Myositis My Daily Pain Journey
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Chris,..

Chris,.. | Myositis My Daily Pain Journey | Scoop.it
I'm 50+ very amateur Photographer Having a Canon 1100D a Bridge Camera and a few point and shoots Early 2011 became a carer on top of my own health issues this restricts my chance of doing...
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My Fix from the Daily Myositis pain,when i can do it. Grrrr

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2. Myositis on my Journey for Pain relief

Myositis on my Journey for Pain relief

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Well what a morning Pregabalin, Amitriptyline, morphine, onboard last night, Pregabalin, morphine, prednisone, onboard this morning and i’ve never been in a much pain,nothing is controlling it.the only thing that helps the pain is stitting still like a statue,i cant believe myositis can be this painful ? yes the Emg Result suggested myositis, i just hope there going down the right track and its nothing more serious, i dont feel ill just in so much pain, no weight loss etc had lots of bloods and tests etc all clear,

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My Journey with Myositis - Polymyowhat.com

My Journey with Myositis - Polymyowhat.com | Myositis My Daily Pain Journey | Scoop.it
Fay Stancliff tells her battle of living with Myositis, how her husband took great care of her and how she overcame with God's help and His plan.
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a Great Read

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2,

Pain with myositis

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here we go pains kicked in, a few hours yet until its morphine time

cant wait until i get the muscle biopsy to get focused medication.

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Myositis - Polymyositis and Dermatomyositis | Doctor | Patient.co.uk

Myositis - Polymyositis and Dermatomyositis | Doctor | Patient.co.uk | Myositis My Daily Pain Journey | Scoop.it
Polymyositis and dermatomyositis are connective tissue diseases characterised by inflammation of muscles. Although dermatomyositis affects the skin and...
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Daily Pain Myositis, Arthritis

Myositis

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got a diagnosis at last after 12 months of pain Sweating Muscles twitching, Hair loss, Red legs, chronic fatigue, etc the journey begins

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Dermatomyositis (DM)

Dermatomyositis (DM)

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Dermatomyositis (DM) Neuro consultant pretty sure i have
Dermatomyositis (DM) just got to have a muscle biopsy now. fed up off the pain pain pain pain

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3. Myositis on my Journey for Pain relief

Myositis on my Journey for Pain relief
Francis's insight:

had a bad Sunday Chronic pain, Another day of using the walking sticks, sent a E-Mail to hospital chasing info up when will they do something for the pain, GP Said no more morphine, he cant up it no more feel awful bad chest cant breath, on antibiotics and prednisone steroids again, 4-5 hrs sleep so tired fatigued, legs painful just to the touch, another day of sat and doing nothing.

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1. Myositis Journey for pain relief

1. Myositis Journey for pain relief
Francis's insight:

Seen GP Yesterday no more morphine he cant up it now, GP phoned Neuro specialist Secretary for an Emergency appointment a waste of 20 mins got nowhere, the CHRONIC PAIN Continues its been 8 months of this now Chronic pain that gradually built up knee pain, red legs, sweating, muscle twitching, EMG results Suggest Myositis, (such a painful thing for me) been prescribed prednisone 40mg daily for a week. when will i every get the correct treatment for my condition morphine MST Continuos 60mg not helping any at all. i really bad night no sleep awful leg.knee.pain, been out for any hour with the camera, i’ll pay for it later with the pain. its my only thing to take my mind off the pain.

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Understanding Myositis - How I deal with my hidden pain, every day

How I deal with my hidden pain, every... (How I deal with my hidden pain, every day - Let me first say that this is not meant to be a complaint. I do...
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1.

Myositis

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Whats Myositis ?

no idea what Myositis was until a few weeks ago

i know now its trashed my body for 12 months

had doctors baffled. until i had a EMG Nerve test

 

Whats to come ? thats the question

on Morphine for the pain, its not hepled yey

 

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Living well with Inflammatory Myopathies

Floranne C. Ernste, M.D., of the Division of Rheumatology, discusses three types of inflammatory myopathies: Dermatomyositis, polymyositis and inclusion body...
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just been told i've got myositis, waiting for a muscle biopsy to see which type i have

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