Persistent Pain: Resources for Education and Self Management
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177: Living Well w/ Chronic Pain, Part 2 w/ Dr. Bronnie Thompson - Healthy Wealthy Smart Podcast

177: Living Well w/ Chronic Pain, Part 2 w/ Dr. Bronnie Thompson - Healthy Wealthy Smart Podcast | Persistent Pain: Resources for Education and Self Management | Scoop.it
This episode is the continuation of my interview with Dr. Bronnie Thompson from last week about living well with chronic pain.  In this episode we answer listener questions! In this episode we go through the following questions: * What she would say to give confidence to someone who is afraid that no matter what they...
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Always good to hear Bronnie from - practical advice with a sound academic base.

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Pain as metaphor: metaphor and medicine -- Neilson -- Medical Humanities

Pain as metaphor: metaphor and medicine -- Neilson -- Medical Humanities | Persistent Pain: Resources for Education and Self Management | Scoop.it

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license

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There is a lot of talk around at the moment around the use of metaphor in helping people understand their persistent pain (championed by Moseley et al amongst others). This paper comes at things from another direction by exploring the unhelpful use of certain kinds of metaphor.

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A Systematic Review of Technology-assisted Self-Management I... : The Clinical Journal of Pain

A Systematic Review of Technology-assisted Self-Management I... : The Clinical Journal of Pain | Persistent Pain: Resources for Education and Self Management | Scoop.it
Objectives: The use of technology to provide chronic pain self-management interventions has increased in the recent years.
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NCRM Podcasts: Interdisciplinary methods for non-textual data

NCRM Podcasts: Interdisciplinary methods for non-textual data | Persistent Pain: Resources for Education and Self Management | Scoop.it

Communicating chronic pain.

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Don't be put off by the title! Interesting 15min podcast describing how researchers from LSE used creative approaches to exploring the pain experience.

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Patient and Client Council (N Ireland)

The Painful Truth: 2,500 people who live with chronic pain tell their story (2014)

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The link to this report can be found 7th in the list of publications on this page.

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Implementation Science | Abstract | Creatures of habit: accounting for the role of habit in implementation research on clinical behaviour change

Implementation Science | Abstract | Creatures of habit: accounting for the role of habit in implementation research on clinical behaviour change | Persistent Pain: Resources for Education and Self Management | Scoop.it
Social cognitive theories on behaviour change are increasingly being used to understand and predict healthcare professionals’ intentions and clinical behaviours. Although these theories offer important insights into how new behaviours are initiated, they provide an incomplete account of how changes in clinical practice occur by failing to consider the role of cue-contingent habits. This article contributes to better understanding of the role of habits in clinical practice and how improved effectiveness of behavioural strategies in implementation research might be achieved.
Dr Derek Jones's insight:

Habits and routines are important for all of us and this article is of interest in relation to maintaining the gains of self management.

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Routines, habits, boredom & variety: Life skills for living with chronic pain?

Routines, habits, boredom & variety: Life skills for living with chronic pain? | Persistent Pain: Resources for Education and Self Management | Scoop.it
I've just had a wonderful week on holiday. I escaped the internet, social media, telephones, power, flushing toilets, running water... and it was awesome! There's something good about taking a brea...
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Another nice post from Bronnie connecting neuroscience, psychology and pain management strategies. Also love the idea of skinny evidence!

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Self-Management Support Interventions for Persons With Chronic Disease

Self-Management Support Interventions for Persons With Chronic Disease | Persistent Pain: Resources for Education and Self Management | Scoop.it
“So do self-management support interventions work? http://t.co/s4PWsMamge #SystematicReview #CDSMP”
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The Case for Self-Management: Prof. Kate Lorig, Stanford University - YouTube

The Case for Self Management: An Arthritis Ireland Report on Seven Years of Positive Patient Outcomes The health of the Irish people and its health system ar...
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Always interesting to see people talk as well as reading their work.

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High Prevalence of Falls, Fear of Falling, and Impaired Balance in Older Adults with Pain in the United States: Findings from the 2011 National Health and Aging Trends Study -

High Prevalence of Falls, Fear of Falling, and Impaired Balance in Older Adults with Pain in the United States: Findings from the 2011 National Health and Aging Trends Study - | Persistent Pain: Resources for Education and Self Management | Scoop.it

Published Oct 2014

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Further evidence of the relationship between pain and falls in older people.

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CBRG QuickDecks: The best evidence in back and neck pain care | Institute for Work & Health

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Interested in evidence re back and neck pain: these one slide summaries of evidence from systematic reviews are really useful.

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Chronic Pain Scotland - for patient and healthcare professionals

Chronic Pain Scotland - for patient and healthcare professionals | Persistent Pain: Resources for Education and Self Management | Scoop.it
Dr Derek Jones's insight:

Lots of good information here for people with persistent pain, friends and family, and professionals.

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Pain Education

Pain Education | Persistent Pain: Resources for Education and Self Management | Scoop.it
Why Pain Education? Understanding how pain "works" can actually help you overcome it. Plus, it's just really interesting stuff. Here are some articles about pain, the science of it, and how to deal...
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This site contains some good accessible stuff and this page in  particular has lots of good educational material about pain.

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BMC Geriatrics | Full text | Pain assessment for people with dementia:

BMC Geriatrics | Full text | Pain assessment for people with dementia: | Persistent Pain: Resources for Education and Self Management | Scoop.it

This review of systematic reviews analyses and summarises evidence concerning the psychometric properties and clinical utility of pain assessment tools in adults with dementia or cognitive impairment.

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Role of endogenous pain modulation in chronic pain mechanism... : PAIN

Abstract: Development and application of psychophysical test paradigms to assess endogenous pain modulation in healthy controls and in patients yielded large body of data over the last 2 decades. These tests can assist in predicting pain acquisition, in characterizing pain syndromes and related d...
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Not for the fainthearted but an important piece on mechanisms.

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What Should We Do in the Absence of Evidence?

What Should We Do in the Absence of Evidence? | Persistent Pain: Resources for Education and Self Management | Scoop.it

For every complex problem, there is an answer that is clear, simple—and wrong. - H.L. Mencken 

Dr Derek Jones's insight:

Thanks to Janet Holly (@innerchildca) for bringing this to my attention via Twitter.

 

Many lessons for pain management. For me take home messages are:

1) Actually we have some evidence for lots of interventions, so we often have something to inform our clinical reasoning

2) Having a good grasp of mechanisms is important

3) Don't rush to do something for the sake of doing something - engage brain before opening clinical toolbox.

 

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BMC Public Health | Abstract | The accessibility and acceptability of self-management support interventions for men with long term conditions: a systematic review and meta-synthesis of qualitative ...

Self-management support interventions can improve health outcomes, but their impact is limited by the numbers of people able or willing to access them. Men's attendance at existing self-management support services appears suboptimal despite their increased risk of developing many of the most serious long term conditions. The aim of this review was to determine whether current self-management support interventions are acceptable and accessible to men with long term conditions, and explore what may act as facilitators and barriers to access of interventions and support activities.
Dr Derek Jones's insight:

Although the evidence base is still quite limited it is generally accepted that self management of a range of conditions is important. This is a useful contribution to understanding things we need to consider if we are to make the theory a reality.

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Reconceptualising Pain According to Modern Pain Science - Body in Mind

Reconceptualising Pain According to Modern Pain Science - Body in Mind | Persistent Pain: Resources for Education and Self Management | Scoop.it

This paper argues that the biology of pain is never really straightforward, even when it appears to be. It is proposed that understanding what is currently known about the biology of pain requires a reconceptualisation of what …

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This piece explains the science behind the statement: tissue damage is neither necessary or sufficient to explain pain. Nice read even if you lack confidence in your understanding of neurology.

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Agenda setting bubble diagram (chronic pain) | Person-Centred Care Resource Centre

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Useful range of resources to down load.

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Persistent Pain Education Booklet | Know Pain

Persistent Pain Education Booklet | Know Pain | Persistent Pain: Resources for Education and Self Management | Scoop.it
Pain management
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Excellent resource for people with persistent pain.

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Pain Community Centre

“ Pain Community Centre is a free learning resource for any healthcare professional, seeking evidence based information and education on pain and its management.”
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Paracetamol: Precautions to consider

Paracetamol: Precautions to consider | Persistent Pain: Resources for Education and Self Management | Scoop.it
Tylenol contain acetaminophen, which can injure the liver if too much is taken. Some medicine have acetaminophen combined with other products.
Dr Derek Jones's insight:

This is an American site (hence refers to acetaminophin rather than paracetamol). Has a nice game on this page that will be useful for undergrad allied health students.

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CIRPD Webinars: Shared Decision Making

CIRPD Webinars: Shared Decision Making | Persistent Pain: Resources for Education and Self Management | Scoop.it
Dr Derek Jones's insight:

The importance of shared decision making is increasingly recognised as an important element of health care so this is a useful resource relating it to pain.

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The Avoidance of Activities due to Fear of Falling Contributes to Sedentary Behavior among Community-Dwelling Older Adults with Chronic Musculoskeletal Pain: A Multisite Observational Study - Stubb...

The Avoidance of Activities due to Fear of Falling Contributes to Sedentary Behavior among Community-Dwelling Older Adults with Chronic Musculoskeletal Pain: A Multisite Observational Study - Stubb... | Persistent Pain: Resources for Education and Self Management | Scoop.it

"Older adults with CMP are significantly more sedentary than those of a similar sex and age without CMP. It appears that the avoidance of activities due to fear of falling is a significant contributory factor to SB in older adults with CMP"

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An important contribution to the literature around falls, and pain and older adults.

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Engaging with Older People and their carers to Develop and Deliver Interventions for the Self-management of Chronic Pain (EOPIC) | Eopic

Engaging with Older People and their carers to Develop and Deliver Interventions for the Self-management of Chronic Pain (EOPIC) | Eopic | Persistent Pain: Resources for Education and Self Management | Scoop.it

This is the website that documents activities of the UK Research Councils funded LLHW project.

Dr Derek Jones's insight:

Bit of self publicity here - this site will tell you about the research and some of the outputs of the project.

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