7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK
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7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK
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De la production à la réutilisation des données de santé, une histoire de réseau

De la production à la réutilisation des données de santé, une histoire de réseau | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Pour permettre le plein potentiel d'exploitation du patrimoine collectif des données de santé, il est nécessaire de relever des défis réglementaires, techniques et organisationnels de façon coordonnée et concertée.

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Données de santé incomplètes - Sur la liste de souhaits: une biobanque sur mesure pour la Suisse - Actualités

Données de santé incomplètes - Sur la liste de souhaits: une biobanque sur mesure pour la Suisse - Actualités | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
2023-12-24 23:35:17 Contenu Les projets d’une biobanque suisse basée sur le modèle britannique sont bien avancés. L’étude coûterait 100 millions de francs. Nicole Probst-Hensch mène des recherches à l’Institut suisse de santé publique et tropicale (Swiss TPH) à Allschwil, dans la région bâloise.

Via Emmanuel Capitaine
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Partage des données de santé : ce qui inquiète les médecins 

Partage des données de santé : ce qui inquiète les médecins  | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

Le GRAS (Groupe de Recherche et d’Action pour la Santé asbl), la FAGC (Fédération des Associations de médecins Généralistes de Charleroi) et la SMC (Société de Médecine de Charleroi) viennent d’organiser un débat intitulé "Les médecins , encodeurs des GAFAM ? ". Le tableau dressé ne semble pas rassurant, ni pour les médecins, ni pour les patients.


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Le CEPS "inquiet" sur la qualité, la représentativité et l'opposabilité des données en vie réelle - TICpharma

TICpharma.com est un site d'informations sur la transformation digitale des industries de sant�.

Via Rémy TESTON
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Espace européen des données de santé : les assureurs font les yeux doux à Bruxelles pour avoir accès aux données

Espace européen des données de santé : les assureurs font les yeux doux à Bruxelles pour avoir accès aux données | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

Les assureurs, représentés par la fédération Insurance Europe, regrettent que la proposition de règlement établissant un Espace européen...-Données personnelles

Via Gabriel David
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Google met à disposition une carte mondiale de surveillance des pollens

Google met à disposition une carte mondiale de surveillance des pollens | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Google a annoncé la mise à disposition un outil de mesure permettant de connaître les types de pollens et leur concentration près de chez soi.

Via Emmanuel Capitaine
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Les hackers nord-coréens de Lazarus se seraient attaqués à des organismes de santé

Les hackers nord-coréens de Lazarus se seraient attaqués à des organismes de santé | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

Des chercheurs de Cisco Talos ont découvert de nouvelles attaques des pirates opérant pour le compte du régime de Kim Jong-un. Les hackers de...-Cybersécurité

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Le Health Data Hub poussé à communiquer son benchmark

Le Health Data Hub poussé à communiquer son benchmark | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Le député Philippe Latombe a obtenu que le Health Data Hub lui communique - en partie - son comparatif de fournisseurs d'hébergement.
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Le piratage MOVEit fait 1,7 million de victimes à l’Oregon !

Le piratage MOVEit fait 1,7 million de victimes à l’Oregon ! | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Dans le cadre de l’attaque massive de piratage relative à l’outil populaire de transfert de fichiers d’entreprise MOVEit Transfer, les pirates ont accédé aux données de santé confidentielles de 1,7 million de citoyens de l’Oregon. Les victimes se prononcent et la liste pourrait s’allonger avec la poursuite des sondages. De grandes structures touchées Dans un avis
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Good practices for clinical data warehouse implementation: A case study in France | PLOS Digital Health

Good practices for clinical data warehouse implementation: A case study in France | PLOS Digital Health | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Author summary Reusing routine care data does not come free of charges. Attention must be paid to the entire life cycle of the data to create robust knowledge and develop innovation. Building upon the first overview of CDWs in France, we document key aspects of the collection and organization of routine care data into homogeneous databases: governance, transparency, types of data, data reuse main objectives, technical tools, documentation, and data quality control processes. The landscape of CDWs in France dates from 2011 and accelerated in the late 2020, showing a progressive but still incomplete homogenization. National and European projects are emerging, supporting local initiatives in standardization, methodological work, and tooling. From this sample of CDWs, we draw general recommendations aimed at consolidating the potential of routine care data to improve healthcare. Particular attention must be paid to the sustainability of the warehouse teams and to the multilevel governance. The transparency of the data transformation tools and studies must improve to allow successful multicentric data reuses as well as innovations for the patient.
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Patient Data Access is Insufficient for 60% of Healthcare Consumers

A new survey shows that most consumers want health systems to provide them with timely access to their medical records, but nearly three-fifths lack immediate patient data access.
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ELSAN autorisé par la CNIL à constituer le premier entrepôt de données de santé hospitalier d’envergure nationale

ELSAN, groupe leader de l’hospitalisation privée en France, est autorisé par la CNIL à constituer un entrepôt de données de santé, réunissant les données de santé provenant de son réseau national de 140 établissements de santé. La constitution de cet entrepôt permettra d’améliorer la pris
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Healthcare Data Breaches Obstruct Digital Transformation

Healthcare Data Breaches Obstruct Digital Transformation | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
After a United Health Group subsidiary was hit with a cyberattack, evidence shows the industry’s transformation is having a positive impact.

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Cyberattaque données de santé : pour 33 millions d'assurés..

Cyberattaque données de santé : pour 33 millions d'assurés.. | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Il est évoqué l'attaque cyber auprès des serveurs de Viamedis et Almerys, deux opérateurs qui assurent la gestion du tiers payant des assureurs santé en France...

Via Emmanuel Capitaine
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L'espace européen de données de santé prend doucement forme 

L'espace européen de données de santé prend doucement forme  | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Les patients européens bénéficieront bientôt d'un espace unifié de données de santé. Le Parlement européen a adopté mercredi la position de principe qu'il défendra lors des négociations avec les Etats membres. L'objectif de ce système est de permettre aux patients de mieux contrôler leurs données médicales et de les rendre accessibles à travers l'UE.

Via Philippe Marchal
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L'agence américaine CISA publie son Guide de mitigation des vulnérabilités pour le secteur de la santé

L'agence américaine CISA publie son Guide de mitigation des vulnérabilités pour le secteur de la santé | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
L'Agence de cybersécurité et de sécurité des infrastructures (CISA) propose un guide pour combattre les menaces cybernétiques affectant le secteur de la santé.

Via Emmanuel Capitaine
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Le NHS confie à Palantir la gestion de données de santé : un choix controversé

Le NHS confie à Palantir la gestion de données de santé : un choix controversé | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
La société américaine Palantir a remporté un contrat avec le NHS pour mettre en place un nouveau système d'échange de données de santé.
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The Data Tsunami is Here—And it’s Time for “Smart” Views of Clinical Data Telemedicine

The Data Tsunami is Here—And it’s Time for “Smart” Views of Clinical Data Telemedicine | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Med City News A few years ago, some colleagues and I were discussing the implications of the “post-EHR” world, where everyone has electronic health records and, with the pending mandates of the 21st Century Cures Act, systems would soon be required to share data. This discussion arose from the ongoing issue that clinicians still struggle to find clinically relevant information in a patient’s medical record. We recognized that before the industry can address the problem of finding clinically relevant information in the overwhelming amount of incoming data, we needed to tackle the fact that current “legacy” EHRs pose challenges in finding relevant clinical information within their own systems. Effectively, users were digging through dumpsters to find data. While users have access to a problem list, medication list, lab orders and results, physician and nursing notes, and other information in various formats, a considerable portion of the data remains in free-text notes. This forces users to navigate to a separate section of a chart to find items in a specific domain. As a result, users waste excessive time searching for items that are clinically relevant to a specific problem. Most current EHRs lack the capacity to provide a holistic view for a particular clinical condition. The second wave arrives Fast-forward to the present, where data sharing and penalties for information blocking are increasing and EHR companies must release more data into the marketplace. Dumpster diving for data is now a reality. Now, let’s consider the “second wave” – the influx of information from the new and upcoming generations of wearables. The new Apple Watch “ultra” is expected to feature a transdermal glucose monitor, enabling users to continually monitor their glucose levels. Additionally, there are already devices that enable users to take clinical-grade, 6-lead EKGs at home and send the results to their cardiologists as a PDF. These examples merely scratch the surface of the volume of new data available, with more to come. However, is all this data connected? Is it diagnostically relevant? Can clinicians effectively find specific data points they need among the overwhelming amount of information they are receiving for managing a particular condition? A clinician may want to view data related to a patient’s heart arrhythmia without the noise of other unrelated data. Yet, this new data exists, and more is on its way, requiring a destination for storage. Let’s consider the pending glucose monitoring capability. While many individuals manage their diabetes independently, how can clinicians aggregate thousands of data points? How can they organize and connect all this data clinically? Intelligent viewers and structure data Clinicians need an intelligent viewer that can convert unstructured data into structured data and then slice and dice it to suit their needs. They require a smart view that can not only sift through, sort, and categorize the influx of data but also comprehend the patient’s condition. Ultimately, regardless of the EHR or data origin, clinicians need a universal tool to derive value from the data at the point of care. These tools must be compatible with legacy EHRs, as they won’t disappear anytime soon. Given the increasing requirements for data and outcome reporting, such as electronic clinical quality measures (eCQMs) and the management of Medicare Advantage patients using hierarchical condition codes (HCCs), legacy EHRs often rely on “curation.” This involves utilizing a mix of terminologies and code sets originally designed to meet billing and transaction requirements from the last century. These systems do offer a coded problem list in either ICD-10-CM or SNOMED, laboratory data often coded to CPT or LOINC, and medication lists coded to RxNorm. Unfortunately, all these codes and terminologies typically exist in separate sections of the EHR, possess different formats and data schemas, and are not designed to work together to support clinicians at the point of care. Consequently, more dumpster diving for data is necessary. Aggregate, organize, connect As technology continues to advance and the collection of health data grows exponentially, the need for efficient and effective tools to navigate and make sense of this vast amount of information becomes increasingly apparent. Clinicians are faced with the challenge of locating specific data points that are relevant to their patients’ conditions among the overwhelming quantity of incoming data. The limitations of current EHR systems compound this issue, as they often lack the capacity to provide a comprehensive view of a patient’s clinical condition. The emergence of new capabilities on wearable devices, and the resulting data, will exacerbate the situation. While these advancements offer valuable insights, the question of data connectivity and diagnostic relevance remains. Clinicians must adapt to this influx of information and find ways to effectively aggregate, organize, and connect the data in order to make informed clinical decisions. To address these challenges, there is a pressing need for intelligent viewers that can convert unstructured data into structured formats and offer the ability to analyze and interpret the data according to specific clinical requirements. These tools should be capable of sifting through the data, sorting it, categorizing it, and comprehending the patient’s condition. While legacy EHRs have made strides in offering coded data, they often face limitations in terms of data organization and interoperability. Clinicians are left to hunt through the EHR to find the relevant information they need. This underscores the need for unified platforms that can seamlessly integrate diverse terminologies, coding systems, and data schemas to support clinicians at the point of care. The healthcare industry must prioritize the development and implementation of universal tools that can efficiently navigate, interpret, and derive value from the growing wealth of health data. By doing so, clinicians can effectively leverage data at the point of care, ultimately improving patient outcomes and advancing the field of medicine as a whole. The healthcare industry must prioritize universal tools in healthcare to handle the escalating health data. Clinicians’ struggle with finding relevant information in electronic health records (EHRs) and the challenges posed by existing “legacy” EHRs, prompting a metaphorical “dumpster diving” for data. The discussion extends to the complexities of the “second wave” of data from wearables, questioning its connectivity and diagnostic relevance. The need for intelligent viewers is emphasized to convert unstructured data, enabling clinicians to comprehend and navigate diverse data sources. Legacy EHR limitations are acknowledged, necessitating tools compatible with these systems. The article emphasizes the increasing importance of efficient tools as technology advances, aiming to empower clinicians in making informed decisions at the point of care. Ultimately, the goal is to improve patient outcomes and advance the field of medicine through the effective leverage of health data.

Via Emmanuel Capitaine
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Réponse aux cyberattaques : gros plan sur le Cert Santé

Réponse aux cyberattaques : gros plan sur le Cert Santé | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Equipe d'intervention numérique d'urgence pour les établissements et services sanitaires et médicosociaux...

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Cyberattaque au CHU de Brest : le pire a pu être évité

Cyberattaque au CHU de Brest : le pire a pu être évité | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Cyberattaque au CHU de Brest : le pire a pu être évité - C’est bien la réactivité des équipes qui a permis de contrer la cyberattaque dont le CHU de Brest a été la cible, le 9 mars dernier…
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Average cost of healthcare data breach reaches $11M, report finds

Average cost of healthcare data breach reaches $11M, report finds | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Healthcare continues to be the most expensive industry for data breaches, with costs increasing 53% since 2020.
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Usage des données de santé hospitalières pour la recherche en santé publique : le Healthcare Data Institute dévoile 32 recommandations pratiques

Usage des données de santé hospitalières pour la recherche en santé publique : le Healthcare Data Institute dévoile 32 recommandations pratiques | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Les systèmes de santé produisent de plus en plus de données et les exigences concernant leur usage augmentent proportionnellement aux besoins de santé publique. Malgré une politique publique française volontariste, et un consensus sur l’utilité de l’exploitation des données de santé pour l
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Données numériques de santé : quels enjeux pour quel progrès médical ?

Données numériques de santé : quels enjeux pour quel progrès médical ? | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Les données numériques en matière de santé ont connu récemment un développement exponentiel. Protection des données personnelles, exploitation de ces données par les professionnels de santé ou par des systèmes d'intelligence artificielle, développement du dossier médical partagé et de l'espace numérique de santé… les enjeux sont multiples. |
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Cinq ans après le RGPD, quelles protections pour les données de santé ? 

Cinq ans après le RGPD, quelles protections pour les données de santé ?  | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Le 25 mai 2018, le Règlement européen sur la protection des données (RGPD) entrait en vigueur avec un triple objectif : renforcer les droits des personnes, responsabiliser les acteurs traitant les données et crédibiliser la régulation des données. Ce texte a notamment permis de donner un cadre réglementaire à la donnée de santé (définition, caractère personnel, utilisation secondaire). En effet, l'essor de la digitalisation dans le monde de la santé a rendu nécessaire une protection accrue de ces données particulièrement sensibles. Cinq ans après l’entrée en vigueur du RGPD, le Dr. Nesrine Benyahia, docteure en droit de la santé et des nouvelles technologies revient pour l'Institut Montaigne sur les enjeux de la protection des données de santé. 
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Gamifying medical data labeling to advance AI

Gamifying medical data labeling to advance AI | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it
Centaur Labs, founded by MIT alumnus Erik Duhaime, is gamifying medical data labeling with an app called DiagnosUs, which challenges medical professionals to label data for small cash prizes, to advance AI.
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