NeuroRehabilitation and outcome measurement
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NeuroRehabilitation and outcome measurement
this is a place for me to share my collection of comments, things found on the web and announcements about my research and clinical work. There are comment buttons for friends and colleagues to interact. Or else discuss over on twitter!
Curated by Andrew Bateman
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miss-pyram.png (1507x1224 pixels) | NeuroRehabilitation and outcome measurement | Scoop.it
Andrew Bateman's insight:
Demonstrating value of rehabilitation: does it matter to anyone? the NHS Outcomes framework is a start
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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting | Nephrology Dialysis Transplantation | Oxford Academic

How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting | Nephrology Dialysis Transplantation | Oxford Academic | NeuroRehabilitation and outcome measurement | Scoop.it
Abstract. Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences a
Andrew Bateman's insight:
always good to see how our colleagues in other corners of medicine are grappling with this issue... here's  a great paper from Team Renal
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Derick Wade on Twitter: "How would you measure quality of a rehabilitation services? I suggest 10 observable characteristics. Any comments.… "

Andrew Bateman's insight:

Prof Derick Wade tweeted this mind map this evening, that is a timely tweet as I prepare for a lecture to celebrate 100 years of rehab at Vikersund Kurbad on Wednesday.

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Development and Exploratory Analysis of the Neurorehabilitation Program Styles Survey

To develop a survey instrument that assesses implementation of key components of outpatient neurorehabilitation programs and test the capacity of this instrument to differentiate between rehabilitation approaches.
The Neurorehabilitation Program Styles Survey (NPSS) was administered to 1
Andrew Bateman's insight:

This instrument provides a helpful perspective on features of a holistic rehabilitation programme

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Andrew Bateman on Twitter: "Revisiting the neurofunctional approach: Conceptualizing the core components for the rehabilitation of everyday living skills https://t.co/hlLOxdhxOy"

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How to Improve

How to Improve | NeuroRehabilitation and outcome measurement | Scoop.it
Learn about the fundamentals of the Model for Improvement and testing changes on a small scale using Plan-Do-Study-Act (PDSA) cycles.
Andrew Bateman's insight:
The improvement model includes  a set of questions that are really powerful
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BrainNav - Welcome to the National Brain Injury Service Directory

BrainNav is a brain injury service directory created to assist people with brain injury to find the right service at the right time
Andrew Bateman's insight:
unfortunately this mapping website is not as up to date as I'd like - but the concept behind this website is very good, particularly the figure that was an extension of the map first produced by Pickard. I am hoping that work with the charity @UKABIF will get a more sustainable map operating nationally.
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Disabled Living Foundation

another key organisation in the UK
Andrew Bateman's insight:
On Monday and Tuesday 5th and 6th March 2018 I am delighted to be welcoming a group clinicians from Japan. I will use this page for the next two days to support sharing of resources relevant to this visit. Explaining neuropsychological rehabilitation in the context of UK health care provision and sharing ideas is going to make for a very interesting time. Here's a link to one of the key sources of support in the UK, packed with great information.
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Right First Time | Headway

Right First Time | Headway | NeuroRehabilitation and outcome measurement | Scoop.it
The Right First Time campaign is calling on the government to bring in changes to the welfare benefit assessments which currently fail a large number of brain injury survivors and their families.
Andrew Bateman's insight:
here is a link to a really important campaign at the heart of the experience of living with brain injury in the UK
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Exercise Test Performance Reveals Evidence of the Cardiorespiratory Fitness Hypothesis. - PubMed - NCBI

Exercise Test Performance Reveals Evidence of the Cardiorespiratory Fitness Hypothesis. - PubMed - NCBI | NeuroRehabilitation and outcome measurement | Scoop.it
J Aging Phys Act. 2017 Apr;25(2):240-246. doi: 10.1123/japa.2015-0321. Epub 2016 Oct 5.
Andrew Bateman's insight:
Yesterday I posted on twitter a question to "physios" about links to executive function and this interesting article was sent back as an answer.  at the time of writing I was thinking (but didn't say this) about the practicalities of taking part in exercise and how this requires planning, organising, monitoring, drive and emotional engagement, perhaps my valuing of the long term outcome of regular exercise and balancing my goals (at least on my part any chance of getting to a gym during the working week).  This link is about article that suggests a more direct link
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Dysexecutive symptoms and carer strain following acquired brain injury: Changes measured before and after holistic neuropsychological rehabilitation - IOS Press

Dysexecutive symptoms and carer strain following acquired brain injury: Changes measured before and after holistic neuropsychological rehabilitation - IOS Press | NeuroRehabilitation and outcome measurement | Scoop.it
BACKGROUND: Following acquired brain injury (ABI), deficits in executive functioning (EF) are common. As a result many brain-injured patients encounter problems in every-day functioning, and their families experience significant strain. Previous rese
Andrew Bateman's insight:
Some of the work from OZC where we have used the DEX data to investigate our client's responses to rehab
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Exploring data collected using European Brain Injury Questionnare (EBIQ) in a patient population in Japan

This British Society of Rehab Medicine prize-winning poster was presented by Shigeharu Aoki. He made a translation of the European Brain Injury Questionnaire…
Andrew Bateman's insight:
Aoki won the BSRM2017 poster prize with this!
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Interdisciplinary team assessment in holistic neuropsychological rehabilitation formulation

This poster has just been presented by Dr Jill Winegardner and Dr Jess Fish at the #nrsigwfnr2017 Neuropsychological Rehabilitation Special Interest Group of W…
Andrew Bateman's insight:
A new poster prepared by our Clinical Psychologists at OZC, making an important point that  a good assessment is itself an intervention
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NHS Outcomes Framework Indicators - November 2018 Release

NHS Outcomes Framework Indicators - November 2018 Release | NeuroRehabilitation and outcome measurement | Scoop.it
We’re the national information and technology partner to the health and social care system using digital technology to transform the NHS and social care
Andrew Bateman's insight:
what I find interesting about this is that sense of perhaps distance there is between the prioritiesthat this work represents and the individual patients we see. That only EQ5D index values are available also  doesn't give space to notice where work could be done to improve things. 
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Selection and visualisation of outcome measures for complex post-acute acquired brain injury rehabilitation interventions

Selection and visualisation of outcome measures for complex post-acute acquired brain injury rehabilitation interventions | NeuroRehabilitation and outcome measurement | Scoop.it
Outcome measurement challenges rehabilitation services to select tools that promote stakeholder engagement in measuring complex interventions.To examine the suitability of outcome measures for complex post-acute acquired brain injury (ABI) rehabilitatio
Andrew Bateman's insight:

Variations on the theme of FIM FAM splats might be patient directed outcome stars or preset to meet the needs of various stakeholders, and can be psychometrically geared so that mild-moderate-severe problems can be represented.  This paper distills an number of key ideas we've been pondering over the years!

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Commissioning Guidance for Rehabilitation -

a well presented document that provides some useful principles of rehabilitation

Andrew Bateman's insight:

principles of rehabilitation resources (1)

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Handbook of Holistic Neuropsychological Rehabilitation: Outpatient ... - Yehuda Ben-Yishay, Leonard Diller

Handbook of Holistic Neuropsychological Rehabilitation: Outpatient ... - Yehuda Ben-Yishay, Leonard Diller | NeuroRehabilitation and outcome measurement | Scoop.it
This clinical guide is the culmination of over three decades of experience in neuropsychological rehabilitation of individuals with traumatic brain injuries. Developed by the experts at the world-renowned Brain Injury Day Treatment Program at New York University Medical Center's Rusk Institute, this text emphasizes the interdependence of cognitive, emotional, and behavioral functions in the human brain. The book articulates the holistic rationale of rehabilitation in a therapeutic community setting, pioneered by Kurt Goldstein. The text is accompanied by five DVDs of edited video clips that illustrate the key organizational, programmatic, and therapeutic clinical procedures that have proven so effective in optimizing the functional competence of brain-injured persons. Written in a conversational and instructional tone, the book will be of interest to senior administrators and professionals at neurorehabilitation centers, as well as psychologists and neuropsychologists in private practice or working in hospital-based program settings.
Andrew Bateman's insight:

This week (June 2018) I head to Vikersund, Norway to speak at a conference that is taking place to celebrate a 100 years of rehabilitation work at their Kurbad. I am starting my presentation with a brief mention of a historical perspective. The introductory chapter to this book provides a very helpful summary of the contributions of Kurt Goldstein.

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Neurofunctional Approach

Neurofunctional Approach Marcella Matteo, Reina Salazar, Ashley Feigenbutz
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Tutorials

Tutorials | NeuroRehabilitation and outcome measurement | Scoop.it
Andrew Bateman's insight:
i find myself turning to this resource very often as it is well written.
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Model systems 'cartoon' about emotion after brain injury

Andrew Bateman's insight:
what a super way of providing psychoeducation resources!
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Blue Badge - can I get one? - GOV.UK

Blue Badge - can I get one? - GOV.UK | NeuroRehabilitation and outcome measurement | Scoop.it
A guide for people living in England as whether or not they qualify for a Blue Badge.
Andrew Bateman's insight:
a blue badge is often an important help in the case of physical disability and mobility problems
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decision making fact sheet

an aging information sheet, due for revision!
Andrew Bateman's insight:
carrying on the theme of executive functions posts from Monday, as if by magic Headway tweeted a link to this fact sheet -  I had forgotten that we had written this some years ago! Some of the details are out of date, but much of it still stands. How about we turn to twitter and readers here for a gathering of suggested edits to this old "factsheet". what would you like to see on this page of advice?  Current  facts: Neuropage is still available, we can now send messages to modern mobile phones, but we do still use old-fashioned radio pagers for some service users (nb only one button needed to retrieve the message/stop the thing vibrating/buzzing!). but the neuropage website died a whileback. awaiting resurrection!... our new workbook has a useful chapter on the theme. ...looking forward to hearing what you think!
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Article about the creation of DEX-R

Using Rasch Analysis techniques we developed an extended and revised Dysexecutive Questionnaire
Andrew Bateman's insight:
I'd really like to do more translation work with this questionnaire, we currently have copies in Greek, Brazillian Portuguese, 
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The Brain Injury Rehabilitation Workbook

The Brain Injury Rehabilitation Workbook | NeuroRehabilitation and outcome measurement | Scoop.it
Packed with practical tools and examples, this state-of-the-art workbook provides a holistic framework for supporting clients with acquired brain injury. Clinicians are guided to set and meet collaborative treatment goals based on a shared understanding of the strengths and needs of clients and their family members. Effective strategies are described for building skills and teaching compensatory strategies in such areas as attention, memory, executive functions, mood, and communication. Particular attention is given to facilitating the challenging process of identity change following a life-altering injury. In a large-size format for easy photocopying, the volume features 94 reproducible client handouts. Purchasers get access to a Web page where they can download and print the reproducible materials.
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Rehabilitering etter hjerneslag

new rehabilitation guidelines in Norwegian
Andrew Bateman's insight:
A key outcome of #ahus2018 needs to be an action plan to work out if there are problems implementing the new guidelines
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