Ryan and Jenny Hiltner’s 7-year-old daughter, Amaya, has a form of epilepsy that hasn’t responded well to traditional treatment. Amaya has as many as 30 seizures a day. During some of them, her arms jerk and she stares straight ahead, unable to speak.
The seizures make it impossible for Amaya to do things she used to love, such as ride her bike. And the seizures can have lasting effects, heightening the urgency to find an effective treatment for the St. Cloud family.