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IAPO pledges support to WHO to put patients at the centre of future programmes

IAPO pledges support to WHO to put patients at the centre of future programmes | Pharma Matters | Scoop.it

IAPO Press Release on WHO and patient-centred care.

Christopher Ward's insight:

 

 

Press Release

For immediate release

IAPO pledges support to WHO to put patients at the centre of future programmes

Geneva, Switzerland, 24 January 2013 – The International Alliance of Patients’ Organizations (IAPO) today pledged support to the World Health Organization (WHO) to incorporate a patient-centred approach into its Twelfth General Programme of Work (GPW12). This messagewas central to an intervention made by Jo Groves, IAPO CEO, on the GPW12 at the 132nd Session of the WHO Executive Board session in Geneva, Switzerland. The following is taken from IAPO’s statement:

“IAPO is committed to working with WHO towards the attainment by all peoples of the highest possible level of health. IAPO commends WHO on developing a comprehensive programme of work with a stated objective of the attainment by all peoples of the highest possible level of health as a fundamental right. The greatest challenge today and into the near future is managing chronic (non-communicable) diseases and this requires an inclusive cross disease approach. The current focus on only four NCDs and their common risk factors detracts from developing an effective health systems response to the range of chronic diseases affecting patients worldwide. Many categories of disease, including for example, mental, neuromuscular, immunological, and developmental disorders, do not get recognition at the national level, despite the need for specific policies and action plans, because they don’t receive attention at the global level.

IAPO believes that the draft GPW12 would benefit from a greater focus on patient-centred healthcare and patient involvement. IAPO is committed to working with WHO on: 

·         Facilitating engagement between patients’ organizations, civil society organizations and communities with WHO and country authorities to ensure that policies reflect patient and caregiver needs, preferences and capabilities.

·         Developing standards, guidelines and indicators for the implementation of patient-centred healthcare.

·         Collecting models and case studies of best practice on areas including patient involvement.

·         Identifying how to measure and monitor effective participation and engagement for health globally.

The mainstreaming of patient-centred healthcare throughout the GPW12 is critical to successfully addressing the realities - political, economic and social, that underpin global public health. A patient-centred approach encourages the involvement of individual patients who adhere to their treatments, make behavioural changes and self-manage, while ensuring that healthcare systems are designed to meet the holistic needs of patients rather than only focusing on the disease.”

*******

Note to Editors:

About IAPO: IAPO is the only global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare worldwide.  Our members are patients’ organizations working at the local, national, regional and international levels to represent and support patients, their families and carers. IAPO has over 200 members which span over 60 countries and 50 disease areas and through its membership represents an estimated 365 million patients worldwide. 

For further information, please contact:

Mr Jeremiah Mwangi, Policy & External Affairs Director, IAPO

T: +44 20 7250 8278; Email: jeremiah@patientsorganizations.org

Website: www.patientsorganizations.org

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Biosimilars

Biosimilars | Pharma Matters | Scoop.it
A World of Difference: Characteristics of Small Molecule Drugs compared to Biologic Drugs
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As the global pharmaceutical market becomes increasingly dominated by biologics, biosimilar manufacturers will need world class clinical research capacity and emerging markets will need robust pharmaco-vigilance.
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Research into patient feedback websites usage - Health News - NHS Choices

Research into patient feedback websites usage - Health News - NHS Choices | Pharma Matters | Scoop.it
Rating your doctor or hospital online is not just the preserve of the 'chattering classes', new research may suggest. While the research has not yet hit the headlines, it has been circulated on social media and is available to access for free...

Websites that help people leave feedback on their GP practice and other health services, such as NHS Choices, have been available online for several years. These websites aim to help inform people about NHS services so that they have a better choice of doctors and treatments. A new study has looked at who uses these websites, and why.

The researchers suggest that people may be using doctor-rating websites not only as an alternative source of information, but also as a 'complementary' form of information alongside a traditional GP appointment. It found that doctor-rating sites were more likely to be used by people who had a friendly relationship with an attentive GP and by people who thought that their GP did not explain things clearly. ... Read more!


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rob halkes's curator insight, January 15, 2013 8:17 AM

Patients' rating of their health services as experienced, is a main factor in conveying information about quality if health services perceived. In the Netherlands there is for example the "KiesBeter" site, initiated by the health authorities, it is a formal informing site. Of cours with lots adue about it. Of course, med professionals don't see their (scientifc) formal quality refelcted..

Yet it is a first step in getting to grips on how health care quality is to be conveyed. And sure there is a lot of pros and cons, as there are questions about how to format such evaluations to be of meaningful information to both patients and med professionals..

One sure point in conveying the perceived experience is by story telling - informing people to the original story about what one has experienced. Before we go on formating this authentic information into parameters and indices, maybe we should left it as a patient's blog about the proper experience. At least it conveys what has happened in the ey of the beholder..;-)

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National Alliance on Mental Illness Guest Post: Development of New Medications to Treat Serious Mental Illness

National Alliance on Mental Illness Guest Post: Development of New Medications to Treat Serious Mental Illness | Pharma Matters | Scoop.it

"The past 20 years have witnessed enormous progress in development of medications to treat  serious mental illnesses such as schizophrenia, bipolar disorder, major depression, borderline personality disorder and severe anxiety disorder.  These medications – including atypical antipsychotics, SSRIs, SNRIs – have broad efficacy, proven benefits and are associated with improved delivery technologies.  What’s more, we now have a better understanding of how to use these medications along with non-medication treatments to improve overall health outcomes.  Likewise, better imaging studies are facilitating developments of new treatments."

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The "Problem" with Evidence Based Medicine

An amusing take on a serious issue.

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Very amusing take on a serious issue

 

Abstract

 

Objectives To determine whether parachutes are effective in preventing major trauma related to gravitational challenge.

Design Systematic review of randomised controlled trials.

Data sources: Medline, Web of Science, Embase, and the Cochrane Library databases; appropriate internet sites and citation lists.

Study selection: Studies showing the effects of using a parachute during free fall.

Main outcome measure Death or major trauma, defined as an injury severity score > 15.

Results We were unable to identify any randomised controlled trials of parachute intervention.

Conclusions As with many interventions intended to prevent ill health, the effectiveness of parachutes has not been subjected to rigorous evaluation by using randomised controlled trials. Advocates of evidence based medicine have criticised the adoption of interventions evaluated by using only observational data. We think that everyone might benefit if the most radical protagonists of evidence based medicine organised and participated in a double blind, randomised, placebo controlled, crossover trial of the parachute

 

BMJ 2003;327:1459

 

http://www.bmj.com/content/327/7429/1459

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The Internet and Health | Pew Research Center's Internet & American Life Project

The Internet and Health | Pew Research Center's Internet & American Life Project | Pharma Matters | Scoop.it
The internet can be used as a diagnostic tool, for peer-to-peer healthcare, and for self-tracking. We look at the statistics behind these activities.
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Google now includes medications directly in search results, including brand names and side effects

Google now includes medications directly in search results, including brand names and side effects | Pharma Matters | Scoop.it

Google on Friday announced a useful update to its search product: the addition of medications. If you search for a drug, the company will now display information about it on the right-hand side, including key facts such as drug class, related medications, brand names, side effects, pregnancy risk, what the drug may treat, and so on.

 

Google will also include a list of other drugs that users who searched for this drug ended up searching for. While the feature isn’t yet available for me, the company included the following screenshot as an example of a search result for Naproxen.


Via Alex Butler
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California researchers create apps for health studies

California researchers create apps for health studies | Pharma Matters | Scoop.it
Does oversleeping make you depressed? Do certain types of patients do better on new medication?  Which streets worsen asthma symptoms? ...

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