Co-creation in health
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Thousands of scientists publish a paper every five days - Nature

Thousands of scientists publish a paper every five days - Nature | Co-creation in health |
Authorship is the coin of scholarship — and some researchers are minting a lot. We searched Scopus for authors who had published more than 72 papers (the equivalent of one paper every 5 days) in any one calendar year between 2000 and 2016, a figure that many would consider implausibly prolific1. We found more than 9,000 individuals, and made every effort to count only ‘full papers’ — articles, conference papers, substantive comments and reviews — not editorials, letters to the editor and the like. We hoped that this could be a useful exercise in understanding what scientific authorship means.


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Il lavoro più bello: Ferrero cerca assaggiatori di Nutella/ Nessuna operazione di marketing...

Il lavoro più bello: Ferrero cerca assaggiatori di Nutella/ Nessuna operazione di marketing... | Co-creation in health |
Nutella, si cercano 90 assaggiatori. Ferrero offre il lavoro più bello del mondo per 2 giorni a settimana. Nessuna operazione di marketing.
Il lavoro più bello: Ferrero cerca assaggiatori di Nutella/ Nessuna operazione di marketing...

Nutella, si cercano 90 assaggiatori. Ferrero offre il lavoro più bello del mondo nella sede di Alba per due giorni a settimana e l'azienda assicura che non è un'operazione di marketing.27 LUGLIO 2018 - AGG. 27 LUGLIO 2018, 9.10 DAVIDE GIANCRISTOFARO ALBERTI

Nutella Ferrero cerca 90 assaggiatori - Pixabay

Sembra un sogno, ma è tutto vero: gli amanti della crema alla nocciola più famosa al mondo potrebbero realizzare il loro desiderio trasformando una passione in lavoro. La Ferrero, infatti, sta cercando assaggiatori per il suo prodotto più importante, la Nutella. Finora, tale compito era affidato al personale interno. L’azienda, però, ha deciso di allargare il giro assumendo delle persone esterne a cui verrà offerto un corso di formazione prima dell’inizio del lavoro durante il quale i futuri assaggiatori saranno educati al senso dell'olfatto e del gusto e a migliorare la capacità di esprimere a parole c’è che si percepisce con il palato. C’è chi vede dietro tale ricerca un’operazione di marketing, ma l’azienda assicura che la volontà è quella di garantire la qualità del prodotto e delle materie prime affidandosi al palato di quelli che sono i consumatori abituali della Nutella. Un lavoro golosissimo, dunque, che non vi ruberà molto tempo se non due giorni a settimana e che, quasi sicuramente, potrebbe rendervi le persone più felici di svolgere il proprio lavoro (aggiornamento di Stella Dibenedetto).

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The New York Times: “Sometimes Patients Simply Need Other Patients”

The New York Times: “Sometimes Patients Simply Need Other Patients” | Co-creation in health |

In an ideal world, when we are faced with a new health problem, a clinician is available to sit down and address all our questions and anxieties about the condition and its treatment. This ideal is rarely met in the United States health system. More typically, we’re rushed through doctor visits that fly by too quickly for us to gather our thoughts.

Other patients can help. They have (or have had) your condition, as well as your anxieties and questions, and they’ve found a path through. Their journeys can be informative and helpful, and can also help you prepare for the next session with a doctor.


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How to Stop Eating Sugar - Smarter living Guides - The New York Times

How to Stop Eating Sugar - Smarter living Guides - The New York Times | Co-creation in health |
This guide will walk you through how you can make smart food choices to reduce sugar consumption, and how you can keep your life sweet, even without so many sweets.
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Trials and tribulations: cross-learning from the practices of epidemiologists and economists in the evaluation of public health interventions

Trials and tribulations: cross-learning from the practices of epidemiologists and economists in the evaluation of public health interventions | Co-creation in health |
The randomized controlled trial is commonly used by both epidemiologists and economists to test the effectiveness of public health interventions. Yet we have noticed differences in practice between the two disciplines. In this article, we propose that there are some underlying differences between the disciplines in the way trials are used, how they are conducted and how results from trials are reported and disseminated. We hypothesize that evidence-based public health could be strengthened by understanding these differences, harvesting best-practice across the disciplines and breaking down communication barriers between economists and epidemiologists who conduct trials of public health interventions.
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“Medutainment” — are doctors using patients to gain social media celebrity?

“Medutainment” — are doctors using patients to gain social media celebrity? | Co-creation in health |

Four years ago, Toronto plastic surgeon Dr. Jamil Ahmad joined the social media platform Instagram to share pictures of a trip to the Middle East. More than 10 000 followers later, the account has become a powerful professional tool. He regularly posts before-and-after photos of patients, alongside family snapshots and gym selfies.


Ahmad said patients are “dramatically more informed” about surgery because of accounts like his. Many plastic surgeons and dermatologists have amassed large social media followings in recent years. South of the border, cosmetic dermatologist Dr. Simon Ourian has more than two million followers on Instagram, rivaling some of his celebrity clients, while plastic surgeon Dr. Sheila Nazarian has experimented with live-streaming procedures.

But as more doctors are showcasing their work on social media, others are questioning the ethics of posting about patients in such a public and informal space. At minimum, the rules for publishing patients’ information in journals, textbooks and educational presentations should also apply to social media, said Dr. Alireza Jalali, head of anatomy at the University of Ottawa’s Department of Innovation in Medical Education. “There are clear guidelines that people need to follow, and that’s, unfortunately, sometimes not done very well.”

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Festival della Scienza Medica - Bologna Medicina 2018

Festival della Scienza Medica - Bologna Medicina 2018 | Co-creation in health |
Torna l’appuntamento con la cultura medico-scientifica: l’occasione per incontrare Premi Nobel, scoprire da vicino i progressi della medicina e confrontarsi con i temi di attualità. A Bologna dal 3 al 6 maggio la quarta edizione del Festival della Scienza Medica
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Referral Criteria for Outpatient Palliative Cancer Care: A Systematic Review

Referral Criteria for Outpatient Palliative Cancer Care: A Systematic Review | Co-creation in health |



Outpatient palliative care clinics facilitate early referral and are associated with improved outcomes in cancer patients. However, appropriate candidates for outpatient palliative care referral and optimal timing remain unclear. We conducted a systematic review of the literature to identify criteria that are considered when an outpatient palliative cancer care referral is initiated.


We searched Ovid MEDLINE (1948–2013 citations) and Ovid Embase (1947–2015 citations) for articles related to outpatient palliative cancer care. Two researchers independently reviewed each citation for inclusion and extracted the referral criteria. The interrater agreement was high (κ = 0.96).


Of the 186 publications in our initial search, 21 were included in the final sample. We identified 20 unique referral criteria. Among these, 6 were recurrent themes, which included physical symptoms (n = 13 [62%]), cancer trajectory (n = 13 [62%]), prognosis (n = 7 [33%]), performance status (n = 7 [33%]), psychosocial distress (n = 6 [29%]), and end-of-life care planning (n = 5 [24%]). We found significant variations among the articles regarding the definition of advanced cancer and the assessment tools for symptom/distress screening. The Edmonton Symptom Assessment Scale (n = 7 [33%]) and the distress thermometer (n = 2 [10%]) were used most often. Furthermore, there was a lack of consensus in the cutoffs in symptom assessment tools and timing for outpatient palliative care referral.


This systematic review identified 20 criteria including 6 recurrent themes for outpatient cancer palliative care referral. It highlights the significant heterogeneity regarding the timing and process for referral and the need for further research to develop standardized referral criteria.

Implications for Practice:

Outpatient palliative care clinics improve patient outcomes; however, it remains unclear who is appropriate for referral and what is the optimal timing. A better understanding of the referral criteria would help (a) referring clinicians to identify appropriate patients for palliative care interventions, (b) administrators to assess their programs with set benchmarks for quality improvement, (c) researchers to standardize inclusion criteria, and (d) policymakers to develop clinical care pathways and allocate appropriate resources. This systematic review identified 20 criteria including 6 recurrent themes for outpatient palliative cancer care referral. It represents the first step toward developing standardized referral criteria.


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Consumer Health and Patient Engagement – Are We There Yet?

Consumer Health and Patient Engagement – Are We There Yet? | Co-creation in health |

Along with artificial intelligence, patient engagement feels like the new black in health care right now. Perhaps that’s because we’re just two weeks out from the annual HIMSS Conference which will convene thousands of health IT wonks, users and developers (I am the former), but I’ve received several reports this week speaking to health engagement and technology that are worth some trend-weaving.

As my colleague-friends Gregg Masters of Health Innovation Media (@2healthguru) and John Moore of Chilmark Research (@john_chilmark)  challenged me on Twitter earlier this week: are we scaling sustained, real patient engagement and empowerment yet?

Let’s dive into the reports’ findings to divine an answer for Gregg and John.

Change Healthcare published the company’s 8th Annual Industry Pulse Report, which examines key challenges facing payors and other stakeholders this year. The report analyzes results of a survey of over 2,000 Change Healthcare customers (from academia, government, technology vendors, hospitals, providers, and health plans), conducted in October-November 2017.

Several findings address patient and health engagement in this study, including:

  • The failure of high-deductibles’ “skin-in-the-game” theory to turn  patients into active health consumers
  • The growth of health plans and providers integrating social determinants of health into health strategies and tactics for improving peoples’ health outcomes and engagement
  • The migration of incentives from negative “sticks” to positive “carrots” along with more value-based benefit design in motivating consumer health behavior.

One of my favorite series of papers that inform my advisory work comes from PwC on the New Health Economy, this week publishing its report on Customer experience in the New Health Economy – the data cure. A highlight of their survey found that one-half of provider executives sees customer (patient, clinician) experience as a top strategic priority over the next 5 years, and most payer execs are investing in technology to improve member experience. Remember that health insurers rank very low on consumer experience compared with retailers and grocers.

PwC offers five pillars for healthcare stakeholders to build on to improve experience, including:

  • Convenience
  • Quality
  • Support
  • Personalization, and
  • Communication.

Finally, CarePayment studied the skin-in-the-game motivation for engagement, finding that 61% of patients don’t have money saved for healthcare expenses, and two-thirds of people have avoided or delayed medical care in the last year due to expected costs.

An alarming anti-engagement statistic is that 44% of the 1,000 consumers surveyed said they would not get needed medical care, even if it put their health at-risk, knowing they would have out-of-pocket expenses of $500.

The 20/20 CarePayment survey team also noted in their press release that among people who did not seek healthcare, medical debt is a growing and common problem impacting + nearly 1 in 4 Americans under 65.

The CarePayment poll was conducted in November-December 2017.

Health Populi’s Hot Points:  So, Gregg and John, to your question: has patient empowerment and engagement scaled yet in U.S. healthcare?

Well, it depends on how we define the terms, and through what and whose lens. I do see green shoots of engagement among patients in the U.S., both for clinical activation and financial/shopping muscles.

A question in the Change Healthcare survey hints at one of the challenges in assessing and inspiring patient engagement: “What is the best approach for turning passive patients into active healthcare consumers?”

For many years, my discussions with patient activists on social media have informed me about some of the toxic language that prevents trusted conversations between people – patients, consumers, caregivers — and health care providers, plans, and pharma. Words like “adherence,” “compliance,” and in this question the verb, “turning,” are turn-offs for the very people legacy healthcare organizations want to engage.

Contemporary health engagement for patients in the U.S. is also complicated by the fact that patients are responsible for financing at least part of their healthcare — resulting in self-rationing among a large percentage of people who truly need to access care, the CarePayment survey points out. We’ve seen these behaviors based on other data sources, notably over the years via the Kaiser Family Foundation which I perennially cover — even back in 2012 before the advent of the Affordable Care Act.

As providers, payors and pharma allocate capital resources for technology to improve relationships with patients on the hardware side of the ledger, these healthcare organizations should also be mindful of other processes and mindsets facing consumer-patients — both in terms of helping people navigate the healthcare system, and at the same time, avoid the financial toxicity that can prevent them from seeking care in the first place.

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Hans Jonas, la ricerca della vita buona. "Sulle cause e gli usi della filosofia e altri scritti inediti"

Hans Jonas, la ricerca della vita buona. "Sulle cause e gli usi della filosofia e altri scritti inediti" | Co-creation in health |
Secondo il pensatore tedesco Hans Jonas l’uomo si realizza in un sano pensiero filosofico, evitando gnosticismo e storture scientiste Per non diventare delle «formiche tecnologiche»


«Che l’immagine dell’uomo non vacilli, si offuschi e sbiadisca, che gli uomini non si riducano a formiche tecnologiche o edonisti senza anima o marionette frastornate dal nostro furibondo potere». A cosa attingere per evitare questa deriva? All’uso adeguato della filosofia che instrada verso la vita buona e all’esercizio della virtù? Sono dilemmi che hanno il sapore dell’attualità benché sollevate da Hans Jonas nel 1955. Potrebbe d’altro canto essere diversamente se «le questioni filosofiche - puntualizzava il pensatore sei anni prima - si ripropongono ad ogni nuova epoca tanto daccapo, quanto alla luce della loro intera vicenda storica antecedente?». Le citazioni provengono dalle annotazioni del filosofo appartenenti alla sua stagione canadese, dal 1949 al ’55.

A lungo conservate all’Hans Jonas Nachlass dell’università di Konstanz sono state ripescate e raccolte in anteprima mondiale da Fabio Fossa in questo libro (Sulle cause e gli usi della filosofia e altri scritti inediti, Ets, pp.120, euro 10). Hans Jonas non è tra gli autori più conosciuti al grande pubblico eppure il suo curriculum scintilla. Dopo gli studi con Rudolf Bultmann e Martin Heidegger nella Germania degli anni Trenta, prende la via dell’esilio, lontano dall’Europa. La sua vita però non si riduce a studio e contemplazione. Anzi l’agire ne costituisce una cifra di rilievo. Lo prova, nel corso della Seconda guerra mondiale, la scelta di arruolarsi nella Jewish Brigade, inquadrata nell’esercito britannico e operativa sul suolo italiano. I rapporti con la penisola scandiscono la vita di Jonas. Sarà proprio al rientro dall’Italia, nel 1993, dopo avere ricevuto il Premio Nonino dedicato ai maestri del nostro tempo, che il filosofo tedesco naturalizzato americano si spegnerà a New York all’età di novant’anni.


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Health Equity - Guide for Public Health Practitioners and Partners

Health Equity - Guide for Public Health Practitioners and Partners | Co-creation in health |

The Delaware Division of Public Health (DPH), the University of Delaware’s School of Public Policy & Administration, and other partners created the Health Equity Guide for Public Health Practitioners and Partners to help Delawareans better understand tools and strategies that promote health equity and support upstream population health approaches. The 179-page document is designed to assist all sectors which can include but are not limited to government, education, workplaces, private sector, nonprofit agencies, faith based institutions, and health care settings address underlying causes of health inequities in communities and promote optimal health for all in Delaware.


Our overall health is strongly influenced by where we live, learn, work, play and pray. It is also heavily influenced by your income level, education, and health care services. Our culture, language, political and religious beliefs, social norms and attitudes, and the rates of poverty, crime, and violence also affect our health. Delaware can achieve greater health equity as its environmental, social, and economic conditions improve.

The Division of Public Health (DPH) is working with many community leaders, non-profit organizations, other state agencies, and stakeholders to address health equity issues within our state and improve overall health for Delawareans. By engaging in healthy behaviors and improving environmental and social conditions, there is less risk of disease, disability, and injury. In order for this to occur, we all need to ensure that the healthy choice is not just the easy choice, but that it is also a possible choice within communities. The guide show cases existing evidence-based practices, tools and resources that can assist Delawareans to reach their full health potential and improve their overall quality of life.

DPH contracted with the University Of Delaware (UD) to develop the guide with the purpose of increasing awareness of DPH staff and other partners across the state and bring us closer together to address health equity issues in Delaware. This guide explores the major themes, frameworks, and approaches regarding health equity, all while keeping the context of Delaware in mind. The Health Equity Guide for Public Health Practitioners and Partners shares evidence-based and promising strategies, and provides numerous references and web links for additional information.

We proudly present the final product and can provide technical assistance and support.

Using the Guide

Everyone, no matter what sector you work within, can utilize the guide to prioritize health equity in their overall work.

Health inequities are historically entrenched and pervasive, but they are not insurmountable. We can be most effective by transforming our collective thinking from a perspective focused on treatment of the individual, to one that focuses on prevention, health, and wellness of the broader population. The guide provides a call to action for all of us to make fundamental shifts in our approaches.

The Guide was developed to be adaptable to all types of audiences – from academicians to grass roots community groups – and includes digestible strategies which highlight Delaware specific and national examples. The Guide is best utilized as an electronic file due to the inclusion of hyperlinks.


Guillermo Grosso's curator insight, December 28, 2017 8:46 AM

Health Equity - Guide for Public Health Practitioners and Partners

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Word ban at CDC includes 'vulnerable,' 'fetus,' 'transgender'

Word ban at CDC includes 'vulnerable,' 'fetus,' 'transgender' | Co-creation in health |

Officials at the Centers for Disease Control and Prevention, the very agency tasked with saving and protecting the lives of the most vulnerable, are now under order by the Trump administration to stop using words including "vulnerable" in 2018 budget documents, according to The Washington Post.

In a 90-minute briefing on Thursday, policy analysts at the nation's leading public health institute were presented with the menu of seven banned words, an analyst told the paper. On the list: "diversity," "fetus," "transgender," "vulnerable," "entitlement," "science-based" and "evidence-based."
Alternative word choices reportedly were presented in some cases. For instance, in lieu of "evidence-based" or "science-based," an analyst might say, "CDC bases its recommendations on science in consideration with community standards and wishes," the source said. But those working on the Zika virus's effect on developing fetuses may be at a loss for appropriate -- or acceptable -- words.
The reaction in the room was "incredulous," the longtime CDC analyst told the Post. "It was very much, 'Are you serious? Are you kidding?'"


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 "Un sessantotto cattolico?" - Con BRUNETTO SALVARANI, Tonio Dell'Olio, Luigi Sandri, Sergio Tanzarella

 "Un sessantotto cattolico?" - Con BRUNETTO SALVARANI, Tonio Dell'Olio, Luigi Sandri, Sergio Tanzarella | Co-creation in health |

“Sessantotto”: un anno cruciale, su cui ancora ci si interroga, e verosimilmente ci si interrogherà ancor più in coincidenza dell’anniversario dei suoi cinquant’anni. Se il termine è usato per designare fenomeni di varia natura, sul piano politico, sociale e culturale, appare evidente che nella sua genesi e nel suo svolgimento il ruolo di pezzi del mondo cattolico fu tutt’altro che secondario: dal cosiddetto dissenso alla nascita delle comunità di base, dal fiorire di riviste, fogli e bollettini all’aperta contestazione del magistero, con azioni non di rado sfociate in gesti clamorosi. Di questo, e della sua attualità o meno mezzo secolo più tardi, in un contesto ecclesiale completamente mutato, rifletteremo con Tonio Dell’Olio, presidente della Pro Civitate Christiana di Assisi, Luigi Sandri, giornalista e scrittore, e Sergio Tanzarella, docente di Storia della Chiesa presso la Facoltà teologica dell’Italia Meridionale. E ci sarà spazio anche per ripensare alla lezione del vescovo della pace, don Tonino Bello, a venticinque anni dalla sua prematura scomparsa.


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"Jeu d'échecs" avec Marcel Duchamp ,1963. 

This film records an in-depth interview with French artist Marcel Duchamp [1887-1968] which took place five years before his death, at the time of his first ever one-man show (at the Pasadena Art Museum). It records for posterity Duchamp talking about his life, his ideas on art, why he chose to continue living in America after fleeing France in 1915, and why he virtually abandoned his work as an artist in 1923. While he is most often associated with Dada and Surrealism, his participation in Surrealism was largely behind the scenes, and after being involved in New York Dada, he barely participated in Paris Dada. An engaging dialogue takes place between Duchamp and film-maker Jean-Marie Drot as they go around the Pasadena show, with the artist commenting on the exhibits and using them to explain the various stages of the development of his work. This is punctuated by the games of chess, which were for Duchamp a passion and a metaphor for the mental discipline he applied to his art. In this film we gain a rare glimpse of him talking with humour and insight about his ideas, and living up to the myth of the artist-philosopher that has grown up around him. Jeu d'échecs avec Marcel Duchamp was filmed late 1963 in Pasadena and New York for the Radio Télévision Française (RTF); first broadcast on 8 June 1964 and then shown at the International Festival of Artistic Films and Films of Art (Bergamo, 19 September 1964). A videocassette was issued by Public Media, Chicago 1987 (Marcel Duchamp. A Game of Chess) and by Phaidon (2007). The English version was presented in a television broadcast in September 1964 in the 'Art and Man' Series.

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Il concetto di «engagement» per dare voce anche ai malati - Luigi Ripamonti

Il concetto di «engagement» per dare voce anche ai malati - Luigi Ripamonti | Co-creation in health |
Che cosa significa «engagement»? Si tratta di un coinvolgimento attivo dei pazienti nel Sistema sanitario nazionale. Per arrivare a un modello partecipativo in sanità serve un cambiamento culturale. Ne parla nella video intervista Guendalina Graffigna, professore associato di Psicologia all’Università Cattolica di Milano.
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Your Guide to a Midlife Tuneup - Well Guides - The New York Times

Your Guide to a Midlife Tuneup - Well Guides - The New York Times | Co-creation in health |
Our health needs change with every passing decade, but the good news is that it's never too late to start taking better care of yourself. Whether you are in your 30s, 40s, 50s or beyond, the Well Midlife Tuneup will put you on a healthier path to improving your body, mind and relationships. You are only as old as you feel, and completing our tuneup will definitely help you feel young at heart. Let's get started.

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3 Ways to Use Social Media to Improve Your Health Care Marketing

Within the next three to five years, the use of social media to connect with individuals is expected to increase by 256%.

For the health care industry in particular, social media can help engage patients, providers and the public with relevant and timely information, as well as communicate the value and credibility of a health system.

Why is this tactic becoming a critical component of health care marketing strategy?

A recent study found 57% of consumers’ decisions to receive treatment at a health care facility are strongly influenced by that provider’s social media connections, showing that patients trust health organizations with a social presence.

According to another report, 60% of doctors say social media improves the quality of care delivered to patients, which means that doctors also value the transparency and open communication that social media can provide.

With the opportunity to increase patient referrals and improve the quality of care, it’s no surprise that many health systems are jumping on the social media bandwagon.

Let’s take a look at a few ways using social media in health care can improve overall marketing efforts:

Engage With Patients in Real Time

One of the benefit of social media marketing in health care is enabling deeper and more meaningful discussions that address patient questions, concerns and interests in real time.

The question is, how can health care marketers effectively use social media to communicate and engage with existing patients?

Health systems can facilitate patient empowerment by enabling and engaging in patient forums and research networks online. For example, PatientsLikeMeallows patients to manage their own health conditions by discussing treatments with patients who have similar conditions. Hospitals and other health networks can develop their own platforms that allow patients to share their experiences and receive support from similar individuals.

Along with forums, health systems can use social networking pages to encourage patient discussions. For example, Children’s Mercy uses their Facebook page to showcase their reputation as a renowned care center.

“Locally, Children’s Mercy wants parents to know their kids are in good hands. Social is a good way to share news and feature CMH doctors and patients,” says PR director Jake Jacobson.


This video is a part of Children’s Mercy’s “Big Slick KC” promotion for their annual fundraiser. Posts like these raise awareness for the health system’s Cancer Center, share patient stories and urge people to donate.

According to the Journal of Health Management, “When patients tell their stories, their friends see that, and the likelihood of spreading the message increases many-fold.”

To successfully engage patients on social media forums or networking sites, organizations must regularly monitor these platforms to respond to patients in a timely manner, as well as ensure fresh, engaging content is added often to keep patients interested.

Facilitate Physician Collaboration

Health care marketers can also use social media channels to encourage physician alignment and collaboration. Texas Health, a network of 25 hospitals that employs 5,500 physicians, created an enterprise social networkto help physicians communicate and work with one another to overcome challenges posed by the work environment, such as electronic health record requirements.

As a result of this networking initiative, the health system saw improved physician collaboration, a shorter learning period and greater acceptance of social media tools.

Social media is an easy way for physicians to find and connect with other health professionals, even those outside of their own health system or hospital. Physicians can also share their knowledge or research to benefit other providers.

Overall, these practices improve physicians’ knowledge and willingness to work as a team. The more informed and educated a health system’s physicians are, the happier patients will be with their experience and the quality of care provided.

Ultimately, health care marketers should strive to provide patients with better experiences to foster loyalty, retention and positive word-of-mouth referrals. Improving physician engagement and alignment is one way to do so.

Support Population and Preventative Health Initiatives

Since many social media sites are public communication platforms that can reach a wide breadth of individuals, health care organizations can use this marketing tactic to support broader population health and preventative health initiatives.

One way to do this is to communicate educational information about health events and crises. Lee Aase of Mayo Clinic and Shannon Dosemagen of Public Laboratory for Open Technology and Science, say “organizations can use social media to distribute time-sensitive health information, promote information sharing to encourage behavioral changes (including corrective changes during potential health crises), be a platform for conversation between agencies and constituents (rather than just as an information provider) and allow the public to provide useful information and feedback.”


Health care organizations can also use social media as a platform to distribute information about common health conditions, diseases and other public health issues as a preventative measure.

As John Weston, CMO of Mayo Clinic notes, “We leverage the rich content we have to provide consumers with information about diseases and conditions, even when it is likely they may never become a patient. We view this as part of our moral responsibility — to share our knowledge and expertise to benefit others.”

Though social media provides the opportunity for health care organizations to reach large consumer and patient populations, marketers need to be mindful of maintaining HIPAA compliance and other privacy regulations on these public platforms.

Providers can maintain the trust of patient-provider relationships by staying far away from patient information and establishing a professional presence. Keeping this in mind, social media in health care has the potential to improve patient engagement, drive physician alignment, and foster a healthier society overall.

How does your healthcare organization take advantage of social media?

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La méfiance du grand public envers l’industrie pharmaceutique : un enjeu de santé publique - Lisa Kerbirio, MBA Communication & Santé, EFAP - Blog #FCSanté

La méfiance du grand public envers l’industrie pharmaceutique : un enjeu de santé publique - Lisa Kerbirio, MBA Communication & Santé, EFAP - Blog #FCSanté | Co-creation in health |
 Nous qualifions souvent les produits de santé comme  «des produits du quotidien pas comme les autres ». Cela est dû à leur  haut niveau de spécificité  tant scientifique que technique, mais également à leur place privilégiée dans notre société hautement  soucieuse de sa santé .

Via Festival Communication Santé, Lionel Reichardt / le Pharmageek
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Patient engagement is the key to bundled payment success

Patient engagement is the key to bundled payment success | Co-creation in health |

Over the last decade, the Center for Medicare and Medicaid Services (CMS) has created both mandatory and voluntary programs designed to move healthcare providers from fee-for-service payment models to those that are value-based. Some of the most well-known programs are bundled payments.

Bundled payments have proven challenging for providers to address, as oftentimes they are unsure where or how to start. The shift towards value-based programs like BPCI (voluntary bundled payment program) and CJR (mandatory bundled payment program) have become a dividing issue amongst healthcare executives as some doubt the programs will drive desired success. More often than not, forward-thinking and progressive providers are already positioning themselves for the future by putting into place the right processes and structures for success.


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What patients want from doctors online and off

What patients want from doctors online and off | Co-creation in health |

Overall, consumers cite three key things that could improve the doctor-patient relationship: greater connectivity, better convenience via text and online tools, and more time with the doctor.


Brands and marketers alike have many things to consider in today’s ever-changing healthcare landscape. Are patients happy with their relationships with their healthcare providers? How likely are they to switch doctors? What could be improved with the doctor-patient experience? How do people want to be communicated with by their providers’ offices?

Among the three generations, Millennials are the least satisfied with their doctors and are most likely to switch practices. Not surprisingly, the researchers found that they are also the generation that is most likely to want to receive e-mail and text communication from offices.

Generation X
Many Generation Xers control healthcare decisions across multiple generations, and their preferences and satisfaction levels both fall somewhere between younger and older consumers. Overall, the researchers found that they are fairly similar to Millennials, with an openness to digital communication and to switching providers.

Baby Boomers
Baby Boomers, the biggest consumers of healthcare services, are the least likely to switch doctors. However that doesn’t necessarily mean they’re happy: less than half are satisfied with their current providers. Boomers are also the generation least interested in receiving communications from doctors’ offices digitally.


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Will Silicon Valley Startups & Empowered Patients Replace #BigPharma? #hcsmeufr #esante

Will Silicon Valley Startups & Empowered Patients Replace #BigPharma? #hcsmeufr #esante | Co-creation in health |

"We don't want to miss the train of digital health" is a phrase Bertalan Mesko, MD, PhD, has heard many times since he started working with pharmaceutical companies. Well, I have good news, says Mesko. They cannot miss it, because there are no trains to catch anymore. Instead, we should be looking to futuristic spaceships. If the pharma industry doesn't deal with disruptive technologies, it won't have an industry at all.

It might sound like a bold statement, but major trends suggest a future in which medical innovations come from a garage or a small startup company. For hundreds of years, innovation belonged to the R&D departments of pharma companies. A few technological developments might change that forever – and we are not happy about it.Bertalan Mesko, MD, PhD

Via Pharma Guy, Lionel Reichardt / le Pharmageek
Pharma Guy's curator insight, October 20, 2015 8:02 AM

Denise Silber commented:

"Complex question indeed that you raise about the transformation of pharma. So far, pharma has mostly missed out on the opportunities to 1) communicate in an engaging way on social media 2) to be involved in mobile apps that are used in a significant way 3) to transform their relationship and the sales process toward healthcare professionals 4) to transform internal processes in general. So, that's a poor scorecard indeed.

"However, if we look at, for example, Silicon Valley start-up accomplishments in health, there have been hiccups as well. 

--Companies without pharma/device experience such as 23&Me and now Theranos turned out to have made premature announcements, probably to satisfy investors, and then faced setbacks. 

--Healthcare connected objects and apps, even when not suffering from restrictive pharma marketing policies, confront high abandonment rates and seem to have difficulties in demonstrating clinical value.

"For the moment, even monster Google seems to want to partner with pharma rather than go it alone, (although this can change once Google has learned how everyone works from the inside).

"Wouldn't it be fair to say that new, disruptive ideas have always started with individuals or tiny teams. Many pharma compounds were the work of external researchers that were licensed or brought in.

And pharma is now taking a close look at start-ups and finding ways to collaborate with them as they would have with academic researchers in the past."

A good example of pharma collaborated with start-ups is Bayer's Grants4Apps™ program, which invites health app developers to submit their innovative app ideas for novel software that contributes to improving health outcomes. For more on that, see: 

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Claudio Magris: «Quei 418 messaggi che non ho letto» -

Claudio Magris: «Quei 418 messaggi che non ho letto» - | Co-creation in health |

In meno di tre giorni si sono accumulati nel mio cellulare (uno di prima generazione) 418 messaggi. Anzi, messaggini, secondo il lessico lezioso e vezzoso che adorna di fiori di carta le gabbie d’acciaio della tecnologia. Telefonini, messaggini, ditini che battono tastini. Non so cosa dicano, quei 418 appelli in una bottiglia, perché non sono capace di leggerli e dunque di rispondervi. Non è una stolida posa antitecnologica, sempre falsa e patetica, non solo perché si disconosce con supponenza l’aiuto che la tecnologia reca alla vita — basta pensare alla medicina e alla chirurgia — ma anche perché si crede che la tecnologia sia solo quella recente, quella che è piombata nella nostra vita già adulta, e si identifica la cosiddetta natura con la tecnica che c’era già quando si è venuti al mondo. La radio, ad esempio, mi sembra più «naturale» della televisione, perché quando sono nato i suoi suoni erano già nell’aria, come gli altri rumori della realtà, mentre la televisione è entrata a casa mia quando finivo il liceo. Nessuna psicosi o civetteria antitecnologica dunque, da parte mia. Semplicemente soffro di disabilità digitale, che è un handicap ma non una colpa, e invoco rispetto per questa mia «diversa abilità» digitale, come si dice in politically correct, così come chiedo comprensione perché non sono più in grado di fare le belle escursioni in montagna di una volta.

Tuttavia, direbbe Musil, in ogni più c’è un meno e in ogni meno un più. Se ne fossi stato in grado, avrei letto quei 418 dispacci e avrei risposto ad ognuno, come faccio con ogni lettera cartacea, almeno una quindicina al giorno. Calcolando 2,30 minuti per ogni lettura di sms e risposta, probabili controrisposte e mie relative repliche, avrei impiegato, credo, circa sedici ore. Due giornate di lavoro pieno, e verosimilmente altrettante nei tre giorni successivi e via di seguito. Dove resta il tempo per il lavoro col quale — a parte i pensionati, i milionari, i carcerati, i malati o i disoccupati — ci si guadagna di che vivere, e per leggere, passeggiare, incontrare gli amici, fare all’amore? Ai tavoli di ristoranti e caffè si vedono persone che non parlano tanto fra loro quanto con invisibili interlocutori al telefono e non solo un paio di volte, come sarebbe naturale, ma per quasi tutto il tempo che scorre fra l’antipasto e il dessert. Quando i due — o i quattro o cinque — cominceranno a parlare fra loro?


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Pay for performance: a dangerous health policy fad that won't die

Pay for performance: a dangerous health policy fad that won't die | Co-creation in health |
The evidence is clear: It's time to terminate pay for performance, the catchall term for policies that purport to pay doctors and hospitals based on quality and cost measures.

Via Marc Phippen
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Social security is a provision paid for by the public to support the public ‘from from the cradle to the grave’ when they fall on hard times

Social security is a provision paid for by the public to support the public ‘from from the cradle to the grave’ when they fall on hard times | Co-creation in health |

Some logical gaps in government rhetoric

The government claim that more people are in employment. However, the government have ensured via systematic deregulation that the ‘supply-side’ labour market is designed to suit the wants of employers and not the needs of employees. Supply-side policies include the promotion of greater competition in labour markets, through the removal of ‘restrictive’ practices, such as the protection of employment.

For example, as part of supply-side reforms in the 1980s, trade union powers were greatly reduced by a series of measures including limiting worker’s ability to call a strike, and by enforcing secret ballots of union members prior to strike action.

Via britishroses
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The Ethics of Influence: Government in the Age of Behavioral Science - Cass R. Sunstein

The Ethics of Influence: Government in the Age of Behavioral Science - Cass R. Sunstein | Co-creation in health |
In recent years, 'nudge units' or 'behavioral insights teams' have been created in the United States, the United Kingdom, Germany, and other nations. All over the world, public officials are using the behavioral sciences to protect the environment, promote employment and economic growth, reduce poverty, and increase national security. In this book, Cass R. Sunstein, the eminent legal scholar and best-selling co-author of Nudge (2008), breaks new ground with a deep yet highly readable investigation into the ethical issues surrounding nudges, choice architecture, and mandates, addressing such issues as welfare, autonomy, self-government, dignity, manipulation, and the constraints and responsibilities of an ethical state. Complementing the ethical discussion, The Ethics of Influence: Government in the Age of Behavioral Science contains a wealth of new data on people's attitudes towards a broad range of nudges, choice architecture, and mandates.
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