#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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$1.5 Million Grant for Brain Research : Northwestern University Newscenter

Northwestern selected to take part in national, cutting-edge neurological initiative...
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The Development Of Parkinson's Cells Visualized By Researchers

The Development Of Parkinson's Cells Visualized By Researchers | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
In the US alone, at least 500,000 people suffer from Parkinson's disease, a neurological disorder that affects a person's ability to control his or her movement.
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*Local researchers link rare disease to Parkinson's and ALS*

*Local researchers link rare disease to Parkinson's and ALS* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
An international team of researchers led by scientists from the Montreal Neurological Institute at McGill University have discovered the origins of a rare neurological disease known as ARSACS that afflicts children, almost exclusively in Quebec.
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Steve's Skydive 10 years after ALS symptoms started|WHAT DID YOU DO TODAY?

*We Salute you Steve White*

Steve Proudly Served in the U.S. Air Force as a

Munitions Specialist · Jan 1982 to Jan 2003 · Lackland AFB

 

COURAGE|GUTS|DETERMINATION|TENACITY

Steve's skydive, 10 years after ALS symptoms started.

Please Follow Steves ALS Journey via his Blog: http://alsbytes.com/

 

 

 "Once we got inside, we gathered for the safety briefing, given by my tandem instructor, Noah, a US Army Golden Knight Parachute Team member. How cool is that? After the brief, Dan, Chris and Jack were suited up for the first launch, around 11 AM. We went out and watched them coming down, and even though Dan had a somewhat hard landing (most tandems come in sliding on the instructor's butt), I could see from the smiles on their faces this was a memory of a lifetime!

Back inside we go for our suit-up, and I don't know how she did it, but Cindy [wife] liked to turned me into an inside-out pretzel to get me into the "Michigan" jump suit. Meanwhile, Noah is busy trying to figure out how to secure my arms and legs so they wouldn't beat him to death on the way down. He had to fix it so my legs would stay bent back during the free-fall, and then released to straight for the landing. Don't ask me how, but he pulled it off. My high school friend Jack Rickman happened to have his Air Force flight suit, so that's what he wore, being a retired C-5 pilot.

Once they man-handled me into the plane, we were seated against the rear wall on the floor, me leaning back against Noah. We were facing the ends of two rows of bench seats that were already full of jumpers; Shane, his instructor and photographer, Jack Rickman, his instructor, his photographer, plus a few others we didn't know. So just in the back of the plane, we were I believe 13 people, and you'd never guess the plane would carry that many. The jump door, right beside us, was clear plexiglass, so we had a great view on the way up. Once we reached 6500 feet, a couple single jumpers made their exit. A female MP from Ft. Bragg did a back-flip on the way down.

The higher we climbed, unfortunately, the more difficulty I had breathing, almost to the point of panic. The guys started loosening my chest and belly straps, which thankfully helped. By the time we reached 13,500 feet, I was more than ready to be able get my breath back, and the quickest way to do that was falling at about 120 mph! Once they got the door open and my legs swung around, we were out the door before I knew it. I know I opened my mouth to get a deep breath at that point, because I must've half-swallowed a bug. I didn't know it until I was on the ground, and started coughing and wheezing. By the time we got back to the suit-up shack, I started kind of gagging on it, until it finally went down. I'll never know what it really was, and that's just fine with me.

Looking back in retrospect, I'm so very thankful to have been able to do it, and wish we could've had more visibility and awareness raised, but I just thank God for the opportunity. I'm just glad we cleared that hog farm pond I saw on the way down!"

 

Thank You Steve for Sharing your AWESOME Story|You Inspire Us ALL!

 

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Could This Be the End of Embryonic Stem Cell Research?

Could This Be the End of Embryonic Stem Cell Research? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A biotech company that after much turmoil and huge expense launched the first human embryonic stem cell clinical trial in the United States is getting out of the stem cell business.
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Skin cells converted to brain cells without intermediate stem cell stage

Researchers from California have successfully converted mouse skin cells into cells which develop into the main components of the brain.
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BrainStorm sees positive data in ALS stem cell trial

BrainStorm sees positive data in ALS stem cell trial | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Data from the first ALS patients in a clinical trial treated with BrainStorm Cell Therapeutics adult stem cell therapy did not show significant side effects and the treatment has so far proven to be safe...
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NHS Warned Of A Neurology Timebomb' As Parkinson's And Motor Neurone Disease Numbers Increase

NHS Warned Of A Neurology Timebomb' As Parkinson's And Motor Neurone Disease Numbers Increase | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

A warning by the NHS has been issued claiming that the UK is in the midst of a ‘neurology timebomb’ – as the number of people diagnosed with Parkinson’s and MND|ALS continues to increase each year.

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Indestructible

Indestructible | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*This is a MUST SEE*

 

Diagnosed with ALS, a fatal neurodegenerative disease, filmmaker Ben Byer starts documenting his life on camera. What begins as a series of video diaries grows into an epic journey spanning three years and six countries as he scours the globe looking for answers - and a cure.

 

A cinematic adventure filled with extraordinary characters, breathtaking landscapes and abundant humor, Indestructible is beautifully shot by Academy Award™ nominee Roko Belic (Genghis Blues). In his first feature film, Byer takes us on a visually stunning global quest to survive as he begins to understand the power of the human condition.

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Join the ALS FACEBOOK FAMILY T.E.A.M. Support Group on Facebook for 2013!

Join the ALS FACEBOOK FAMILY T.E.A.M. Support Group on Facebook for 2013! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Our ALS Facebook Family T.E.A.M. Group Photo for 2013!
We think it says it all........."CURE ALS" which we are confident is all of our Hopes for 2013!


Please feel free to Share or use this new Photo as your Profile Pic or to simply let other ALS Facebook Family members know they are WELCOME to join our AWESOME ALS Facebook Family T.E.A.M. Support Group for 2013!

 

This group was established 3 Years ago and is 310+ Strong and Growing!

 


The Group offers pALS,cALS,Family, Friends, Co-workers all the Love|Strength|Courage|Support & Encouragement we can offer our ALS Facebook Community. All in a Private & Closed Forum.

 

Find Much Needed Resources for those with ALS | MND 


Share our Invitation: https://www.facebook.com/groups/ALSfamilyTEAM/


[T.E.A.M.-Together Everyone Accomplishes More!]

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