PATIENT EMPOWERMENT & E-PATIENT
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Why patients need to SPEAK UP !

Why patients need to SPEAK UP ! | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Thanks to the internet, it’s become increasingly easier for patients to find answers to their health-related questions online. Learn to use the internet intelligently, so this will help you ask smarter questions – and will also save your doctor time, because your routine questions have already been answered !

 

Don’t worry if you do not understand everything on the first reading or in the first sitting. It takes time to absorb this information, and analyse it. The good news is that there are lots of reliable websites to help you with Information Therapy. Even better, there are now many expert patients online, who can help you make sense of what is happening to you

 

A lot of patients are scared to ask their doctors questions. They are worried that the doctor is too busy to answer them, and they don’t want to waste his precious time. They are also secretly worried that the doctor may take offense at their questions, because he may think that they are questioning his judgment, and this may cause him to get upset and provide poor medical care.


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PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
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PHARMA.....CONNAIS TU LES E-PATIENTS?

PHARMA.....CONNAIS TU LES E-PATIENTS? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Mi septembre, la nouvelle tombe. "le Mycophénolate Mofétil (Cellcept) est exclu du dispositif "tiers payant contre générique"".
Résultat du travail de "Renaloo", association de patients qui a su mobiliser son réseau et négocier avec l'ANSM et la CNAMTS...
C'est une première....mais ce genre de situation va probablement devenir de plus en plus courante.


A l'occasion de la WebTV que j'ai eu l'honneur d'animer sur BEPATIENT.fr : "Carte blanche" donnée aux "E Patientes" ( http://sco.lt/8VRpi5 ), j'ai pris le temps de compiler un certain nombre d'informations sur ce qu'on appelle les "E Patients" et ce mouvement connu désormais dans la santé comme le "Patient Empowerment".


On sait que la santé est un sujet très présent sur le web.


Avec plus de 30% de la population mondiale connectée (plus de 71% dans les pays développés), le web 2.0 compte maintenant plus de 100 000 000 de sites et plus d'un milliard d'utilisateurs .


La santé 2.0 en chiffres c'est plus parlant. Cela représente :


- 1/3 des recherches faites sur Google
- 20% des discussion dans les réseaux sociaux


Ce qui fait de la santé le second sujet le plus recherché/discuté sur le net.


E PATIENT : UN PHENOMENE AMERICAIN?


On peut penser que ce mouvement des E Patients est un phénomène anglo-saxon pour ne pas dire américain.


Le plus connu d'entre eux, E Patient DAVE (Dave de Bronkart), sexagénaire américain, est devenu le "fer de lance" de ce mouvement.
Diagnostiqué avec un cancer du rein en 2006, les médecins le laissent sans espoir de traitement. Alors Dave s'adresse au web, échange avec d'autres patients et apprend qu'il y a un traitement envisageable mais proposé uniquement par certains médecins.
Rentré en rémission, il décide de s'appuyer sur son expérience pour promouvoir une approche nouvelle de la santé. (une interview intéressante de E Patient Dave http://www.myfoxmaine.com/story/19595242/e-patient-dave-health-activist)


Le Patient EMPOWERMENT est né avec les différente définitions que l'on peut donner aux E Patients (bien résumé et étayé sur wikipedia http://bit.ly/GShDVf ).


Parmi d'autres celle qui fait l'unanimité est la définition élaborée par Tom Ferguson qui identifie les e-patients comme des individus équipés, capables, responsables et impliqués (equipped, enabled, empowered, engaged) dans leur état de santé et dans les décisions qui lui afférent.


L'étude américaine de PEW INTERNET (Social life of health information ( http://bit.ly/SxW4PK ) résume bien l'ampleur de ce phénomène aux Etats Unis.


  • 80% des internautes ont cherché des informations santé sur le web
  • 1/3 s'en sert pour évaluer et choisir leur médecin
  • 60% reconnaissent que cela a affecté leur décision sur comment traiter leur pathologie
  • 50% demandent alors un second avis médical après ces recherches
  • 30% s'en servent pour décider d'aller consulter ou pas
  • 30% l'utilisent pour comparer les options de prescription de traitement


Aux Etats Unis ou les professionnels de santé sont équipés à 80% de smartphones et à 60% d'IPAD, 40% d'entre eux reconnaissent aller consulter de l'information on-line PENDANT la consultation et 50% recommandent à leurs patients des sites à consulter (Manhattan Research)


Le mouvement est encore plus évident à la lecture de l'étude conduite par l'université californienne DAVIS (UC DAVIS Mai 2012 http://bit.ly/SxW4PS ) "The prepared patient" qui met en avant les attentes des E Patients :


  • se tenir informé
  • jouer un rôle actif dans ses soins
  • franchir une étape difficile sur une question de santé


Cela pour autant qu'il soit question de défiance vis à vis des professionnels de santé
Par ailleurs, les patients reconnaissent qu'internet n'est pas la seule source d'information ; les amis, les émissions de télé, les ouvrages/revues/magazines.. sont aussi cités. D'ou l'importance de garder une présence sur les médias "off-line".


Dans cette étude, enfin, il est précisé que :


  • 70% des patients discutent avec leurs médecins de l'information collectée.
  • 40% l'impriment afin d'en parler avec leur médecin
  • 50% déclarent suite à cette recherche avoir au moins une question à poser à leur médecin.


ET EN EUROPE ?


En Europe, les études et la prise de conscience se développent.


Dans son étude "Citizen Health Europe", Manhattan Research dresse en 2010 un état des lieux précis de la situation.


Premier constat, il y aurait 76 millions de E Patients en Europe !!


Parmi les motivations qui induisent à s'adresser au web les 3000 patients interrogés dans les 5 plus gros pays européens, on retrouve :


  • discuter/rechercher les informations obtenues lors de la consultation
  • utiliser internet pour rechercher des symptômes/diagnostic (le fameux phénomène "Dr Google")
  • challenger le diagnostic
  • demander un changement de traitement


L'étude conduite en 2010 par IMR international "Europe Social Media in healthcare" quant à elle précise les motivations des internautes pour discuter de la santé sur les réseaux sociaux.


  • 32% veulent trouver une expérience sur le traitement qu'ils prennent
  • 31% pour trouver de l'expérience sur la maladie qu'ils ont
  • 16% pour partager de l'expérience/maladie
  • 13% pour partager de l'expérience/traitement


EN FRANCE ?


C'est ainsi qu'en France l'étude IPSOS "Public affair 2010" nous révèle que que la santé est la 7ème raison de consulter le web (en France).


Et lorsque l'on regarde les sites consultés/moyens utilisés (Etude GFK 2010 http://bit.ly/PxRc0c ) :


  • 81% passent par les moteurs de recherche
  • 68% par des sites spécialisés type "Doctissimo" ou "AZ Santé"
  • 40% vont sur les forums de discussion
  • 38% sur les encyclopédies libres (Wikipédia, ..)


Par contre :


  • seuls 12% vont sur les sites de labo
  • 11% sur des blogs médecins
  • 10% sur des blogs de patients
  • 10% sur les sites d'associations de patients
  • 8% sur les réseaux sociaux


Quant on sait qu'un site comme Doctissimo génère environ 8 à 10 millions de visiteurs uniques par mois, le Ministère de la santé a décidé face à ce phénomène de conduire une étude avec des sociologues en 2010.


La conclusion est sans appel sur le sujet :


Les auteurs précisent qu'il s'agit là de la "CONSTRUCTION D'UN SAVOIR PROFANE PRATIQUE, COMPLEMENTAIRE DU SAVOIR EXPERT DES MEDECINS".


Le phénomène est tel que le CNOM (Conseil National de l'Ordre des médecins) a réagit en conduisant cette enquête avec IPSOS ( http://bit.ly/PjIRtd ) qui nous donne les chiffres pour la France :


  • 71% des internautes français recherchent des informations santé sur le web
  • 7 internautes sur 10 qui font ces recherches ne font pas la différence entre sites certifiés ou non
  • 62% des français consulteraient le site/blog de leur médecins si celui-ci en avait un
  • 34% des internautes qui cherchent sur le net disent en parler avec leur médecin (le deux tiers des patients ne discutent pas avec leur médecins des informations repérées en ligne)


Cela a d'ailleurs conduit le CNOM a inciter sur son site les médecins à se pencher sur ce phénomène pour :


  • Développer le conseil du médecin dans la recherche d’information santé.
  • Faire d’Internet un outil au service de la relation médecins-patients
  • Créer un label ordinal pour les sites publiés par des médecins.


ET ALORS ?


And so what??
Comment prendre en compte cette évolution parmi les acteurs du système de santé?

Et oui.. pas facile quand notre culture et notre cadre réglementaire ne nous permettent pas d'avoir un échange directe avec les patients.
Pas facile de passer d'une cible de 200 000 médecins (grosso modo) à près de 45 millions d'individus (juste pour la France)
Pas facile de passer d'un mix promo ou la visite médicale est omniprésente (près de 60% du budget) et le digital quasi absent (moins de 1%)


C'est le "business model" en entier qu'il faut repenser et les organisations qui vont avec....


L'orientation client ne doit plus être une intention... mais devenir une réalité du quotidien...avec la difficulté, certes majeure, de définir ce CLIENT.


Prescripteurs? Dispensateurs? Payeur? Patient?...Lequel choisir? Y en a t il qu'un? ou plusieurs? quel poids donner à chacun?


J'entends souvent, et à juste titre, dire par les acteurs (laboratoires, grossistes, pharmaciens,..) que le Patient est "AU COEUR DE NOS DÉMARCHES"...


Pour les marketeurs (futurs "chef de clients"?? :-)), cela doit se traduire par une cartographie du parcours client...peut être effectivement tournée autour de ce parcours.

Prenons le pari qu'à chaque étape du parcours patient (prévention, symptôme diagnostique annonce,analyses, prescription, dispensation, observance, suivi...que sais je?? selon les pathologies) nous repensons nos démarches marketing en mettent au coeur le patient et la notion de service client et de valeur ajoutée...


Et pourquoi ne pas considérer désormais nos clients historiques ou les nouveaux acteurs comme des partenaires ayant eux aussi pour client le Patient?


Peut être faudrait il dans un premier temps accompagner ce changement dans la relation médecin/patient?


Pour conclure je reprendrais un post récent d'Alex Butler, PDG de "The social Moon", gourou du digital pharma et ancien de J&J, qui s'interrogeait sur la pertinence de continuer à utiliser le terme de E-Patient.
En effet, à partir du moment ou tous les patients ou presque, vont sur le net peut être faut il juste les appeler PATIENTS...au même titre qu'on ne précise plus le terme 'numérique" quant on parle d'appareil photo...


Ça y est Pharma... tu en sais un peu plus sur les E Patients.
J'espère que cela t'aura intéressé.



Pour finir, je citerais Len Starnes, autre gourou du digital pharma et ex Bayer...qui écrivait dans une présentation destinée à la pharma:

"Fish where the fishes are"
(Peches là ou sont les poissons)


A bon entendeur

Lionel REICHARDT
Le Pharmageek

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Anne Sophie Llanas's curator insight, March 2, 2016 6:40 PM
Qui sont les e patients ? 
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
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Témoignage : #MonKombat

Témoignage : #MonKombat | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
  Je suis Juliette, 37 ans, Maman d’une petite fille de 22 mois.   J’apprends le 14 juin 2016, alors que je suis enceinte de 8 mois, que j’ai un cancer du sein, HER 2+++, en grade 2, stade 2. J’accouche le 17 juin 2016, ma motivation pour le combat et la lutte vient de naître. …

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Faire de l’expérience de la maladie son métier #hcsmeufr #esante #moipatient

Faire de l’expérience de la maladie son métier #hcsmeufr #esante #moipatient | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

"Épreuve douloureuse, la maladie peut devenir l’occasion de se reconvertir dans l’éducation thérapeutique. Des diplômes universitaires existent pour les patients et les soignants qui veulent se tourner vers ces nouveaux métiers."

"Des cours peu ordinaires se déroulent au troisième étage d’un bâtiment de l’hôpital de la Pitié-Salpêtrière, à Paris, dans le cadre de la faculté de médecine Pierre-et-Marie-Curie (Sorbonne Université). Au programme de cette matinée de mars : « techniques de préservation de la fertilité après un cancer », « prise en charge de la douleur », « sexualité et cancer ».
Les 26 étudiants – jamais avares de questions, de remarques ou de plaisanteries devant les intervenants spécialisés – ne sont ni des internes ni des soignants, à l’exception d’un médecin : ce sont des patients, toujours en traitement ou en rémission d’un cancer. Leur âge varie entre la trentaine et la soixantaine. Venus d’horizons professionnels divers, ils se forment à l’écoute active, au partage de l’expérience de leur maladie et de leurs traitements, en vue d’agir en tant qu’intermédiaires entre le corps médical et les malades, notamment. Ils suivent le cursus d’un diplôme universitaire (DU) pour exercer, à temps plein ou partiel, de nouveaux métiers : « patient expert », « patient partenaire » ou « patient enseignant ».

Accompagner les salariés malades

Sandrine Doczekalski, 38 ans, était styliste chez Sonia Rykiel lorsqu’on lui a diagnostiqué un lymphome de Hodgkin, une forme de cancer du système lymphatique. « J’ai abandonné mon métier pour me soigner et parce que toutes mes priorités ont été remises en question », dit-elle. Elle s’est formée en sophrologie et entend aller plus loin dans l’aide aux autres. Carole David, 47 ans, guérie d’un cancer du sein, a repris son ancien travail chez Axa, mais voudrait créer, au sein de son entreprise, une unité pour accompagner les salariés souffrant d’un cancer ou d’une autre pathologie lourde. Naïma Françoise, 53 ans, doit suivre un traitement de chimiothérapie à vie. Juriste dans un cabinet de consultants, elle s’est arrêtée de travailler neuf mois. « Je veux faire quelque chose des épreuves que je continue de vivre, dit-elle. Je sais qu’il y a des gens qui souffrent de maladies chroniques et qui ne peuvent pas ou n’osent pas en parler. »

Ce groupe, féminin en grande majorité, prépare un DU intitulé « accompagnant de parcours du patient en cancérologie ». Il a été créé en 2016, en même temps que celui dénommé « démocratie en santé ». Ce dernier est destiné à former les responsables des nombreuses associations de patients qui ont vu le jour, afin qu’ils représentent les usagers dans la gouvernance des hôpitaux ou dans les instances nationales et régionales de santé, comme le prévoit la loi de 2016. Destiné au départ aux seuls soignants, le DU en éducation thérapeutique, le plus ancien et le plus général, a peu à peu intégré des patients. Pour ceux qui veulent poursuivre leurs études après un DU, un master est proposé, ainsi qu’un doctorat.

« Nous avons été la première université au monde à délivrer ces diplômes à des patients », souligne Catherine Tourette-Turgis, l’enseignante-chercheuse qui, avec la foi du charbonnier, a fondé en 2009 la première université de patients de France, au sein de la faculté de médecine Pierre-et-Marie-Curie, à Paris. Elle a fait des émules : l’université de Grenoble-Alpes propose un DU en éducation thérapeutique, et celle d’Aix-Marseille, un certificat universitaire.

La fin de la passivité du malade

Le concept de patient expert, né en Californie de la douloureuse expérience des malades du sida avant les trithérapies, auprès desquels Mme Tourette-Turgis a travaillé, a essaimé au Canada, au Royaume-Uni, en Belgique et en Suisse notamment, sans qu’il soit question de diplôme. De nombreuses associations de patients proposent aussi des formations – non diplômantes – en éducation thérapeutique, à Paris et en régions. Mais, en France, la caution universitaire confère souvent davantage de légitimité. « Depuis que les progrès médicaux ont transformé la plupart des maladies mortelles en maladies chroniques et que l’avènement d’Internet a vu se multiplier sites de patients, blogs et forums, les malades deviennent des experts qui en savent presque autant que leur médecin », argumente sur son blog la professeure fondatrice de l’Université des patients.

L’évolution du monde médical dans les pays occidentaux, qui ont tous pris un tournant ambulatoire, accentue le besoin d’intermédiaires, à l’heure où les malades ont cessé d’être passifs devant les mandarins. Parallèlement, les restrictions financières imposées aux hôpitaux mettent de plus en plus leur personnel sous pression (voir Le Monde du 17 mars). « C’est le syndrome de la main sur la poignée de porte – signe que la consultation est terminée même si le patient n’a pas tout compris et se pose d’autres questions », résume d’un trait Isabelle Lecocq, animatrice-pédagogue dans plusieurs DU de l’Université des patients.

Grâce aux progrès de la médecine, « le nombre de patients chroniques est passé en France de 5 millions dans les années 2000 à quelque 20 millions actuellement. Or, l’hôpital a été conçu pour soigner les maladies aiguës, pas pour prendre en charge les maladies chroniques », observe Catherine Tourette-Turgis.

Lire aussi :   Catherine Tourette-Turgis : « Le patient en tant qu’humain et cosoignant est complètement nié »

Emploi salarié
Jusqu’à présent, 123 patients ont été diplômés (niveau DU ou master) à l’Université des patients de Paris, dont 10 % ont trouvé un emploi salarié (coordonnateur de programmes à l’hôpital, médiateur en santé, formateur, etc.). Atteinte de la maladie de Crohn et d’une spondylarthrite ankylosante, Corine Devos, 53 ans, dit avoir « souffert pendant sept ans de n’avoir pas été associée aux décisions médicales [la] concernant ». Dans un premier temps, la future patiente experte a « rebondi dans le bénévolat, l’animation d’ateliers et les interventions dans les hôpitaux en tant que patient partenaire ». Finalement, sa maladie et son DU lui ont « offert l’opportunité de développer des compétences que je n’aurais jamais cru acquérir ».

A l’issue d’une chimiothérapie lourde, Guillaume Lionet, 47 ans, n’a jamais repris son job de chasseur de têtes dans la finance. « Pour donner un sens à ce que j’avais vécu, j’ai d’abord fondé l’association Fight Club Cancer, afin d’offrir ce qui m’a manqué : un accompagnement mental et social, dans un cadre où chacun puisse parler de sa situation sans tabou », raconte-t-il. Avec d’anciens patients, il a créé début 2017 la société de conseil K-Consulting. Elle propose aux employeurs un accompagnement individuel ou collectif du salarié, pendant ses traitements et au moment du retour au travail.

La faculté de médecine de l’université Paris-XIII de Bobigny (Seine-Saint-Denis) réalise, quant à elle, une autre première française en employant, depuis janvier 2016, des patients experts rémunérés comme vacataires. Ils assurent, en binôme avec des enseignants médecins, la formation des internes en médecine générale et participent à leur évaluation. « Ce qui était au départ une expérimentation est devenu programme. Et nous allons l’étendre au niveau du deuxième cycle », indique Olivia Gross, docteure en santé publique et chercheuse au laboratoire d’Educations et pratiques de santé de Paris-XIII. Marie Citrini, patiente enseignante, suit le même groupe d’internes depuis trois ans. « Ils n’ont plus peur de nous et mesurent, à partir des cas pratiques qui leur ont posé problème en stage, ce qu’on peut leur apporter », commente-t-elle.

« L’intégration du patient dans le système de santé est devenue indispensable », conclut Catherine Tourette-Turgis. Pour la renforcer, la professeure a pour projet de créer d’autres diplômes universitaires, dont un sur la relation parents-enfants malades."

Se former :
Les DU de la faculté de médecine Pierre-et-Marie-Curie (Paris) Durée : 120 heures en 7 sessions de 2 jours + e-tutorat. Conditions d’admission : niveau bac + 2, lettre de motivation, entretiens. Coût : 689 euros. Possibilité de bourses.

Le DU de l’université Grenoble-Alpes.

Durée : 104 heures en 7 sessions de 2 jours + tutorat. Conditions d’admission : lettre de motivation. Coût : 928 euros

Le certificat de l’université Aix-Marseille.

Durée : 1 an + 5 sessions de deux jours et un stage pratique. Conditions d’admission : « toute personne ayant une maladie chronique ». Coût : 105 euros


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Putting Humans at the Center of Health Care Innovation #hcsmeufr #esante #digitalhealth

Putting Humans at the Center of Health Care Innovation #hcsmeufr #esante #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Best practices from three leading institutions.

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Art Jones's curator insight, April 24, 3:18 PM

Human Centered Design

&

Collaborating to Co-Create Solutions

 

Excerpt: An alternative emerging at healthcare institutions worldwide is human-centered design and co-creation, a set of approaches that can accelerate and humanize healthcare innovation. This model isn’t just about getting greater patient feedback during the innovation process. Patients are co-designers, co-developers, and increasingly more responsible for their own and collective health outcomes.

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Online Education Improves Adherence in Young Patients With Lupus #hcsmeufr #esante #digitalhealth

Online Education Improves Adherence in Young Patients With Lupus #hcsmeufr #esante #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Key points
• It is feasible to create educational online content that may help young people manage their lupus.

• Online lupus education improved hydroxychloroquine adherence in adolescents and young adults.

• The addition of social media support further increased adherence in this population.

Background
Difficulties that adult patients have in coping with and managing systemic lupus erythematosus (SLE) are compounded in young adults and adolescents, who are less prepared for the burden. Self-management is crucial to medication adherence, which in turn is crucial to disease control in lupus.

Scalzi and colleagues at Pennsylvania State University in Hershey point out that where SLE education is concerned, little is known about how to target adolescents, an age group with a complex set of emotional and developmental needs.1

Widespread use of social media and technology in general by young adults and adolescents may represent an effective means of empowering those with SLE to take self-management seriously—in addition to providing them with a resource to learn about their disease.

The authors examined the feasibility of recruitment for a trial that looked at the effect of participation in an online educational website for adolescents and young adults with SLE. They compared participation levels in subjects with and without social media inclusion. Recently, they presented their findings in Pediatric Rheumatology.

The study
The authors created a publicly available website (www.facinglupustogether.com), which contains educational content about lupus. Twenty-seven subjects with SLE between the ages of 13 and 23 years completed the study. The subjects visited the website and completed educational modules.

Feasibility outcomes included recruitment, compliance, and dropout proportions. The secondary outcome was adherence to prescribed hydroxychloroquine.

The results
• 26% of the controls and 28% of the social media subjects were lost to follow-up because they did not complete all of the online questionnaires at T0 and/or T1.

• No statistical difference was found between the control and social media groups with regard to dropout (P = .8).

• 86% of subjects completed the first set of surveys, and 73% completed both sets.

• The percentage of all subjects “adherent” to prescribed hydroxychloroquine (those with a medication possession ratio of ≥ 0.8, or 80%) improved from 54% to 79% (P = .07).

• Sense of agency and sense of community improved significantly in subjects in the social media group.

 

Implications for clinicians
• Make use of every tool you can to reach patients with SLE—particularly young people, who have not yet developed good self-management skills.

• For better or worse, social media and the Internet are a large part of young people’s lives and as such are a way to reach them.

• Following your young SLE patients through social media and supplying them with an online community where they can receive knowledge and support may improve treatment adherence and ultimately quality of life.

Disclosures: 

The Lupus Foundation of America and the Children’s Miracle Network provided funding for the project.


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cctopbuilders's comment, April 26, 6:01 AM
super
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LA LITTERATIE EN SANTE, TOUS CONCERNES

LA LITTERATIE EN SANTE, TOUS CONCERNES | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
PROMOUVOIR ENSEMBLE LA LITTERATIE EN SANTE
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Technologies, Internet : Apprendre à rendre le web accessible aux séniors #hcsmeufr #esante 

Technologies, Internet : Apprendre à rendre le web accessible aux séniors #hcsmeufr #esante  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Forum à Rennes, bus numérique en Gironde, conférence à Paris, passeport numérique dédié à Issy-les-Moulineaux

Un peu partout en France, les personnes âgées qui s’intéressent aux nouvelles technologies trouveront un service, un atelier, un cours qui leur est destiné.
Les technologies peuvent aussi rapprocher les générations qui s'entraident souligne le Pari solidaire.
On peut aussi se rendre dans un des 4500 Espaces publics numériques (EPN) à découvrir partout en France, pour se familiariser à Internet (et remplir ces déclarations en ligne) ou devenir expert.
Sans oublier "Emmaüs-Connect" présent dans huit grandes villes aujourd'hui, qui donne un bagage informatique à toute personne en situation de précarité numérique, quel que soit son âge ...


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France Silver Eco's curator insight, April 17, 2:49 AM

A l'occasion du Salon des Seniors, l’Observatoire de l’âge (*) estime que 55% des seniors utilisent régulièrement un ordinateur et 42% ont confiance dans la télémédecine. Compagnons, moyens de communication avec les proches, sources d'informations, de jeux... A l'heure où les services publics ne sont de plus en plus accessibles qu'en ligne, les initiatives se déploient pour lutter contre la fracture numérique.

Rescooped by Lionel Reichardt / le Pharmageek from "Patient empowerment throughout the world: health literacy, health education, ehealth literacy, public health promotion, narrative tools & art | e-patients | Patient expertise | Patient advocacy | Shared health decision making" by VAB Traductions
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The Difference Between Patient Education and Health Literacy  #hcsmeufr #esante #digitalhealth #hcsmeu

The Difference Between Patient Education and Health Literacy  #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
June 13, 2017 - Patient education and health literacy are two key concepts in patient engagement and chronic care management. Healthcare experts strive to improve patient health knowledge, asserting that knowledgeable patients are more engaged in shared decision-making and self-management.

Because patient education and health literacy are so closely related, their overlapping definitions begin to blend together. In reality, patient education and health literacy are two separate sides of the same coin and require a thorough understanding from clinicians.

Healthcare professionals must understand the differences between the two and the ways in which these two concepts relate to fully deliver meaningful patient education that drives health literacy.

Using patient education to drive patient care

Patient education is the practice of informing patients about their health, wellness, treatment plans, potential outcomes, and other information critical to the patient experience.

READ MORE: Patient Education Reduces Costs, Boosts Asthma Outcomes

The goal of patient education is to instill a sense of autonomy in the patient and to equip her with the knowledge necessary to make her own healthcare decisions.

As a result, healthcare experts have hailed patient education as a critical aspect of shared decision-making and chronic care management.

Patients who fully understand their current wellness levels, their treatment options, and the potential consequences of each treatment option are well-prepared to offer input into how to carry onward with their care, said Peter Goldbach, MD, in a past interview with PatientEngagementHIT.com.

“Sometimes what gets lost is the fact that the patient you’re working with may not really understand their condition,” said Goldbach, who is Chief Medical Officer of patient education company Health Dialog. “It’s very confusing to be a patient and it takes the provider a while to arrive at a diagnosis. But eventually providers need to share that diagnosis with the patient, let them understand it, and have a chance to let it sink in.”

Research shows that patient education efforts can help increase the occurrence of shared decision-making. One tool from the University of California San Francisco (UCSF), called PREPARE For Your Care, explained complicated health concepts in plain language. This increased the frequency of shared decision-making by 35 percent.

READ MORE: How Does Patient Health Literacy Affect Digital Health Use?

Healthcare professionals must determine the best patient education strategies for their specific populations. Many industry experts laud the patient teach back method during which providers explain a concept to patients and ask patients to explain the concept in return.

If patients can successfully and clearly communicate a piece of information using their own words, providers can conclude that patients understand the concept. Patients who repeat information in their own words tend to absorb information faster than patients who just listen.

Other healthcare professionals rely on patient data access to help improve patient education. A recent OpenNotes study showed that patients who can view clinician notes and offer feedback can better participate in their own health. OpenNotes also helped improve patient safety.

Clinicians can also tap into external resources to help deliver patient education. According to MedlinePlus, a part of the National Institute of Health and National Library of Medicine, healthcare professionals can use pamphlets, printouts, videos, models, props, podcasts, charts, or peer groups to improve patient education.

Providers should employ each tactic based upon a patient’s personal preferences.

READ MORE: The 3 Building Blocks Supporting Patient Engagement Strategies

Patient education helps improve health literacy

The CDC defines health literacy as “the degree to which an individual has the capacity to obtain, communicate, process, and understand basic health information and services to make appropriate health decisions.”

In essence, health literacy is the end goal to strong patient education. Providers who successfully educate their patients will help patients better understand their own health, allowing patients to interact with the healthcare industry in the following ways:

Find information and services
Communicate their needs and preferences and respond to information and services
Process the meaning and usefulness of the information and services
Understand the choices, consequences and context of the information and services
Decide which information and services match their needs and preferences so they can act
Digital health literacy is closely related to health literacy and refers to a patient’s ability to use health technology to interact with their own health and the healthcare system at large. Digital health literacy may impact a patient’s ability to obtain and use the patient portal and EHR, for example.

Healthcare professionals have yet to develop a gold standard for assessing patient health literacy levels, although the need is increasingly pressing. As healthcare becomes more patient-centered, providers will need to know how much education patients need to fully empower and engage patients.

Some industry experts have developed upcoming patient health literacy assessments. University at Albany researcher Jennifer Manganello, PhD, MPH, has created one tool that can assess teen health literacy in under 30 seconds.

Patients view a list of 10 health-related words in 30 seconds and read them out loud. Clinicians assign a score based on how the patient pronounced the word, according to Manganello, who is also an associate professor in the Health Policy, Management & Behavior department at the University at Albany.

“Although this tool does not fully measure all concepts related to health literacy, such as getting health information and thinking critically about it, it does provide a simple way to identify those teens who may require more support to understand health information,” Manganello explained.

Research published in the Journal of Medical Internet Research suggested that patients who use the internet more frequently also have higher health literacy. The research team recommended that clinicians ask patients about their internet usage to help predict their patient education needs.

A separate study also published in JMIR indicated that patients who manage a chronic condition, have more experience with the healthcare industry, and who have higher educational attainment tend to have higher health literacy.

However, clinicians should note that chronic care management patients likely accumulate this health literacy through years of industry involvement and patient education from their providers.

It’s not likely there will ever be a one-size-fits-all guide to identifying a patient with high health literacy. As a result, clinicians must integrate strong patient education strategies into all of their patient engagement efforts.

Healthcare providers can improve patient activation and ultimately drive person-centered care by offering all patients the chance to improve their health literacy.

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What Consumer Characteristics Predict High Health Literacy?  #hcsmeufr #esante #digitalhealth #hcsmeu

What Consumer Characteristics Predict High Health Literacy?  #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

June 10, 2016 - Patients who manage chronic illnesses, have more experience with the healthcare industry, and higher education levels tend to have higher health literacy, says a recent article in the Journal of Medical Internet Research.

Lead researcher Mary Zide, MLIS, PhD, along with her research team, sought to examine patterns in health literacy administering a crowd-sourced survey. The survey, which garnered 500 responses, specifically focused on patient health literacy with regard to managing lung cancer.

The survey showed that patients managing chronic illnesses tended to be more health literate and better understand healthcare terminology.

However, chronic illness status was not the only predictor of better health literacy. Characteristics such as education level, time spent online, income, smoking habit, sex, and patient portal use habits also predicted health literacy.

Characteristics such as time spent online and education level may have resulted in higher health literacy because of better general health knowledge, Zide and colleagues posited.

READ MORE: How Social Media Can Improve Public Health, Patient Education

Interestingly, the research team also suggested that some of these characteristics may have overlapped to create patients with higher health literacy. The survey showed that patients with higher levels of educational attainment were also more likely to be managing a chronic illness.

A patient’s knowledge of their own illness, combined with their general knowledge produced by their education level, may have created a patient with higher health literacy.

“In our work, it may be that the higher performance we observed relates to higher levels of educational attainment, as those respondents reporting chronic illness in our survey more frequently had Associate, Bachelor’s, and Master’s degrees than those reporting no chronic illness (14.6% vs 12.9%, 39.8% vs 36.8%, and 9.7% vs 8.8% respectively),” Zide and colleagues said.

The researchers also focused on perceptions of patient portals, adding survey questions regarding patient satisfaction with the technology.

Patients with chronic illnesses tended to have better perceptions of patient portals, potentially because patients managing a chronic illness may spend more time using a portal, and therefore are more familiar with the technology.

READ MORE: Can Online Articles Improve Patient Education, Engagement?

Females were also more likely to view the patient portal more favorably, specifically with regard to usability. On a Likert scale question asking respondents to rate portals’ ease of use, females averaged a score of 5.32 out of ten versus males’ 4.97 out of ten.

This trend, too, could be credited to more frequent use of the patient portal.

“While use does not equal preference, positive ratings may be influenced by the higher use of portals we observed in this survey (19.7% of women had used a portal over ten times, compared to 14.3% of men), which is consistent with higher eHealth resource use observed in women,” Zide and the research team explained.

Although the survey showed that chronically ill patients viewed the portal better than their peers, it showed one significant commonality between the two: one third of patients are put off from patient portals due to security concerns.

Zide and colleagues noted that these security concerns may be a significant barrier to patient portal adoption because they directly affect patient satisfaction.

READ MORE: Internet Familiarity Tied to Patient Digital Health Literacy

“Security has also been a concern,” the researchers said. “This common theme suggests that eHealth users may associate eHealth tools with a lack of security. This concern has the potential to impact portal use, as it would likely limit satisfaction and perceived usability and, thus, feasibility.”

Patient portal security concerns are a common issue, as the researchers noted. However, leading healthcare organizations have made efforts to ensure that these tools be secure.

The Office of the National Coordinator for Health Information Technology (ONC) has released information regarding the technical safeguards necessary for protecting patient portal data:

To make sure that your private health information is safe from unauthorized access, patient portals are hosted on a secure connection and accessed via an encrypted, password-protected logon.
EHRs also have an “audit trail” feature that keeps a record of who access your information, what changes were made, and when.


Although patient portals use safeguards, there are other safety tips you should follow when accessing the patient portal. Always remember to protect your username and password from others and make sure to only log on to the patient portal from a personal computer or secure computer.


The Department of Health and Human Services has also made clear HIPAA guidelines regarding patient portals. These guidelines spell out who and who is not allowed to access EHR-tethered health data.

Although HIPAA is a set of guidelines, rather than some sort of physical protector of health data, these provisions act as a legal standard that guides health data into the correct hands.


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New Tool Assesses Teen Patient Health Literacy in 30 Seconds  #hcsmeufr #esante #digitalhealth #hcsmeu

New Tool Assesses Teen Patient Health Literacy in 30 Seconds  #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

"May 08, 2017 - Pediatric clinicians can now assess adolescent patient health literacy in under 30 seconds using a new tool developed by researchers from the University at Albany.

Created by Jennifer Manganello, PhD, MPH, the tool addresses a knowledge gap about health literacy in pediatric and adolescent healthcare. Although it is common knowledge amongst most clinicians that teenagers are largely unable to understand their own health, diagnoses, and other critical information, there is little headway on a solution.

“Numerous studies have indicated low health literacy is linked to negative health outcomes in adults. However, limited research has been done on adolescents,” Manganello said in a press release. “[The tool] offers researchers and clinicians a brief screening tool that can be used to quickly assess adolescent health literacy in a variety of settings."​

 

“There is much less research on teens than on adults, which is one of the reasons why this tool is so important,” Manganello continued in email correspondence with PatientEngagementHIT.com. “However, with the limited research we have, it appears that low health literacy is related to outcomes such as poor asthma management and limited understanding of how to use products containing acetaminophen.”

 

Manganello, who is an associate professor in the Health Policy, Management & Behavior department at the University at Albany, created Rapid Estimate of Adolescent Literacy in Medicine, shortened to REALM-TeenS.

 

READ MORE: Five Best Practices for Improving Patient Health Literacy

 

REALM-TeenS is a condensed version of another health literacy assessment, REALM-Teen. The fundamental difference is the time needed to complete either assessment.

Developed in 2006 by Terry Davis of the Louisiana State University Health Sciences Center, REALM-Teen asks patients to read out loud a list of 66 health-related words within three minutes. REALM-TeenS shortens that list to 10 health-related words in 30 seconds.

 

Tested words include terms such as “diabetes,” “asthma,” “exercise,” and “bronchial.”

 

Both assessments look at how many words adolescent patients can pronounce correctly within the allotted timeframe. If the patient struggles to pronounce several words, it is likely she is unfamiliar with it and needs more education in that area, Manganello reasoned.

 

“Although this tool does not fully measure all concepts related to health literacy, such as getting health information and thinking critically about it, it does provide a simple way to identify those teens who may require more support to understand health information,” Manganello explained.

 

READ MORE: How Digital, Health Literacy Drives mHealth Patient Engagement

 

REALM-TeenS is nearly as accurate as its more extensive predecessor, Manganello said. She compared past research about REALM-Teen with results using her own tool and found that REALM-TeenS was 92 percent as successful as the long-form counterpart.

 

Knowing that the quicker tool is nearly as effective as the more extensive assessments is key, Manganello said. Not a lot of clinicians actually test for patient health literacy because assessments can take too long or get in the way of other appointment priorities.

 

“We understand that researchers and health professionals often have a very limited amount of time to ask questions and collect their information,” Manganello acknowledged. “Our new tool makes it easier. Identifying low health literacy in adolescents can be useful for tailoring important health information, medication instructions, and follow-up support.”

 

Additionally, this tool is more conducive to assessing overall patterns in teen health literacy.

 

“Current recommendations suggest that health providers use 'universal precautions' to make information easy to understand for all patients as opposed to screening individual patients,” Manganello noted. “However, this tool will be useful for those who want to look at overall rates of low health literacy for adolescents in a practice or find out how low health literacy relates to certain health conditions or behaviors.”

 

READ MORE: How Hospitals Can Raise Patient Satisfaction, CAHPS Scores

 

It’s important to diagnose teen health literacy so clinicians can improve patient understanding but also so clinicians can make health information more navigable and easy to comprehend.

 

Perhaps the issue is not that patients lack the ability to understand health concepts, Manganello posited. Instead, the challenge may be that information is too complex to understand.

 

“One thing to remember is that health literacy is viewed as a combination of an individual’s skills and the complexity of the information or health care environment they need to navigate,” Manganello explained.

 

“While we need to think about innovative ways to improve health literacy for teens, another option is to focus on how we can help make the information and system easier to understand,” she continued. “For instance, many recommend that providers use the teach back method to ensure patients have clearly understood the information they are told.”

 

Healthcare professionals need to offer more support to their patients to facilitate patient understanding. Educational resources and an explanation of how various structures – related to both physical health and the healthcare industry as a whole – may be helpful for ensuring patients are well-equipped to navigate the system on their own.

 

“While many think of health literacy as the ability to read and understand health information, it goes beyond that,” Manganello concluded.

 

“Health literacy also includes skills such as numeracy, clear communication with providers, and the ability to obtain, understand, and think critically about health information,” she said. “An understanding of how to navigate the health system is important as well, which includes knowing the difference between a primary care provider and a specialist, for instance.”


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How Do mHealth, Mobile Health Devices Impact Patient Satisfaction?  #hcsmeufr #esante #digitalhealth #hcsmeu

How Do mHealth, Mobile Health Devices Impact Patient Satisfaction?  #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
A recent survey found that mHealth technology and mobile health devices can drive better patient satisfaction scores for healthcare organizations.

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Florian Morandeau's curator insight, April 13, 1:41 AM

96% of healthcare organizations implementing mHealth have seen a positive impact on patient satisfaction.

Rescooped by Lionel Reichardt / le Pharmageek from Les actualités du GIE GERS - Groupement pour l'Elaboration et de Réalisation Statistiques
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L'Institut du Cerveau et de la Moelle épinière  @icm_institute lance une campagne publicitaire émotionnelle en immersion totale #journeemondialeParkinson #Parkinson #sante #Hcsmeufr 

L'Institut du Cerveau et de la Moelle épinière  @icm_institute lance une campagne publicitaire émotionnelle en immersion totale #journeemondialeParkinson #Parkinson #sante #Hcsmeufr  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
A l’occasion de la Journée Mondiale de la Maladie de Parkinson, l’Institut du Cerveau et de la Moelle épinière lance une campagne publicitaire émotionnelle en immersion totale afin de faire un appel aux dons.

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GIE_GERS's curator insight, April 12, 3:25 AM

A l’occasion de la Journée Mondiale de la Maladie de Parkinson, l’Institut du Cerveau et de la Moelle épinière lance une campagne publicitaire émotionnelle en immersion totale afin de faire un appel aux dons.

 

Rescooped by Lionel Reichardt / le Pharmageek from "Autonomisation du patient en France et dans les pays francophones : littératie en santé | ETP | patients experts | Promotion de la santé & Santé publique | Droits des patients | e-santé & e-patients | TIC & hôpital numérique" by VAB Traductions
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Education thérapeutique : pour qui, pourquoi ? #hcsmeufr #esante 

Education thérapeutique : pour qui, pourquoi ? #hcsmeufr #esante  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
L’éducation thérapeutique du patient (ETP) vous connaissez ? Il s’agit d’un accompagnement des patients atteints de pathologie chronique par des professionnels formés, pour les aider à mieux comprendre, mieux gérer leur maladie.

C’est un concept inscrit dans la loi française depuis 2009 et particulièrement encadré, ainsi que nous l’explique Brigitte Sandrin de l’association française pour le développement de l’éducation thérapeutique, que nous avons interviewée. Elle pose le décor de l’éducation thérapeutique en France dans la première partie de cet article.

On trouve des programmes d’éducation thérapeutique partout en France, pour diverses maladies. Ainsi pour compléter cette interview, 66 Millions d’IMpatients a rencontré des patients diabétiques reçus pour une semaine d’éducation thérapeutique dans un hôpital parisien. Ils nous ont fait part de leur parcours face à la maladie et de leurs attentes par rapport à ce programme.

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ONC Issues Guidebook for Patient Access to Health Information #hcsmeufr #esante #digitalhealth #hcsmeu

ONC Issues Guidebook for Patient Access to Health Information #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

April 04, 2018 - HHS and the Office of the National Coordinator for Health IT (ONC) has issued a new guidebook to assist patient access to health information. This playbook comes as a part of the HHS and CMS MyHealthEData initiative.

The ONC Guide to Getting and Using Your Health Records is an online and patient-facing document helping patients overcome the challenges they face in accessing their medical records. The guide reviews obtaining a patient health record, checking the health record for accuracy and completeness, and using health records and data sharing for better patient engagement.

This guidebook, in conjunction with the MyHealthEData initiative announced last month, supports HHS’s goals for better patient engagement. Patients become more activated in their own care and are empowered to make healthcare decisions when they can obtain access to their own medical records.

MyHealthEData and patient access to health data also aligns with the 21st Century Cures Act. Patient access to their own medical records is a measure of interoperability, HHS and ONC contend, as is the ability for a patient to send her own medical data to another healthcare provider.

“It’s important that patients and their caregivers have access to their own health information so they can make decisions about their care and treatments,” ONC head Don Rucker, MD, said in a statement. “This guide will help answer some of the questions that patients may have when asking for their health information.


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CORP REP REPORTS PUBLISHED 2018 #hcsmeufr #esante #digitalhealth #hcsmeu

CORP REP REPORTS PUBLISHED 2018 #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Companies assessed by patient groups: AbbVie I Acorda Therapeutics I Allergan I Almirall I Amgen I Astellas Pharma I AstraZeneca I Bayer I Bial I Biogen I Boehringer Ingelheim I Bristol-Myer

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PatientView's curator insight, April 5, 10:41 AM

Now out:

Corporate Reputation of the Pharma Industry in 2017 - from the Patient Perspective ... now in its 7th year

rob halkes's curator insight, April 5, 11:03 AM

Patients, when working with pharma and actually knowing the pharma company they work with, see developments to collaboration with them! Inspiring results from those who care! ;-)

http://www.patient-view.com/--corp-rep-reports-published-2018.html

Rescooped by Lionel Reichardt / le Pharmageek from "Autonomisation du patient en France et dans les pays francophones : littératie en santé | ETP | patients experts | Promotion de la santé & Santé publique | Droits des patients | e-santé & e-patients | TIC & hôpital numérique" by VAB Traductions
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Dur, dur de comprendre les infos sur sa santé cc @giomarsi #hcsmeufr #esante

Dur, dur de comprendre les infos sur sa santé cc @giomarsi #hcsmeufr #esante | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

De nombreuses personnes ont du mal à comprendre les messages santé qui leur sont adressés.

En matière de santé, il est important d’être capable de comprendre les messages qui nous sont adressés. D’une part, cela favorise un mode de vie sain tout en se maintenant en forme. D’autre part, face à la maladie, le patient bien informé peut mieux saisir les propos du médecin et ainsi suivre consciencieusement son traitement. Cela paraît évident… et pourtant.

Pour bon nombre de personnes, ce n’est pas si simple de comprendre ou d’avoir accès à ce type d’informations. «Le problème est plus étendu qu’on pourrait le penser. On estime que près de 54% de la population interrogée en Suisse lors d’une enquête de l’Office fédéral de la Santé publique a des compétences insuffisantes en termes de compréhension d’informations médicales», informe le professeur Patrick Bodenmann, médecin adjoint du Centre des populations vulnérables à la Policlinique médicale universitaire de Lausanne, se basant sur une étude récente.


Cette réalité porte un nom: la faible littératie en santé. Vous l’aurez compris, il s’agit de la capacité à obtenir et à décoder des informations autour de sa santé. Parmi ces 54%, on retrouve notamment les populations vulnérables, les migrants, les personnes étrangères qui maîtrisent mal la langue, mais aussi des personnes âgées, des personnes pauvres, ayant eu peu de possibilités en termes d’éducation.

Il faut se rappeler que selon une étude qui remonte à quelques années, environ 13% de la population en Suisse est analphabète ou illettrée. «Cela représente une personne sur huit. La problématique touche autant les personnes suisses qu’étrangères», explique le professeur Bodenmann.

«Ces personnes vivent avec un handicap au quotidien. Elles ne peuvent pas fonctionner de manière autonome. Si elles ont un bon niveau oral, elles ont par contre des difficultés plus ou moins prononcées à lire et à écrire. Certaines personnes ont suivi tout le cursus scolaire en Suisse et pourtant, elles sont incapables de comprendre ce qu’elles lisent», précise Rosemarie Fournier, directrice de l’association Lire et Ecrire en Valais.

«Elles ont donc également du mal avec tout ce qui touche à leur santé. Imaginez une maman d’un enfant malade. Elle doit lire la notice du médicament pour lui administrer la bonne dose. C’est terriblement difficile», note Rosemarie Fournier.

Quel impact sur la santé?
Les difficultés de compréhension ont des conséquences directes sur la santé. «Les études montrent qu’une personne avec une faible littératie en santé va être moins à l’aise avec les messages de prévention et participera moins facilement aux programmes de dépistage. Elle aura tendance à moins se faire vacciner. Nous observons également davantage de comportements à risque, que ce soit en matière d’alcool, de drogue ou dans le domaine de la sexualité», cons tate le professeur Bodenmann.

«A côté de cela, il faut dire que les maladies sont souvent diagnostiquées tardivement. Face à une maladie ou à une maladie chronique, la personne va avoir du mal à comprendre les informations données par le personnel soignant. Ce sera difficile également pour elle de gérer son traitement», explique le professeur.

Quant au système sanitaire en Suisse, il est assez difficile à appréhender… C’est d’autant plus le cas pour les personnes à faible littératie en santé. «Elles ne savent pas toujours comment entrer dans le système. Du coup, si elles sont malades, elles vont plus facilement se rendre aux urgences», poursuit le professeur Bodenmann.

Quelles solutions?
«Je crois que côté solutions, la balle est plutôt dans le camp des professionnels. C’est important qu’ils parlent de manière simple aux patients et qu’ils s’assurent que la personne a compris l’information en lui faisant reformuler le message, par exemple», suggère Rosemarie Fournier. Point de vue que partage tout à fait le professeur Bodenmann.

«Nous devons devenir de meilleurs communicateurs et ne pas nous cacher derrière le jargon médical. Il est important de mettre en confiance le patient pour qu’il se sente à l’aise et ose poser ses questions. Le médecin peut essayer de voir s’il a des difficultés de compréhension.

Certains comportements peuvent mettre la puce à l’oreille, comme les rendez-vous manqués, les formulaires d’informations incomplets, le syndrome des lunettes oubliées qui, en fait, n’existent pas, ou encore la compliance médicale – c’est-à-dire la rigueur avec laquelle un patient suit son traitement médical», poursuit-il.

Le médecin doit ensuite adapter son message à son interlocuteur. «Il faudra être particulièrement attentif à ce que l’information soit bien comprise lorsque le patient suit un traitement avec quatre médicaments ou plus, ou alors s’il doit prendre un nouveau traitement», note le professeur.

Enfin, il est essentiel de continuer à sensibiliser les professionnels de la santé à cette thématique. Cela passe aussi par la formation des étudiants en médecine.


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The Power of Words in Healthcare: A Patient-Friendly Lexicon. Top 10 List #WordsDoMatter Project | SPM Blog

The Power of Words in Healthcare: A Patient-Friendly Lexicon. Top 10 List #WordsDoMatter Project | SPM Blog | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

"Language has a magical influence on the lives we lead, with an impact on our thoughts, emotions, and/or actions. The words we use are one of the most potent ingredients in the science of language. Words have the power to heal, guide and motivate. They can confuse, mislead, and even hurt us. The intent of a spoken word can often be misinterpreted leading to an unintended consequence. The majority of our words are a result of habit and convenience. If we follow the ripple effect of our words to understand the emotions and/or behaviors they might potentially trigger, would it force us to pause, think and perhaps communicate differently?

There are terms and phrases that those of us who work in healthcare use regularly. Some of these words have been around since the turn of the century…and others are newer and somewhat trendy. In my work with patients and their families, I have found that many would rather us skip some of this terminology in our conversations with them. I’ve captured thousands of terms in my research and I’ve been working with members of the community to identify new terms to consider, which can allow us to redesign the language we use with patients and their families in healthcare. There are words that we might continue to use in exchanges with one another as healthcare professionals, academics, researchers, advocates, etc, but this project was focused on the language we use with patients and their families.

Why?
Connection is a conversation between the patient story and the language of medicine. Words have the power to transform healthcare and if you don’t speak their language, they won’t hear you.

 

How?
Since 2016 when this project launched, 3, 842 words/phrases have been crowd-sourced where we asked “What word(s) should we stop using or limit use of with patients and/or their families? Why?”

The submissions were analyzed and the TOP 10 words are listed here based on the most common words suggested. There are plenty of other words that don’t make sense to patients and their families, but we’ll start with the Top 10 and continue to build on these.

Next Steps
The next steps are to involve the community (YOU) in the “Words Do Matter” Project with your feedback and suggested alternative terms. We will continue our current participatory co-design work with patients and their families to develop a new set of terms that can be used with patients and families. We will also conduct a few “Man on the Street” interviews to supplement this work. Ultimately, the goal is to develop a patient-friendly lexicon.

Here are the words I vow not to use with patients and their families in 2018! #newyearresolution2018

Top 10 Words (and the most interesting and sometimes humorous explanations as to why!)

Patient Engagement
The use of this trendy word skyrocketed several years ago and has led to start-ups, tools, apps, workgroups, behavior change strategies, research studies and mission statements (among other things) all focused on this topic, without a consistent definition of what it actually means. No wonder the most popular Google search on this term was “What is Patient Engagement?”

Here’s what a patient had to say which is indicative of how easy words can get lost in translation, “Last I checked, engagement was a formal agreement to get married. How does that apply to healthcare??”

Another patient explained, “ It’s a paternalistic term. If I don’t want to track my symptoms using your app and don’t want a weekly call, does it make me non-engaged? I don’t always want to be reminded that I am sick but I’m managing my health to the best of my ability, while managing life. Why does it have to be one size fits all?”

Patient Journey
With the prevalence of journey mapping, this term has become widely used in our circles.

As one patient put it, “ A 6 day trip to an exotic place that I’ve happily planned with an origin and destination is a journey. The multiple sclerosis I have or the cancer my husband got a few years ago—that’s not a journey!”

Patient-Centric
Although the Institute of Medicine defines patient-centered care as: “Providing care that is respectful of, and responsive to, individual patient preferences, needs and values, and ensuring that patient values guide all clinical decisions”, many in healthcare have deviated slightly and used this term in different capacities to define strategies now focused on the patient.

“This seems fairly new and I hear it all the time now. What were you focused on before you became patient-centric? It makes me wonder if this is just marketing buzz. Also, if the goal is partnership (and maybe on even terms), shouldn’t I be part of the circle instead of in the middle?”

Co-Create
This term has risen in popularity given the focus on design thinking principles and partnership in healthcare, yet it has left several baffled (and not just patients)!

In a meeting of the minds, a patient advocate said (and I paraphrase here but this led to a roar of laughter and hopefully won’t offend anyone), “We would never use the word co-create with our patients. Let’s co-create! What does that even mean? It almost sounds like procreate.”

Compliance & Adherence
These two words aren’t new to the “no-no” list, yet many of us continue to use them.

One of the most direct responses as to why we should stop, ”Pick up a dictionary or a thesaurus to see how insulting these terms are! These words are synonymous with OBEDIENT, SUBSERVIENT, SUBMISSIVE, and PASSIVE. Non-adherence is equivalent with delinquency? Aren’t we in the 21st century?!”

Survivor
This word isn’t new to controversy either with question on whether it’s cross-culturally acceptable.

“It’s a pessimistic label that forever ties me to a traumatic event in life, “ eloquently explained a patient.

Fight
This has been the subject of research projects with reference of war metaphors connected to a feeling of guilt and/or failure.

“I may come out swinging but if I don’t win the fight , did I not fight hard enough? Am I loser?” asked one patient.

Caregiver
This has different meanings in other countries, such as a nanny or au pair.

As one caregiver articulated, “I don’t see myself as a GIVER of care. I’m a wife that’s confused and just trying figure out how to help my husband manage his mental health and my family cope.”

Shared Decision Making
This is a topic that’s been around for many decades with various models, guidance documents and decision aids introduced over the years. There is still much work required in effective implementation within the average clinical setting (e.g. community practices).

“I understand that patients and families are playing a greater role in their healthcare and ideally there is more exchange and sharing of bi-directional information, but isn’t the final decision made by my wife after we’ve also gotten a second, and maybe even a third opinion, done our research, figured out what insurance is paying, and then figured out what’s best for us right now? It’s ultimately my wife’s decision—not a shared one,” described a caregiver.

Negative
This term has been the source of confusion for quite sometime, yet lives on in healthcare conversations. Healthcare professionals often use this term to describe “normal” but it can lead to a wave of panic until further clarified.

“ When the doctor told me that I had a negative chest x-ray, I was devastated. How would I know that means normal??”

#WordsdoMatter

Please contribute to the Words Do Matter Project and help us shape the overlooked ingredients in healthcare!

What words would you suggest in lieu of these TOP 10? What words would you add to the list?"


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How patients’ use of social media impacts their interactions with healthcare professionals

How patients’ use of social media impacts their interactions with healthcare professionals | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Introduction

Patients are increasingly accessing online health information and have become more participatory in their engagement with the advent of social media (SM). This study explored how patients’ use of SM impacted their interactions with healthcare professionals (HCPs).

Methods

Focus groups (n = 5) were conducted with 36 patients with chronic conditions and on medication who used SM for health-related purposes. The discussions lasted 60–90 min, were audio-recorded, transcribed verbatim, and thematically analysed.

Results

Participants did not interact with HCPs on SM and were not expecting to do so as they used SM exclusively for peer interactions. Most reported improvement in the patient-HCP relationship due to increased knowledge, better communication, and empowerment. Participants supplemented HCP-provided information with peer interactions on SM, and prepared themselves for consultations. They shared online health information with HCPs, during consultations, to validate it and to actively participate in the decision-making. Although some participants reported HCP support for their online activities, most perceived overt or tacit opposition.

Conclusion

Participants perceived that their SM use positively impacted relationships with HCPs. They felt empowered and were more assertive in participating in decision-making.

Practice implications

HCPs should be aware of patients’ activities and expectations, and support them in their online activities.


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NHS WiFi - NHS Digital

NHS WiFi - NHS Digital | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
NHS WiFi will give staff and patients access to WiFi in NHS settings in England.
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Patients’ Vlogs Can Provide Another Form of Engagement, Support

Patients’ Vlogs Can Provide Another Form of Engagement, Support | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Some docs may question social media’s place in patient care, but the number of YouTube users show it might be worthwhile to cultivate allies online.

 

YouTube Video blogs are popular time-wasters for many people. But the technology also can be a tool to help patients and physicians connect, some medical researchers say. 

"It has a great potential for patient engagement, but we don’t know a lot about it yet,” says Joy L. Lee, PhD, a research scientist at the Regenstrief Institute and Indiana University Center for Health Services and Outcomes Research.

Joy Lee

Lee studies how physicians and patients communicate electronically and co-authored a 2017 report, “Seeing Is Engaging: Vlogs as a Tool for Patient Engagement.” Noticing her younger friends watching YouTube videos whenever they have a few free minutes made Lee wonder whether there was a way doctors could tap into that. 

YouTube has given rise to online personalities who share thoughts and observations on any number of subjects — makeup, cooking, pets — and has made information about all sorts of hands-on projects — cooking, exercise, carpentry — accessible worldwide through video. 

“I was really marveling in the power of [YouTube] and wondered how it translated to health care and if health care was aware of it,” Lee says. 

YouTube says it has more than a billion users. On mobile devices alone, it reaches more 18-to-49-year-olds than any cable TV network in the United States.

“It’s a very powerful platform that these YouTube people have,” Lee says. 

She began to search YouTube for patient vloggers —people with certain health conditions who record themselves discussing their maladies, treatment and recovery. Among those with large followings, Lee noticed they revealed a lot about their experiences.

“Patients are people, and that’s what these videos are showing,” Lee says, “I was surprised at the level of detail they were showing.” 

The vlogs can be helpful in different ways. For patients, seeing someone dealing with a similar situation can provide support and understanding. For practitioners, it can provide a window into a patient’s world after he or she leaves a medical office.

“It’s really about educating them about the lives of their patients,” Lee says. 

Patients, especially those with chronic conditions, spend so little of their time with their physicians relative to their everyday lives, Lee says. “It’s helpful in different ways for both groups.”

In “Seeing Is Engaging," she notes: “The unique attributes of vlogs overcome some of the barriers to engagement such as high treatment burden and a lack of the sense of community.”

The Frey Life vlog chronicles Mary and Peter Frey and their experiences in managing her cystic fibrosis. According to YouTube, their vlog has about 190,000 subscribers and draws several thousands  viewers daily. | AAPL 

Lee suggests physicians spend a few minutes on YouTube finding vloggers with lots of followers who may be dealing with similar situations as their patients.

“It requires a bit of legwork, but not a lot because you only need a few good examples.”

She says, “The strength of the videos is that it’s coming from patients,” adding they are a way to raise awareness outside of the science. 

Lee says buy-in on the part of physicians is not easy because of the concern the videos might not contain sound medical advice. Some clinicians may simply distrust social media and question its place in patient care. 

However, she suggests it’s worth the limited investment to find some good vlogs because some people learn better by watching something rather than reading about it. 

That can increase buy-in for patients into their own care. “I think people realize video is a powerful tool,” Lee says. 

She stresses that vlogs should not be a way to diagnose or change treatments, but should only add to a patient’s arsenal of information. They can help a physician understand the patient experience and help the patient understand his or her own experiences, she says.

“This is really for patient engagement, patient support.”

Tiffani Sherman is a freelance writer based in Florida. She originally wrote this story for AAPL in February 2017. 


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Le patient éclairé #démocratieEnSanté #cancer #hcsmeufr

« Le patient éclairé » est un film de recherche sur l’autonomie du patient en cancérologie. Dans une démarche de démocratie…
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Quel compagnon digital pour le malade parkinsonien ? #mbadmb #hcsmeufr #esante

Après maladie d’Alzheimer, la maladie de Parkinson est la 2ème maladie neurodégénérative la plus représentée en France. En attendant que les GAFA (boostés à l'…
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Why I Decided to Reveal My Crohn’s Disease on Social Media  #esante #hcsmeufr #digitalhealth #hcsmeu

Why I Decided to Reveal My Crohn’s Disease on Social Media  #esante #hcsmeufr #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

On the morning of my 27th birthday, I sat in a hospital bed, typing carefully into the Notes app on my phone. I was drafting a social media post to share the news of the Crohn’s disease flare-up that had carved a fistula (tunnel-like hole) into my intestines. The subsequent sepsis infection had landed me in the emergency room.

I was exhausted from a four-day hospital stay full of 4 a.m. blood draws, CT scans, and waiting what seemed like forever to talk with my doctors. It would be easiest, I thought, to just update everyone who followed me on social media in one go. The only problem: I couldn’t figure out what to say.

When I did eventually land on the right words, the response was surprisingly, overwhelmingly positive. It not only reaffirmed my decision to share about my Crohn’s disease on social media, it helped me chart a new path forward in how I handle the condition—and how I view myself.

At first, I worried that talking about my Crohn’s on social media was too personal, too unfiltered for Facebook and Instagram.

I paused as I struggled to find the right words, my eyes welling as I looked at the birthday balloons and flowers sitting on the window sill, day breaking into orange behind the white blinds. As anyone with a chronic illness knows, talking about your health—and fielding the resultant questions—can be an exhausting, vulnerable act. I’d told a few loved ones I was in the hospital, but most people I knew didn’t even realize I had Crohn’s.

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Crohn’s, like many chronic illnesses, is somewhat stigmatized, or at least usually not seen as a topic up for casual discussion, nonetheless an Instagram post where many come for feel-good content. But I was tired of seeing my Crohn’s as no big deal, or something to be brushed aside or hidden. Sharing about Crohn’s on social media would allow me to connect with people in a concrete way, I realized. It would let me show what was really going on in a body that looked otherwise very abled. So, I decided to go public.

I wondered if, when I posted, I’d forever become the “sick girl” in people’s minds, just someone to feel sorry for. I was scared of isolating myself by sharing the intimate details of my own failing body. I kept erasing my words and trying again, but ultimately, I had little energy to keep worrying about what exactly to say. I hit “share” despite my doubts, and the dread set in almost immediately. I threw my phone to the end of the hospital bed, turning up the volume on TLC’s Four Weddings.

Soon enough, the support started rolling in. I was inundated with responses from close friends, family members, college acquaintances, and friends of friends. My face flushed as I scrolled through the well wishes, the heart emojis, the positive vibes, and the prayers. Some people praised me for being “so open about this.” Others thanked me for writing about Crohn’s because they hadn’t heard of it before. Still others referred me to people who wanted to ask me about Crohn’s away from public comment threads.

It worked in reverse, too. People generously sent along names and contact information for those I could talk to about having Crohn's and all that comes with it, from surgeries to dietary changes. I was happily surprised to find such a supportive network and acceptance in sharing the reality of what it’s like to have Crohn’s.

Courtesy of Annalise Mabe

I first started experiencing symptoms of Crohn’s disease when I was a junior in high school, and I didn’t want to talk about it with anyone except my mom and my doctors.

At 17, my stomach began to twist and turn, aching in a way I’d never experienced. I started to make elaborate excuses in school and at friends’ houses about why I had to leave suddenly, when really, diarrhea was making me rush to the bathroom. I would tell teachers and friends I’d forgotten something in my locker, or needed to go home to get my migraine medicine, all so I could use the bathroom without their knowing it. I did tell my mom what was going on, though, how the pain and bathroom trips were interrupting work, school, my social life. She got me into a gastroenterologist's office immediately.

Over several weeks, I endured tests like an endoscopy, where doctors insert a tube into your throat to see your esophagus, stomach, and part of your small intestine, a colonoscopy, where doctors thread a tube into your rectum so they can examine your large intestine, and a capsule endoscopy, where you swallow a pill containing a camera that takes thousands of pictures of your insides.

Based on the results, my doctor confirmed that I had a form of inflammatory bowel disease (IBD) called Crohn’s disease. This condition happens when inflammation in the digestive tract (typically the small intestine and beginning of the large intestine) causes miserable symptoms like diarrhea, abdominal cramping, fatigue, fever, nausea, and joint pain, according to the National Institute of Diabetes and Digestive and Kidney Diseases. While the cause of Crohn’s disease isn’t completely clear, it may come about when a person’s immune system thinks its own intestines are a foreign invader and seeks to obliterate them.

Being in high school, the last thing I wanted was to stick out and for my friends to know of the bathroom trips, or about the big bottle of blue steroids I carried around to reduce inflammation in my intestines. Talking about my illness felt like a huge faux pas. It was with this mindset that I held tightly onto my diagnosis like I would a shameful secret, dreading the eager eyes from my peers, their curious questions.

In college, I sometimes did mention my Crohn’s to friends or partners. But it was typically in passing, as a minute detail not worth discussing in full. No one ever seemed to think it was a big deal or asked any questions to prompt me to share more. The few times I did take the plunge and tell my friends about what it was really like to have Crohn’s, about the pain and how my uncontrollable GI tract seemed to act of its own volition, they listened, but it didn’t seem like they had much to say. It was more like, “Wow, that sucks…Can you throw me a beer?”

Crohn’s didn’t appear to warrant any serious discussion, so I stopped treating it as something serious—until it forced me to.

My severe Crohn’s flare-up and sepsis infection made me realize that social media can offer a special kind of support and understanding for those with chronic illnesses.

It’s not just that people reached out to me, though that was a big part of it. I also realized that if I was sharing about my journey with Crohn’s disease, other people probably were, too.

Through looking up hashtags like #Crohns and #CrohnsDisease, I found immensely helpful Instagram accounts like @CrohnsisCray@CrohnsCooking, and @CrohnsWarrior. Instantly, I was let into the personal lives of other people with Crohn's. I could see snapshots of their struggles (some which were similar to mine, others I've yet to face), of their healing, of their hard and good days alike. Social media has been instrumental in finding people like me, getting an idea of what Crohn’s looks like for others, and ultimately learning how to live the happiest, healthiest life I can with this disease.

Maybe this is what we need. More doses of reality unfiltered. Less posing for the social-media picture, where we’re trained to show the best versions of ourselves.

In a space that’s built on a system of likes, chronic illness doesn’t seem to fit. But I’ve come to my own terms with how I choose to showcase myself, Crohn’s included, on my social media accounts. While some snapshots show me smiling with snacks in hand on an immunosuppressant-infusion-day, others show me in a hospital gown on a really hard day. In the end, it’s important for me to share the spectrum of my life with Crohn’s disease, not just the happy days where I’m symptom-free.

Courtesy of Annalise Mabe

In one of the hardest times of my life, I (begrudgingly) put myself out there and realized that it was OK to talk about illness, and that doing so would make the lifelong journey, the ups and downs of having Crohn’s, a lot less scary.

While going public with a chronic illness may not be for everyone, sharing about my recent jaunt with Crohn’s has made me closer with friends and people who used to be strangers, but have since become so much more. These people have brought me flowers, sent me actual, tangible snail mail, and visited me in the hospital bearing gifts to cheer me up.

More than that, they’ve reminded me that I don’t need to be perfect to be accepted, loved, or even admired, and, ultimately, that I don’t have to go through this alone.

Annalise Mabe is a writer and teacher from Tampa, Florida. She can be found at @AnnaliseMabe onTwitter, @Annalise.Gray on Instagram, and at annalisemabe.com


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What patients want from doctors online and off  #hcsmeufr #esante #digitalhealth #hcsmeu

What patients want from doctors online and off  #hcsmeufr #esante #digitalhealth #hcsmeu | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Brands and marketers alike have many things to consider in today’s ever-changing healthcare landscape. Are patients happy with their relationships with their healthcare providers? How likely are they to switch doctors? What could be improved with the doctor-patient experience? How do people want to be communicated with by their providers’ offices?

To find out, Solutionreach recently conducted an in-depth study involving interviews with 2,100 consumers in the U.S. All respondents have health insurance, make health decisions for themselves or their families, and have visited a doctor in the past year.

Overall, consumers cite three key things that could improve the doctor-patient relationship: greater connectivity, better convenience via text and online tools, and more time with the doctor.Moreover, each age group showed distinct preferences across a host of other healthcare provider–related areas, including satisfaction with service, preferred channels for interaction, and likelihood to switch providers.

To help healthcare marketers better target their messaging, here are some of the key findings from the research for each age group:

Millennials
Among the three generations, Millennials are the least satisfied with their doctors and are most likely to switch practices. Not surprisingly, the researchers found that they are also the generation that is most likely to want to receive e-mail and text communication from offices.

  • Only 19% of Millennials are satisfied with their primary care physician, just 37% are satisfied with their eye doctor, 28% with their dermatologist, and 36% with their dentist.
  • Some 42% of Millennials say they are likely to switch their primary care provider in the next few years and 54% have already switched practices in the past two or three years.
  • Millennials are open to communication across all channels, with more than 70% saying it is appealing to get appointment reminders, appointment alerts, and follow-up reminders via phone, e-mail, and text.

Generation X
Many Generation Xers control healthcare decisions across multiple generations, and their preferences and satisfaction levels both fall somewhere between younger and older consumers. Overall, the researchers found that they are fairly similar to Millennials, with an openness to digital communication and to switching providers.

  • Some 32% of Gen Xers are satisfied with their primary care physician, 31% are satisfied with their eye doctor, 30% with their dermatologist, and 40% with their dentist.
  • Gen Xers are the most likely generation to say they may switch their primary care provider in the next few years: 44% are likely to do so.
  • Phone remains the preferred communication channel for Gen Xers to receive appointment reminders, appointment alerts, and follow-up reminders. However more than 60% say it is also appealing to get alerts via e-mail and text.

Baby Boomers
Baby Boomers, the biggest consumers of healthcare services, are the least likely to switch doctors. However that doesn’t necessarily mean they’re happy: less than half are satisfied with their current providers. Boomers are also the generation least interested in receiving communications from doctors’ offices digitally.

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  • Some 42% of Baby Boomers are satisfied with their primary care physician, 47% are satisfied with their eye doctor, 39% with their dermatologist, and 43% with their dentist.
  • Only 20% of Baby Boomers say they are likely to switch their primary care provider in the next few years, 14% are likely to switch their eye doctor, 21% their dermatologist, and 23% their dentist.
  • Phone is overwhelmingly the preferred communication channel for Baby Boomers to receive appointment reminders, appointment alerts, and follow-up reminders. Around half or fewer of Boomers say the idea of receiving alerts via e-mail and text is appealing.

What should healthcare providers and marketers make of all this?

The first big takeaway from the report is that there’s a lot of room for improvement.

Fewer than half of patients across all generations are satisfied with their current doctors, and the share of dissatisfied consumers is especially high with Millennials and Gen Xers.

Moreover, unhappiness is paired with an openness to switching providers—again, especially with younger patients.

This combination of dissatisfaction and willingness to change should give every healthcare provider pause; it should not be taken for granted by any means that patients will stay with your practice simply out of loyalty.

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So, what can you do to improve the relationship? Beyond the eternal request—that doctors spend more time with their patients—the research shows that consumers want better doctor-office staff communication and that they want interactions/management/scheduling to be more convenient.

What’s important to understand from the report is that convenience can come in different forms for different generations. For older consumers it may mean a friendly staff member calling by phone to personally deliver reminders. For younger consumers, it may mean supplementing phone calls with e-mail and text alerts.

What emerges from the research is that there is no one-size-fits-all approach to patient communications or healthcare marketing that will satisfy every patient. Each age group, and each individual, has a unique set of preferences. Ultimately, the key to improving the doctor-patient relationship isn’t shifting to one particular communication or marketing approach, but rather embracing a wide mix so that the full spectrum of consumers is served well.


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Opération #MarsBleu : il est temps de se faire #dépister du #cancer #colorectal #sante #hcsmeufr  #MoiPatient

Opération #MarsBleu : il est temps de se faire #dépister du #cancer #colorectal #sante #hcsmeufr  #MoiPatient | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Avec 42.000 nouveaux cas par an, le cancer colorectal est le 3e cancer le plus fréquent et le 2e plus meurtrier. Pourtant, il se soigne bien dans 90% des cas lorsqu'il est pris à temps ! L'opération Mars Bleu est une invitation au dépistage pour tous les 50-74 ans.

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Avec 42.000 nouveaux cas par an, le cancer colorectal est le 3e cancer le plus fréquent et le 2e plus meurtrier. Pourtant, il se soigne bien dans 90% des cas lorsqu'il est pris à temps ! L'opération Mars Bleu est une invitation au dépistage pour tous les 50-74 ans.

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Associations de #patients : l’@ANSM lance son appel à projets pour 2018 #sante #hcsmeufr 

Associations de #patients : l’@ANSM lance son appel à projets pour 2018 #sante #hcsmeufr  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

L’Agence nationale de sécurité du médicament et des produits de santé (ANSM) lance, pour la septième année consécutive, un appel à projets s’adressant aux associations de patients et autres usagers du système de santé. Cet appel à projets annuel vise à stimuler des initiatives associatives axées sur le bon usage et la réduction des risques liés aux produits de santé


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GIE_GERS's curator insight, February 22, 7:51 AM

L’Agence nationale de sécurité du médicament et des produits de santé (ANSM) lance, pour la septième année consécutive, un appel à projets s’adressant aux associations de patients et autres usagers du système de santé. Cet appel à projets annuel vise à stimuler des initiatives associatives axées sur le bon usage et la réduction des risques liés aux produits de santé

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GAFAMS, GAFAM, E HEALTH, START UP, USA
GAMIFICATION & SERIOUS GAMES IN HEALTH by PHARMAGEEK
#Gamification in #Healthace.. #seriousgames #ehealth #mhealth
HEALTHCARE & SOCIAL MEDIA
BRINGING THE SOCIAL MEDIA REVOLUTION IN HEALTHCARE #hcsmeu #hcsm #hcsmeufr #socmed
M-HEALTH By PHARMAGEEK
M HEALTH...and Mobile marketing - Mobile, Ipad and Apps.. #mhealth #ehealth #healthapps
PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
PHARMA NEWS, MULTICHANNEL & CROSSCHANNEL MAKETING
MULTI CHANNEL MARKETING IN PHARMA / MULTICANAL DANS LA PHARMA #digitalhealth #hcsmeufr #hcsm #hcsmeues #hcsmeu
PHARMACY, PHARMACIST, RETAIL - PHARMACIE, PHARMACIEN, DISTRIBUTION
#Pharmacy #pharmacist #pharmacie #pharmacien #hcsmeufr #hcsmeu #hcsm #digitalhealth
Public Health - Santé Publique
WEARABLES - INSIDABLES - IOT - CONNECTED DEVICES - QUANTIFIEDSELF
#objetsconnectés #iot #quantifiedself #innovation #modifiedself #internetofthings quantfiedself mhealth ehealth #hcsmeufr #hcsmeu #hcsm