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latest news and resources to support individuals with disabilities and their families
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Possibilities Video Series - Developmental Disabilities Institute - Wayne State University

Possibilities Video Series - Developmental Disabilities Institute - Wayne State University | Supporting Families | Scoop.it
The Possibilities series of videos focuses on the lives and accomplishments of individuals with developmental and intellectual disabilities.
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Toilet training for children with autism or intellectual disabilities | Learn2Do

Toilet training for children with autism or intellectual disabilities | Learn2Do | Supporting Families | Scoop.it

Toilet Training, topics include Daytime Wetting and Soiling, Behavioral approaches to toilet training for children with developmental disabilities, and more

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Internet Essentials

Internet Essentials | Supporting Families | Scoop.it
New from Comcast! Internet Essentials: $9.95 Internet service for qualifying families with kids who receive free or reduced price lunches.
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Partnering Together - Here Comes Summer - 2.3

Partnering Together - Here Comes Summer - 2.3 | Supporting Families | Scoop.it
1 MOF2F SUMMER!Summertime signals all sorts of things for families: a break from school, stressful switches in...
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DB101 Missouri - Calculators

Use DB101's online benefits planning Calculators to get ready for a change in your work or benefits, or to learn how benefits rules might apply to you.
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Emergency Healthcare in Adults with IDD; Communication of Health Care Needs

Individuals with Intellectual and Developmental Disabilities (IDD) often have complex and fragile health issues which commonly result in the need for acute health interventions.
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Public Insurance Programs and Children with Special Health Care Needs | Catalyst Center

Public Insurance Programs and Children with Special Health Care Needs | Catalyst Center | Supporting Families | Scoop.it

This tutorial gives a broad overview of Medicaid and CHIP, the many different populations these programs serve, the changes they are undergoing under health reform, and some detail to help readers think about opportunities to improve services for CSHCN through communication and collaboration with Medicaid and CHIP staff. The tutorial starts with an overview of how definitions of CSHCN may vary by agency or program, followed by eight major topic areas and then recommendations for steps Title V programs can take to build successful partnerships with public insurance programs.

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This Amazing Device Just Made Wheelchairs Obsolete for Paraplegics

This Amazing Device Just Made Wheelchairs Obsolete for Paraplegics | Supporting Families | Scoop.it

The young man in this video looks like he's riding a Segway. But Yusuf Akturkoglu was paralized after falling from a horse five years ago, and he's being mobilized by an amazing device invented by Turkish scientists.

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Booklet “Your Loved One is Having a Baby with Down Syndrome” now available - Down Syndrome Pregnancy

Booklet “Your Loved One is Having a Baby with Down Syndrome” now available - Down Syndrome Pregnancy | Supporting Families | Scoop.it

Our booklet “Your Loved One is Having a Baby with Down Syndrome” is now available for free download. We hope this booklet will be helpful to all people who know someone who is awaiting the birth of a baby with Down syndrome. Expectant parents, we hope this will be useful to you as you approach your friends, your parents, and your other loved ones about the news of your child’s diagnosis.

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ILL-PREPARED; HEALTH CARE'S BARRIERS FOR PEOPLE WITH DISABILITES

ILL-PREPARED; HEALTH CARE'S BARRIERS FOR PEOPLE WITH DISABILITES | Supporting Families | Scoop.it

The ERC released a report documenting staggering levels of violations of federal accessibility requirements at hospitals, doctor’s offices, and pharmacies across the nation. The report, “Ill-Prepared: Health Care’s Barriers for People with Disabilities,” reveals that less than 25 percent of medical service providers were compliant with accessibility standards required under federal law.

 

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Gemss For Schools

Gemss For Schools | Supporting Families | Scoop.it
GEMSS are tools for schools! They explain genetic conditions and offer helpful strategies for use in classrooms. These include ideas for emergencies, field trips, and diets.
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Resources & Materials from Teleconferences & Workshops

SPAN NJ's recorded teleconferences

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Teen Care Notebook | The Center for Children with Special Needs

Teen Care Notebook | The Center for Children with Special Needs | Supporting Families | Scoop.it

Are you a teen with a health condition that is beginning to take a more active role in your own health?

 

The Teen Care Notebook is a modified version of the Care Notebook for Parents which only include the things a teen might need. It is a great way to stay on top of things and organize information about your health condition and treatments in one place. You can also use it to share information with your parents, doctors, nurses, and other health care professionals.

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Preparing for transition to adulthood with baby steps (that become huge milestones)! It starts with YOU.

Quick read, but a great example of instilling self-determination and independence early and specific to medical transitions.

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Arc and The Affordable Care Act What Disability Advocates Need to Know

Arc and The Affordable Care Act What Disability Advocates Need to Know | Supporting Families | Scoop.it

Now that the U.S. Supreme Court has affirmed the constitutionality of the Affordable Care Act (ACA), the disability community must work to better understand the law and the many benefits it can provide to people with disabilities. This will be critical to the community’s role in helping to move states forward with implementation.

 

Numerous ACA provisions related to both acute care and long term services and supports hold great promise for improving the health and wellbeing of people with disabilities. This issue of National Policy Matters provides information about the major provisions and the status of their implementation.

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Study: Communication with Moms of Critically Ill Infants Needs Improvement - HealthCanal.com

Study: Communication with Moms of Critically Ill Infants Needs ImprovementHealthCanal.comThe study, published August 16 in the Journal of Perinatology, found that miscommunication was common, and that the most serious breakdown in communication related to understanding the severity of the child's condition.


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Medical News:Post ACA: What to Tell Patients

Wondering what to tell patients about the effect of the Supreme Court's ruling upholding the Affordable Care Act? Here are some basic questions and answers.

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The Future of Children - journal_details

The Future of Children - journal_details | Supporting Families | Scoop.it

Read about the future of children with disabilities and special healthcare needs in this great issue of the journal the Future of Children 

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Inclusion: Information and Strategies You Can Use | AAIDD

Inclusion: Information and Strategies You Can Use | AAIDD | Supporting Families | Scoop.it

AAIDD is pleased to announce a year-long series of free, one-hour webinars on strategies to increase inclusion, entitled Inclusion: Information and Strategies You Can Use. Including housing, employment, education.

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Missouri Arthritis Rehabilitation Research and Training Center: Medicaid

Missouri Arthritis Rehabilitation Research and Training Center: Medicaid | Supporting Families | Scoop.it

Medicaid overview which includes what it is, what it covers, eligibility, costs, how to apply, and what to do if you're denied.

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Impact Newsletter: Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities

EXCELLENT issue of Impact.  Includes personal stories and perspectives, policy issues, tips for parents, and tons more.

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autismNOW.org | Webinars

autismNOW.org | Webinars | Supporting Families | Scoop.it
The Autism NOW Center is the nation's source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families. A national initiative of The Arc.
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Does It Run In the Family - Genetic Alliance

Does It Run In the Family - Genetic Alliance | Supporting Families | Scoop.it

This tool helps you create personalized booklets to start conversations about health in your family and community.

 

The sooner we understand the link between our family's health and our own, the sooner we can make changes and take steps to live longer, healthier lives. A peek into the past can reveal a lot about your future.

 

Family health history:
• Leads to conversations about health
• Helps healthcare providers diagnose conditions
• Tells you about your risk for specific disease

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DO-IT

The international DO-IT Center promotes the success of individuals with disabilities in postsecondary education and careers, using technology as an empowering tool.

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Autism

Autism | Supporting Families | Scoop.it
Welcome to the New VFN Autism Web Resources ! Thank you for visiting our Autism Resources. We hope you find the information you are looking for and invite your feedback.  Click here to take the survey.
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