Dysautonomia & Chronic Illness
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A Dance to Remember for a Rising Star

A Dance to Remember for a Rising Star | Dysautonomia & Chronic Illness | Scoop.it
The stands were filled Saturday night as the crowd came to remember a talented teammate.
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POTS and Dysautonomia: Sleeping with the enemy - York Cardiology - DocCheck TV

POTS and Dysautonomia: Sleeping with the enemy - York Cardiology - DocCheck TV | Dysautonomia & Chronic Illness | Scoop.it
In this video, Dr Sanjay Gupta shares some unique insight into the mechanism by which POTS patients develop extreme fatigue.
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My Postural Orthostatic Tachycardia Syndrome Completely Changed the Way I Date

My Postural Orthostatic Tachycardia Syndrome Completely Changed the Way I Date | Dysautonomia & Chronic Illness | Scoop.it
Having a chronic illness while dating was hard, but it made me raise my standards—and eventually helped me find love too.
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What You Should Know about Disability | Kate the (Almost) Great

What You Should Know about Disability | Kate the (Almost) Great | Dysautonomia & Chronic Illness | Scoop.it
I like to think that the big reason why so many people say rude things about disability and disable
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Chronic illness is more like a journey with no destination. We just continue to work at it every day.

Chronic illness is more like a journey with no destination. We just continue to work at it every day. | Dysautonomia & Chronic Illness | Scoop.it
Chronic illness is more like a journey with no destination. We just continue to work at it every day. by celina.neo on Indulgy.com
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Shelby's Miracle: from wheelchair to batter's box

Shelby's Miracle: from wheelchair to batter's box | Dysautonomia & Chronic Illness | Scoop.it
Shelby thought she would be in a wheelchair for the rest of her life, until something amazing happened on a trip overseas.  
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New report describes use of Fitbit to manage dysautonomia

New report describes use of Fitbit to manage dysautonomia | Dysautonomia & Chronic Illness | Scoop.it
Clinicians describe how data from a Fitbit, brought to the clinic by their patient, helped manage a difficult medical problem.
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Woman taken off Delta flight for medical condition says she was discriminated against

Woman taken off Delta flight for medical condition says she was discriminated against | Dysautonomia & Chronic Illness | Scoop.it
A Michigan woman who was planning to fly from Detroit Metro Airport to Seattle last week to spread her boyfriend's father's ashes says sh
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Woman's mysterious disorder confounded doctors for years

Woman's mysterious disorder confounded doctors for years | Dysautonomia & Chronic Illness | Scoop.it
Doctors thought she needed psychiatric help. But her fainting spells, weight loss and digestive problems were real, and her disorder had a name.
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Exeter man writes book about experiences battling POTS

Exeter man writes book about experiences battling POTS | Dysautonomia & Chronic Illness | Scoop.it
Derek Evans was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), a dysautonimia disorder, at the age of 17. The Exeter Township native has since written about his experiences in a recently released book, “So Close To Death yet S
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Derek Evans wants others to know about his condition | Reading Eagle - LIFE

Derek Evans wants others to know about his condition | Reading Eagle - LIFE | Dysautonomia & Chronic Illness | Scoop.it
Exeter Township man has Postural Orthostatic Tachycardia Syndrome.
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FDA Warns of Unapproved Treatment for Autonomic Dysfunction

FDA Warns of Unapproved Treatment for Autonomic Dysfunction | Dysautonomia & Chronic Illness | Scoop.it
It has been claimed that the procedure treats the signs and symptoms of autonomic dysfunction in various neurological disorders. However, the FDA has not evaluated any data that supports the safety and efficacy of balloon angioplasty devices for this use.
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Health-related quality of life and suicide risk in postural tachycardia syndrome

Health-related quality of life and suicide risk in postural tachycardia syndrome | Dysautonomia & Chronic Illness | Scoop.it
PurposePostural tachycardia syndrome (POTS) is a disorder featured by orthostatic intolerance. The purpose of this study was to investigate the severity of quality of life issues in POTS patients. MethodsOnline surveys for health related quality of life, sleep quality, fatigue, pain, and suicidal ideation were completed by 624 POTS patients and 139 controls. ResultsPeople with POTS have significantly more days of poor physical health (p < 0.001), fewer days with good energy (p < 0.001), and significantly more days with activity limitations (p < 0.001) than controls. Pain severity was significantly higher for those with POTS (p < 0.001) while feelings of control over life was lower than controls (p < 0.001). Sleep quality and daytime fatigue were also significantly worse for those with POTS than controls (p < 0.001). Finally, those with POTS have a significantly higher risk of suicide compared with controls (p < 0.001). InterpretationThe myriad of symptoms from which many POTS patients suffer is associated with a decreased quality of life. Nearly half of our sample with POTS was at high risk for suicide. More work needs to be done to determine the underlying issues surrounding suicide in POTS so that an appropriate treatment regimen can be developed.
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A concussion changed speedskater Brittany Bowe's path, but it didn't dim her Olympic hopes

A concussion changed speedskater Brittany Bowe's path, but it didn't dim her Olympic hopes | Dysautonomia & Chronic Illness | Scoop.it
Speedskater Brittany Bowe will compete in this weekend's World Cup long track event at the Utah Olympic Oval. Races begin at 12:30 Friday and continue through Sunday afternoon with most of the World's top skaters competing.
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Don't Write Off These Symptoms As "Just Anxiety"

Don't Write Off These Symptoms As "Just Anxiety" | Dysautonomia & Chronic Illness | Scoop.it
Here's what you need to know about dysautonomia, according to researchers and young women living with it.
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Her illnesses kept her bed-ridden for years. Now it’s her mission to raise awareness.

Her illnesses kept her bed-ridden for years. Now it’s her mission to raise awareness. | Dysautonomia & Chronic Illness | Scoop.it
Emily Steffensmeier of State College is raising awareness for chronic fatigue syndrome and Dysautonomia.
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Dallas skyline shines turquoise for millions living with Dysautonomia

Dallas skyline shines turquoise for millions living with Dysautonomia | Dysautonomia & Chronic Illness | Scoop.it
(DALLAS, TX — October 5, 2017) The Bank of America Building, a landmark in the Dallas skyline, will light up turquoise on Saturday, Oct. 28 in support of Dysautonomia Awareness Month. Dysautonomia …
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10 Things I Want Teachers to Know About Their Spoonie Students

10 Things I Want Teachers to Know About Their Spoonie Students | Dysautonomia & Chronic Illness | Scoop.it
Grace Hilscher explains what she wants teachers to know about their students with chronic illness.
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Papillion woman spent a week in a wheelchair but worked her way up to weightlifting

Papillion woman spent a week in a wheelchair but worked her way up to weightlifting | Dysautonomia & Chronic Illness | Scoop.it
“I kind of had to start over again,” Gwen Leyden said. “I just kept going, because I knew where I’d be if I stopped.”
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Assistance Dog Helps 11-Year-Old Who Can't Stand on Her Own Accomplish Her Dreams

Assistance Dog Helps 11-Year-Old Who Can't Stand on Her Own Accomplish Her Dreams | Dysautonomia & Chronic Illness | Scoop.it
Perkins the assistance dog helps LanDan Olivia brush her hair, turn book pages and more
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Pushing through: Student succeeds despite life-changing diagnosis

Pushing through: Student succeeds despite life-changing diagnosis | Dysautonomia & Chronic Illness | Scoop.it
Alexandra Hayden went from always being on-the-go to not being able to get up for three months, and her family was traveling the country trying to find a diagnosis. Before that, Hayden was an involved, straight-A student. One day, she wasn’t able to get out of bed without her parents picking her up. When she
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Uplifting story about a young woman with POTS
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Kristen’s battle

Kristen’s battle | Dysautonomia & Chronic Illness | Scoop.it
ROGERS — In the corner of a brightly lit kitchen, pill bottles cast a shadow onto the countertop, much like the shadow that mirrors Kristen Stalder’s illness.
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Genetic clue to Wiggle’s chronic fainting

Genetic clue to Wiggle’s chronic fainting | Dysautonomia & Chronic Illness | Scoop.it
MELBOURNE scientists have uncovered the genetic trigger of a debilitating condition that makes it hard for sufferers to stand upright without fainting.
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Roberts: Sarah wants her life back (UnitedHealthcare refuses to give it to her)

Sarah is 23 and sick. Her insurance refuses to cover the treatment her doctor says she needs to get better.
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Ericka Robinson diagnosed with POTS

Ericka Robinson diagnosed with POTS | Dysautonomia & Chronic Illness | Scoop.it
Postural Orthostatic Tachycardia Syndrome, or POTS, is a relatively new diagnosis affecting many young women and doctors say it's an epidemic.
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