Shine News

Neurological specialists in Liverpool are leading a groundbreaking research project which could significantly impact upon the treatment of children and adults with hydrocephalus.

 

Neurosurgeons from Alder Hey Children’s Hospital and The Walton Centre will be the chief investigators for the study, which has recently been awarded a £2m grant from the NIHR HTA* programme.

 

The MCRN and SHINE (Spina Bifida, Hydrocephalus, Information, Networking, Equality) have been approached to assist in identifying appropriate individuals to provide patient and public representation as members of the trial team.

Many people who have spina bifida will suffer with problems of constipation and faecal incontinence. The Antegrade Continence Enema or ACE is a way of managing bowel emptying at a convenient time each day, and should reduce both constipation and soiling episodes.

The procedure involves sitting on a commode or toilet whilst a washout is given through a small opening or stoma on the abdomen.

Because creating an ACE stoma requires an operation, the doctor will usually recommend it only when all other efforts to manage the bowel have been tried and have failed.

How does it work?

To create an ACE stoma, the surgeon will cut off the appendix, still with its blood supply, and connect one end to the large bowel and the other end to the wall of the abdomen at the navel or lower down below the level of most underwear. This small opening or stoma is used to pass a tube called a catheter into the bowel so that fluid can be introduced to flush faeces out through the anus. This is called an ACE washout. For people who have previously had their appendix removed, there are other ways of making an ACE stoma. For example, a tiny segment of small bowel may be used.

 

FIND out more: http://www.shinecharity.org.uk/spinabifida/information-publications/ace-procedure ;

Via ShineUKCharity

On Midnight of the 22nd September, Shine patron and former Leeds United and England star, and 2012 Celebrity Masterchef competitor Danny Mills will be leaving Elland Road Stadium in Leeds, to begin his epic 200 mile peddle to Canary Wharf in London, where he will compete the very next day in the Virgin London Triathlon.

 

http://www.shinecharity.org.uk/leeds2london

Shine Young Achiever (for a young person up to the age of 25) The Shine Achievement Awards will be presented at the Annual General Meeting on 29th November.

 

FIND OUT MORE: http://www.shinecharity.org.uk/shineawards

Let's celebrate achievement - your nominations are needed! The Shine Achievement Awards will be presented at the Annual General Meeting on 29th November.

 

If YOU know of a professional who deserves recognition for their work with spina bifida and/or hydrocephalus - why not put them forward for the award - its FREE to submit! :)

Sometimes called Idiopathic Intracranial Hypertension, benign Intracranial Hypertension or Pseudotumour Cerebri is a rare condition which occurs in about 1 or 2 in 100,000 people.

 

Sometimes called Idiopathic Intracranial Hypertension, benign Intracranial Hypertension or Pseudotumour Cerebri is a rare condition which occurs in about 1 or 2 in 100,000 people.

In children, boys and girls are affected equally, but if the onset is in adult life, the majority of cases are seen in women.

 

READ: http://www.shinecharity.org.uk/hydrocephalus/information-publications/intracranial-hypertension-and-the-child-at-school

Shine created a poster on checkthis, the most beautiful way to create and share stunning posters with friends and family.

"I have chosen to put together a recipe book because of how important cooking, especially baking, is to me. It provides a much needed distraction from day to day life. At the end you can see the jewel of your hard work. Plus the gift of cake to others brings such joy."

 

I am Rebecca Morris, 22 years old from North Yorkshire, I am putting together a celebrity recipe book to raise awareness and funds for the charity Shine. 

 

FIND out MORE or PRE-BOOK your copy NOW - Visit: http://www.shinecharity.org.uk/cookbook

Via ShineUKCharity

RT @Active4Shine: @shineukcharity Ride with Danny Mills on our Charity Cycle Ride - http://t.co/0uKuIeN3...

In Full Working Order Day is an opportunity for adults with spina bifida to get together in a relaxed setting.

 

It offers attendees a chance to share experiences and concerns with Shine’s Health Development Manager Gill Yaz and local Support and Development Worker Angie Coster.

Interested?

 

Book YOUR free places NOW – Simply CLICK HERE: http://form.jotformpro.com/form/21844484762966

 

More Information?

Contact Angie Coster on 01308 426372 by email angie.coster@shinecharity.org.uk or on Facebook @ http://www.facebook.com/Shine.Angie.Coster