PATIENT EMPOWERMENT & E-PATIENT
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Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
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PHARMA.....CONNAIS TU LES E-PATIENTS?

PHARMA.....CONNAIS TU LES E-PATIENTS? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Mi septembre, la nouvelle tombe. "le Mycophénolate Mofétil (Cellcept) est exclu du dispositif "tiers payant contre générique"".
Résultat du travail de "Renaloo", association de patients qui a su mobiliser son réseau et négocier avec l'ANSM et la CNAMTS...
C'est une première....mais ce genre de situation va probablement devenir de plus en plus courante.


A l'occasion de la WebTV que j'ai eu l'honneur d'animer sur BEPATIENT.fr : "Carte blanche" donnée aux "E Patientes" ( http://sco.lt/8VRpi5 ), j'ai pris le temps de compiler un certain nombre d'informations sur ce qu'on appelle les "E Patients" et ce mouvement connu désormais dans la santé comme le "Patient Empowerment".


On sait que la santé est un sujet très présent sur le web.


Avec plus de 30% de la population mondiale connectée (plus de 71% dans les pays développés), le web 2.0 compte maintenant plus de 100 000 000 de sites et plus d'un milliard d'utilisateurs .


La santé 2.0 en chiffres c'est plus parlant. Cela représente :


- 1/3 des recherches faites sur Google
- 20% des discussion dans les réseaux sociaux


Ce qui fait de la santé le second sujet le plus recherché/discuté sur le net.


E PATIENT : UN PHENOMENE AMERICAIN?


On peut penser que ce mouvement des E Patients est un phénomène anglo-saxon pour ne pas dire américain.


Le plus connu d'entre eux, E Patient DAVE (Dave de Bronkart), sexagénaire américain, est devenu le "fer de lance" de ce mouvement.
Diagnostiqué avec un cancer du rein en 2006, les médecins le laissent sans espoir de traitement. Alors Dave s'adresse au web, échange avec d'autres patients et apprend qu'il y a un traitement envisageable mais proposé uniquement par certains médecins.
Rentré en rémission, il décide de s'appuyer sur son expérience pour promouvoir une approche nouvelle de la santé. (une interview intéressante de E Patient Dave http://www.myfoxmaine.com/story/19595242/e-patient-dave-health-activist)


Le Patient EMPOWERMENT est né avec les différente définitions que l'on peut donner aux E Patients (bien résumé et étayé sur wikipedia http://bit.ly/GShDVf ).


Parmi d'autres celle qui fait l'unanimité est la définition élaborée par Tom Ferguson qui identifie les e-patients comme des individus équipés, capables, responsables et impliqués (equipped, enabled, empowered, engaged) dans leur état de santé et dans les décisions qui lui afférent.


L'étude américaine de PEW INTERNET (Social life of health information ( http://bit.ly/SxW4PK ) résume bien l'ampleur de ce phénomène aux Etats Unis.


  • 80% des internautes ont cherché des informations santé sur le web
  • 1/3 s'en sert pour évaluer et choisir leur médecin
  • 60% reconnaissent que cela a affecté leur décision sur comment traiter leur pathologie
  • 50% demandent alors un second avis médical après ces recherches
  • 30% s'en servent pour décider d'aller consulter ou pas
  • 30% l'utilisent pour comparer les options de prescription de traitement


Aux Etats Unis ou les professionnels de santé sont équipés à 80% de smartphones et à 60% d'IPAD, 40% d'entre eux reconnaissent aller consulter de l'information on-line PENDANT la consultation et 50% recommandent à leurs patients des sites à consulter (Manhattan Research)


Le mouvement est encore plus évident à la lecture de l'étude conduite par l'université californienne DAVIS (UC DAVIS Mai 2012 http://bit.ly/SxW4PS ) "The prepared patient" qui met en avant les attentes des E Patients :


  • se tenir informé
  • jouer un rôle actif dans ses soins
  • franchir une étape difficile sur une question de santé


Cela pour autant qu'il soit question de défiance vis à vis des professionnels de santé
Par ailleurs, les patients reconnaissent qu'internet n'est pas la seule source d'information ; les amis, les émissions de télé, les ouvrages/revues/magazines.. sont aussi cités. D'ou l'importance de garder une présence sur les médias "off-line".


Dans cette étude, enfin, il est précisé que :


  • 70% des patients discutent avec leurs médecins de l'information collectée.
  • 40% l'impriment afin d'en parler avec leur médecin
  • 50% déclarent suite à cette recherche avoir au moins une question à poser à leur médecin.


ET EN EUROPE ?


En Europe, les études et la prise de conscience se développent.


Dans son étude "Citizen Health Europe", Manhattan Research dresse en 2010 un état des lieux précis de la situation.


Premier constat, il y aurait 76 millions de E Patients en Europe !!


Parmi les motivations qui induisent à s'adresser au web les 3000 patients interrogés dans les 5 plus gros pays européens, on retrouve :


  • discuter/rechercher les informations obtenues lors de la consultation
  • utiliser internet pour rechercher des symptômes/diagnostic (le fameux phénomène "Dr Google")
  • challenger le diagnostic
  • demander un changement de traitement


L'étude conduite en 2010 par IMR international "Europe Social Media in healthcare" quant à elle précise les motivations des internautes pour discuter de la santé sur les réseaux sociaux.


  • 32% veulent trouver une expérience sur le traitement qu'ils prennent
  • 31% pour trouver de l'expérience sur la maladie qu'ils ont
  • 16% pour partager de l'expérience/maladie
  • 13% pour partager de l'expérience/traitement


EN FRANCE ?


C'est ainsi qu'en France l'étude IPSOS "Public affair 2010" nous révèle que que la santé est la 7ème raison de consulter le web (en France).


Et lorsque l'on regarde les sites consultés/moyens utilisés (Etude GFK 2010 http://bit.ly/PxRc0c ) :


  • 81% passent par les moteurs de recherche
  • 68% par des sites spécialisés type "Doctissimo" ou "AZ Santé"
  • 40% vont sur les forums de discussion
  • 38% sur les encyclopédies libres (Wikipédia, ..)


Par contre :


  • seuls 12% vont sur les sites de labo
  • 11% sur des blogs médecins
  • 10% sur des blogs de patients
  • 10% sur les sites d'associations de patients
  • 8% sur les réseaux sociaux


Quant on sait qu'un site comme Doctissimo génère environ 8 à 10 millions de visiteurs uniques par mois, le Ministère de la santé a décidé face à ce phénomène de conduire une étude avec des sociologues en 2010.


La conclusion est sans appel sur le sujet :


Les auteurs précisent qu'il s'agit là de la "CONSTRUCTION D'UN SAVOIR PROFANE PRATIQUE, COMPLEMENTAIRE DU SAVOIR EXPERT DES MEDECINS".


Le phénomène est tel que le CNOM (Conseil National de l'Ordre des médecins) a réagit en conduisant cette enquête avec IPSOS ( http://bit.ly/PjIRtd ) qui nous donne les chiffres pour la France :


  • 71% des internautes français recherchent des informations santé sur le web
  • 7 internautes sur 10 qui font ces recherches ne font pas la différence entre sites certifiés ou non
  • 62% des français consulteraient le site/blog de leur médecins si celui-ci en avait un
  • 34% des internautes qui cherchent sur le net disent en parler avec leur médecin (le deux tiers des patients ne discutent pas avec leur médecins des informations repérées en ligne)


Cela a d'ailleurs conduit le CNOM a inciter sur son site les médecins à se pencher sur ce phénomène pour :


  • Développer le conseil du médecin dans la recherche d’information santé.
  • Faire d’Internet un outil au service de la relation médecins-patients
  • Créer un label ordinal pour les sites publiés par des médecins.


ET ALORS ?


And so what??
Comment prendre en compte cette évolution parmi les acteurs du système de santé?

Et oui.. pas facile quand notre culture et notre cadre réglementaire ne nous permettent pas d'avoir un échange directe avec les patients.
Pas facile de passer d'une cible de 200 000 médecins (grosso modo) à près de 45 millions d'individus (juste pour la France)
Pas facile de passer d'un mix promo ou la visite médicale est omniprésente (près de 60% du budget) et le digital quasi absent (moins de 1%)


C'est le "business model" en entier qu'il faut repenser et les organisations qui vont avec....


L'orientation client ne doit plus être une intention... mais devenir une réalité du quotidien...avec la difficulté, certes majeure, de définir ce CLIENT.


Prescripteurs? Dispensateurs? Payeur? Patient?...Lequel choisir? Y en a t il qu'un? ou plusieurs? quel poids donner à chacun?


J'entends souvent, et à juste titre, dire par les acteurs (laboratoires, grossistes, pharmaciens,..) que le Patient est "AU COEUR DE NOS DÉMARCHES"...


Pour les marketeurs (futurs "chef de clients"?? :-)), cela doit se traduire par une cartographie du parcours client...peut être effectivement tournée autour de ce parcours.

Prenons le pari qu'à chaque étape du parcours patient (prévention, symptôme diagnostique annonce,analyses, prescription, dispensation, observance, suivi...que sais je?? selon les pathologies) nous repensons nos démarches marketing en mettent au coeur le patient et la notion de service client et de valeur ajoutée...


Et pourquoi ne pas considérer désormais nos clients historiques ou les nouveaux acteurs comme des partenaires ayant eux aussi pour client le Patient?


Peut être faudrait il dans un premier temps accompagner ce changement dans la relation médecin/patient?


Pour conclure je reprendrais un post récent d'Alex Butler, PDG de "The social Moon", gourou du digital pharma et ancien de J&J, qui s'interrogeait sur la pertinence de continuer à utiliser le terme de E-Patient.
En effet, à partir du moment ou tous les patients ou presque, vont sur le net peut être faut il juste les appeler PATIENTS...au même titre qu'on ne précise plus le terme 'numérique" quant on parle d'appareil photo...


Ça y est Pharma... tu en sais un peu plus sur les E Patients.
J'espère que cela t'aura intéressé.



Pour finir, je citerais Len Starnes, autre gourou du digital pharma et ex Bayer...qui écrivait dans une présentation destinée à la pharma:

"Fish where the fishes are"
(Peches là ou sont les poissons)


A bon entendeur

Lionel REICHARDT
Le Pharmageek

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Anne Sophie Llanas's curator insight, March 2, 2016 6:40 PM
Qui sont les e patients ? 
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
Anthony's comment, March 18, 2016 10:07 AM
Merci pour cette analyse !
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Téléthon : pourquoi rien n’aurait été possible sans les associations de patients  #esante #hcsmeufr

Téléthon : pourquoi rien n’aurait été possible sans les associations de patients  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
AVIS D’EXPERT - Les associations de patients ont donné le coup d’envoi de la recherche sur les maladies génétiques rares. Les industriels du secteur craignaient d’investir ce domaine, faute d’un retour financier assuré.
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Près de 2.000 inscrits sur le nouvel "espace #patient" de l'@APHP #esante #hcsmeufr 

Près de 2.000 inscrits sur le nouvel "espace patient" de l'AP-HP
Le directeur de projet "transformation numérique" de l'Assistance publique-hôpitaux de Paris (AP-HP), Pierre-Etienne Haas, a indiqué le 3 décembre que près de 2.000 comptes avaient été créés par les patients du CHU francilien sur l'espace mis en ligne début novembre.

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GIE_GERS's curator insight, December 7, 4:38 AM
Près de 2.000 inscrits sur le nouvel "espace patient" de l'AP-HP

Le directeur de projet "transformation numérique" de l'Assistance publique-hôpitaux de Paris (AP-HP), Pierre-Etienne Haas, a indiqué le 3 décembre que près de 2.000 comptes avaient été créés par les patients du CHU francilien sur l'espace mis en ligne début novembre.

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#Esante #Data Une base de données collaborative pour le #myélome #cancer #hcsmeufr

#Esante #Data Une base de données collaborative pour le #myélome #cancer #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Quatre laboratoires et l’Intergroupe Francophone du Myélome (IFM) décident de mettre en commun leurs données. Objectif : proposer le meilleur traitement aux patients atteints de myélome multiple. Par notre envoyée spéciale à l’ASH, le Congrès mondial d’hématologie qui se tient à San Diego du 1er au 4 décembre 2018.

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ACCURAY FRANCE's curator insight, December 5, 5:30 AM

Quatre laboratoires et l’Intergroupe Francophone du Myélome (IFM) décident de mettre en commun leurs données. Objectif : proposer le meilleur traitement aux patients atteints de myélome multiple. Par notre envoyée spéciale à l’ASH, le Congrès mondial d’hématologie qui se tient à San Diego du 1er au 4 décembre 2018.

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Dilemma: Patient shares a recorded consultation on social media  #esante #hcsmeufr

Dilemma: Patient shares a recorded consultation on social media  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

LMC view: Consider removing the patient from your list

My first question is, ‘why would my patient do this?’ Quickly followed by ‘can they do this?’ and ‘what can I do about it?’

 
For a doctor to be permitted to do this without consequences would surely be unthinkable. So is it right for a patient to post a recording of a consultation with you on Facebook without your approval?

Recording a private conversation without consent for personal use is not illegal,1 but the law is unclear on sharing such information.

As a minimum, arrange to meet the patient to discuss what they have done. Ask why they thought they needed to do this. Did they think you had done something wrong, or is it because they have the habit of sharing everything they do on social media? Personally, I believe it is good for patients to record consultations, as this enables them to review the shared information, so I would remind the patient they can openly record consultations for personal use. Then I would explain that I did not give them permission to share this on social media and if they continue to do so, I will remove them from the registered list, on the basis that this a significant breakdown in the doctor-patient relationship.

If they continue to post consultations on social media I would take steps to de-register the patient, following due process. Depending on what has been posted, I would also consider a formal legal opinion on whether to take further action.

 
 

Dr Elliott Singer is a GP partner in east London and a medical director at Londonwide LMCs


Medicolegal view: Ignore it – such posts usually disappear

The widespread availability of digital recording devices means it has never been easier for a patient to record a consultation.

There is little to be done if a patient records a consultation covertly. If the patient then posts the recording on Facebook or elsewhere on social media, irrespective of whether you have consented to the recording, you have two main options. The first is to take no further action – in most circumstances the recording is unlikely to reach a wide audience and taking action may draw attention to it.

Alternatively, you could contact the patient to explain that the Facebook post has come to your attention and invite them in to discuss your concerns. This will give the patient the opportunity to explain why they shared the recording publicly and provide you with an opportunity to ask them politely to remove it.

You should avoid commenting on or reporting the Facebook post – again, this is likely to draw attention to it and may provoke further comments or a backlash.

Depending on the individual circumstances, it is unlikely there will be an absolute legal remedy to compel the patient to remove the recording. However, if the post contains false or discriminatory information that is intended to damage your reputation, you should seek the advice of your medical defence organisation to establish whether there is a legal recourse is available to you.

It is understandable that GPs may feel frustrated that a patient can post a recording of a consultation without seeking their permission to do so. This can only be substantively addressed by legal reform.

Dr Richard Stacey is head of policy and technical at Medical Protection


GP social media expert: Ask Facebook to take the post down

First, contact the patient and ask them to take the post down. You could invite them to meet you at the practice, in case there is any aspect of the consultation that they would like to discuss. Explain politely that this is in respect of your rights to privacy and also out of duty to other patients who need reassurance that videos or audios of their consultations will not be published on social media.

Also explain that confidentiality and trust are of the utmost importance in the GP consultation and assert that both parties should respect these for the doctor-patient relationship to be meaningful and progressive.

If the patient resists, you can file a complaint through Facebook and request that the post be removed on the grounds that it was published without your consent, and recorded in a doctor’s consultation room. Facebook should consider the appropriateness of videos or audio recordings if done in public locations such as hospitals or surgeries, where one would expect privacy. Advise the patient you have taken this step, restating your reasons for doing so, and invite them to attend another meeting to discuss it.

Remember that the central issue here is the understanding of social media etiquette. In alignment with protocols in health and wellness coaching professions, where consultations may be digitally recorded and shared, practices should give patients clear guidance about the recording of consultations and the boundaries for this when they register. This guidance should include the requirement that any patient who wishes to record a consultation asks for consent beforehand, and that they should confirm they have read and understood the practice’s privacy policy.

Dr Aisha Malik is a portfolio GP and social media consultant in Manchester


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Do Online Health Seekers Trust Social Media? Surprising Results From A New Survey – #esante #hcsmeufr

Do Online Health Seekers Trust Social Media? Surprising Results From A New Survey – #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

A new survey profiling how American adults access, use and feel about health-related information finds that most Americans who regularly seek health information are concerned about incorrect or misleading medical information on social media, and few have found health information on social media to be accurate.

These findings are consistent across generations. The survey, The Great American Search for Healthcare Information, was conducted among 1,700 Americans 18 years of age and older. It was commissioned by global communications and marketing services firm Weber Shandwick in partnership with KRC Research.

I find the results of this survey very interesting for a number of reasons. 

Firstly, it’s interesting to learn that the majority of online health seekers are concerned about incorrect or misleading medical information. This reassures me in a way because it means that, contrary to the pervasive belief that the public believes everything they read online, people are actually far more discerning.

It also underscores for me that patients aren’t looking to supplant knowledge from healthcare professionals with the information they find online. They still look to their healthcare providers as the source of credible health information.

 

Note that nurses, pharmacists, and eye doctors score higher than medical doctors in terms of satisfaction. This finding surprised me. The survey suggests that physicians may have a millennial problem.

The Millennial generation is least likely to be very satisfied with the information provided by medical doctors. In evaluating other attitudes toward physicians, the study suggests that doctors may be contending with a Millennial trust challenge. In addition to their lower satisfaction levels with information from doctors (on a basis relative to other generations), Millennials are the least likely generation to say they always listen to their doctor(s), the most likely to believe that online health-related information is as reliable as that from medical professionals and the most likely to say they trust their peers more than medical professionals.


Secondly, I find it disheartening that survey respondents are not finding accurate health information online. We know for a fact that accurate health information does exist online, so why are people not rating it higher?  Medical information websites fall just below average in terms of satisfaction (39 percent).

Finally, I’m a little surprised to learn that concerns about the accuracy of social health information are consistent across generations, including digital natives.

Gen Z, is just as likely to be concerned about incorrect or misleading information as the much older Boomer generation (91 percent and 87 percent, respectively). This suggests that social media comfort and proficiency do not have a bearing on perceptions of legitimacy, leading to the conclusion that it is the content or channel that is the challenge for health-related information communicators.

All of this adds up to a trust and credibility problem we need to urgently address.

A Wake-up Call for Healthcare Professionals

The healthcare industry is still lagging behind in delivering credible and relevant information to patients when and where they need it most.  Healthcare has much to learn from other industries who are adept at mapping the customer journey and providing relevant and timely information at each stage of the journey.

Earning Trust From Online Health Information Seekers

Within each problem lies its solution. To address the trust gap, the authors suggest the following fixes:

Prove your online credibility from the outset

  • information should be cited by a medical professional
  • it should cite a scientific study
  • it should be associated with a trusted brand
  • it should be cited by a trusted school or research organization

Design your content for discovery

By building content that is discoverable across multiple channels – online and offline – you can intersect your customers across their journey and ensure that they find the credible information they’re looking for.

Use succinct, clear and plain language in your communications.

Recognise that people are swimming in information and overwhelmed by the volume, creating confusion and perceptions of conflicting facts.

I would add to this list that it’s important to talk to patients in your offices about the information they find online. For more on this read What’s the Influence of Patients’ Internet Health Information-Seeking Behaviour on the Patient-Physician Relationship?

A Wake-up Call for Healthcare Professionals

In a post published in Physician’s Weekly, primary care physician Mikhail Varshavski, DO, is unequivocal that healthcare professionals’ failure to influence social media is responsible for the rise of misinformation online.

I used to consider the absence of quality physicians online merely a problem of missed opportunity. Now I’ve realized it is much more than that. If misinformation has the power to call in to question the validity of something as grand as an American presidential election, it certainly has the power to influence our patients’ everyday health decisions. The healthcare industry as a whole needs to advocate for more education and focus on this burgeoning global communication platform.

According to a 2017 survey by PM360 Online, only 9% of physicians engage with patients and other health care providers — this includes physicians who reply to comments, join group discussions or share helpful information and links on social media platforms – and as low as 1% of all health care professionals use social media to be content creators — publishing original content via blogs, forums, and websites.

 


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Prendre la mesure de l’aspect #psychologique du #cancer #MoiPatient #SpécialCancer #hcsmeufr #psycho

Prendre la mesure de l’aspect #psychologique du #cancer #MoiPatient #SpécialCancer #hcsmeufr #psycho | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Alf von Kries, psychologue, nous explique pourquoi il est primordial de prendre vraiment le temps d’accepter le diagnostic. Lorsque le diagnostic tombe, la plupart des patients restent en état de choc : leur vie s’écroule et ils sont complètement perdus. Dans un tel contexte, il est primordial d’accompagner la personne concernée. Alf von Kries travaille dans …

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ACCURAY FRANCE's curator insight, December 5, 5:48 AM

Prendre la mesure de l’aspect psychologique du cancer

 

Alf von Kries, psychologue, nous explique pourquoi il est primordial de prendre vraiment le temps d’accepter le diagnostic

 

Lorsque le diagnostic tombe, la plupart des patients restent en état de choc : leur vie s’écroule et ils sont complètement perdus. Dans un tel contexte, il est primordial d’accompagner la personne concernée. Alf von Kries travaille dans un service de psycho-oncologie et sait comment aider les patients à surmonter cette épreuve difficile.

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Pourquoi mentons-nous à notre médecin ? Une étude répond #esante #hcsmeufr

Selon une étude américaine, 60 à 80% des patients ont déjà menti à leur médecin au sujet de certaines informations de santé, notamment leur alimentation ou traitement médical. Des renseignements pourtant cruciaux pour une bonne prise en charge.

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Renaloo's curator insight, December 5, 5:31 AM

Pourquoi mentons-nous à notre médecin ? Une étude répond

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Don’t google it on... use Sante.fr cc @giomarsi

Gezondheid en Wetenschap is a Flemish online platform with reliable medical information and sources. 75% of the population calls in doctor Google for medical advice.…
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Découvrez Santé.fr sur  YouTube - Le SPIS est le Service Public d'Information en Santé. #hcsmeufr #esante

Le SPIS est le Service Public d'Information en Santé.
PLUS
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«Les aidants, ces non-professionnels qui sont entre 9 et 12 millions en France et sans lesquels plus rien ne marche» - #esante #hcsmeufr

«Les aidants, ces non-professionnels qui sont entre 9 et 12 millions en France et sans lesquels plus rien ne marche» - #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Retour sur le premier débat du Forum Libération «La santé à cœur ouvert».
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Sante.fr , un espace de confiance pour les recherches en santé, en co-construction avec le citoyen #esante #hcsmeufr C'est désormais un lab aussi ! 

Sante.fr , un espace de confiance pour les recherches en santé, en co-construction avec le citoyen #esante #hcsmeufr C'est désormais un lab aussi !  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
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Santé.fr a pour objectif de permettre aux citoyens d’accéder à une information santé claire, fiable, transparente, actionnable et accessible. Il est l’outil du Service Public d’Information en Santé...

Santé.fr a pour objectif de permettre aux citoyens d’accéder à une information santé claire, fiable, transparente, actionnable et accessible. Il est l’outil du Service Public d’Information en Santé... | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Santé.fr a pour objectif de permettre aux citoyens d’accéder à une information santé claire, fiable, transparente, actionnable et accessible. Il est l’outil du Service Public d’Information en Santé.
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Why health care costs are making consumers more afraid of medical bills than an actual illness #esante #hcsmeufr #digitalhealth

Why health care costs are making consumers more afraid of medical bills than an actual illness #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
As health care costs keep rising, more people seem to be skipping physician visits. It's not fear of doctors, however, but more of a phobia about the bills that could follow.
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How Online Medical Info Impacts Patient-Provider Relationships  #esante #hcsmeufr #digitalhealth

How Online Medical Info Impacts Patient-Provider Relationships  #esante #hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Ninety-seven percent of providers said online medical information leads to misinformed patients, impacting the patient-provider relationship.

 

 

November 19, 2018 - The slew of online medical information is impacting patient-provider relationships, according to a new survey from Merck Manuals. 

 

The survey of 240 family physicians found that patients are increasingly accessing online medical information and self-diagnosing using that information.

 

This is resulting in increased patient-provider interactions, respondents said. Eighty-two percent of physicians said they have noticed increased patient phone calls to nurses’ lines as a result of medical information access.

 

Sixty percent of providers said they have noticed more patients coming into the office with medical inquiries informed by online research. Patients are doing online symptom searches, finding a diagnosis, and then seeking out medical help with the information they have gained, the researchers explained.

 

This is not the case for all doctors, however. While most doctors have observed patients seeking out “Dr. Google” at increasing rates, some say online medical research is keeping the patient out of the doctor’s office. Twenty-nine percent of physician respondents said that patients are visiting the clinic less frequently because they are self-diagnosing and do not deem a doctor’s visit necessary.

 

READ MORE: Developing Patient Teach-Back to Improve Patient Education

 

While this may seem like an attractive way for providers to reduce patient volume and cut healthcare costs, industry experts must be wary of the sources patients are seeking. A patient’s own self-diagnosis is only effective if she is consulting reputable sources.

 

And patients aren’t always connecting with that credible research, the survey authors continued. Ninety-seven percent of respondents said their patients are coming into the office with incorrect information.

 

“It’s a double-edged sword for patients and providers,” Robert S. Porter, MD, Editor-in-Chief of The Merck Manuals, said in a statement. “As patients seek answers to their questions online, it’s all too easy to be misled by sources that are not medically correct. That can have a significant impact on how patients approach appointments and what they expect from interactions with their physicians.”

 

For example, nearly 80 percent of respondents said online information has increased the likelihood that patients question their diagnoses or treatments.

“In some ways, it's made appointments more complicated,” said Timothy, a physician respondent from Alaska.

 

“Patients search their symptoms online and see the worst-case scenarios, rather than the most common scenarios, so they come into appointments with more anxiety.”

 

READ MORE: How VR Can Boost Individualized Patient Education, Care Experience

 

Healthcare professionals have little power over what information is published online, nor over whether their patients access that information. Instead, it is essential for providers to drive patient education about what online resources are credible and when the patient should defer to a physician.

 

“We run into problems when patients go to online sources that aren't evidence-based medicine,” said Khyati, a physician respondent from Dixon, Illinois. “But patients aren't going to stop looking up their symptoms on the Internet, so it's up to physicians to direct them to trusted sources.”

 

After all, online medical resources have been a boon for physicians, too. Eighty-three percent of providers said they use online medical websites to help explain medical concepts to patients. Eighty-nine percent said having access to online resources makes them feel more confident when diagnosing and delivering patient education in the exam room.

 

Reviewing the types of online resources providers access themselves may be a good place to start. When a provider uses a website to reinforce patient education, that provider should explain why the website is reputable and could be good for future patient use.

 

Additionally, providers can empower patients with the skills to determine reputable websites themselves. Merck recommends using the STANDS technique with patients:

 

  • Source: Does the resource cite recognized authorities and provide their credentials?

 

  • Transparency: Is it open and obvious whether the site’s mission is educational or commercial?

 

  • Accessibility: Is the site available without registration, and is there a way for users to contact someone with questions or concerns?

 

  • Neutrality: Is the information available purely as a resource, or does the site benefit financially from what its users do (such as buying products or visiting advertised websites)?

 

  • Documentation: Is the site updated when needed by recognized medical experts?

 

  • Security: Can users access content without forfeiting personal information?

READ MORE: Using Bedside Tablet Technology for Patient Education, Experience

 

“Our survey uncovered an interesting dynamic at play. While the ease and availability of online medical information instills confidence in family physicians, they believe ‘Dr. Google’ has the potential to introduce anxiety among patients,” Porter said. “The disconnect here is credibility. When reviewing medical information online, physicians can exercise a high level of discretion based on their training. It's more challenging for patients to identify medically correct sources.”

 

The rise in patients accessing online medical information is likely due to two key trends.

 

First, more websites are hosting this kind of information, making it easier for patients to access medical information and make a self-diagnosis.

 

Second, value-based care models are pushing for more patient engagement. As providers empower patients as the drivers of their own health and wellness, patients are seeking out more medical information.

 

Research indicates that patients largely understand the need for credibility when accessing an informative website. A 2017 study published in the Journal of Medical Internet Researchrevealed that patients mostly consider usability, simplicity, and source authority when looking at online medical information.

 

When content is easy-to-understand and navigable for patients, they are more likely to trust the website. Patients tended not to trust websites that required them to wade through troughs of disorganized information.

 

Additionally, being able to identify the author or presiding organization made websites more trustworthy for patient information seekers. Websites that offered contact information for the author or identified website owners and third-party contributors were perceived as more credible than those that did not.

 

The researchers found obvious advertising on the websites was an undesirable feature and did not instill site credibility. However, little other research was identified about the factors leading to negative patient perceptions of health information websites.

 

Although patients seem to be on the right track discerning credible medical sources themselves, it will still be essential for providers to check in with their patients. Providers should ask whether their patients read online medical resources, which sources they look at, and for which purposes. This will allow providers to vet these sources and direct patients to websites that are more credible.


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Online Cancer Information Is Often Unreliable - The New York Times #esante #hcsmeufr #digitalhealth cc @giomarsi

Online Cancer Information Is Often Unreliable - The New York Times #esante #hcsmeufr #digitalhealth cc @giomarsi | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
The greater the number of views and “likes” a YouTube video on prostate cancer received, the poorer the quality of the information provided tended to be.
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« Implants Files » : les 10 implants qui ont causé le plus d’incidents aux Etats-Unis #hcsmeufr

« Implants Files » : les 10 implants qui ont causé le plus d’incidents aux Etats-Unis #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Infographie. Le Consortium international des journalistes d’investigation (ICIJ) a constitué une base de données des incidents survenus entre 2009 et 2017 aux Etats-Unis : en tête, les pompes à insuline.
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«Souvent, quand on a des maladies complexes, on se retrouve à en savoir plus qu’un médecin»  #esante #hcsmeufr

«Souvent, quand on a des maladies complexes, on se retrouve à en savoir plus qu’un médecin»  #esante #hcsmeufr | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
C’est parfois par la mobilisation des malades que leur prise en charge évolue. Quelle place accorder à la parole des malades? Comment les associer aux réflexions? La santé peut-elle être participative?
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Les Français majoritairement favorables à la communication directe des professionnels de santé vers le grand public - JIM

Les Français majoritairement favorables à la communication directe des professionnels de santé vers le grand public - JIM | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Paris, le vendredi 23 novembre 2018 – Poussé notamment par la jurisprudence européenne, le Conseil d’Etat a préconisé au printemps dernier un assouplissement des règles qui régissent aujourd’hui la publicité et la communication des professionnels de santé. Le Conseil d’Etat considère [...]

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Dossier : les maladies les plus recherchées sur internet en France en 2018 #Esante #Hcsmeufr 

Dossier : les maladies les plus recherchées sur internet en France en 2018 #Esante #Hcsmeufr  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Newpharma s’est penché sur les maladies ayant fait l'objet du plus grand nombre de requêtes sur internet en 2018 en France. Découvrez le dossier complet ici.
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The history of the search engine: from index cards to AI-powered chatbots

The history of the search engine: from index cards to AI-powered chatbots | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
One of the great improvements brought about by the internet is the ability to find answers to anything thanks to the search engine. How did we get there?
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Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
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Should you get health information from Instagram? #Esante #Hcsmeufr #digitalhealth

Should you get health information from Instagram? #Esante #Hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

It has been a few weeks since a patient first complimented me on my Instagram page.

It was, she said, informative.

Informative is probably the last word most people would associate with Instagram, the photo-sharing social media platform known more for pet pictures and food adventures than trustworthy health information. But my page is all about my clinical role as an interventional gastroenterologist focused on endoscopic weight-loss treatments.

I was pleased to hear my patient liked my page, but even more pleased that she did a thorough Google search to verify my credentials before making an appointment to come see me.

 
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Just a few years ago, I was stunned to encounter a patient in a New York City emergency room who was sick because she stopped taking medication for her heart condition on the basis of something she heard from a television talk show.

That was when I realized how much medical "knowledge" some patients get from TV or the internet rather than from their doctor.  Even the terminology used in describing social media hints at how easily we consume the "feeds" of online "influencers," some of whom may wear white coats and medical scrubs. Some offer solid advice. Others do not.

In addition to physicians, numerous nurses, dietitians, dentists, optometrists, chiropractors and naturopathic doctors are vying to become the latest "health influencer" on Instagram and other platforms. Some share their career journeys while others educate on medical topics. Attracting followings in the tens or hundreds of thousands, these influencers have the potential to impact public health and public opinion of health care.

Popularity should not be mistaken for credibility, however. For instance, many of these professionals have earned doctorate degrees, and so they can call themselves "Doctor" – though some may not be medical physicians. Others who don't even have a college degree call themselves doctors.

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Instagram and other social media platforms currently have no built-in verification methods to screen the legitimacy of medical professionals online, so your only defense is further research.

Advertisers have long capitalized on the public trust of those who appear to be medical professionals, using their images to promote a variety of items ranging from weight-loss teas to skincare products. Yet the benefits and long-term effects of such products haven't been vetted by clinical trials. The legitimacy and industry ties of influencers hawking these products are not readily apparent, and disclosures of their relationships are not enforced on social media.

For all these reasons, my colleagues and I helped create the #VerifyHealthcare hashtag campaign to promote transparency among health influencers on social media. We want readers to verify that influencers are worthy of their trust. And we want medical influencers to disclose their own qualifications. Hundreds of health influencers have since supported transparency by participating in the hashtag campaign on Instagram. However, a hashtag movement only serves to highlight one of many concerns regarding the ethical use of social media by health professionals.

Established health professionals are often reluctant to use social media as a communication tool, and some may even be prohibited by their employers from building their online presence. Forward-looking institutions and practitioners should seek not to avoid social media, but to use it appropriately in order to offer valid, valuable health information on the platforms our patients are using every day.

Social media has the potential to spread health knowledge and heighten awareness. But until then, it should be balanced by checking the accuracy and sources of medical information. Go to the sites of medical centers and schools you already know and trust. If you're in doubt about professional credentials, check a website such as certificationmatters.org, which was just launched by the American Board of Medical Specialties.

Before built-in verification tools are developed for social media platforms, we all will have to do some extra homework and use some extra scrutiny, rather than simply trusting "Dr. Instagram." 

Austin Chiang, M.D., M.P.H., is the director of bariatric endoscopy and chief medical social media officer at Jefferson Health in Philadelphia.


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» Médicaments : 8 Français sur 10 ont confiance MyPharma Editions | L'Info Industrie & Politique de Santé

» Médicaments : 8 Français sur 10 ont confiance MyPharma Editions | L'Info Industrie & Politique de Santé | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
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Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
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Online health seekers don't trust social media #Esante #Hcsmeufr #digitalhealth

Online health seekers don't trust social media #Esante #Hcsmeufr #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
  • A new survey profiling how American adults’ access, use and feels about health-related information finds that most American social media users who regularly seek health information are concerned about incorrect or misleading medical information on social media, and few have found health information on social media to be accurate.
  • Two-thirds of American Healthcare Information Seekers (67 percent) report that they see health information on social media. The types of information they see on social media are mostly wellness advice (56 percent) and advertisements for treatments or medications (52 percent).
  • More than eight in 10 Healthcare Information Seekers who have seen health information on social media (83 percent) say they are concerned about incorrect or misleading medical information. 
  • The youngest cohort in our study, Gen Z, is just as likely to be concerned about incorrect or misleading information as the much older Boomer generation (91 percent and 87 percent, respectively).

 

In the research I have lead for clients over the past 3-4 years a lot of people said they read posts on social media, but very few actually trust the information they read when it comes to health.  In an era of “fake news” and “trolling” is this any surprise?

According to Weber Shandwickwhile health information on social media has a credibility problem, Healthcare Information Seekers exposed to it identify several solutions for instilling more confidence: social healthcare information should be cited by a medical professional (43 percent), it should cite a scientific study (38 percent), it should be associated with a trusted brand (37 percent) and it should be cited by a trusted school or research organization (36 percent). The findings show a demand and opportunity for medical information on social media to be verified by respected third-party sources.

When it comes to satisfactory experiences with the information sources that are used, medical professionals far surpass any other source. At the very top of the list that users of health information were ‘very satisfied’ with are physician’s assistants/nurses and eye doctors (tied at 66 percent). However, the Millennial generation is least likely to be very satisfied with the information provided by medical doctors .

In evaluating other attitudes toward physicians, the study suggests that doctors may be contending with a Millennial trust challenge . In addition to their lower satisfaction levels with information from doctors (on a basis relative to other generations), Millennials are the least likely generation to say they always listen to their doctor(s), the most likely to believe that online health-related information is as reliable as that from medical professionals and the most likely to say they trust their peers more than medical professionals.

What’s really happening?

1ne: Social media in ingrained in our lives, but recent troubles at Facebook are causing a lot of people to question what they read.

2wo: Online health seekers will use social media but they will check posts against other content.

3hree: Even patient-to-patient communications can be questioned for accuracy.

A big opportunity

We tested a Twitter post for a client that read “one of the nation’s top authority on diabetes talks about new treatment options” which took people to some content written by a thought leader.  The engagement level was off the charts compared to a test Tweet “read about new treatments for diabetes”.

Pharma has a great opportunity to help people cut through the complicated world of online health information.  The information has to be easy to understand and above all speak to individual users reading the content.  Pharma should leverage thought leaders to write more content to increase engagement levels.

 

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Numérique en santé : et la relation du patient avec son médecin ? | Gènéthique #Esante #Hcsmeufr 

Numérique en santé : et la relation du patient avec son médecin ? | Gènéthique #Esante #Hcsmeufr  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
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Mon Réseau #cancer du sein | La #radiothérapie des parents expliquée aux #enfants #sante #hcsmeufr 

Mon Réseau #cancer du sein | La #radiothérapie des parents expliquée aux #enfants #sante #hcsmeufr  | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Textes du Dr Jessica Selz et Illustrations de Pascale Lafond



Cet album a été créé avec le soutien de l'ICSM Institut de Cancérologie de Seine et Marne



Il nous est recommandé par le Dr Caroline Daveau, membre de notre comité scientifique

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ACCURAY FRANCE's curator insight, November 22, 8:27 AM

Textes du Dr Jessica Selz et Illustrations de Pascale Lafond

Cet album a été créé avec le soutien de l'ICSM Institut de Cancérologie de Seine et Marne

Il nous est recommandé par le Dr Caroline Daveau, membre de notre comité scientifique

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