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items of interest for those living with long term conditions
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Living in Spain for 2 months | Martyn Sibley

Living in Spain for 2 months | Martyn Sibley | Spoonie Scoopit | Scoop.it

For those living with a long-term condition, life can seem like one hurdle after another and sometimes dreams and ambitions can take a back seat.

 

Here Martyn shares his dream and journey of living and learning abroad...

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Diary of a Benefit Scrounger: Scottish GPs call for Immediate end to "Fit for Work" tests

Diary of a Benefit Scrounger: Scottish GPs call for Immediate end to "Fit for Work" tests | Spoonie Scoopit | Scoop.it

Some good news for us all to share! 

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Homeshare: meet the unlikely housemates

Homeshare: meet the unlikely housemates | Spoonie Scoopit | Scoop.it
A cheap place to live in return for free care and company: with homeshare, everybody wins.
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BBC's Waterloo Road works with mental health charity Mind

BBC's Waterloo Road works with mental health charity Mind | Spoonie Scoopit | Scoop.it

Mind believes that featuring characters with mental health problems in TV programs can have an extremely positive impact. Wide scale exposure could help to reduce mental health stigma.

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What impact does telehealth have on long-term conditions management? - The King's Fund

What impact does telehealth have on long-term conditions management? - The King's Fund | Spoonie Scoopit | Scoop.it
Our online prezi presentation sheds light on the impact telehealth can have (positive or negative) on the management of people with long-term conditions. (What impact does #telehealth have on long-term conditions management?
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COPD sufferers should skip the salami

COPD sufferers should skip the salami | Spoonie Scoopit | Scoop.it

Excessive consumption of cured meats like ham, pepperoni, salami or bacon have been associated with an increased risk of hospital readmission for chronic obstructive pulmonary disease (COPD) patients 

 

The authors of a new study offer a theory that the nitrates used to preserve and cure the meats may lead to increased lung damage causing a COPD sufferer to return to the hospital.

 

The study was led by Dr. Judith Garcia-Aymerich from the Centre for Research in Environmental Epidemiology in Barcelona, Spain and involved 274 COPD patients. The 274 participants were monitored after their first hospital admission for two years. According to the results, eating more than the equivalent of one slice of ham a day was associated with an increased risk of readmission to the hospital.

 

*HC* - I would bear in mind that the study was only done on 274 patients and it would be dependent on the phase of their COPD...

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Scientists shocked to find antibiotics alleviate symptoms of schizophrenia

Scientists shocked to find antibiotics alleviate symptoms of schizophrenia | Spoonie Scoopit | Scoop.it
A cheap antibiotic normally prescribed to teenagers for acne is to be tested as a treatment to alleviate the symptoms of psychosis in patients with schizophrenia, in a trial that could advance scientific understanding of the causes of mental illness.
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Web-based tool for chronic diseases launched in UK | InPharm

Web-based tool for chronic diseases launched in UK | InPharm | Spoonie Scoopit | Scoop.it
InPharm.com is a leading portal for the pharmaceutical industry, providing industry professionals with pharma news, jobs, events, and service company listings.
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O2 Health launches Help at Hand mobile telecare service | Mobile News Online

O2 Health launches Help at Hand mobile telecare service | Mobile News Online | Spoonie Scoopit | Scoop.it

GPS device aimed at people with long-term conditions runs with O2 mobile coverage and connects to alarm receiving centre in an emergency O2 Health has (O2 Health launches Help at Hand mobile telecare service.

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Top 5 Multiple Sclerosis Social Media Resources

Top 5 Multiple Sclerosis Social Media Resources | Spoonie Scoopit | Scoop.it

Webicina's new Multiple Sclerosis and Social Media collection features relevant and quality social media resources from blogs and podcasts to community sites, Youtube and Twitter accounts

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Could this £1 a day osteoporosis drug slow progression of osteoarthritis?

Could this £1 a day osteoporosis drug slow progression of osteoarthritis? | Spoonie Scoopit | Scoop.it

Have you seen the news today about how bone-strengthening drug strontium ranelate 'slows osteoarthritis progression'? 

 

Our thoughts on the subject.....

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100 miles for the NRAS

100 miles for the NRAS | Spoonie Scoopit | Scoop.it

Over the past 4 years Darren has taken part in the Royal Parks Half Marathon to raise money for the NRAS (National Rheumatoid Arthritis Society). In 2010, he turned the one half marathon into a Marathon in a Month challenge.  

 

To celebrate a 5th year of fundraising, and to celebrate that 2012 is the Olympic year, this years challenge is massive 100 miles of races for NRAS.

 

Here, Darren shares his journey...

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Round the Isles for Rheumatoid - Kayaking 100 Marathons in 100 Days

Round the Isles for Rheumatoid - Kayaking 100 Marathons in 100 Days | Spoonie Scoopit | Scoop.it
Martin Lee will be Kayaking 100 Marathons in 100 Days in a Round the Isles for Rheumatoid Challenge. This Charity Challenge will aim to raise £100,000 for the National Rheumatoid Arthritis Society to support people with Rheumatoid Arthritis, RA.
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Online dating with a disability

Online dating with a disability | Spoonie Scoopit | Scoop.it

Online dating can be a minefield - and when you're disabled, it's even more complicated. Stefano Goodman wonders when is the right time to mention the 'D' word

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Decision imminent over MS pill revolution - Scotsman

Decision imminent over MS pill revolutionScotsmanTHE Scottish Medicines Consortium (SMC) will decide on Monday if it will recommend the prescribing of the first oral pill for the treatment of Multiple Sclerosis in Scotland.
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Risk of atrial fibrillation and stroke increases with Rheumatoid Arthritis

Risk of atrial fibrillation and stroke increases with Rheumatoid Arthritis | Spoonie Scoopit | Scoop.it

Rheumatoid arthritis patients had a 40% increased risk of atrial fibrillation and a 30% increased risk of stroke compared to the general population, based on data from a national cohort study in Denmark.

 

Previous studies have shown an association between rheumatoid arthritis (RA) and increased risk of myocardial infarction, but data on the risk of stroke have been inconsistent, said Dr. Jesper Lindhardsen, a research fellow in the department of cardiology at Gentofte Hospital in Hellerup, Denmark.


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Personal budgets could be ‘unsustainable’ due to fraud and spiralling costs, study warns

Personal health budgets risk becoming ‘unsustainable' if England fails to heed the lessons from other countries which have adopted the policy, new research published in the BMJ has shown.

 

The Department of Health is currently piloting personal budgets in 64 PCTs, as part of its drive to give patients more say over the services they access, and recently pledged to roll out the scheme to 50,000 people by 2014.

 

But new research warns that managers in the Netherlands have been forced to restrict a similar scheme due to rising costs and susceptibility to fraud.

 

Patients in the Netherlands have been able to hold a personal budget to purchase care since 1997. But between 2002 and 2010 the number of personal budget holders increased tenfold, while spending increased on average by 23% a year.

Researchers also said there had been ‘credible reports of fraud' and expressed concerns about ‘the growth of private agencies that broker arrangements between clients and providers'.

 

Professor Martin McKee, professor of European public health at the London School of Hygiene and Tropical Medicine, who led the research with colleagues from the Netherlands, warned: ‘Unless the lessons of the Dutch experience are learnt, the unintended and negative consequences will outnumber the positive, empowering role of personal budgets.'


Via Laura Wetherly
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NHS bill on course to become law | NRAS Public Affairs News

NHS bill on course to become law | NRAS Public Affairs News | Spoonie Scoopit | Scoop.it
The House of Lords have backed amendments to the government's health bill, which now looks on course to become law within weeks.
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Professor Steve Field to lead review of NHS Constitution and legal right to medicines | NRAS Public Affairs News

The NHS Constitution and its role in defining patients' rights to medicines are to be reviewed by the NHS Future Forum, amid warnings from some GP commissioners that they are being denied flexibility to make local funding decisions.
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NHS local to create an online tool to support people with long term conditions | NHS local blog

NHS local to create an online tool to support people with long term conditions | NHS local blog | Spoonie Scoopit | Scoop.it
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