve King (Community Health Foundation). Karen talks…

Via Cure for ALS
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March 19, 2014 5:46 PM
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26 Year Old RIVERSIDE: Police officer dies from Lou Gehrig’s disease

26 Year Old RIVERSIDE: Police officer dies from Lou Gehrig’s disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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March 18, 2014 3:27 AM
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Wedding Photographer Diagnosed with ALS and Needs Our Help

Wedding Photographer Diagnosed with ALS and Needs Our Help | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Wedding photographer, Anthony Carbajal was recently diagnosed with ALS. He has been forced to cancel 26 weddings and is facing mounting medical bills being no longer able to work. He needs our help.


For Anthony, With Love | YouCaring.com Fund

Link: 

http://www.youcaring.com/medical-fundraiser/for-anthony-with-love/133001

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March 17, 2014 4:53 PM
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Final Results Of Neuralstem Phase I Stem Cell Trial In ALS-Lou GehrigsDisease Published In Annals of Neurology

Final Results Of Neuralstem Phase I Stem Cell Trial In ALS-Lou GehrigsDisease Published In Annals of Neurology | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The US Food and Drug Administration–approved trial, “A Phase 1, Open-Label, First-in-Human, Feasibility and Safety Study of Human Spinal Cord-Derived Neural Stem Cell Transplantation for the Treatment of Amyotrophic Lateral Sclerosis, Protocol Number: NS2008-1,” is complete. Our overall objective was to .............

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March 16, 2014 11:23 AM
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AM General relaunches MV-1 production l Could help thousands of disabled

AM General relaunches MV-1 production l Could help thousands of disabled | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A big announcement came from AM General on Tuesday – They're re-launching a vehicle that's been in the works for years. It's the first of its kind – One that could help thousands of disabled people and their families.
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March 15, 2014 7:26 PM
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Stem cell therapy improves Parkinson's symptoms in monkeys

Stem cell therapy improves Parkinson's symptoms in monkeys | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
International Stem Cell Corp. is inching closer to bringing its stem cell therapy for Parkinson's to the FDA in hopes of eventually reversing the disease's symptoms in people.
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March 14, 2014 6:41 AM
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Learn How Pet Dogs Are Helping Fight Lou Gehrig’s Disease

Learn How Pet Dogs Are Helping Fight Lou Gehrig’s Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dr. Ann Hohenhaus explains how research into Lou Gehrig's disease is being supported by studies of its canine counterpart, degenerative myelopathy. Read more.
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March 12, 2014 7:38 AM
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Scientist who created STAP stem cells says studies should be withdrawn

Scientist who created STAP stem cells says studies should be withdrawn | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A number of scientists have been grumbling for weeks about a pair of breakthrough stem cell studies that seemed too good to be true. Now one of the senior researchers who worked on the papers agrees that they may be right.
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March 11, 2014 6:08 PM
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ALS is on the rise and it's targeting people who are younger

ALS is on the rise and it's targeting people who are younger | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Doctors still don't understand the devastating disease, but they are making some real progress
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March 9, 2014 1:01 PM
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Inspire to Learn : Stem Cell Therapy : Medicine

Inspire to Learn : Stem Cell Therapy : Medicine | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Stem cells are cells of the body (somatic cells, undifferentiated biological cells) which can divide and become differentiated. When an organism grows, stem cells specialize, and take specific func...
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March 7, 2014 9:47 PM
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Tax code overhaul prioritizes government savings over saving lives

Tax code overhaul prioritizes government savings over saving lives | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The draft tax reform proposal would eliminate incentives for drug manufacturers to develop therapies to treat and cure the more than 7,000 rare diseases afflicting more than 30 million Americans.
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March 7, 2014 6:24 AM
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Ultra-high-field MRI may allow earlier diagnosis of Parkinson’s disease

Ultra-high-field MRI may allow earlier diagnosis of Parkinson’s disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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March 21, 2014 10:00 PM
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Open Letter to the ALS Community in Georgia

Open Letter to the ALS Community in Georgia | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Cure for ALS's insight:

Dear Friends,

In 43 days, our family (affectionately known as “Team Duffy”) will go into team mode and host our 8th annual road race for ALS. The FIESTA 5k/15k Challenge is Saturday, May 3, 2014 in Cumming, GA on the campus of Lanier Technical College. Since our first race in 2007, we have donated 100% of the proceeds from this event to the Emory ALS Center, a place where many of you or your loved ones have been cared for and possibly participated in a clinical trial for ALS.

 

When we began planning our first event, we made a conscious choice to have it in the spring instead of the fall so supporters of ALS would not have to choose between the Walk to Defeat ALS in Atlanta, the Night of Hope Gala, or our event. Since May is ALS Awareness Month we hold the FIESTA 5k/15k Challenge on the first Saturday in May each year to kick off the month-long campaign of awareness and advocacy.

 

The team at the Emory ALS Center has 400+ active patients whom they are caring for and working with in the various trials and studies. The needs to continue the work of this amazing group of people are large and the success of this event is critical to help them.

 

WE NEED YOUR HELP! The ALS community in Georgia is a close-knit group and I am asking for your help in one (or more!) of the following areas:

Tell someone you know about the FIESTA 5k/15k Challenge!Invite your friends or family members to register to run, walk, or come and cheer for our participants. You can link to registration at www.FiestaRunGA.com .Register for the first time and join us for a morning where we “Celebrate Life…Imagine a Cure.”Donate $5, $10, $20 to one of our fundraising teams or to the event itself.http://www.crowdrise.com/fiesta5k15kchallengeforals2014Create a fundraising team of your own.Make this the year that you support this event if you have not done so in the past.

 

I promise you will be uplifted by our generous sponsors who come back year after year, the distance runners in the 15k race who will ‘wow’ you with their perseverance, the 5k runners and walkers who push themselves to reach a new goal or who are out there in support of a beloved pALS. You will smile as the Fun Run participants race around campus and finish with a big grin, and the music and energy of the morning will be the best start to your day – and to ALS Awareness Month.

 

With your help, we will reach our fundraising goal, and this will be the biggest and best race in our eight year history.

 

On behalf of Team Duffy – thank you,

Karen Duffy

www.CureForALS.com


Via Cure for ALS
Cure for ALS's curator insight, March 21, 2014 2:10 PM

Dear Friends,

In 43 days, our family (affectionately known as “Team Duffy”) will go into team mode and host our 8th annual road race for ALS. The FIESTA 5k/15k Challenge is Saturday, May 3, 2014 in Cumming, GA on the campus of Lanier Technical College. Since our first race in 2007, we have donated 100% of the proceeds from this event to the Emory ALS Center, a place where many of you or your loved ones have been cared for and possibly participated in a clinical trial for ALS.

 

When we began planning our first event, we made a conscious choice to have it in the spring instead of the fall so supporters of ALS would not have to choose between the Walk to Defeat ALS in Atlanta, the Night of Hope Gala, or our event. Since May is ALS Awareness Month we hold the FIESTA 5k/15k Challenge on the first Saturday in May each year to kick off the month-long campaign of awareness and advocacy.

 

The team at the Emory ALS Center has 400+ active patients whom they are caring for and working with in the various trials and studies. The needs to continue the work of this amazing group of people are large and the success of this event is critical to help them.

 

WE NEED YOUR HELP! The ALS community in Georgia is a close-knit group and I am asking for your help in one (or more!) of the following areas:

Tell someone you know about the FIESTA 5k/15k Challenge!Invite your friends or family members to register to run, walk, or come and cheer for our participants. You can link to registration at www.FiestaRunGA.com .Register for the first time and join us for a morning where we “Celebrate Life…Imagine a Cure.”Donate $5, $10, $20 to one of our fundraising teams or to the event itself. http://www.crowdrise.com/fiesta5k15kchallengeforals2014Create a fundraising team of your own.Make this the year that you support this event if you have not done so in the past.

 

I promise you will be uplifted by our generous sponsors who come back year after year, the distance runners in the 15k race who will ‘wow’ you with their perseverance, the 5k runners and walkers who push themselves to reach a new goal or who are out there in support of a beloved pALS. You will smile as the Fun Run participants race around campus and finish with a big grin, and the music and energy of the morning will be the best start to your day – and to ALS Awareness Month.

 

With your help, we will reach our fundraising goal, and this will be the biggest and best race in our eight year history.

 

On behalf of Team Duffy – thank you,

Karen Duffy

www.CureForALS.com

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March 19, 2014 5:53 PM
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Experimental stroke therapeutic developed at Keck Medicine of USC shows promise for people with Lou Gehrig’s disease (ALS)

Experimental stroke therapeutic developed at Keck Medicine of USC shows promise for people with Lou Gehrig’s disease (ALS) | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Fluorescent image shows cells of the neurovascular unit in the mouse spinal cord, which consists of motor neurons (green) and blood vessels containing
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March 19, 2014 12:05 PM
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Actor Kevin James- King of Queens joins Orlando Walk to Defeat ALS

Actor Kevin James- King of Queens joins Orlando Walk to Defeat ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
King of Queens actor and comedian Kevin James joined the Orlando Walk to Defeat ALS at Lake Eola Park in downtown Orlando, Florida
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March 17, 2014 11:51 PM
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Dogs Go to Bat Against Lou Gehrig’s Disease

Dogs Go to Bat Against Lou Gehrig’s Disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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March 16, 2014 11:32 AM
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Vote for Kent Nolen - Pevely, MO in the 2014 National Mobility Awareness Month Local Hero contest!

Vote for Kent Nolen - Pevely, MO in the 2014 National Mobility Awareness Month Local Hero contest! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Everyone has a story to tell. Help us spread the word of National Mobility Awareness Month and the opportunity for Local Heroes to win a Free 2014 wheelchair accessible vehicle.
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March 16, 2014 9:27 AM
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Friends give aid as ALS takes its toll

Friends give aid as ALS takes its toll | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
They are Hollister Lindley’s friends. They come alone, in pairs or, sometimes, in larger groups to visit and support Lindley, who was diagnosed in fall 2011 with amyotrophic lateral sclerosis, or ALS. Some friends come weekly or more often; others come less often and there are some who can only visit once or twice a year. They also call, email and text. 
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March 14, 2014 11:17 PM
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Breakthroughs on the Horizon for CTE and Other Neurodegenerative Diseases

Breakthroughs on the Horizon for CTE and Other Neurodegenerative Diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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March 14, 2014 12:52 AM
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Weight-Gain Diet Safe for ALS Patients

Weight-Gain Diet Safe for ALS Patients | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Patients with ALS sometimes consume a high-calorie diet to gain weight and body mass. A recent study investigated...
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March 11, 2014 8:59 PM
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NeuroDerm enrolls patients in second ND0612 Phase II clinical trial for treatment of Parkinson's disease

NeuroDerm enrolls patients in second ND0612 Phase II clinical trial for treatment of Parkinson's disease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
NeuroDerm, Ltd. announced today that enrollment of patients is ongoing in its second Phase II clinical trial of ND0612, a novel drug formulation for the treatment of Parkinson's disease. ND0612 is a proprietary levodopa/carbidopa liquid formulation under development for continuous subcutaneous administration through a patch pump. It is designed to provide steady levodopa blood levels for the treatment of Parkinson's disease.
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March 9, 2014 4:22 PM
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ALS Love Letters

ALS Love Letters | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

About ALS Love Letters

ALS Love Letters is a creation of the ALS Association Florida Chapter. It’s been seventy-five years since Lou Gehrig said goodbye to baseball—and seventy-three years since ALS took his life—but there’s still no cure. Someone being diagnosed with ALS today would have the same chance of survival Lou had when he was diagnosed. Help us find a cure. Send a Love Letter so more people will know about ALS. With your help, we can strike out Lou Gehrig’s disease.         
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March 9, 2014 12:48 PM
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More vets suffer from ALS, but the VA moves effectively to help

More vets suffer from ALS, but the VA moves effectively to help | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
No one is yet certain why military veterans are twice as likely to develop amyotrophic lateral sclerosis, known as Lou Gehrig’s disease, than the general population. But the Department of Defense and the VA get high marks for trying to reduce the suffering.
Traci Adams Bisson's curator insight, March 12, 2014 1:26 PM
More vets suffer from ALS, but the VA moves effectively to help
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March 7, 2014 6:42 AM
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Dying man denied Medicare due to encoding error

Dying man denied Medicare due to encoding error | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Robert Ferrara has Lou Gehrig's disease. He is having trouble getting Social Security to cover his Medicare coverage.
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