PATIENT EMPOWERMENT & E-PATIENT
97.7K views | +0 today
Follow
 
Scooped by Lionel Reichardt / le Pharmageek
onto PATIENT EMPOWERMENT & E-PATIENT
Scoop.it!

Sexualité et désir d’enfant lorsque l’on a un cancer #MoiPatient #SpecialCancer#Journeemondialecontrelecancer #WorldCancerDay #WeCanICan #Cancer #hcsmeufr

Relations et intimité Le cancer peut affecter la sexualité et la fertilité. Découvrez comment vous et votre partenaire pouvez faire face à ces changements. La sexualité et le désir d'enfant La sexualité met en jeu divers aspects physiques et émotionnels. Les organes, le système nerveux et les hormones, d'une part ; les sentiments et les…
Lionel Reichardt / le Pharmageek's insight:

Un #MoiPatient Spécial Cancer à l'occasion de la Journée Mondiale de lutte contre le Cancer avec le soutien institutionnel d'Accuray. Première rencontre avec un représentant d'une association de patients dans le domaine avec Natacha Espié, présidente d'EUROPA DONNA FRANCE.

#Journeemondialecontrelecancer #WorldCancerDay #WeCanICan #Cancer #hcsmeufr

more...
No comment yet.
PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
Your new post is loading...
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

PHARMA.....CONNAIS TU LES E-PATIENTS?

PHARMA.....CONNAIS TU LES E-PATIENTS? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Mi septembre, la nouvelle tombe. "le Mycophénolate Mofétil (Cellcept) est exclu du dispositif "tiers payant contre générique"".
Résultat du travail de "Renaloo", association de patients qui a su mobiliser son réseau et négocier avec l'ANSM et la CNAMTS...
C'est une première....mais ce genre de situation va probablement devenir de plus en plus courante.


A l'occasion de la WebTV que j'ai eu l'honneur d'animer sur BEPATIENT.fr : "Carte blanche" donnée aux "E Patientes" ( http://sco.lt/8VRpi5 ), j'ai pris le temps de compiler un certain nombre d'informations sur ce qu'on appelle les "E Patients" et ce mouvement connu désormais dans la santé comme le "Patient Empowerment".


On sait que la santé est un sujet très présent sur le web.


Avec plus de 30% de la population mondiale connectée (plus de 71% dans les pays développés), le web 2.0 compte maintenant plus de 100 000 000 de sites et plus d'un milliard d'utilisateurs .


La santé 2.0 en chiffres c'est plus parlant. Cela représente :


- 1/3 des recherches faites sur Google
- 20% des discussion dans les réseaux sociaux


Ce qui fait de la santé le second sujet le plus recherché/discuté sur le net.


E PATIENT : UN PHENOMENE AMERICAIN?


On peut penser que ce mouvement des E Patients est un phénomène anglo-saxon pour ne pas dire américain.


Le plus connu d'entre eux, E Patient DAVE (Dave de Bronkart), sexagénaire américain, est devenu le "fer de lance" de ce mouvement.
Diagnostiqué avec un cancer du rein en 2006, les médecins le laissent sans espoir de traitement. Alors Dave s'adresse au web, échange avec d'autres patients et apprend qu'il y a un traitement envisageable mais proposé uniquement par certains médecins.
Rentré en rémission, il décide de s'appuyer sur son expérience pour promouvoir une approche nouvelle de la santé. (une interview intéressante de E Patient Dave http://www.myfoxmaine.com/story/19595242/e-patient-dave-health-activist)


Le Patient EMPOWERMENT est né avec les différente définitions que l'on peut donner aux E Patients (bien résumé et étayé sur wikipedia http://bit.ly/GShDVf ).


Parmi d'autres celle qui fait l'unanimité est la définition élaborée par Tom Ferguson qui identifie les e-patients comme des individus équipés, capables, responsables et impliqués (equipped, enabled, empowered, engaged) dans leur état de santé et dans les décisions qui lui afférent.


L'étude américaine de PEW INTERNET (Social life of health information ( http://bit.ly/SxW4PK ) résume bien l'ampleur de ce phénomène aux Etats Unis.


  • 80% des internautes ont cherché des informations santé sur le web
  • 1/3 s'en sert pour évaluer et choisir leur médecin
  • 60% reconnaissent que cela a affecté leur décision sur comment traiter leur pathologie
  • 50% demandent alors un second avis médical après ces recherches
  • 30% s'en servent pour décider d'aller consulter ou pas
  • 30% l'utilisent pour comparer les options de prescription de traitement


Aux Etats Unis ou les professionnels de santé sont équipés à 80% de smartphones et à 60% d'IPAD, 40% d'entre eux reconnaissent aller consulter de l'information on-line PENDANT la consultation et 50% recommandent à leurs patients des sites à consulter (Manhattan Research)


Le mouvement est encore plus évident à la lecture de l'étude conduite par l'université californienne DAVIS (UC DAVIS Mai 2012 http://bit.ly/SxW4PS ) "The prepared patient" qui met en avant les attentes des E Patients :


  • se tenir informé
  • jouer un rôle actif dans ses soins
  • franchir une étape difficile sur une question de santé


Cela pour autant qu'il soit question de défiance vis à vis des professionnels de santé
Par ailleurs, les patients reconnaissent qu'internet n'est pas la seule source d'information ; les amis, les émissions de télé, les ouvrages/revues/magazines.. sont aussi cités. D'ou l'importance de garder une présence sur les médias "off-line".


Dans cette étude, enfin, il est précisé que :


  • 70% des patients discutent avec leurs médecins de l'information collectée.
  • 40% l'impriment afin d'en parler avec leur médecin
  • 50% déclarent suite à cette recherche avoir au moins une question à poser à leur médecin.


ET EN EUROPE ?


En Europe, les études et la prise de conscience se développent.


Dans son étude "Citizen Health Europe", Manhattan Research dresse en 2010 un état des lieux précis de la situation.


Premier constat, il y aurait 76 millions de E Patients en Europe !!


Parmi les motivations qui induisent à s'adresser au web les 3000 patients interrogés dans les 5 plus gros pays européens, on retrouve :


  • discuter/rechercher les informations obtenues lors de la consultation
  • utiliser internet pour rechercher des symptômes/diagnostic (le fameux phénomène "Dr Google")
  • challenger le diagnostic
  • demander un changement de traitement


L'étude conduite en 2010 par IMR international "Europe Social Media in healthcare" quant à elle précise les motivations des internautes pour discuter de la santé sur les réseaux sociaux.


  • 32% veulent trouver une expérience sur le traitement qu'ils prennent
  • 31% pour trouver de l'expérience sur la maladie qu'ils ont
  • 16% pour partager de l'expérience/maladie
  • 13% pour partager de l'expérience/traitement


EN FRANCE ?


C'est ainsi qu'en France l'étude IPSOS "Public affair 2010" nous révèle que que la santé est la 7ème raison de consulter le web (en France).


Et lorsque l'on regarde les sites consultés/moyens utilisés (Etude GFK 2010 http://bit.ly/PxRc0c ) :


  • 81% passent par les moteurs de recherche
  • 68% par des sites spécialisés type "Doctissimo" ou "AZ Santé"
  • 40% vont sur les forums de discussion
  • 38% sur les encyclopédies libres (Wikipédia, ..)


Par contre :


  • seuls 12% vont sur les sites de labo
  • 11% sur des blogs médecins
  • 10% sur des blogs de patients
  • 10% sur les sites d'associations de patients
  • 8% sur les réseaux sociaux


Quant on sait qu'un site comme Doctissimo génère environ 8 à 10 millions de visiteurs uniques par mois, le Ministère de la santé a décidé face à ce phénomène de conduire une étude avec des sociologues en 2010.


La conclusion est sans appel sur le sujet :


Les auteurs précisent qu'il s'agit là de la "CONSTRUCTION D'UN SAVOIR PROFANE PRATIQUE, COMPLEMENTAIRE DU SAVOIR EXPERT DES MEDECINS".


Le phénomène est tel que le CNOM (Conseil National de l'Ordre des médecins) a réagit en conduisant cette enquête avec IPSOS ( http://bit.ly/PjIRtd ) qui nous donne les chiffres pour la France :


  • 71% des internautes français recherchent des informations santé sur le web
  • 7 internautes sur 10 qui font ces recherches ne font pas la différence entre sites certifiés ou non
  • 62% des français consulteraient le site/blog de leur médecins si celui-ci en avait un
  • 34% des internautes qui cherchent sur le net disent en parler avec leur médecin (le deux tiers des patients ne discutent pas avec leur médecins des informations repérées en ligne)


Cela a d'ailleurs conduit le CNOM a inciter sur son site les médecins à se pencher sur ce phénomène pour :


  • Développer le conseil du médecin dans la recherche d’information santé.
  • Faire d’Internet un outil au service de la relation médecins-patients
  • Créer un label ordinal pour les sites publiés par des médecins.


ET ALORS ?


And so what??
Comment prendre en compte cette évolution parmi les acteurs du système de santé?

Et oui.. pas facile quand notre culture et notre cadre réglementaire ne nous permettent pas d'avoir un échange directe avec les patients.
Pas facile de passer d'une cible de 200 000 médecins (grosso modo) à près de 45 millions d'individus (juste pour la France)
Pas facile de passer d'un mix promo ou la visite médicale est omniprésente (près de 60% du budget) et le digital quasi absent (moins de 1%)


C'est le "business model" en entier qu'il faut repenser et les organisations qui vont avec....


L'orientation client ne doit plus être une intention... mais devenir une réalité du quotidien...avec la difficulté, certes majeure, de définir ce CLIENT.


Prescripteurs? Dispensateurs? Payeur? Patient?...Lequel choisir? Y en a t il qu'un? ou plusieurs? quel poids donner à chacun?


J'entends souvent, et à juste titre, dire par les acteurs (laboratoires, grossistes, pharmaciens,..) que le Patient est "AU COEUR DE NOS DÉMARCHES"...


Pour les marketeurs (futurs "chef de clients"?? :-)), cela doit se traduire par une cartographie du parcours client...peut être effectivement tournée autour de ce parcours.

Prenons le pari qu'à chaque étape du parcours patient (prévention, symptôme diagnostique annonce,analyses, prescription, dispensation, observance, suivi...que sais je?? selon les pathologies) nous repensons nos démarches marketing en mettent au coeur le patient et la notion de service client et de valeur ajoutée...


Et pourquoi ne pas considérer désormais nos clients historiques ou les nouveaux acteurs comme des partenaires ayant eux aussi pour client le Patient?


Peut être faudrait il dans un premier temps accompagner ce changement dans la relation médecin/patient?


Pour conclure je reprendrais un post récent d'Alex Butler, PDG de "The social Moon", gourou du digital pharma et ancien de J&J, qui s'interrogeait sur la pertinence de continuer à utiliser le terme de E-Patient.
En effet, à partir du moment ou tous les patients ou presque, vont sur le net peut être faut il juste les appeler PATIENTS...au même titre qu'on ne précise plus le terme 'numérique" quant on parle d'appareil photo...


Ça y est Pharma... tu en sais un peu plus sur les E Patients.
J'espère que cela t'aura intéressé.



Pour finir, je citerais Len Starnes, autre gourou du digital pharma et ex Bayer...qui écrivait dans une présentation destinée à la pharma:

"Fish where the fishes are"
(Peches là ou sont les poissons)


A bon entendeur

Lionel REICHARDT
Le Pharmageek

more...
Anne Sophie Llanas's curator insight, March 2, 2016 6:40 PM
Qui sont les e patients ? 
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

Putting the ‘person’ at the heart of patient centricity – why language matters

Putting the ‘person’ at the heart of patient centricity – why language matters | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
The irony of patient centricity is its name – that a movement designed to help people look after their own health is described in terms that disempower.Health literacy isn’t just about using short sentences, we also need to think about how the words we use are received and perceived.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

What will it take to get consumers to finally use patient portals?  #hcsmeufr #esante #digitalhealth

The concept of the patient portal makes sense in theory: Give people a means of accessing their health information electronically, enabling them to stay on top of things like medications and appointments, health history and chart information. 

In practice, however, patient portals can be problematic, with some of the peskier issues revolving around privacy and usability.

WHY IT MATTERS

Patient portals have evolved over time, transitioning from simple logins to a health system's data to mobile apps that provide access to those systems.

Several companies have tried to make a run at creating a portal that establishes an industry standard, a model for all others to follow. But those efforts, from giants like Google and Apple, have met with only varying levels of success.

According to Stephen Dart, senior director of product management at AdvancedMD, one of the issues is that there isn't a universal privacy standard. In some states, the default is that a patient's data is shareable and the patient has to actively opt out; in other states, that dynamic is reversed.

When it comes to certain online activities, like paying bills, there are standard ways of doing things. Not so in healthcare.

"Since there's no standard paradigm people are familiar with, every device, every technology handles this process very differently," said Dart.

One possible way to address this? Look to social media.

"If you think about social media, a Facebook or an Instagram, there are paradigms they use that are ubiquitous in society," said Dart. "Just because there's adoption of these platforms, they have become standards by their very nature. Those paradigms are something people are familiar with.

"So one of the things I think could really help is to almost take a social media platform type of approach to the user experience. You would manage your data in a way similar to those platforms."

That can't truly be achieved, though, without changes to the regulator picture. Due in part to Meaningful Use, vendors often spend inordinate amounts of money chasing and reporting data in the interest of value-based care. 

Because of that, when a firm has fixed budgetary resources, and a significant portion of it goes to something that has specious value, it causes what Dart calls a "brain drain" on the opportunities to improve care.

THE BIGGER TREND

By empowering patients to become involved in their own care, it creates an untapped window into the nation's healthcare system that doesn't exist today. If 10,000 people are using a platform to talk about what works for them and what doesn't work for them, it creates a knowledge base that a family physician would never be able to tap into. And it wouldn't cost the healthcare system a nickel, said Dart.

The promise of the social media approach is that it leverages insight into the psychology of human behavior. Dart offered the following example: Let's say Sally picks up her smartphone in the morning and checks out her weather and news feed. At the bottom of the feed, integrated along with all of the other information, are three journal articles about diabetes in the aging population. Sally reads these items and says to herself, "Oh, if I work out 20 minutes a day I can better deal with these diabetes symptoms."

Because that information is streamlined into the data she tracks daily, that diabetes management strategy becomes a part of her daily routine. The technology has used information in a way that improves health and cuts down on unnecessary utilization, and does so in a way that harnesses the power of community.

That's something that's largely lacking among today's patient portals, said Dart. Portals today are often cumbersome and rife with friction.

"That friction that exists today is part of the problem," said Dart. "Say a patient goes to a portal, but they don't have an account yet. So they have to go through the registration process, log in, look at their lab results, then they don't go back in for six months or a year, or until something happens.

"Then they go in again, and they forgot their password, or the password has expired, so now you've got to answer the security question. They eventually give up and don't even look at their lab results."

It's a scenario that needs to change, he said, and a universal, social media modeled approach to patient portals has the potential to move the needle. What's more, Dart expects it's going to happen within the next 5 to 10 years -- but not within healthcare. He expects a company like Amazon or Apple, or perhaps even a startup, to figure out how to bring all of the pieces together.

"Ultimately it still always boils down to money in healthcare," said Dart, "but the revenue opportunities to engage hundreds of millions of people is going to be too rich to be ignored."


Via Plus91
more...
No comment yet.
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

The talk: Younger brain cancer patients provide a model for patient empowerment  #esante #hcsmeufr

The talk: Younger brain cancer patients provide a model for patient empowerment  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
A new generation of brain cancer patients are working to improve care and connect and support patients using social media and advocacy.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Management de Santé
Scoop.it!

Plateforme de signalement des effets indésirables : un premier bilan  #esante #hcsmeufr

Plateforme de signalement des effets indésirables : un premier bilan  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Paris, le mercredi 17 octobre 2018 – Il y a un an, le ministère de la santé mettait en place la plateforme signalement-sante.gouv.fr à destination des patients, des consommateurs et des professionnels de santé pour « renforcer la vigilance en matière de sécurité sanitaire et simplifier les [...]

Via RECIPRO RH
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

The value of online patient reviews  #esante #hcsmeufr

The value of online patient reviews  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Online patient reviews on social media sites can be an effective tool in helping dermatology practices market and educate patients about minimally-invasive fat reduction procedures, a new study has found.

 

Body contouring is one of the fast growing areas of dermatology. According to the American Society of Dermatologic Surgery, body sculpting procedures are among the top four treatments patients request. Consequently, knowing what patients do and don’t like about them and how they rate their experiences can help clinicians influence patient choices, study authors say.

“Minimally-invasive and non-invasive fat reduction procedures are rated extensively online,” says study author Sreya Talasila, M.D., a dermatologist with Northwestern University Feinberg School of Medicine. “Aesthetic providers should use this available information to guide decision-making around minimally-invasive technique selection and price setting within their own practices.”

The study, published in Dermatologic Surgery, analyzed 11,871 patient reviews on fat-reduction procedures from the website RealSelf.com, a well-known aesthetics platform where patients share their experiences. The website’s reviews, extracted by researchers in 2017, divided patient satisfaction ratings into “worth it” (positive), “not worth it” (negative), and “not sure” (neutral).

For more accurate comparisons, Dr. Talasila says, the team grouped reviews of 13 unique minimally-invasive procedures into five body contouring modality categories: laser, cryolipolysis, injectables, radio frequency, and ultrasound. The ratings only included patient satisfaction feedback and did not offer information about patient demographics, including body mass index, age, or treatment goals.

Investigators also compared these reviews to patient responses on invasive body contouring (traditional liposuction).

The overall intent, Dr. Talasila says, was to determine which body contouring procedures are most popular and accepted among patients, especially newer ones that are used less-widely to date.

“With all the different procedures and the different number of treatments that need to be done, dermatologists should discuss treatment length and cost variability with patients upfront,” she says. “This is a growing field right now, and patients are interested. Clinicians need to be aware and be able to discuss it freely.”

Being knowledgable of online satisfaction assessments can help dermatologists manage patient expectations and set benchmarks for procedure length-of-treatment and outcomes, she says.

According to study results, researchers reviewed 7,170 patient reviews that encompassed all five minimally-invasive procedure categories. The overall satisfaction rating was 58 percent. But, despite being more expensive and more invasive, liposuction, which had 4,645 patient reviews, still had a higher satisfaction rating of 66 percent. The average cost for minimally-invasive procedures ranges from $1,350-$6,025. Liposuction’s price tag can be up to $7,000.

Conversations about cost can be important because minimally-invasive procedures are typically paid for out-of-pocket. Clinicians should be prepared to discuss the possibility that costs may vary for patients based on the individual number of treatments they will need to achieve the desired results, Dr. Talasila says.

In addition, researchers also analyzed and compared patient reviews of tumescent liposuction, a intermediately-invasive fat reduction technique. This procedure, which can be performed in one session, can address larger volume patient cases than minimally-invasive procedures, but it doesn’t require the operating room and anesthetist needed for traditional liposuction. In reviews, patients gave tumescent liposuction a 63-percent satisfaction rating.

Despite having a lower umbrella positive rating than more traditional, extensive techniques, the minimally-invasive procedures still had a median global rating of 81 percent satisfaction. Laser procedures received 3,565 reviews and a 61-percent satisfaction score. Patients completed 2,707 cryoplipolysis reviews, giving the technique a 55-percent satisfaction score. A total of 319 patients reviewed injectable treatments, resulting in a 49-percent satisfaction score. And, 314 patients reviewed radio frequency techniques, and 275 patients expressed opinions about ultrasound, giving these options satisfaction scores of 63 percent and 73 percent, respectively.

The researchers highlighted patient responses for some specific procedures, as well. Zerona, a laser procedure, received 43-percent satisfaction, and CoolSculpting, a cyrolipolysis technique scored a 55-percent satisfaction rating. Kybella (injectable), Liposonix (radio frequency), and UltraShape Power (ultrasound) received satisfaction scores of 49 percent, 43 percent, and 91 percent, respectively.

The study did not delve into the reasons why patients gave positive or negative reviews, however, Dr. Talasila says, noting further research would be necessary to pinpoint their reasons, such as procedural pain or disappointment in effectiveness and results.

“Patient choices are different, and we didn’t parse out the demographic data to further stratify their differences,” she says. “This information could be most helpful for clinical cost setting because cost data is available on RealSelf. It may encourage aesthetic and cosmetic providers to be aware of the website for benchmarking and even modality selection. They need to know what patients are aware of.”

This information could also help clinicians better understand how patients view the benefits and pitfalls of these minimally-invasive procedures from a real-world perspective. Based on data from other industries, Dr. Talasila says, online reviews have been shown to directly impact customer decisions, indicating popularity, consumer demand, and product awareness. Consequently, the more aesthetic providers can tell patients about how other individuals have responded to these body contouring techniques, the more informed the patient’s overall decision will be, she says.

Staying abreast of what patients say online about these medical procedures can also give clinicians the tools they need to correct any misperceptions or misinformation patients gather from searching about fat reduction techniques online. While patient reviews can include factual information about one individual’s experience, not all online resources provide accurate assessments of patient satisfaction or of a procedure’s efficacy and safety.

For example, in a recent study, published in JAMA Facial Plastic Surgery, researchers from Rutgers New Jersey Medical School found the majority of YouTube videos on facial plastic surgery procedures were misleading marketing campaigns. Out of 240 videos with 160 million combined views, only 72 videos included a board-certified physician qualified to accurately assess the procedures and offer information to patients.

Consequently, aesthetic providers should familiarize themselves with online reviews, such as those on RealSelf.com, so they will be better prepared to help patients make the right decisions that fall best in line with the patient’s medical history, Dr. Talasila says.

“Social media is one of the easiest ways for people to get reviews of other people’s experiences,” she says. “Clinicians should want to see what information is out there and what their patients are gleaning from it.”

REFERENCE

Evers-Metlzer R, Talasila S, Xu S. Social Media Ratings of Minimally-Invasive Fat Reduction Procedure’s: Bench-marking Against Traditional Liposuction, Dermatologic Surgery (2018); doi:10.1097/DSS.0000000000001509

Alaeddin I, Nicheporuck BS, Paskhover B, Ward B, Ward M. Assessments of YouTube as an Informative Resources on Facial Plastic Surgery, JAMA Facial Plastic Surgery (2018); doi:10.1001/jamafacial.2018.0822


Via Plus91
more...
No comment yet.
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

MÉDECINE ORIENTÉE PATIENT : Les POEM illustrent l'ampleur de l'évolution de la pratique clinique

MÉDECINE ORIENTÉE PATIENT : Les POEM illustrent l'ampleur de l'évolution de la pratique clinique | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Les POEM (Patient Oriented Evidence That Matters) sont des études qui traitent d'une question clinique pertinente, démontrent une amélioration des résultats « orientés patient » et ont le potentiel de modifier la pratique clinique. Ce rapport, présenté dans les Annals of Family Medicine, identifie les POEM au cours de chacune des 20 dernières années qui ont été les plus moteurs de changements majeurs et durables dans la pratique médicale.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from "Global patient empowerment: global health literacy & education - ehealth literacy - public health promotion - narrative tools & social media - epatients - patient expertise - patient advocacy - shared health decision making " by VAB Traductions
Scoop.it!

Patient-Provider Communication Falls Short of Patient Expectation #esante #hcsmeufr #digitalhealth

[USA]

Forty-five percent of patients said they wish patient-provider communications included chats about lifestyle health and motivating factors for wellness.

 

 

October 12, 2018 - Although patient-provider communication is an essential aspect of the primary care visit, expectations aren’t quite reality, according to data from Samueli Integrative Health Programs, a non-profit healthcare advocacy group.

 

A survey of 2,000 adult patients conducted online by Harris Poll revealed that patients want to discuss more than their physical health during a primary care encounter. Forty-five percent of patients said they wish their PCPs asked more about why patients want to be healthy.

Ninety-two percent of respondents acknowledged that health is more than just their symptoms. Fifty-nine percent agreed that health also includes being happy, 56 percent said it includes being calm and relaxed, and 53 percent said it includes the ability to live independently.

Dig Deeper

 

However, those expectations aren’t being met, said Wayne Jonas, MD, executive director of Samueli Integrative Health Programs.

 

“Patients see their health as much more than just their physical symptoms, yet doctors aren't talking to their patients about important factors that influence their health,” Jonas explained. “A whole-person, integrative approach to health and well-being allows patients to get to the root of their health conditions, but we haven't yet made this approach a priority in treating patients.”

 

Fifty-two percent of respondents said they don’t talk to their providers about the factors that influence health. Instead, a majority of patients (74 percent) said their providers focus on elements of physical health such as symptoms, lab results, and treatments.

 

Far fewer patients and providers discuss exercise (51 percent), diet (44 percent), and sleep patterns (40 percent). And even fewer patients discuss elements of emotional health. Thirty-six percent of patients said they have discussed mental health with their providers, despite the fact that one in five patients with a chronic illness also have a mental illness.

 

Only 10 percent of patients have discussed spiritual health with providers.

These trends bother some patients more than others, the survey revealed. Younger patients ages 18 to 44 tend to want a more holistic approach to patient-provider communicationscompared to older patients over the age of 45.

 

For example, younger patients are more likely than older patients to say they don’t discuss more than physical health issues. Fifty-seven percent of younger patients said this compared to only 48 percent of older patients.

 

Younger patients are also more apt to say they wish they discussed those things with providers than older patients – 55 percent compared to 38 percent, respectively.

 

Additionally, 63 percent of younger patients said they want to discuss non-drug treatments while only 46 percent of older patients said the same.

 

“The current model of medicine focuses on providing pills and procedures for addressing physical symptoms and prescribing quick fixes,” Jonas noted. “But younger patients want more. They are looking for options that fit their lifestyle and personal needs. This generational shift proves that more and more patients will be seeking out ways to address the underlying causes of health.”

 

There are also geographic differences in approaches to person-centered health, the survey showed. People living in the Northeast are more likely to rate their health as excellent (24 percent) compared to those living in the South (18 percent) and the Midwest (17 percent).

 

Northeasterners also tend to discuss lifestyle factors with primary care providers (27 percent). This compares to only 20 percent of patients living in the South, 17 percent in the Midwest, and 18 percent in the West.

 

Nevertheless, patients remain optimistic about their health. Seventy-six percent of all patients rated their health as excellent, and 86 percent said they think they have a great amount of control over their own health. Eighty-four percent of patients said their health goals align with their life goals.

 

To maintain this positive view of patient health, however, providers may consider a more holistic approach to healthcare and patient-provider communication. Just as patients assert that health is more than just their disease condition, industry experts are also pointing to lifestyle as major determinants of health.

 

“We know from past research that some 80 percent of health and healing are influenced by behavioral and social determinants of health - factors that affect a patient outside of their medical treatment,” Jonas said. “Health starts with the person, not the disease. And we as physicians should be asking 'What matters?' instead of just 'What's the matter?' This is essential for patient-centered care.”


Via VAB Traductions
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from "Global patient empowerment: global health literacy & education - ehealth literacy - public health promotion - narrative tools & social media - epatients - patient expertise - patient advocacy - shared health decision making " by VAB Traductions
Scoop.it!

Infographic: Empower your audiences to take charge of their health #esante #hcsmeufr #digitalhealth

Infographic: Empower your audiences to take charge of their health #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

[USA]

Health Literacy Month is communicators’ chance to educate people in ways that can help them better function and respond to life events. Consider these examples.

 

Wouldn’t your job be easier if consumers were as informed about health issues as you are?

They’d make better decisions, enabling you to focus on your priorities instead of dealing with rumors and putting out fires sparked by inaccurate information and “fake news.”

October is Health Literacy Month—a perfect opportunity for health care communicators to reach out to consumers about health issues.

 

Whether you work for a hospital, health care association, government agency, university or a community organization, your ability to educate your publics is crucial to doing your job well.

 

[RELATED: Join us in New York City for our Best Practices for Communicators in Highly Regulated Industries Conference.]

 

Health Literacy Month has been observed in October since 1999. The official website explains:

It’s about taking action and finding ways to improve health communication. Health Literacy Heroes are individuals, teams, or organizations who not only identify health literacy problems but also act to solve them. You can help by recognizing and cheering on those you consider as Health Literacy Heroes

To learn more about being a “Health Literacy Hero” (this year’s theme), click here.

 

Health Education Associates looks at the issue of increasing health literacy on three levels in itsinfographic . Here’s the breakdown:

 

  • Core health literacy focuses on “conveying understanding of concepts and on teaching basic skills that help the individual function in every situation.”

 

  • Engaged health literacy means “individuals are better able to act independently through increased knowledge, motivation, and self-confidence.”

 

  • Influential health literacy helps individuals gain “greater control over their life events and situations.”

 

The infographic provides a list of skills and examples that communicators and others can use to promote independence and empowerment on health care issues. Check the list out here.


Via VAB Traductions
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from The Future of Wellness & Healthcare
Scoop.it!

The New Age of Patient Autonomy: Implications for the Patient-Physician Relationship #hcsmeufr #esante #digitalhealth

The New Age of Patient Autonomy: Implications for the Patient-Physician Relationship #hcsmeufr #esante #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
This Viewpoint discusses the changing role of physicians in an era when patients are self-educated about their conditions and can order tests online, evolving from physician paternalism to a role of patient consultant, procedural expert, and gatekeeper to second-line follow-up services.

Via Art Jones
more...
Art Jones's curator insight, October 16, 2:04 PM

Technology is changing the patient ~ physician relationship

Rescooped by Lionel Reichardt / le Pharmageek from Management de Santé
Scoop.it!

Cancer du sein : la radiothérapie a moins d'effets secondaires que ce que l'on pensait #hcsmeufr #moipatient

Cancer du sein : la radiothérapie a moins d'effets secondaires que ce que l'on pensait #hcsmeufr #moipatient | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Dans le cadre d'un cancer du sein, la radiothérapie qui intervient après la mastectomie est moins nocive que ce que l'on pensait..

Via RECIPRO RH
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

«Le corps médical est encore dans une attitude paternaliste de possession du savoir» - Dr François Blot, administrateur de Renaloo #hcsmeufr #esante

«Le corps médical est encore dans une attitude paternaliste de possession du savoir» - Dr François Blot, administrateur de Renaloo #hcsmeufr #esante | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
François Blot est chef du service de réanimation à l'institut de cancérologie Gustave-Roussy, à Villejuif, dans le Val-de-Marne. Depuis 25 ans, il pratique, «autant que possible» la « décision partagée » avec ses patients.

Via Renaloo
more...
Renaloo's curator insight, October 15, 6:14 AM

«Le corps médical est encore dans une attitude paternaliste de possession du savoir» - Dr François Blot, administrateur de Renaloo

Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

Et si les patients formaient les médecins ? Le Figaro #esante #hcsmeufr

Et si les patients formaient les médecins ? Le Figaro #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

«Dans les livres de médecine, tout est parfait. Le patient ne parle pas.» Mohammed Ghadi, lui, parle beaucoup. Il est «patient expert». Cela signifie qu'il a fait de son vécu de malade une «expertise», qu'il peut mettre au profit des autres patients et des professionnels de santé. Depuis 2014, en binôme avec un médecin, il intervient auprès des internes de médecine générale, sur leurs trois dernières années de formation. Une démarche unique en France, lancée il y a quatre ans par la fac de médecine de Paris-XIII. «Les médecins ne comprennent pas pourquoi leurs patients vont chercher des informations sur Internet. Ils s'en indignent régulièrement. Mais il y a bien une raison! L'information est souvent incomplète et trop rapidement formulée», explique-t-il.


Via Renaloo
more...
Renaloo's curator insight, October 15, 5:17 AM

Et si les patients formaient les médecins ? Le Figaro

Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

Immunothérapie: Nobel salue une révolution contre le cancer - L'Express

Immunothérapie: Nobel salue une révolution contre le cancer - L'Express | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Utiliser le système immunitaire pour tuer les cellules cancéreuses : cette découverte change la donne pour de nombreux malades.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Digital Delights
Scoop.it!

How People Learn - Stephen Downes #esante #hcsmeufr #digitalhealth

A new report from the National Academies of Sciences, Engineering, and Medicine highlights the dynamic process of learning throughout the life span. This prese…

Via Ana Cristina Pratas
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from healthcare technology
Scoop.it!

Text message based surveying appears to be a reliable source of health data during crisis cc @giomarsi

Text Messaging (SMS) technology is widely adopted in developing countries.

Text message-based health surveys distributed to 6,694 Liberians during an Ebola outbreak were generally on par with baseline demographic data collected in a prior household survey, according to a study recently published in Nature Digital Medicine. Further, the text surveys suggested that women sought fewer hospital-based deliveries during the outbreak, a trend consistent with other retrospective studies that have been published since the outbreak.

 

The Ebola outbreak was, and in some areas continues to be, a test of public health infrastructure. In regard to maternal care in particular, the researchers noted that many communities perceived a reduction in care quality as practitioners were advised not to make physical contact patients espousing fluids whenever possible.

 

As such, a viable, real-time data collection system that is based on a technology widely adopted by residents can be a substantial boon to health systems facing crisis,

 

 

Why it matters 

Taken together, these findings would indicate that these text-based surveys could be an avenue toward more real-time data collection in developing countries gripped by outbreaks.

 

for more, read the original unedited article at https://www.mobihealthnews.com/content/text-based-survey-offers-accurate-real-time-health-info-during-ebola-outbreak-study-says

 

 


Via nrip
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

Unfavorable Online Reviews a Challenge for Many Physicians #esante #hcsmeufr #digitalhealth

Unfavorable Online Reviews a Challenge for Many Physicians #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

There is value in review websites, but they can lead to problems when literally anyone posts negative comments or false information.

With the proliferation of websites that solicit reviews from patients, it’s no wonder some physicians worry about their online reputation. It’s yet another reason to be cognizant of patient satisfaction.

“In addition to making the right diagnosis and prescribing the right therapy, you have to do the things that make people happy,” says Steven R. Feldman, MD, PhD, a professor of dermatology at Wake Forest University School of Medicine in Winston-Salem, North Carolina.

Feldman isn’t fretting over the possibility of one or two disgruntled patients venting in cyberspace, maintaining that a few unflattering reviews won’t “make a lick of a difference.” While taking them in stride, he offered a prudent countermeasure: “If you’re confident in what you do, go ahead and encourage all your patients to do the ratings.”

Nonetheless, some physicians contend that review sites can create conundrums when patients, family members or literally anyone posts negative comments and false information.

The comments aren’t even reflective of the care patients received, according to a study published in September 2017. Researchers concluded that “online consumer ratings should not be used in isolation to select physicians, given their poor association with clinical performance.” The report, appearing in the Journal of the American Medical Informatics Association, looked at 78 physicians representing eight medical and surgical specialties.

Unable to appease everyone, “it can often be counter-therapeutic to give in to the demands of patients,” according to the article Internet Sabotage: Negative Reviews of Psychiatrists, published in the December 2016 issue of Psychiatric Annals.

The authors, psychiatrists Laura Kendall, MD, and Timothy Botello, MD, MPH, who work in the involuntary psychiatric unit of a Los Angeles County-operated hospital, highlighted the dilemmas posed by online reviews. “Sometimes, it is a psychiatrist’s duty to set limits,” they wrote, especially in treating patients with borderline personality disorder, who are prone to explosive reactions. “For these patients, such limit-setting could be fuel for the fire that leads them to write negative reviews online.”

To illustrate, they presented the case of a 70-year-old woman with schizophrenia who was admitted on a 72-hour hold after neighbors had notified the police due to her bizarre behavior and weight loss. During the hospitalization, it became known that “her daughter had been taking advantage of the patient financially and was emotionally abusive” to the mother, as well.

As required by law, the physician filed an adult protective services report. The daughter then lodged a complaint with the hospital, claiming that the physician had falsified information. She also personally attacked the physician in email and phone messages and posted derogatory reviews online.

According to Kendall, the physician prevailed in requesting that the websites remove the comments because the postings — written by a family member, not a patient — violated terms of service. After one of the sites had expunged the daughter’s review, it reappeared. This time, the physician reported the reviewer for harassment, and again, the site deleted the posting.

“It took a lot of … time and energy to take this down,” says Kendall, an assistant professor of clinical psychiatry and behavioral sciences in the Keck School of Medicine at the University of Southern California. However, this approach “probably wouldn’t work in a lot of cases” because some websites will “leave up all those reviews no matter what you do,” she says, citing feedback from other physicians.

The case helped Kendall and Botello better understand the value of what’s posted about themselves on the Internet.

“We started Googling ourselves a lot,” Kendall says.

“I didn’t know I had an ‘F’ rating,” added Botello, a clinical professor of psychiatry and behavioral sciences at USC and director of its forensic psychiatry fellowship program. “We were not savvy enough at the time. It’s just like checking your credit score.”

In forensic cases, which tend to be adversarial in nature, Botello explained that any decision leaves one side or the other unhappy. He and Kendall have become accustomed to this scenario in their positions.

“If we were working solely in private practice, these negative online reviews would be even more worrisome,” he says.

Steven Mandell, a First Amendment lawyer at the firm Mandell Menkes LLC in Chicago, recommended that physicians try to tactfully prevent conflicts from escalating into difficult situations. Taking a “hard line” with a disgruntled patient could result in a negative review.

When a patient posts a negative review, he suggested writing a response along these lines: “Our goal is to make our patients happy. I’m sorry if you had a negative experience. Please call me to discuss how we can make this right.”

This gives the physician an opportunity to resolve the issue while minimizing potential damage from bad publicity. In the response, Mandell advised, it’s important to avoid disclosing confidential information protected under the Privacy Rule of the Health Insurance Portability and Accountability Act (HIPAA).

Online reviews seldom warrant legal action. Physicians should “seek advice to determine whether or not what has been says really rises to the level of defamation; or rather, is this someone voicing their disappointment, anger or frustration, which usually is characterized as opinion,” Mandell explained.

Unfavorable comments from patients often reflect their perception that a physician was rude and uncaring. The criticism may serve as a wakeup call to improve communication skills, says Feldman, the Wake Forest University professor.

In the February 2016 issue of JAMA Dermatology, he wrote that with unhappy patients feeling more inclined to air their discontent online, some practitioners may perceive these reviews as an adverse trend. But not Feldman.

“Negative feedback is a gift,” he says. “It’s more helpful than all the positive ratings.”

Susan Kreimer is a freelance health care journalist based in New York. 


Via Plus91
more...
No comment yet.
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

Santé : l'inventaire (non exhaustif) des rumeurs les plus folles

Santé : l'inventaire (non exhaustif) des rumeurs les plus folles | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Fake news en médecine et fake science sont les plus partagées sur les réseaux sociaux, notent les sociologues des médias et elles ont des
more...
LIGHTING 's comment, October 12, 6:38 AM
réservé aux abonnés
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

Grâce au numérique, tout le pouvoir est aux patients ! Enfin, pas tout à fait… #hcsmeufr #esante

Nous sommes tous devenus des patients connectés, à la recherche d’infos sur le web et les applis. De nouveaux liens sociaux se créent, pas sans conséquence sur notre vie privée.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from "Patient empowerment through digital health - ehealth - connected health - patient portals - EHR - Health IT - digital hospitals - artificial intelligence (AI) & healthcare | medicine" by VAB Traductions
Scoop.it!

Designing for consumers means leaving no one behind

Designing for consumers means leaving no one behind | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Connected Health Conference panelists will cover digital literacy, health equity and patient-centric design.

 

Both in the consumer and clinical worlds, it’s important not only to design for the user and involve them in the process, but also to realize the full scope of your user base, and make sure no one gets left behind.

 

Considering the user is a vital step in teasing out the human element of connected health, and a number of speakers at this month’s Connected Health Conference will be tackling that issue, including Senior Director of Connected Health Innovation at Partners HealthCare Kamal Jethwani, and Tufts University School of Medicine Associate Professor and Recycle Health founder Lisa Gualtieri.

“This isn’t designed for me”

“Who are our personas? Who are our patients? What are their lives like?” Jethwani said to MobiHealthNews. “What happens in their life that we need to fit in with — versus designing a system that they have to modify their entire life to be able to use. That’s something that in the early stages is really important to understand because if you don’t consider that, you’re not going to develop something that works for them.”

 

This is easy to say, but can be hard to implement when even the simplest UI aspects could have unconsidered implications for particular subsets of patients. Gualtieri gave a particularly striking example.

 

“One of the apps that we were using, you had to put in your date of birth and it was dials — so the default is 2018 and then you start spinning it,” she said. “And it was a few people who were spinning this to get to — you know these were older adults and as they were spinning it, they were like ‘I really have to spin this a long time’. And you know, they were kind of joking, but I thought, why make somebody feel bad? Why make someone feel old? It’s not increasing their excitement about using this. It’s making them think it’s not really designed for them.”

 

In testing out an automated text message system for people with diabetes, Jethwani also got a reminder to challenge his assumptions about patients, although in this case smart technology was able to correct for the oversight.

 

“We saw someone was getting messages at three in the morning and we thought ‘This poor person is getting messages in the middle of the night’ So we called to make sure we weren’t completely off base,” Jethwani said. “One of the first things he told us was he loved the program because it sent him messages right as he was getting out of work. And the machine learning algorithm figured it out on its own through trial and error. And nowhere in the medical record did we have any data about him being a night shift worker or any of that. We were giving him insulin and treatment on a regular schedule.”

 

This need to consider all kinds of patients extends to the consumer world as well. As the founder of Recycle Health, a nonprofit that collects used fitness trackers, refurbishes them, and provides them to people in need, Gualtieri’s focus is often on those kinds of connected activity trackers. She said when Recycle Health provides trackers to older people, they often express that they had previously avoided the devices because they thought they weren’t for them.

 

“If you look at how Fitbit advertises, it’s very much kind of the young healthy people,” Gualtieri said. “I’ve only seen one Fitbit ad that had someone with grey hair, and it was this guy whose daughter gave him the Fitbit because she was engaged and she wanted him to look good and fit into his suit for her wedding. And while I totally get that as a marketing ploy, it really bothered me because it’s not about feeling good, it’s not about prevention of chronic disease. It’s about one day."

Other barriers to access

Of course, in addition to feeling excluded by design or marketing choices, there are many other barriers that keep people from using, appreciating or benefitting from digital health tools. Cost is a major one, and Recycle Health was founded in an effort to start to address the fact that there were populations that could benefit from health tech but didn’t have access to it. Recycle Health has used its supply of donated trackers to help a wide variety of groups including homeless populations, low-income schoolchildren and older adults. For example, Gualtieri described one project with a homeless shelter in New Jersey.

 

“These people’s primary concern in life is that they don’t have a home, they don’t have a job. So what they’re trying to do is help people to turn their lives around. And while they’re in residence there they’re also trying to teach them about nutrition, fitness etc. For a lot of people what they found was that it’s not that they didn’t care, it’s just that they cared about a lot of other things more,” she said. “With the trackers, what they were able to do was [make the experience] fun instead of one more thing that you have to learn to take better care of yourself.”

 

Designers also need to consider what kind of technology — up to and including smartphones — their patients, users or members might not have access to or the digital literacy to use.

 

“One thing we didn’t really expect but were surprised by is the extent to which people have smartphones but don’t really know how to use them, have pay-as-you-go phones or early version phones that they really can’t download apps to, or people who have a phone but they’ve never downloaded an app themselves,” Gualtieri said, discussing some research she has been involved with on digital literacy in older adults. “And that becomes a huge barrier, not just for using a tracker and the associated fitness app, but also for the wealth of digital health innovations that are taking place.”

 

Finally, designers need to understand not just who their users are, but where they are in their life, which can change their motivation — and their need for intervention — drastically.

 

“if you’re pregnant and there’s a limited amount of time to change your behaviors because that’s going to affect your baby, we find that those patients are very motivated to do something, they’re very ready to change, and in a lot of those cases our programs work really well and we don’t have to work hard for engagement,” Jethwani said. “Versus patients who have had diabetes for 15 or 20 years, and they’ve lived with it, and they don’t face symptoms on a day-to-day basis have lower motivation to change. In that case we try more things like gamification and other motivational patterns so you can get them to a point where they’re taking care of these sorts of things.”

 

Gualtieri said that many physicians don’t realize how major of a life change retirement is for older adults, and how it can affect motivation to work out or take care of oneself.

 

“A lot of people have this really dramatic change in their lifestyle and one of the things that we’re really interested in is how can trackers help with that and also how can data reflect these changes so that their physician can work with them,” she said.

 

The Connected Health Conference starts Oct. 17 at the Seaport World Trade Center in Boston.

 

Jethwani will be presenting on two sessions: “From Hype to Reality: How to Make AI Work for You” on Thursday the 18th at 10:40 a.m. and “What it Really Takes to Build a Connected Health Solution: Separating Myth from Reality” at 12:40 p.m. Oct. 19.

 

Gualtieri will be moderating the session “Designing for Equity” at 1:40 p.m. Oct. 19.


Via VAB Traductions
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

Patient Experience: The Biggest Transformation in Medicine Since the Stone Age #hcsmeufr #esante

During National Health IT Week, champions from across the industry are uniting to share their voices on how health IT is catalyzing change in U.S. healthcare. The following post from a National Health IT Week Partner is one of the many perspectives of how information and technology is transforming health in America.

 

The digital transformation of healthcare is going mainstream, promising a higher quality of care at a lower cost for all. And its right on time, as only a couple of years ago the World Health Organization calculated the cost of not taking action to address the spread of noncommunicable diseases as 7 trillion dollars in 20 years.

Telemedicine allows for a cheaper infrastructure of medical consultations, connected hardware means remote monitoring 24/7 and big data helps researchers find patterns in the spread of diseases and better target preventive activities.

But the biggest change happened to the model of patient relations. It has changed irreversibly as the digital transformation of healthcare turned patients from passive beneficiaries into active decision makers. For the first time since the Stone Age.

The Internet brought with it the emancipation of patients who gained a much wider access to information, which led to the rise in decisiveness. Companies in healthcare are no longer primarily in business to business communication with other medical entities and public administration but in business to consumer – having to work hard to gain patients' trust for the first time.

With noncommunicable diseases epidemics, the more engaged patients are, the better for early prevention. But there’s also the dark side to this transformation when extreme emotions come into play and patients don’t know who to trust, the internet has the answer. On a public policy level, it is crucial to regain control over the quality of communication in the outside environment. Building patient experience is no longer just an option, it’s an essential element of healthcare strategy.

What is Patient Experience?

Like in the case of customer experience, it’s best described by the Cambridge dictionary definition: “the way someone feels at all stages of doing business with a company or organization.”

What differentiates patient experience from customer experience are the emotions that come into play and the legal restrictions in communication. In no other industry, does one have to deal with such a wide spectrum of emotions, from indifference to preventive activities to the most extreme when fear kicks in. On the other hand, the restrictions in advertising and marketing make it harder to combat medical lies (like anti-vaccination movement) as it’s health professionals and companies who face charges.

The necessity of including patient experience into your strategy will mean that you need to change how your organization functions. As Adam Richardson wrote for Harvard Business Review: “Crafting a great customer experience requires enormous amounts of collaboration across groups in a company that often work independently and at different stages of product development. In many cases marketing, product design, customer services, sales, advertising agency, retail partners must all be working in concert to create even a single touchpoint.”

Patient Experience in Digital Transformation

Patient experience before digital transformation happened mostly only in two channels: medical facilities or pharmacies. So the patient journey was linear, fully controlled and top-down.

Patient experience after digital transformation became multichannel, nonlinear, happening 24/7, interdependent and collaborative.

Multichannel
Healthcare not only has to deal with multiplication of available channels – from doctors’ offices and pharmacies to retail, online and mobile platforms, as well as social media. They also need to address different trust levels as well as emotional levels – when in doubt we tend to trust more those who are valued members of our social circles.

Nonlinear
With the abundance of channels, companies need to accept that each stage of the journey may take place in every channel – customers may base their decision on the quality of post-sale service or turn to social media platforms for customer support. Shopping trends apply also to health tech – when customers go to stores to test devices and then look for the cheaper offer for the same product online.

24/7
Emergencies can happen late at night or on weekends. With social media, we’re now used to easily accessible and immediate forms of communication, meaning those responsible need to address problems quickly and, most important, emphatically.

Interdependent
Patients are often looking for a second opinion, not only by visiting another professional but also in various health-related sources. This means that businesses and professionals need to concentrate as much on the channels of communication that they control as on those where they’re only guests.

Collaborative
Patients are active decision makers so companies and professionals need to win their trust. They’re no longer beneficiaries coming for top-down recommendations. They’re equal partners looking for explanation and conversation. After all, it’s their health and life that’s at stake here.


Via Plus91
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

How are doctors using tech for patient engagement? #hcsmeufr #esante

How are doctors using tech for patient engagement? #hcsmeufr #esante | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

 

The healthcare industry relies on technology for numerous purposes — billing, scheduling, and documentation, to name a few. And a new survey found providers are increasingly relying on tech to engage patients.

The poll from patient engagement business PatientPoint and nonprofit think tank Digital Health Coalition included responses from more than 200 doctors. The survey was powered by physician social network SERMO.

 

EHRs alone are insufficient to succeed in value-based care. That’s why hospitals and health systems are integrating an analytics platform.

GENEIA

Ninety-five percent of physician respondents said they sometimes or nearly always use technology to better educate or engage with patients.

 

“I think a big reason why we’re seeing such high utilization of patient engagement tools is because physicians truly believe in the power of technology to provide better care,” PatientPoint founder and CEO Mike Collette said via email.

Indeed, 77 percent of surveyed doctors agreed technology helps improve patients’ overall experience.

 

 

Digging deeper, the survey asked what types of tech physicians are currently using to engage or educate patients. The top answers included digital waiting room screens (58 percent), mobile apps (46 percent) and exam room tablets (44 percent).

Collette noted these tools all allow providers to have more meaningful conversations with patients. He explained:

The waiting room screens empower patients to ask about treatment options, enroll in patient portals and adhere to preventive screenings and immunizations. In the exam room, patients can take a deep dive into their condition alongside their doctor via rich media like anatomical models and videos. Then patients can continue their education and conversation with their doctor on mobile apps before and after their visit, bringing things full circle.

Other solutions currently in use by doctors included check-in tablets (34 percent), digital screens in the back office (33 percent) and interactive touchscreens in the exam room (28 percent).

When asked about which types of technology they’re interested in utilizing in the future, 52 percent of doctors pointed to check-in tablets. Additionally, two key locations stood out as important touchpoints: the waiting room and the exam room. Thirty-six percent of physicians are interested in digital waiting room screens, while 45 percent want exam room tablets and 44 percent want interactive touchscreens in the exam room.

Collette said these two spaces — the exam room and the waiting room — are pivotal, and that doctors see the benefits of engaging individuals there.

But patient engagement doesn’t only happen in the office. That’s perhaps why 54 percent of physicians said they want help connecting to patients before and after their visits. Those surveyed said they’re interested in using a variety of technologies to connect with patients outside the office, including email (59 percent), mobile apps (48 percent) and SMS texting (39 percent).


Via Plus91
more...
No comment yet.
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

L'AP-HP vise "100.000 volontaires à terme" au sein de sa communauté en ligne de patients pour la recherche (ComPaRe) #hcsmeufr #esante

L'AP-HP vise "100.000 volontaires à terme" au sein de sa communauté en ligne de patients pour la recherche (ComPaRe) #hcsmeufr #esante | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Premier site français d’information en continu sur les technologies de l’information et de la communication (TIC, NTIC) dans la santé
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

Délais pour un rendez-vous chez le médecin : de fortes disparités et une satisfaction globale

Délais pour un rendez-vous chez le médecin : de fortes disparités et une satisfaction globale | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Il faut compter quatre-vingts jours d’attente en moyenne pour un ophtalmologue mais seulement six pour un généraliste, selon une étude inédite du ministère de la santé

Via Renaloo
more...
Renaloo's curator insight, October 9, 5:17 AM

Délais pour un rendez-vous chez le médecin : de fortes disparités et une satisfaction globale

Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

Impatient patients turn to online 'buyers club' for new drugs #esante #hcsmeufr #digitalhealth

Impatient patients turn to online 'buyers club' for new drugs #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Frustrated by delays in new medicines reaching their own country, a small but growing number of patients are turning to an online broker that bills itself as a legal version of the Dallas Buyers Club.
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Digital Health
Scoop.it!

The Digital Health Patient Journey [INFOGRAPHIC] #esante #hcsmeufr #digitalhealth

The Digital Health Patient Journey [INFOGRAPHIC] #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
1 min read - Digital innovation has the potential to change the way patients search for and receive care. This infographic reveals how tools like ridesharing services and wearable devices may impact the patient journey.

Via Florian Morandeau
more...
Florian Morandeau's curator insight, October 8, 12:56 AM

Here's what a digitally-enabled patient journey could look like in dermatology.

Curated by Lionel Reichardt / le Pharmageek
Pharma Manager & Geek ... #hcsmeu #hcsmeufr #health20fr
http://www.scoop.it/t/pharma-geek
http://www.tikimee.com/lionel-reichardt
Other Topics
5- SUNSHINE ACT & LA LOI BERTRAND by PHARMAGEEK
Tout (ou presque) sur la Loi BERTRAND - Almost everything on Sunshine Act
6- HOSPITAL 2.0 by PHARMAGEEK
#hospital #hopital #clinic #socialmedia #healthcare #pharma #ehealth #mhealth
7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK
#survey #report #ebook #studies #ehealth #mhealth #healthcare
8- TELEMEDECINE & TELEHEALTH by PHARMAGEEK
#telemedecine #telehealth #ehealth #health #healthcare
BEST OF PHARMAGEEK
My review's fav ! Stuff I like
E-HEALTH - E-SANTE - PHARMAGEEK
Une veille unique sur le digital et l'innovation en santé A unique watch on digital and innovation in health #ehealth #mhealth #innovation #health #digitalhealth #hcsmeu #hcsmeufr #hcsm
GAFAMS, STARTUPS & INNOVATION IN HEALTHCARE by PHARMAGEEK
GAFAMS, GAFAM, E HEALTH, START UP, USA
GAMIFICATION & SERIOUS GAMES IN HEALTH by PHARMAGEEK
#Gamification in #Healthace.. #seriousgames #ehealth #mhealth
HEALTHCARE & SOCIAL MEDIA
BRINGING THE SOCIAL MEDIA REVOLUTION IN HEALTHCARE #hcsmeu #hcsm #hcsmeufr #socmed
M-HEALTH By PHARMAGEEK
M HEALTH...and Mobile marketing - Mobile, Ipad and Apps.. #mhealth #ehealth #healthapps
PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
PHARMA NEWS, MULTICHANNEL & CROSSCHANNEL MAKETING
MULTI CHANNEL MARKETING IN PHARMA / MULTICANAL DANS LA PHARMA #digitalhealth #hcsmeufr #hcsm #hcsmeues #hcsmeu
PHARMACY, PHARMACIST, RETAIL - PHARMACIE, PHARMACIEN, DISTRIBUTION
#Pharmacy #pharmacist #pharmacie #pharmacien #hcsmeufr #hcsmeu #hcsm #digitalhealth
Public Health - Santé Publique
WEARABLES - INSIDABLES - IOT - CONNECTED DEVICES - QUANTIFIEDSELF
#objetsconnectés #iot #quantifiedself #innovation #modifiedself #internetofthings quantfiedself mhealth ehealth #hcsmeufr #hcsmeu #hcsm