PHARMA-FREE ADVOCACY GROUPS: the list of health advocacy and consumer groups that take no funding from pharmaceutical
This is a list of health advocacy and consumer groups in the U.S. and Canada that take no funding from pharmaceutical, medical device, or biotech companies. The voices of independent groups that truly represent patients and consumers are drowned out by the thousands of groups that take money from industry and push industry viewpoints – or stay silent on drug safety, drug costs, and other issues vital to patients. This list is meant to be a resource for media and consumers who want to listen to – and support – independent groups whose opinions are not swayed by industry.
To learn more about pharma-funded advocacy groups, please read some of our articles on how pharma-funded groups negatively affect healthcare. For an in-depth analysis of the effect of industry funding of breast cancer groups, check out Health Advocacy, Inc.
- Direct-to-consumer Marketing to People with Hemophilia
- The Score is Even
- EpiPen Furor: Patient Groups Take Money, Stay Mum
- The Drug that Cried "Feminism"
- Breast cancer awareness also includes who's paying for campaigns
Want to be on the list? If you represent a patient or consumer health advocacy group that does not take money from manufacturers of drugs, medical devices, biologics, or diagnostics, please email us at pharmedout@gmail.com with a link to your organization's website, 3 years worth of 990s (or t1004 or t3020 for Canadian groups) and annual reports, and a statement that the organization does not take money from industry and has a policy not to take money from industry. The groups submitted will be vetted by a committee that includes Sharon Batt PhD, author of Health Advocacy, Inc. and Adriane Fugh-Berman MD, director of PharmedOut.
C'est tellement simple de dire que si l'association de patients touche de l'argent d'un labo elle n'est plus independante... #cliché #caricature
