#ALS AWARENESS #LouGehrigsDisease #PARKINSONS

Steve Gleason refuses to allow ALS to dictate the terms of his life -- and a producer for "NFL 360" sees firsthand exactly what that means to the people whose lives Gleason touches.

From TEAM Gleason:   If you weren’t able to see the NFL Network’s special on Steve and Team Gleason tonight, here is the link. A huge thanks to Melissa Stark, Producer Trent Cooper, and all involved in creating this story. #NoWhiteFlags

http://www.nfl.com/videos/nfl-360

Team Gleason to fund Critical Voice Banking for pALS through ModelTalker

This technology will allow those living with ALS to continue

using their own voice to communicate

New Orleans, LA

​

- January 31, 2018 - Team Gleason is excited to announce that all people living with ALS in the United States who would like to “bank”their voice to use after they have lost the ability to speak can do so at no cost to them through a partnership with ModelTalker starting tomorrow.

Steve Gleason had the opportunity to create his own synthetic voice through the process of voice banking when he was first diagnosed with ALS in 2011. Steve’s motto was and has

always been that “until there is a medical cure for ALS, I believe technology can act as a cure.”

Steve believes that with the availability of the correct technology, equipment, and sense of purpose, it is possible for ALS patients to live for decades.

FOLLOW LINK for Additional Info:

http://www.teamgleason.org/wp-content/uploads/2018/01/Model-Talker-Press-Release-6.pdf

Carmelo Diaz's wife: 'We couldn't have stayed on the island. He would have died.'

Early Friday morning Congress approved the Steve Gleason Enduring Voices Act. It makes coverage by Medicare and Medicaid of speech-generating technology a permanent benefit.

LAKEVILLE, Minn. – A Lakeville man with months to live gets a surprise of a lifetime from a person who knows exactly what he’s going through.

There are people who talk about a bucket list and those who live it; Greg Gelhorn is the latter.

“Greg's vacations aren't vacations, they are adventures,” said Derek Fessler, Greg’s brother-in-law....................................

Born out of an idea Steve Gleason had envisioned for years, the Team Gleason Experiment launched in July 2012 with a trip down the Missouri River with fellow New…... Team Gleason Experiment: Montana Canoe Trip with Jay Rink. With the combined numbers of friends and family, we have a fairly large crowd. Variscos and Rinks are many! But, we have room for about 100 more people. We will show the film at Howlin Wolf, NOLA...doors open at 7pm. The first 100 folks to email events@teamgleason.org will be placed on the list. Please email with your full name and up to 3 people who might join you. Dress code, New Orleans style. Check out the link for a preview.
https://vimeo.com/50492923