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The ALS Association Care Services Survey.
ALSA SURVEY NOW OPEN TO EVERYONE IN ALS COMMUNITY - The ALS Association Care Services Survey is now available. Every member of the ALS community is urged to participate and provide their input to help prioritize our needs. The results will be shared with us at some point in the near future. The deadline to provide your feedback is Thursday, July 14th. 
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Unable to make it to Washington D.C. to participate in National ALS Advocacy Day on May 10? That’s okay, you can make your voice heard on Capitol Hill no matter where you are! Did you know? Nearly every single Member of Congress is active on Twitter. You can help amplify our message by tweeting your representatives on National ALS Advocacy Day!
Learn how you can help The ALS Association advance scientific research to find a cure for ALS, provide resources for people with ALS and their loved ones, heighten awareness of the nature of the disease, and encourage government leaders to expand their support of research and patient care.
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The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
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Since the end of July, the money has been sloshing in at a rate of about $9 million a week. Last year, from July 29 to Aug. 26, the group raised just $2.6 million.
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Urgent – ALS Association CEO hosting virtual meeting TUESDAY to solicit input from the ALS community
I am asking every ALS patient, as well as their caretakers and loved ones, to speak up for our community this Tuesday. Barbara Newhouse and members of the National Board of Trustees are holding a live virtual listening event to allow us to voice our needs, thoughts and suggestions. It is scheduled for THIS TUESDAY, June 21st, 1pm ET or 10am PT. We’ve all been asking for this, and now we have been given the opportunity. Let’s make it count!!! Since it is a WebEx event, it is my assumption we will be able to provide our comments by either typing or verbally. It is two hours in duration, and you must register to attend. We are requested to REGISTER BY TOMORROW, Monday, June 20th. I’ve never seen such a long hyperlink, but here is where you register:
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ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues. There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare. There is also a great disparity between...
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Frequently asked questions regarding the ALS Ice Bucket Challenge Charity Navigator-Your Guide to Intelligent Giving: http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=3296#.VAHQQGO4O-A
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