Chronic Fatigue Syndrome Gets a New Name: "systemic exertion intolerance disease" (SEID) | Pharmaguy's Insights Into Drug Industry News |
A federal health panel has proposed that the illness now be called systemic exertion intolerance disease, in part to reduce stigma.

The Institute of Medicine on Tuesday proposed a new name and new diagnostic criteria for the condition that many still call chronic fatigue syndrome.

An institute panel recommended that the illness be renamed “systemic exertion intolerance disease.” The term reflects what patients, clinicians and researchers all agree is a core symptom: a sustained depletion of energy following minimal activity, called post-exertional malaise.

The new name “really describes much more directly the key feature of the illness, which is the inability to tolerate both physical and cognitive exertion,” said Dr. Peter Rowe, a member of the panel and a pediatrician at Johns Hopkins who treats children with the condition.

The Institute of Medicine panel was convened at the request of the Department of Health and Human Services, the Centers for Disease Control and Prevention, the Food and Drug Administration and other federal agencies.

The new recommendations are not binding, but they are likely to influence diagnosis and treatment of the disease.

Find the IOM report here.