Co-creation in health
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Twitter is a valuable health resource for patients

Twitter is a valuable health resource for patients | Co-creation in health | Scoop.it
If you have more reasons Twitter can be a good health resource, please share them.
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Become Proactive about Patient Reviews of Doctors

Become Proactive about Patient Reviews of Doctors | Co-creation in health | Scoop.it
Over the past several years there has been a virtual explosion in the presence and popularity of review websites that offer a platform for patrons and patients...
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5 Healthcare Tools To Boost Patient Involvement

5 Healthcare Tools To Boost Patient Involvement | Co-creation in health | Scoop.it
The 2012 Connected Health Symposium showcased a myriad of engagement tools that promote innovation and improve patient compliance.
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NEJM - How Much Would You Give to Save a Dying Bird? Patient Advocacy and Biomedical Research

NEJM - How Much Would You Give to Save a Dying Bird? Patient Advocacy and Biomedical Research | Co-creation in health | Scoop.it
How can we quantify the agony of facing an untreatable disease? Can we measure the harms we inflict because we can't bear to tell patients they have no options? Can we assign a numerical value to hope? For those aspects of disease that elude our measurement, we will forever depend on the insights and passions of our patients
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How Patient Cost-Sharing Trends Affect Adherence and Outcomes

How Patient Cost-Sharing Trends Affect Adherence and Outcomes | Co-creation in health | Scoop.it

Increasing patient cost sharing was associated with declines in medication adherence, which in turn was associated with poorer health outcomes


Via Richard Meyer
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Online Patient Communities | Digital Democracy

Patients that connect socially tend to have better outcomes

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Patient Centered Medical Homes: the Transtheoretical Model to Promote Health Literacy and Shared Decision Making

Patient Centered Medical Homes:  the Transtheoretical Model to Promote Health Literacy and Shared Decision Making | Co-creation in health | Scoop.it
Featured Guest Blogger: Janice M. Prochaska, Ph.D   The passage of the Affordable Care Act and emergence of Patient Centered Medical Homes and Accountable Care Organizations has highlighted the nee...
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Building a people-powered NHS: Beginning a journey of discovery together part 1 – Roz Davies | NHS Commissioning Board

Building a people-powered NHS: Beginning a journey of discovery together part 1 – Roz Davies | NHS Commissioning Board | Co-creation in health | Scoop.it
The last few months have been a rollercoaster ride.
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Who are the most influential people in the NHS and health policy?

Who are the most influential people in the NHS and health policy? | Co-creation in health | Scoop.it
The HSJ100 is our annual list of the most influential people in the NHS and English health policy.
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Patients want more involvement and engagement from GPs on care decisions

Patients want more involvement and engagement from GPs on care decisions | Co-creation in health | Scoop.it

Patients want to be more involved in their care but feel GPs are currently not delivering good communication or shared decision making, according to a snapshot of opinion published by The Patients Association today.

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Communicating via Patient Portal

Communicating via Patient Portal | Co-creation in health | Scoop.it
Physicians often hesitate to give this kind of access to patients because they are afraid it will be abused but that is short-sighted. Just like with the telephone, I have complete control over whether I answer or my medical assistant does.

Via Dean Berg, Pharmacomptoir / Corinne Thuderoz
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Advocacy in Action: Working Together To Create Better EU Legislation for Patients

Vital Options presents Advocacy in Action (AIA), in partnership with the ESMO Cancer Patient Working Group and in collaboration with the ECCO Patient Advisor...
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Patients - Disseminating knowledge and promoting equal access to quality care

Patients -  Disseminating knowledge and promoting equal access to quality care | Co-creation in health | Scoop.it
Patients are the driving force and inspiration behind oncology related events, ESMO’s educational programs, and the reason why oncologists are constantly pushing the edge of science to revise existing therapies and find new treatment options.
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The (in)Patient Experience

A hospitalist physician shares insights and practices designed to promote leadership, provider and caregiver engagement in the patient experience.
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When patients are willing to share their stories

When patients are willing to share their stories | Co-creation in health | Scoop.it
Most of the time, my patients are very willing to share their stories. From my perspective, there are practical reasons to understand social contexts and relationships.
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I learn from patients who share their stories on Twitter

I learn from patients who share their stories on Twitter | Co-creation in health | Scoop.it
I follow patients to understand, to avoid complacency, to maintain compassion. And that is not something that can be learned from a textbook.
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Rises in healthcare spending: where will it end? | BMJ

Rises in healthcare spending: where will it end? | BMJ | Co-creation in health | Scoop.it
In the past half century spending on healthcare across virtually all countries—regardless of how they are funded and organised—has increased substantially. At approaching £1 in £10 of its economic wealth, in 2010 the UK devoted more than twice the share of its gross domestic product (GDP) to public plus private healthcare spending as it did in 1960.
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HIPEC Surgery - Ann's Story - The Nebraska Medical Center

Ann Connealy lived her first 50 years without ever being a patient in a hospital. Her run of good luck ended with a diagnosis of cancer of the appendix in 20...
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Study: Wikis Help Patients Participate in Creating Clinical Practice Guidelines.

Study: Wikis Help Patients Participate in Creating Clinical Practice Guidelines. | Co-creation in health | Scoop.it

According to a new study published in the Journal of Medical Internet Research, wikis would be an effective participatory tool for patients in the development of a clinical practice guideline.

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Patient-driven research

Patient-driven research | Co-creation in health | Scoop.it
The goal of the PCORI workshop was to “help PCORI build a patient-centered research community” through five specific discussion topics listed in my previous post. Patient-centered research and PCORI itself is still new enough that there are many questions about what “patient-centered” will look like
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Patient Power: knowledge can be the best medicine of all

Patient Power: knowledge can be the best medicine of all | Co-creation in health | Scoop.it

We are dedicated to helping you become a powerful patient, a powerful caregiver, or a powerful friend to achieve better health.

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Measuring the patient’s experience – some thoughts

Measuring the patient’s experience – some thoughts | Co-creation in health | Scoop.it
Measurement of the patient’s experience of the care received is essential for the delivery of high quality care throughout the patient’s journey from diagnosis. In October 2011 the NHS ...
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Health Literacy: HLS-EU The Movie [OFFICIAL]

"This animated infographic shows the main outcome of the European Health Literacy Survey (HLS-EU), which formed part of the European Health Literacy Project from 2009-2012."


Via Usalbiomedica, Camilo Erazo
Zjelco Felder's comment October 30, 2012 9:20 AM
Visit this link for more information: www.hls-eu.info
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Participatory medicine: one clinician’s awakening

Participatory medicine: one clinician’s awakening | Co-creation in health | Scoop.it

I am a nurse. I am a patient. Until about a year ago I felt very clear about how each of these played a role in my life. I was sure about which one made me strong and which one made me weak. Which was helpful to others and which was a burden. The one that would aid me in my work and the one that would hold me back. Then an email arrived in my inbox that would turn all those beliefs upside down. But this certainly didn’t happen right away, because above all else, I am stubborn.

 

The email came from a friend and colleague. He said he had some ideas that he wanted to discuss with me but first, he asked if I would watch a video and give him some feedback on it. The video was a TEDTalk featuring e-patient Dave deBronkart. In the video Dave told a story about how he used the internet to connect to information and other patients to learn about treatment options his own doctor had not mentioned. He claimed that what he found saved his life.


Now, I pride myself in being a creative person, able to think “outside the box.” That is why I left bedside hospital nursing to work for a small progressive company. I wanted to expand my horizons and be involved in making changes, big changes that would help patients get better care. My days were spent thinking of new and innovative ways to improve patients’ involvement in decision making with their doctors — with their doctors, not other patients!

 

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International Perspectives on Patient Advocay

More than 15 advocates and survivors across all cancer types from around the globe came together to discuss international perspectives on patient advocacy.
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