In the 1980s, Nuu-chah-nulth people on Vancouver Island donated more than 800 vials of blood for research on rheumatic diseases prevalent in their communities. Their hope was to help find a cure. Decades later, however, they learned the samples they supplied had led nowhere and were instead used for unapproved studies in genetic anthropology.
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Scooped by
Here Magazine
onto Indigenous Stories and Education June 12, 6:00 PM
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📰 Why We Chose This Story for Our Top 5 This Week ->
Health data collection from Indigenous communities across Canada carries a troubling legacy—ranging from exploitation to losses of autonomy. So it’s deeply significant that one Indigenous-led company is now reclaiming control, building ethical, community-driven practices that centre transparency and trust. It’s a story of reclamation, of agency over data, health, and futures—and a model for turning dark chapters into hopeful, community-led progress.