Towards a Real NDIS and the End of Empires
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NDIS - Flawed at its Core

NDIS - Flawed at its Core | Towards a Real NDIS and the End of Empires | Scoop.it

The current actualization of NDIS is a meaningless acronym. At its core it is semantically flawed. NDIS is bandied about without regard for this intrinsic meaninglessness, holding PWD in contempt of the obvious lie of its reality. At most NDIS represents more disability handouts (albeit self-managed) out of budget to the same few PWD and perhaps in time, to a few more PWD.  It is not an insurance, there is no levy, and no collective responsibility despite claims that it is a form of "social insurance". There is nothing national about it for reasons we all know - we are not stupid. There is nothing immutable or sustainable about the current official manifestation of NDIS in Australia. Funding made available on a whim from budget, and competing against shifting priorities will never be sustainable - already it is not enough.

 

This online newsletter aspires to assemble a body of criticism from various sources and PWD themselves who are once again, largely disenfranchised from the implementation of what was a promising and authentic solution to their adversity, drudgery and unmet need by the misplaced altruism of those highly paid for our sakes.

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How Does Society Perceive People In Wheelchairs?

How Does Society Perceive People In Wheelchairs? | Towards a Real NDIS and the End of Empires | Scoop.it
How Does Society Perceive People In Wheelchairs? http://t.co/e6bIG2hz8X via @prismatic #wheelchair #accessibility
Deborah Robins's insight:

Only half the riddle.

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Back to the NDIS Future Name changes back

Back to the NDIS Future Name changes back | Towards a Real NDIS and the End of Empires | Scoop.it
DisabilityCare Australia has now officially reverted back to the original name of National Disability Insurance Scheme (NDIS) under the new Coalition Government - a move welcomed by the Not for Profit sector.
Deborah Robins's insight:

Does the coalition not see the hypocrisy of it all returns with the name change?  Are they planning on meeting unmet need as a priority and eventually for all? Are they planning on introducing a levy which will make the scheme truly an insurance scheme and thus sustainable?  Only then will this handout to people with lower priority unmet need with disabilities in hand-picked areas, be deserving of the name.

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Mildly disabled threaten viability of NDIS - The Australian (blog)

Mildly disabled threaten viability of NDIS - The Australian (blog) | Towards a Real NDIS and the End of Empires | Scoop.it
NEWS.com.au
Mildly disabled threaten viability of NDIS
The Australian (blog)
Perhaps in due course the NDIS can become like those companies that are just known by their letters, but the letters actually don't stand for anything.
Deborah Robins's insight:

Sounds like my kind of thinker.  A few weeks ago I was told that the government has actually employed 4 severely disabled persons out of the 100's employed to assess who is to be helped in the narrow geographic target areas. It seems they are not to be denied NDIS either, despite a livelihood - NDIS is not means tested you see. If my severely disabled son were to be miraculously employed I can't see him wanting to double-dip a finite resource for PWD out of budget. But then he has been raised to have integrity unlike the architects of the NDIS.

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Speech to the Victorian Labor Party Conference | Prime Minister of Australia

  It’s great to be home in Melbourne, to be back at this Conference, where my political values have always been tested and shaped. (RT @JuliaGillard: “They even said DisabilityCare is a cruel hoax.
Deborah Robins's insight:

What's that Prime Minister? Fine words again that do not match up to the reality. "So many of our fellow citizens have worked so hard for so long to make this happen – the countless advocates in the community, countless Australians who have all lent their voice – I thank you.

 (That's me)

People who know that disability can strike any one of us at any time that accident or injury can change a life and remake a family’s future in a single moment.

 (That's me)

People who already knew in their own lives what the Productivity Commission has now told us all: that care for people with disabilities in our country is underfunded, unfair, fragmented, inefficient, that people with disability have little choice and no certainty of access to care.

(That's me too - but it certainly isn't you or you would have overseen a fair system to change this picture, prioritizing the most marginalized by the disability industry instead of largely swelling their ranks,  and really done something to chisel away at the most heartbreaking examples of unmet need) 

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God hath not promised Equity in Education Either

As Chris Pyne, member for Sturt and shadow minister for Education purportedly said last week, we can't have a situation where the same level of student in one state is given more funding than his/her counterpart in another state. What world do you live in Mr Pyne? Federal assistance to people equally severely disabled has hinged on your postcode and on numerous other arbitrary factors like your ability to burst into tears,  for the half a century I've been a caregiver. No doubt it holds true in any domain. Why should education be any different in the past, now or in the future.

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Your Say - National Disability Insurance Scheme | National Disability Insurance Scheme

Your Say - National Disability Insurance Scheme | National Disability Insurance Scheme | Towards a Real NDIS and the End of Empires | Scoop.it

Your Say is a social media site that generates discussion on aspects of the design of the NDIS, with forums initiated by site administrators on behalf of the NDIS Advisory Group.

Deborah Robins's insight:

The  moderation of this discussion forum which blocks some of our comments, only goes to show that not only are PWD and the Australian public held in contempt by this government, politicking their way to the next election with a phony NDIS with an outright false description of what this NDIS really means; but our government is so arrogant and convinced of our impotence to protest the basic lie - like the fact that this 'national' disability reform won't be national for 5 years (best case scenario), that it cannot address unmet need when really it is ANOTHER cruel postcard lottery for at least 5 years that doesn't attempt to prioritize levels of unmet need within the lottery sites let alone nationally, that it is unsustainable without a funding stream in place so that we can anticipate all the old excuses when those of us with PWD still living do finally reach the goal posts. These token forums about semantics just distract us from the real issues of ongoing marginalization and neglect because their main concern is the government and the disability industry jobs in decentralized new offices - NOT the end users whom they purport to serve. Where is some help for those PWD and their carers with decades of hard yards behind them?  Are we so soured that it's better to help the grateful young ones in a brand new "postcode lottery" system, who haven't settled into their routines of drudgery yet? Sen McLucas herself when pressed by me, "reassured" me that if the govt couldn't roll NDIS out to everyone when the time came, that it is written into the legislation that (quote) "the government will have to be completely honest with the public about all the reasons why they can't". This is supposed to give us hope that the NDIS is not simply the PTB wishing to continue to assist their handpicked few solely for their own feelings of expansiveness and philanthropy, or predominantly so the disability industry wishing to build up infrastructure and create jobs for more "do-gooders" with no ability to understand the nature of or distinguish between diverse disabilities. There is only one thing we impotent PWD can do to protest the contempt and the arrogance of this inhumane "reform" which is discriminatory, in direct opposition to the disparity of care we outlined to the productivity commission and which does not attempt to assist unmet need in a logical and fair way despite self-praise to the contrary ...and that is to vote them out. Will a change of govt help? Probably not. We know power corrupts. The overriding "It's who you know" policy isn't going to vanish but continue to be ubiquitous at all levels no matter who is in power. It isn't going to make much difference in the final analysis. But what about having principles, refusing to reward lies and deception? Imagine for a minute that you owned your own business(as we own our own country paid for by our taxes and staffed by our public servants via elections) and your manager holds you in abject contempt, divining new policies to serve you that are meaningless and ineffectual yet claiming they are "god's gift", ignoring your suffering, caring nothing about fairness or equality; and asserting, devoid of any logic whatsoever, that 'black is white', 'black is white' to rationalize their inhumanity and their self-centredness in the earnest belief that he has been acting in your best interests. Well, another prospective manager knocks at your door. You suspect he probably won't be much better. But what are you going to do? Are you going to give the new fellow a shot? Or are you going to reward contempt, lies, arrogance and institutionalized sociopathy? It's a matter of principle - we can't endorse the contempt and the delusion we have witnessed by saying "Yes please, we don't want to live with dignity as adults in one area of the country while your young friends finance their sex therapist in the little outposts granted self-actualization through good funding?" It's a matter to me of our democratic right to protest when the citizens of this country have been held in such contempt by our elected public servants. The answer can only be - Protest and keep protesting in the only way we impotent voters can. And if necessary flip the next government over again next time and keep swinging...until a leader and a leadership team emerges who cares enough to stop lying to us. This NDIS is an abomination and scratching about commenting about the semantics of their pompous rules is just more of the smokescreen that will keep us distracted from pursuing a real and sustainable NDIS.

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NDIS Amendments Go to Parliament | Pro Bono Australia

NDIS Amendments Go to Parliament | Pro Bono Australia | Towards a Real NDIS and the End of Empires | Scoop.it
The Federal Government has introduced amendments to the National Disability Insurance Scheme (NDIS) Bill, following feedback gained from consultations with people with disability, their families and carers, and with states ...
Deborah Robins's insight:

These 'changes' will provide choice for the elderly PWD, but unfortunately like everyone else, when they do eventually reach the goal post, the government may have to be "completely honest about all the reasons why the NDIS can't be extended"

 

Here's another fallacy for you, that alignment with a charter for disability rights we are now certain that PWD are at the heart of the NDIS. The heart of the NDIS is about the disability empire and those PWD who have and will learn to play the "it's who you know" game. Words are meaningless and the promise of disability reform is equally meaningless while our governments "start somewhere" despite despite having the power to start where it would provide the most relief.

 

Now people who need early intervention therapies and supports, including for degenerative conditions, and who are not better supported by another systems such as the health care system, can access the NDIS. This may be the answer for these people in the grey area between disability and whatever else might fulfil their needs - but meanwhile those persons with severe disabilities, those undeniably categorized as disabled are left to languish because of geography and age. 

 

The news that the "NDIS Board will receive and consider actuarial advice, helping to safeguard the financial sustainability of the NDIS" is no comfort. The fact that it will only "help" safeguard, doesn't inspire. Without a tax, what hope is there of sustainability? NDIS is centred on the disability industry so between now and 2018, politicians of any colour and the disability industry will have found a way to help the last of the few PWD they know and like. Congratulations on being incapable of a 'rethink' despite a massive groundswell of disillusionment.
 

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Upcoming forums in Tasmania | National Disability Insurance Scheme

Deborah Robins's insight:

We lobbied for state and regional equity in the face of diametrically opposed levels of support when PWD told their stories to obtain fair assessment and much needed assistance. Only a diabolical government would implement their version of the solution through the application of strict geographic and age criteria in absolute contempt for the core business of the perfect solution which was put forward - the alleviation of unmet need - nationally and in a sustainable manner by a levy. We not only have insincere descriptors for the scheme (not that it can be called a scheme), we have an insincere manifestation. Partly in explanation for the piecemeal trials Sen Jan McLucas said, "We didn't want a big central office administering the NDIS."  The government didn't want a "national" centralized solution either because to introduce a national insurance/tax, "we would have been crucified".  Meeting unmet need is not about government fears and wants - it is about addressing the problem in an efficient way. I remain very disappointed in the contempt of our government for the drudgery and adversity of the 95 yr olds they cite, left unaided and caring for adult PWD until the end of their days.

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NDIS for under 65s: ageism or a battle over priorities?

NDIS for under 65s: ageism or a battle over priorities? | Towards a Real NDIS and the End of Empires | Scoop.it
Last week’s protest by several quadriplegic Queenslanders against age discrimination prompts us to examine how the National Disability Insurance Scheme should balance needs-based eligibility and entitlement…...
Deborah Robins's insight:

I can see that if you can tap into entitlements  by being over 65 already that you perhaps should not be a priority for NDIS.  The theory is  that if you have such existing supports then you shouln'dt be prioritized.  Why is it then do the NDIS rules make no other caveats about persons already receiving good support, already living independently and no longer a burden on their families, regardless of age?  Let's stop the pretense, and find people of integrity to design our disability reform - people who are not so arrogant that they are convinced that their own arbitrary selections are true and good, simply because they have made the distinctions and the selections. 

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Inquiry hears migrants may be confused by NDIS name | News | Business Spectator

Inquiry hears migrants may be confused by NDIS name | News | Business Spectator | Towards a Real NDIS and the End of Empires | Scoop.it
Senate committee investigating government's proposed scheme continues.
Deborah Robins's insight:

A Twnsville migrant who migrated 42 years ago is confused by the name "NDIS".  "You hear a word and you interpret it literally", she said.  Well Elizabeth, so does everyone else.

Whilst nobody is writing down the terms of reference, there's some explanations made that it is a "safety net" meaning of Insurance.  That would make me happy...National Disability Safety Net Scheme"...except they better qualify that it is a very small net being cast over a large population of PWD,  and likely to catch a percentage of very well fed fish.  So many fishermen and for so few fish.

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Disability commissioner Graeme Innes wins case over garbled rail announcements

Disability commissioner Graeme Innes wins case over garbled rail announcements | Towards a Real NDIS and the End of Empires | Scoop.it
AUSTRALIA'S disability commissioner Graeme Innes, who is blind, has won a discrimination case against NSW rail authorities for not providing audible train announcements.
Deborah Robins's insight:
Garbled announcements from a government service that cause chaos and hardship for a PWD compared to sighted persons is the subject of a successful discrimination bid. I wonder if being a "commissioner" helped? I can't help but wonder why this Transport department didn't use their "get out of jail free" card used by another state government depts like Disability Services. They could have said "Hard luck Graeme, we simply don't have any funding for audible announcements - it has run out". Having been held to account, they will no doubt have to institute more quality control in relation to the accuracy and clarity of their announcements and it will benefit all PWD. His was not an insular victory. Maybe some of us should take on our disability services for comparative discrimination?
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WA Labor :: Barnett hides information on disability funding

WA Labor :: Barnett hides information on disability funding | Towards a Real NDIS and the End of Empires | Scoop.it
Mr McGowan said for the past 10 years, the Disability Services Commission (DSC) published Combined Application Process (CAP) funding bulletins every four months, which outlined how many people applied for funding, how many were successful and how many missed out.

"In a clear attempt to avoid scrutiny the Barnett Government has removed the CAP funding bulletins from its website and will now only provide the information once a year," Mr McGowan said.

Shadow Minister for Disability Services Sue Ellery said this comes at a time when more than 81 per cent of people with a disability who applied for accommodation or support at home in the last published round missed out.

Deborah Robins's insight:

Doesn't surprise me, I know of younger PWD with Hayden's condition living in WA with grandiose funding. It's likely the same "It's who you know" criteria as everywhere else.  But the 81% are led to believe they are in "the grey army" and don't meet the strict criteria brought about by funding shortages. Garbage. Labor or Tory, power gives one the arrogance to bestow favours. What do I know?  That's the way it's always worked.

 

Without a sustainable funding stream, this is the way it's going to be in 2018, whether they call it an "NDIS" or what it is - a round of disability handouts. They're up to their same arbitrary arrogant antics to begin with -  handpicking PWD  by post code.

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NDIS back to its old name - NEWS.com.au

NDIS back to its old name - NEWS.com.au | Towards a Real NDIS and the End of Empires | Scoop.it
Sky News Australia
NDIS back to its old name
NEWS.com.au
Assistant Minister for Social Services Mitch Fifield announced late on Wednesday the agency would revert to the descriptive name of National Disability Insurance Scheme (NDIS).
Deborah Robins's insight:

Mr Fifield,  it isn't a descriptive name at all unless the coalition intends to introduce an insurance levy so the scheme (smart idea instead of the postcode lottery) is sustainatble for everyone in the nation. 

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The UN believes Australia still behind in Disability Rights

Deborah Robins's insight:

Has the UN also been duped into thinking that the PTB give a jot about unmet need and are introducing a prioritized, fair, sustainable policy to assist PWD?  Sounds like it...why can't presumably intelligent people look below the surface of what appears to be?  I think it is because of our different stories and the entrenched beliefs to assuage our guilt to some degree about PWD with urgent unmet need and our past attempts to care for them.

 

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NDIS funding joy – but enshrine money for rights, not red tape | Kelly ...

NDIS funding joy – but enshrine money for rights, not red tape | Kelly ... | Towards a Real NDIS and the End of Empires | Scoop.it
Kelly Vincent has today congratulated the state government on reaching an historic agreement with the federal government on fully funding an NDIS scheme by 2018, but is cautious about dollars being seen as the only fix-it ...
Deborah Robins's insight:

I see your point. The beautifully conceived original solution saw your point too. The Productivity Commission saw that by creating social responsibility via an infinitesimal tax on every citizen (which would compound exponentially) for insurance against future disability, that we would see this attitudinal/cultural paradigm shift towards PWD.  This government doesn't want that culture shift. They even demonstrated the contempt all citizens must perpetrate towards PWD by lying about bringing in an NDIS that is not an NDIS. They want to see PWD still with their begging bowls in their hands and they want the power to pick and choose in whose bowl they are going to drop a few coins. They have no vision, no insight beyond being seen to be socialist in order to win the next election.

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Lack of progress at COAG for disability scheme - ABC News

Lack of progress at COAG for disability scheme - ABC News | Towards a Real NDIS and the End of Empires | Scoop.it
Lack of progress at COAG for disability scheme - ABC News (Austr... http://t.co/KmQSxrxOA7 #suaju #australian #oz (via @AustraliaNewsUK)
Deborah Robins's insight:

There's only one way to "make it real" and that's to stop holding states to randsom and implement a real, honest, fully national insurance scheme - funded by a shared sense of social responsibility...then wall PWD would have some hope of self-actualization albeit on the distant horizon.

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SA Joins NSW In Full National Disability Insurance Scheme Rollout

SA Joins NSW In Full National Disability Insurance Scheme Rollout | Towards a Real NDIS and the End of Empires | Scoop.it
Yesterday South Australia announced that it will join NSW in signing up to the full National Disability Insurance Scheme.
Deborah Robins's insight:

By 2018, that's if DisabilityCare, the new more honest title for government disability handouts, a good many PWD who are not SA children according to the critera, will have lived 5 more years without dignity. Some PWD will have died and some carers will have burnt out. Worse, I've been told there are no guarantees that there will be enough DisabilityCare funding by then to extend to whomever the government are currently favouring...but it's OK, the legislation promises to be completely honest with us about why they won't be able to afford it.

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Some Honesty at Last

Some Honesty at Last | Towards a Real NDIS and the End of Empires | Scoop.it

Finally someone in the government with a residual gram of integrity and honesty has decided they better stop lying and calling NDIS, NDIS.  So now it's called DisabilityCare Australia which is another name for another out of budget handout to a handselected few in an even more inhumane postcode lottery than the last one.

 

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Call to expand NDIS trial beyond ACT borders

Call to expand NDIS trial beyond ACT borders | Towards a Real NDIS and the End of Empires | Scoop.it
The New South Wales Government is calling for an expansion of the ACT's trial site for the National Disability Insurance Scheme (NDIS).
Deborah Robins's insight:

Will the call be answered to extend the NSW trial site? Nothing's changed, it will certainly depend on "who you know?"

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Second Reading Speech - National Disability Insurance Scheme, Canberra > Tony Abbott

Second Reading Speech - National Disability Insurance Scheme, Canberra > Tony Abbott | Towards a Real NDIS and the End of Empires | Scoop.it
RT @TonyAbbottMHR: Speech just posted: Second Reading Speech - National Disability Insurance Scheme, Canberra http://t.co/j9aLVG1hU4
Deborah Robins's insight:

Mr Abbott isn't criticising the NDIS. That's a pity. He merely says it's a work in progress and a long journey that should have bipartisan imput as well as support. One can only hope if the Libs get their hands on the 'scheme' or part thereof, they exercise some sense and actualize a system that isn't cruel, unfair and discriminatory but one that prioritizes the small amount of funding being made available - in many cases currently to persons already receiving funding packages. How contemptuous of people with disabilities is a government to impliment another change in the form of another postcard lottery in response to the productivity commission submissions who condemned the current system as a postcode lottery.

 

The NDIS (Non-National, Non-Disability, Non-Insurance, Non-Scheme) is indeed bipartisan already if the Libs cannot feel any compassion for elderly carers and their PWD, cannot question the inhumanity of selective support based on geography or age and not on level of need.

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Seniors to fight NDIS cut-off

Seniors to fight NDIS cut-off | Towards a Real NDIS and the End of Empires | Scoop.it
NATIONAL Seniors Australia has launched a blistering attack on the Gillard government's draft national disability insurance scheme, claiming it legislates for "blatant age discrimination" by creating a cut-off for 65-year-olds.
Deborah Robins's insight:

Wake up seniors, everything about this manifestation of NDIS is ageist. This is not reform for now, for today's disasters for older carers and adult PWD let alone elderly PWD. This is about a new generation in the future and young children. The NDIS architects have closed their eyes, ears and hearts to the thousands of interpersonal disasters of those as yet not handpicked for any personal funding by state govts and the disability industry.  They'll never afford anything else. Take a look at the trial sites...two will have very very young cut-off ages - one in childhood and one in adolescence. In 5 years time when the scheme is supposedly to become national, if those struggling today are still alive,  PWD will be given the same geographic, ageist, nepotistic excuses as we get now - "there is no funding left", "that was then, there was money then", "the government is broke", "those younger PWD have high medical needs". Why?  Because this is not a sustainable funding stream - only a tax/levy and the ensuing growth of a collective social responsibility will ensure that all PWD are able to access support and dignity equally at any juncture.

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Submission to Senate Committee

Deborah Robins's insight:

It's 438 in the public record after a close filtering for being 'adverse'. I don't expect many to be as disappointed as I am with "NDIS". I don't expect many have 54 years of caring for family members with severe disability.

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Recruitment underway for NDIS - ABC News (Australian Broadcasting Corporation)

Recruitment underway for NDIS - ABC News (Australian Broadcasting Corporation) | Towards a Real NDIS and the End of Empires | Scoop.it
The Federal Government says recruitment is underway ahead of the launch of the National Disability Insurance Scheme (NDIS) in the Hunter.
Deborah Robins's insight:

65 jobs created in a new office. Seems like it is  a real win for able bodied in the Hunter. I'd like to know how many PWD are to be employed with specific knowledge of each particular disability so that they can be empathetic and useful to their own peers and have the finances to be redundant for the NDIS ?  On the other hand 10,000 PWD will be eligible for assistance - surely a good thing. Yes, it is.

 

But let's for one minute look at this in the context of history and the assumption that so much more infrastructure is needed  to administer more disabiltiy funding. I remember once many years ago I got some time off work to attend a consumers meeting about enhancing our pitiful 4 hours a week of support with a local service provider and look for ideas to alleviate the problem of the long waiting list of other PWD waiting for a service. In a brainstorm I expressed a desire to mirror a scheme I knew of  in our capital where once or twice a month, instead of the worker coming in the daytime, the worker comes for a few minutes skipping from house to house and turns each PWD's a couple of times so that the mothers can sleep a whole night through just once a month. I told them I would source the families to try it. They looked at me with abject horror at this suggestion and responded, "That's impossible, we'd need a new coordinator, a new desk and a new computer to offer a totally new service like that and we don't have the space!" Needless to say, the only solution they wanted us to consider and we had no choice in it, was to accept only 3 hours of flexi respite so that more people could be serviced from the waiting list.   

 

 

More regional workplaces and more jobs for the disability industry are not the priority - surely the rescue of PWD in real need over the next 5 years is the priority. Of these 10,000 people in the Hunter a % will hve existing supports as well as those who have never had funding of their own or respite. But today, right now there are  desperate broken PWD who live in other places. Not only are these people invisible now but their experiences tell them that disability funding out of budget probably won't be available to them in 5years time - it never has in the past.  Happily for these 10,000 PWD "old deals" always seem to be honoured and sustained, but because of this "mock NDIS" it may be 10 years or never for PWD living elsewhere, who never had any funding packages and their aged carers little respite, neither of whom will ever have the opportunity to be regarded the equal of PWD in the Hunter.

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NDIS Bill – Time for Closer Examination | disabilitydirectory.net.au

OPINION: Over the holidays among my light reading was the NDIS Bill. While I think that a superficial reading makes it look pretty good, there are a number of points which I think need to be addressed, or re-examined or ...
Deborah Robins's insight:

Some really good specific criticisms of the NDIS Bill - my favourite being that plans appear to be in direct contravention of the recognized need to involve PWD at all junctures.

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Deep sea diving ... in a wheelchair

Deep sea diving ... in a wheelchair | Towards a Real NDIS and the End of Empires | Scoop.it
When Sue Austin got a power chair 16 years ago, she felt a tremendous sense of freedom -- yet others looked at her as though she had lost something. In her art, she aims to convey the spirit of wonder she feels wheeling through the world.
Deborah Robins's insight:

Sue Austin's underwater wheelchair is  performance art that evokes the totally opposite effect on people as her land wheelchair, which she says from the outset made her virtually invisible as a person. Attitudes to PWD and their carers certainly change from the very outset in my experience affecting friendships and career opportunities. It is an experience that can't be described secondhand but Sue found her scuba diving adventures in her underwater chair allowed her to share the freedom and joy she experienced and hopefully by so dramatically breaking the limiting stereotype of disability, it  will begin to breakdown some of the attitudes she has inherited along with her disability. 

 

Upon hearing the list of commissioners selected to preside over the Child Sexual Abuse inquiry in recent days, I was filled with a disappointment that not one commissioner was selected because he/she had had the lived experience and a perspective that cannot be replicated secondhand. I thought to myself, "There isn't one well-educated judge or professional survivor?" I feel the same way about the NDIS and the belief that in the main, PWD are disenfranchised from the design of the program in so many ways. Sue Austin is my hero in finding such an effective way of breaking down the wheelchair barrier. My son is my hero when acting on stage, participating in the youthful nightclub scene and earning his qualifications to officiate at civil committment ceremonies. It costs him so much more being so very weak from the horror of what is under his skin (from advanced Duchenne) so even though his "art" is less dynamic, it is no less admirable to me. His inability to attract funding to live independantly seems a punishment to me for daring to break the disability stereotype. If this belief were just paranoia then why are PWD so disenfranchised from their own service provision, from the fruit of their own breast beating advocacy, the NDIS.

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