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'Three-parent babies' could be born in Britain next year - Telegraph

'Three-parent babies' could be born in Britain next year  - Telegraph | Privacy and Security | Scoop.it
Britain is set to become the first country in the world to create babies with the DNA of three people after the government set out new draft regulations
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Genetic modification- relates to identity

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Mitochondrial DNA tests - ISOGG Wiki

Mitochondrial DNA tests - ISOGG Wiki | Privacy and Security | Scoop.it
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Mitochondrial DNA tests 
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Genomics, health records, database linkage and privacy Background Paper

This paper outlines the current state of the art, future developments and main ethical issues that arise in the context of genomics, health records, database linkage and privacy. Current oversight and potential questions that might need to be addressed are highlighted. 

EthicsSouthampton's insight:

Part of the discussion on ethics and identity 

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From a ‘bundle of joy’ to a person with sorrow: Disenfranchised grief for the donor-conceived adult

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Paper by Joanna Rose donor conceived and didn't know. 

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Angry Birds and 'leaky' phone apps targeted by NSA and GCHQ for user data

Angry Birds and 'leaky' phone apps targeted by NSA and GCHQ for user data | Privacy and Security | Scoop.it
NSA and GCHQ developing capabilities to piggyback on commercial data from apps including Angry Birds for their own purposes
EthicsSouthampton's insight:

Accessing data through the back door. Uniformed consent.  Is that ethically?  Why do they need to pick up data this way? 

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'Revenge porn' site owner threat

'Revenge porn' site owner threat | Privacy and Security | Scoop.it
Hacktivist collective Anonymous threaten Hunter Moore, the former owner of a "revenge porn" website, as he prepares to launch a new site.
EthicsSouthampton's insight:

Revenge porn - Anonymous focus on the owner of the site.  Privacy concerns for those involved in the released images 

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A Little Digging Unmasks DNA Donor Names

A Little Digging Unmasks DNA Donor Names | Privacy and Security | Scoop.it
Genetic information stored anonymously in databases doesn't always stay that way, a new study revealed, prompting a debate on how much privacy participants in scientific research can expect in the Internet era.
EthicsSouthampton's insight:

Scientist are able to match anonymous donors by the data sets.  The larger the data set the more chance of being able to match people who thought that they would be be anonymous. 

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NHS legally barred from selling patient data for commercial use - Telegraph

NHS legally barred from selling patient data for commercial use - Telegraph | Privacy and Security | Scoop.it
Jeremy Hunt will next week announce a new drive to protect patient privacy under which the NHS will be barred from selling medical records for commercial use
EthicsSouthampton's insight:

Should the NHS be allowed to sell data on patients to third parties? Including insurance companies? 

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Edward Snowden At SXSW -- Best To Pay For Internet Security

Edward Snowden At SXSW -- Best To Pay For Internet Security | Privacy and Security | Scoop.it
If you want better privacy and security, you'd better pay for it instead of relying on ad-financed search, social media and other online companies most of us use, said a SXSW Interactive Conference panel featuring Edward ...
EthicsSouthampton's insight:

We all use lots of free tools to share information but should we be more careful about who we let have our information?  This article discusses issues around businesses accessing your information and how secure they keep it.  

 

Is it in their interests to protect your privacy?  

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Reaction to announcement paving the way for law change

Reaction to announcement paving the way for law change | Privacy and Security | Scoop.it
» Reaction to announcement paving the way for law change |
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Statement from the Microcondria research centre  

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Publications | Nuffield Council on Bioethics

Publications | Nuffield Council on Bioethics | Privacy and Security | Scoop.it
EthicsSouthampton's insight:

In particular paper on 

Genomics, health records, database linkage and privacy (Background Paper) useful for discussion on ethics and identity

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Red Tape Challenge - Adoption

Red Tape Challenge - Adoption | Privacy and Security | Scoop.it
It's time to fight back and cut red tape - we need your help
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Human Rights by Michael Freeman | Key Concepts

Human Rights by Michael Freeman | Key Concepts | Privacy and Security | Scoop.it
Support resources for the Key Concepts' series of books published by Polity that explore core concepts in the social sciences.
EthicsSouthampton's insight:

The right to your identity is a basic human right.  Discussed in today's session with Caroline Jones as part of the session on identity. 

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Donor Sibling Link UK - a register to connect donor sibilings - HFEA

Donor Sibling Link UK - a register to connect donor sibilings - HFEA | Privacy and Security | Scoop.it
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Donor siblings are able to connect with each other.  Serious privacy implications here.

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Donor Sibling Registry

Donor Sibling Registry | Privacy and Security | Scoop.it
EthicsSouthampton's insight:

Online registry in US connecting donor conceived people, half siblings, donors etc. quite different to UK due to our reg system being very differently set up ,...

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- Terms and Conditions May Apply - (Docu) - Full Movie / English - LivingScoop

- Terms and Conditions May Apply - (Docu) - Full Movie / English - LivingScoop | Privacy and Security | Scoop.it
EthicsSouthampton's insight:

A 'must see' documentary 'Terms and Conditions May Apply' follows a series of issues relating to the use of data - what do we do with it and how do we draw conclusions from the data we have access to. 

 

Should we allow the authorities to analyse data and draw conclusions?

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Care.data: How did it go so wrong?

Care.data: How did it go so wrong? | Privacy and Security | Scoop.it
NHS bosses have agreed to delay the introduction of its new data-sharing project, Care.data, despite most experts saying it could play a crucial role in improving care. Was this a classic case of how not to run a communications campaign, asks Nick Triggle?
EthicsSouthampton's insight:

Analysis of the failed Data initiative from NHS 

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