Pregnant With Cancer
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Lingerie Evenings | Breast Cancer Care

Lingerie Evenings | Breast Cancer Care | Pregnant With Cancer | Scoop.it
For more confidence when choosing a bra after surgery, join other women who have had breast cancer at one of our Lingerie Evenings.
Janne M. Rodsten's insight:

....well worth it, can never find a properly fitting and comfortable bra nowadays - those wires dig into my tissue-ridded sides...anyone agree?

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Your Cancer Is Not My Cancer: The Danger of Comparison

Your Cancer Is Not My Cancer: The Danger of Comparison | Pregnant With Cancer | Scoop.it
The truth is that every single person's cancer is different -- even those diagnosed as the same type and stage -- because that cancer exists in a unique human body unlike no other, with a unique life history and genealogy....
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Husband starts cancer charity in wife's memory

Husband starts cancer charity in wife's memory | Pregnant With Cancer | Scoop.it
A husband who lost his wife to cancer, weeks after she gave birth, has started a charity in her memory.

Mair Wallroth, from Glossop, was diagnosed with breast cancer while pregnant. She, and her husband Pete, discovered there was little or no support for those who develop cancer during pregnancy and, importantly, no charity offering dedicated help in the UK.

"It just made us feel alone," says Pete, "facing the perversity of being pregnant yet having to suddenly deal with a cancer diagnosis."
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Recruitment of participants - Pregnant with breast cancer study

Recruitment of participants - Pregnant with breast cancer study | Pregnant With Cancer | Scoop.it
Recruitment is going really well, and I have a fair few brave women lined up for interviews  around the country in June and July.  I can't wait to hear their stories, and to try to make sense of wh...
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Tweet from @macmillancancer

Having cancer is not a fight or a battle. Why is military language used to describe cancer? http://www.theguardian.com/society/2014/apr/25/having-cancer-not-fight-or-battle
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JM Rodsten

JM Rodsten | Pregnant With Cancer | Scoop.it
The Pregnant With Cancer Project UK
Janne M. Rodsten's insight:

....calling all women in the UK who experienced having breast cancer whilst being pregnant...we need your help for an important study!

 

email janne3.rodsten@uwe.ac.uk

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▶ Fort Worth Cancer Patient Tackles Chemotherapy, Pregnancy - YouTube

Aired originally on WFAA Dallas/Fort Worth, April 2011: Not long ago, pregnant women with cancer faced a terrible life-and-death decision: Save themselves an...
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.....Congratulations, Roxy - well done!!!

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Pregnant with Breast Cancer study

Pregnant with Breast Cancer study | Pregnant With Cancer | Scoop.it
Moving forward now - the application for ethical approval of my doctoral study has now been submitted to the University, and all I can do is wait, for a few weeks.....! Once the approval is given, ...
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You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer | Pregnant With Cancer | Scoop.it

My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.  

 


Via Marie Ennis-O'Connor
Janne M. Rodsten's insight:

....I am interested in interviewing women who were pregnant when diagnosed with breast cancer for my doctoral study....

 

Want to know more?  Contact me at janne3.rodsten@uwe.ac.uk 

#pregnantwithcancer

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Kathleen D. Hoffman, PhD's curator insight, November 2, 2014 9:52 AM

Congratulations Marie and Gai!

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Cancer Messed With the Wrong B*tch: Cancer Is Not a Competition 

Cancer Messed With the Wrong B*tch: Cancer Is Not a Competition  | Pregnant With Cancer | Scoop.it

"Cancer is not a competition.

I'm not very competitive. Of course, everyone likes a win, but I'm okay with taking a loss, learning from it, and moving on. I've just learned though, that, in a round about way, I am a perpetual winner. You see, I have breast cancer, and that's the best cancer to have. We get the majority of the funding raised for cancer and we have a monopoly on awareness. Hell, we even unofficially changed the name of a month (Pinktober anyone?). Now that's freaking power right there. We already found the cure and are just holding off on making it public because we don't want to upset the other cancers that no one cares about.

What? None of that is true? Oh, well, it is if you ask Official Pancreatic Action, a pancreatic cancer awareness organization in the UK. Their latest ad campaign features a picture of a woman, with a bald head (presumably from chemo), and next to her is a quote, "I wish I had breast cancer." This ad campaign calls this "cancer envy." Yes, you see, according to the PCA, since those of us with breast cancer have it so good, everyone wants to be us.


Via Curated by A4BC.ORG
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Curated by A4BC.ORG's curator insight, February 6, 2014 7:50 PM

The ad by the Official Pancreatic Action Organization (PCA) in the UK  picturing a bald headed woman saying "I wish I had breast cancer" was very offensive. In this article  Seporah Raizer explains so many reasons why this is wrong. Also cancer organizations should not be pitted up against each other. The PCA missed a huge opportunity to raise awareness for pancreatic cancer, and all of the lesser known cancers as well as lesser known breast cancers like inflammatory breast cancer, triple negative and metastatic breast cancer. Sephorah wrote, "A rising tide raises all ships, but the PCA missed the mark and tried to sink ours."

Heather Swift's curator insight, February 8, 2014 3:20 PM

The ad by the Official Pancreatic Action Organization (PCA) in the UK  picturing a bald headed woman saying "I wish I had breast cancer" was very offensive. In this article  Seporah Raizer explains so many reasons why this is wrong. Also cancer organizations should not be pitted up against each other. The PCA missed a huge opportunity to raise awareness for pancreatic cancer, and all of the lesser known cancers as well as lesser known breast cancers like inflammatory breast cancer, triple negative and metastatic breast cancer. Sephorah wrote, "A rising tide raises all ships, but the PCA missed the mark and tried to sink ours."

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Pregnancy-Associated Breast Cancer (PABC) project

Pregnancy-Associated Breast Cancer (PABC) project | Pregnant With Cancer | Scoop.it
Hello there, The registration procedure for my doctoral project is still ongoing with the university - I am expecting the approval to come through in March.  For my application, I have been asked t...
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The psychosocial needs of breast cancer survivors; A qualitative study of the shared and unique needs of younger versus older survivors - Thewes - 2003 - Psycho-Oncology - Wiley Online Library

The psychosocial needs of breast cancer survivors; A qualitative study of the shared and unique needs of younger versus older survivors - Thewes - 2003 - Psycho-Oncology - Wiley Online Library | Pregnant With Cancer | Scoop.it
Janne M. Rodsten's insight:
Your age at diagnosis matters hugely for your psychological recovery from cancer.....but all cancer patients should be offered psychosocial assessment and service!
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Coping with breast cancer in pregnancy: an ongoing study ~ Pregnancy & Medicine Initiative

Coping with breast cancer in pregnancy: an ongoing study ~ Pregnancy & Medicine Initiative | Pregnant With Cancer | Scoop.it
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Pregnancy and cancer awareness week launched by charity ~ Pregnancy & Medicine Initiative

Pregnancy and cancer awareness week launched by charity ~ Pregnancy & Medicine Initiative | Pregnant With Cancer | Scoop.it
Janne M. Rodsten's insight:

....agree with Pete here as he says:  “If, like my wife, you have just had a baby and straight away start to undergo chemo you are not going to be able to look after that child,” Pete says. “This understandably falls to the partner but, with only two weeks paternity leave, that partner is soon taking unpaid leave, potentially bringing financial hardship on the family. Legislative change is needed.”


http://www.mummysstar.org

 

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Blood test for breast cancer comes step closer

Blood test for breast cancer comes step closer | Pregnant With Cancer | Scoop.it
A simple blood test which could help predict a woman’s chance of developing breast cancer is in development, after new research uncovered a genetic “early marker” of risk, scientists have said.
Janne M. Rodsten's insight:

.....fantastic news!!

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Mum has mastectomy 30 MINUTES after giving birth after being diagnosed with breast cancer during pregnancy

Mum has mastectomy 30 MINUTES after giving birth after being diagnosed with breast cancer during pregnancy | Pregnant With Cancer | Scoop.it
Half an hour after delivering her baby cancer-stricken Sarah Williams had an operation to remove 29 lymph nodes
Janne M. Rodsten's insight:

....amazing story - would love to have this woman participate in my research....anyone know her who could put me in touch?  janne3.rodsten@uwe.ac.uk

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Breast Cancer and Pregnancy - Breast Cancer Care Forum - 837391

Breast Cancer and Pregnancy - Breast Cancer Care Forum - 837391 | Pregnant With Cancer | Scoop.it
Breast Cancer and Pregnancy
Janne Rodsten, Researcher at The University of West of England, is conducting a study about women’s experien... - 837391
Janne M. Rodsten's insight:

Thank you to Breast Cancer Care, and hopefully more women will come forward for this important study!!

x Janne

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Standards of care for younger women with breast cancer | Breast Cancer Care

Standards of care for younger women with breast cancer | Breast Cancer Care | Pregnant With Cancer | Scoop.it
Breast Cancer Care provides information and support for everyone affected by breast cancer. Find information, get support on our forums, donate and much more.
Janne M. Rodsten's insight:

.....this is unfortunately a growing patient group, and more and more women will be pregnant at diagnosis...Were you?  - I would love to hear from you for my doctoral study investigating the psychological impact of cancer during pregnancy  - email me at janne3.rodsten@uwe.ac.uk

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Cancer patients should not feel pressure to bounce back to normal immediately

Cancer patients should not feel pressure to bounce back to normal immediately | Pregnant With Cancer | Scoop.it
Those who have been through treatment need time and understanding from family, friends and healthcare professionals, says Justin Stebbing

Via Marie Ennis-O'Connor
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JM Rodsten

JM Rodsten | Pregnant With Cancer | Scoop.it
The Pregnant With Cancer Project UK
Janne M. Rodsten's insight:

.....were you pregnant with breast cancer, or do you know someone who was?  If so, I would love to hear from you, and perhaps you would like to take part in my doctoral study later this year...

 

x Janne   (janne3.rodsten@uwe.ac.uk)

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Australian woman takes bold step to raise breast cancer awareness - by posting photographs showing surgery scars on Facebook

Australian woman takes bold step to raise breast cancer awareness - by posting photographs showing surgery scars on Facebook | Pregnant With Cancer | Scoop.it

"Beth Whaanga, 32, from Brisbane, Australia, posted the series of candid pictures on Sunday as part of a cancer awareness project.

But she said she has been de-friended by more than 100 people since publicising the images on the social networking website.

The mother-of-four had to have a double mastectomy, breast reconstruction and a hysterectomy after cellular changes were detected in her left breast, and she was found to carry the BRCA2 gene.

In a bid to highlight the importance of regular self-checks, Ms Whaanga worked with photographer Nadia Masot to produce the photographs for their joint project “Under the Red Dress”.

Describing the venture, Ms Whaanga said: “These images are confronting and contain topless material. They are not in any way meant to be sexual. The aim of this project is to raise awareness for breast cancer. If you find these images offensive please hide them from your feed.

“Each day we walk past people. These individuals appear normal but under their clothing sometimes their bodies tell a different story. 

“Nadia Masot and I aim to find others who are willing to participate in our project so that we might show others that cancer affects everyone. The old and the young, age does not matter, self-examination is vital. It can happen to you.”


Via Curated by A4BC.ORG
Janne M. Rodsten's insight:

...like..!

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Curated by A4BC.ORG's curator insight, February 14, 2014 6:56 PM

Although people were upset about these images on Facebook, at least Facebook did not remove them. Beth Whaanga, age 32  lost 100 of her Facebook friends. but feels stingily that this will help raise awareness. 

Tambre Leighn's curator insight, February 15, 2014 1:10 PM

Sending a message like this can take great courage.  I applaud Whaanga's desire to save lives and her willingness to share her experience in a very raw and real way.  It was her choice to be part of this kind of messaging just as it is the choice of some to unfriend her.   Personally, were she a friend of mine, I would not do so however just as it is important not to judge Whaanga's choice to post, we cannot judge those who choose to unfriend.

 

Yes, we can hide things from our newsfeeds and yes Whaanga included a warning - very responsible and important part of her actions...but there may be many reasons some chose to stop following her.  For example, some may have lost a loved one to breast cancer and it may be a trigger to feelings of loss and grief.  And if it is not clear that this is a one time post, some may prefer to unfriend so as not to wonder if series is to follow, popping up in their feed at any time.

 

Unlike the recent Pancreatic Cancer Network debacle, this campaign stays completely focused on its own message and is a stand alone message that is not about comparing cancers.  It is a powerful outreach driven by a desire to save lives.  I hope Whaanga receives tons of supportive messages from those who remained her friends and who admire her courage and respect her choice...but if we're going to respect one person's choice to share a provocative message (in the sense that it's meant to be a wakeup call to get people into prevention mode) then we must also respect the right of others to choose what messages they want to see in their personal Facebook space.

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Hope for Two... The Pregnant with Cancer Network

Hope for Two... The Pregnant with Cancer Network | Pregnant With Cancer | Scoop.it
Hope for Two: The Pregnant With Cancer Network is an organization dedicated to providing information, support and hope to women diagnosed with cancer while pregnant.
Janne M. Rodsten's insight:

This is a fantastic organisation, that you can contact regardless of where  you are in the world.....

 

See also my blog:  jmrodsten.wordpress.com

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