eHealth - Social Business in Health
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eHealth - Social Business in Health
ehealth, integrating care, health monitoring, on line communication, interaction and (mobile) technology to care for health better
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Katz: ‘Participatory Medicine’ encourages partnership between patient and provider

Katz: ‘Participatory Medicine’ encourages partnership between patient and provider | eHealth - Social Business in Health |
For hundreds of years, the physician-patient relationship has seen the physician as the authoritative, sometimes dictatorial, healer — the unquestioned expert on care, protocols and medical regimens. The patient assumed the role of a passive receiver of information, taking orders and instruction from the doctor.

Today, there is a movement afoot — one that is welcomed by me and many of my colleagues. It’s a change that I hope will become the norm when it comes to the physician-patient relationship. It’s all about partnerships between patient and provider.

Participatory medicine, as noted by the Society for Participatory Medicine (S4PM), is “a movement in which networked patients shift from being mere passengers to responsible drivers of their health and in which providers encourage and value them as full partners.”

The society further states, “Participatory medicine is a model of cooperative health care that seeks to achieve active involvement by patients, professionals, caregivers, and others across the continuum of care on all issues related to an individual's health.”

I encourage my colleagues and medical professionals across our region to embrace the participatory medicine movement.

read on!

rob halkes's insight:

Participatory medicine - a "must" in the transformation of care. Marc Katz MD writes a must read introduction to his colleagues about the movement. Why don't you have a look by yourself, at least if you haven't heard of participatory medicine before!

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Rumor: Apple developing Healthbook app for iOS8 | mobihealthnews

Rumor: Apple developing Healthbook app for iOS8 | mobihealthnews | eHealth - Social Business in Health |

According to a report over at 9to5Mac, Apple is developing a health app called Healthbook that will track steps taken, calories burned, and miles walked. The app will also helps users track blood pressure, hydration levels, heart rate, and other blood-related biometrics, including — possible — glucose levels. In addition to the tracking features, Healthbook will also reportedly help users remember to take their medications and may even integrate with the iPhone’s existing, built-in Reminders app.

The report cites sources who describe the app as being modeled after Apple’s Passbook app, which is an app for storing loyalty cards and coupons. Like Passbook, Healthbook would be designed with an interface that resembles a stack of cards — each card representing a different health or fitness data point.

9to5Mac points out that many features and apps are developed for an upcoming iOS launch than the number that actually makes it into the final cut. While Healthbook may be under development at Apple, it still may never find its way to market.

Rumors aside, Apple has been poaching engineering talent and senior employees from digital health companies over the course of the past year. So, it certainly has more than a passing interest in digital health. Most recently, MobiHealthNews broke the news that Apple had hired Michael O’Reilly, the former chief medical officer of Masimo Corporation, which specializes in pulse oximeters. At the very end of 2012 Masimo commercially launched an iPhone-enabled pulse oximeter called the iSpO2.

Over the weekend The New York Times reported a few new scoops on Apple’s mobile health plans and its rumored iWatch project. Apple’s meeting in December with the FDA was focused on the subject of “mobile medical apps”, which is the term the FDA uses for those apps that need to be regulated as medical devices.

“They are either trying to get the lay of the land for regulatory pathways with medical devices and apps and this was an initial meeting, or Apple has been trying to push something through the FDA for a while and they’ve had hangups,” Mark A. McAndrew, a partner with the law firm Taft Stettinius & Hollister, who first noticed the public notice about the Apple-FDA meeting, speculated in an interview with The New York Times.... [read on ]

rob halkes's insight:

Curious where this will bring us..

Richard Baxter's curator insight, February 5, 2014 9:44 AM

Only a matter of time before Apple saw the potentail of health and big data combinations

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A 3-stage model of patient-centered communication for addressing cancer patients’ emotional distress

A 3-stage model of patient-centered communication for addressing cancer patients’ emotional distress | eHealth - Social Business in Health |

A three-stage, conceptual model for assisting clinicians to more effectively address the challenges of recognizing, exploring, and managing cancer patients’ emotional distress in the clinical encounter was developed. To enhance and enact recognition of patients’ emotions, clinicians can engage in mindfulness, self-situational awareness, active listening, and facilitative communication. To enact exploration, clinicians can acknowledge and validate emotions and provide empathy. Finally, clinicians can provide information empathetically, identify therapeutic resources, and give referrals and interventions as needed to help lessen patients’ emotional distress.


This model serves as a framework for future research examining pathways that link clinicians’ emotional cue recognition to patient-centered responses exploring a patient's emotional distress to therapeutic actions that contribute to improved psychological and emotional health.

Practical implications

Specific communicative and cognitive strategies are presented that can help clinicians better recognize a patient's emotional distress and respond in ways that have therapeutic value.

rob halkes's insight:

Guideline for physicians, great!

(just a pity that the full publication needs to be heavily paid..)

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Could Clinical Decision Support Empower Patients? -- InformationWeek

Could Clinical Decision Support Empower Patients? -- InformationWeek | eHealth - Social Business in Health |
It's time the medical establishment heeded the longstanding
advice of informatics pioneer Larry Weed and used "participatory" diagnostic methods, says editorial.

Neil Versel | March 22, 2013
Ideas long espoused by medical informatics pioneer Dr. Lawrence L. Weed but shunned or ignored by the medical establishment might find a perfect fit in a world of "participatory medicine,"suggests a well-known proponent of patients taking an active role in their own care in concert with healthcare professionals.

As he explained this month at the Healthcare Information and Management Systems Society (HIMSS) conference in New Orleans and in a 2011 book he co-authored with son Lincoln, Weed believes in "coupling" medical knowledge to specific patient problems with the aid of computers. Any attempt to practice medicine based on a physician's knowledge alone invites diagnosis error, according to Weed.

That opinion struck a chord with Terry Graedon, co-editor-in-chief of the Journal of Participatory Medicine. "Recent research reports have shown that misdiagnosis is an Achilles heel for the current practice of medicine," Graedon wrote in a commentary published this week.

[ A study suggests patients don't like it when doctors use computers to diagnose them. Read Clinical Decision Support A Turnoff For Patients, Says Study. ]

Indeed, the Journal of the American Medical Association's JAMA Internal Medicine just last month published a study showing that physicians missed a surprisingly high number of common diseases in ambulatory care. Although Graedon's article does not mention this study, it does raise similar themes.

Proper diagnosis, Graedon argued -- as Weed, creator of the problem-oriented medical record, has been doing for decades -- starts with a complete problem list. Then, a computer system couples problems to specific medical knowledge.

"If diagnosis begins with standardized data collection, doctors bring clinical judgment to bear at the final stage of diagnosis. Treatment should then be evidence-guided but individualized for the particular patient," Graedon wrote. "We trust that at this point the patient would make his or her preferences known and share in the decision," she added, bringing in the element of patient empowerment, because the Journal of Participatory Medicine is a publication of the Society of Participatory Medicine.


rob halkes's insight:

As for Participatory medicine, shared decision making and perhaps co-creating patient experiences of therapies, we have to go a long road before protagosnists of care will find the right click in what to do and what not. Let innovators amongst them get togehter and try, try and try. It worth it! ;-)

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