#ALS AWARENESS #LouGehrigsDisease #PARKINSONS

In this webinar, our panelists will discuss how doctors and patients work together to choose what medications to start, adjust or discontinue. We'll also answer common medication questions, including "When should one start levodopa?" and "What does prescribing off label mean?"

I am asking every ALS patient, as well as their caretakers and loved ones, to speak up for our community this Tuesday. Barbara Newhouse and members of the National Board of Trustees are holding a live virtual listening event to allow us to voice our needs, thoughts and suggestions. It is scheduled for THIS TUESDAY, June 21st, 1pm ET or 10am PT. We’ve all been asking for this, and now we have been given the opportunity. Let’s make it count!!! Since it is a WebEx event, it is my assumption we will be able to provide our comments by either typing or verbally. It is two hours in duration, and you must register to attend. We are requested to REGISTER BY TOMORROW, Monday, June 20th. I’ve never seen such a long hyperlink, but here is where you register:

https://alsa.webex.com/mw3100/mywebex/default.do?service=1&siteurl=alsa&nomenu=true&main_url=%2Fmc3100%2Fe.do%3Fsiteurl%3Dalsa%26AT%3DMI%26EventID%3D337717847%26UID%3D479893903%26Host%3DQUhTSwAAAALjhCPYwpx-kzi8ThIHyf8Z5obCMvgZfDmdS3dpoQjxtbx5XD85GPzKPYNIsZWAP3D3fc0YYTWeReHXsDh11pwX0%26FrameSet%3D2%26MTID%3Dm268aed3b1055c6f5a3b1a954da674bed

Excerpt from ALS Association communication:

Global ALS Awareness Day is Tuesday, June 21, and we’re commemorating the special day with a virtual listening tour event! People living with ALS and their caregivers are invited to join ALS Association CEO, Barbara Newhouse, and members of the National Board of Trustees from 1-3 PM EDT to express their thoughts and ideas that will help advance our quest to treat ALS once and for all! Your participation is greatly appreciated.

Please RSVP by 5 PM EDT on Monday, June 20