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The House passed "right-to-try" legislation that would allow the critically ill to bypass the Food and Drug Administration to obtain experimental medications. 
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Matt Bellina, diganosed with ALS in 2014 and a Military Veteran will be attending the State of the Union Address at the U.S. Capitol tonight as a guest of Rep. Brian Fitzpatrick. Bellina has been an active voice in support of Right to Try laws, traveling to Washington, D.C., frequently to testify before senate and house committees. A retired U.S. Navy lieutenant commander, Bellina, 34, the father of three is slowly losing basic motor functions as the disease progressively attacks his central nervous system.
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Frank Mongiello fights for Right to Try legislation on behalf of those with terminal illnesses, including ALS
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The Food and Drug Administration has proposed a greatly simplified process for doctors to obtain experimental drugs for patients who are suffering from serious or life-threatening illnesses and have no other alternative. In a breathtaking reduction of red tape, the simplification should reduce the time it takes a doctor to apply for..............
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FOR IMMEDIATE RELEASE: LOUISIANA BECOMES SECOND STATE IN TWO WEEKS TO GIVE DYING PATIENTS ‘RIGHT TO TRY’ LIFE-SAVING EXPERIMENTAL MEDICINES | Goldwater Institute
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Republicans passed a controversial bill aimed at helping some dying patients get new access to experimental therapies, resurrecting legislation that suffered a major setback just a week ago.
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Sen. Johnson spoke on the Senate floor before the Senate unanimously approved the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellin
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The state Senate on Tuesday approved a bill that would allow makers of experimental drugs to make them available to Californians with life-threatening diseases.
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Darcy Olsen, president of the Arizona-based Goldwater Institute, and Richard Garr, president of Neuralstem, a biotech company, wrote Right to Try experimental drugs in USA Today. They pointed out that this year, more than 5,000 Americans will lose their battle with ALS, commonly known as Lou Gehrig's disease. Up until recently, there was no medicine on the market that significantly improved the lives of ALS patients. But now there is one in clinical trials that holds considerable promise, but it has not been granted Food and Drug Administration approval. The average amount of time it takes to get a drug through the FDA approval process is 10 years. That's time that terminal patients don't have.
MPCIRHC.ORG's curator insight,
July 16, 2014 11:24 AM
Unfortunately, when an unfortunate event happens in the USA, the less informed cease upon that event to involve government more into the lives of others. This seems to be more of a CYA knee jerk reaction rather than a sincere protection of the masses result. A drug that is invented and tested in the USA and may have life saving results should be available in the USA.However, the FDA's CYA regulations that make companies pay up to a Billion dollars for more test over a period of over 10 years to do more and more testing..is an over reach by the government. Medical Tourism for life saving medication is NOT be the norm, which it is today in the USA. Support the Goldwater Institute's efforts to make available life saving medication to the same people that actually invented it and the masses.
MPCIRHC.ORG's curator insight,
July 16, 2014 11:26 AM
Unfortunately, when an unfortunate event happens in the USA, the less informed cease upon that event to involve government more into the lives of others. This seems to be more of a CYA knee jerk reaction rather than a sincere protection of the masses result. A drug that is invented and tested in the USA and may have life saving results should be available in the USA.However, the FDA's CYA regulations that make companies pay up to a Billion dollars for more test over a period of over 10 years to do more and more testing..is an over reach by the government. Medical Tourism for life saving medication is NOT be the norm, which it is today in the USA. Support the Goldwater Institute's efforts to make available life saving medication to the same people that actually invented it and the masses.
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Three states are poised to let the terminally ill bypass FDA paperwork, assuming the drugmakers are game.
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