Chronic multiple sclerosis, where's the care?
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Chronic multiple sclerosis, where's the care?
Has anyone noticed that there is no care for people with chronic multiple sclerosis.
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Who's the Doctor 

Who's the Doctor  | Chronic multiple sclerosis, where's the care? | Scoop.it
Shortage in NHS Specialists/Doctors forces people to self diagnose.

Just to say that pictured above  are not my feet. 

 As a sufferer of multiple sclerosis & fibromyalgia etc, I have discovered something else. In 2013 I noticed a reddening of the skin on left foot which has gradually gotten worse, until this year that has come to light. In short if you have anyone in family with a platelet disorder eg: Polycythemia where the bone marrow produces to many white blood cells where the Jak 2 Gene go bonkers. chances are higher having this blood vessel disorder... In Erythromelalgia people can suffer at varying levels with intense misery and end up taking trips to the G.P's. Now if you are unfortunate enough to have a G.P who isn't that understanding or that you end up seeing a different G.P you may be seeing a doctor who is not knowledgable in this field as this was the case in my case as my G.P had been ill ( yes docs get ill too) Lol, you may be on drugs you do not want or need. Little is known about this blood vessel disorder as it can be quite rare and often get misdiagnosed as Reynaulds Phenomenom syndrome or other. So the doctor reaches for the pad and issues you a prescription of _yes ( Antidepressants) called Amytriptaline for the problem, which has been known to sometimes help. Not everyone wants these for lots of reasons not to mention it goes on the record that you're on anti D's & so the cycle continues the next time you walk into the G.P's shop. So you take the prescription & are told to come back in 1 Month. What then well that's as far as i got. I did not go back as other conditions got worse because of the amytriptaline pills and have past history on taking those.... I am medication free in reguards to my multiple sclerosis as Gabapentin for pain in nerves served my body for 12 years only to find out that they destroy nerves in various parts on the body & in my case where Multiple Sclerosis is concerned the brain starts shutting down bit by bit. Now that's what they don't tell sufferers who are put on these Gabapentin pills also known as Neurontin. More like Morontin.... This is not what the professionals want you to know as drug companies continue exploiting people who put trust where it is needed. I recovered from stopping this drug after 12 years with liquid Ionic magnesium to stop muscle cramp withdrawal. I now have my own stratedgy in combatting pain naturally honestly without all the stuff you constantly read online. My aim is to make people aware of the drugs they are given and besides what they claim to do, check out what the drugs do long term that is not on the label. Think of this as whatever any doctor tells you, he is only doing his job as a doctor / promoter of selling legal drugs and is not a scientist in the making of medications as he is a doctor not a pharmacist. 
In regards to the erythromelalgia it's early days but will keep updating to all that this would apply to and who wishes to know about this topic. 
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Letters: Community care is no panacea for the NHS

Letters: Community care is no panacea for the NHS | Chronic multiple sclerosis, where's the care? | Scoop.it
Dr Michael Dixon is quite right to say that we need to invest more in preventive medicine, better care of people with long-term conditions and access to support services outside hospital (Hospitals must shrink or shut, doctors warn, 8 April).

Via Jane Young
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Herbal is the way.

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Have used herbal & have to say that there is some truth in the uses of these herbs.

Not all of them are listed in my opinion tho.

 

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