#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE*

Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Like everyone diagnosed with ALS, it came with no warning and through no fault of the one diagnosed. That's exactly the story with Carmelo Diaz. Carmelo was a star tennis player in Puerto Rico. He met the love of his life, Bere, and they started a family. He taught tennis. She taught school........................................................

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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

Final Farewell To Mike Lopez Jr.

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

Memorial Video Link:  https://vimeo.com/57326971

#TEAMMikeLopez      #TEAMUp4Acure

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

 

To Order: Visit Us on Facebook: https://www.facebook.com/BelieveCourageHopeJewelry/

 

 #TEAMMikeLopez #TEAMUp4ACure

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Stephen Hillenburg/ 'SpongeBob SquarePants' Creator Dies at 57 from ALS 

Stephen Hillenburg/ 'SpongeBob SquarePants' Creator Dies at 57 from ALS  | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Stephen Hillenburg, the creator of Nickelodeon's animated megahit 'SpongeBob SquarePants,' died Monday after a battle with ALS. He was 57.
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Rahul Desikan, MD, PhD, Faculty Member and Friend, Is Living with ALS While Working Toward a Cure

Rahul Desikan, MD, PhD, Faculty Member and Friend, Is Living with ALS While Working Toward a Cure | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dr. Rahul Desikan's study of genetics and ALS research is groundbreaking. He is seeking funding for his research project that will help improve understanding of ALS, identify new therapeutic targets and find out ways to prevent this neurodegenerative disease.
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ALS researcher living with the disease still fighting for a cure | #GMA

ALS researcher living with the disease still fighting for a cure | #GMA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dr. Rahul Desikan, who was diagnosed with the debilitating illness last year, can no longer speak but continues to work.
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CBD and Parkinson’s Disease – Relief for Symptoms?

CBD and Parkinson’s Disease – Relief for Symptoms? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

In this article we take a closer look on cbd & parkinson. Researchers discovered that CBD behaves as an “inverse agonist” when it encounters a protein.................................

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ALS, ESRD are exceptions to Medicare eligibility requirement

ALS, ESRD are exceptions to Medicare eligibility requirement | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
People with End State Renal Disease or Amyotropic Lateral Sclerosis don't have to be 65 in order to qualify for Medicare. 
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Researchers identify promising proteins for diagnostic, prognostic use in #ALS -#Lougehrigsdisease

Researchers identify promising proteins for diagnostic, prognostic use in #ALS -#Lougehrigsdisease | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers from North Carolina State University have identified proteins that may be useful in both earlier diagnosis of Amyotrophic Lateral Sclerosis (ALS) and in more accurate disease prognosis.
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Join the National ALS Registry

Join the National ALS Registry | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

The National Amyotrophic Lateral Sclerosis (ALS) Registry allows persons with ALS to fight back and help defeat ALS (Lou Gehrig’s Disease). By signing up, being counted, and answering brief questions about you and your disease, you can help researchers find answers to important questions.

The National ALS Registry is a program to collect and analyze data about persons living with ALS.

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BID for an amazing Yankee Legends Experience via ALS Association/BID BY: 8/26/2018

BID for an amazing Yankee Legends Experience via ALS Association/BID BY: 8/26/2018 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 Join The ALS Association as we raise funds throughout the month of August through our National online auction in support of people living with ALS.

 

 

  • Check back frequently as we add new packages throughout the month. Every Bid Adds Up! #ALSAuction  All sales are final. 
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uOttawa researchers in Dr. Derrick Gibbings' lab connect the dots that cause ALS | Faculty of Medicine | University of Ottawa

uOttawa researchers in Dr. Derrick Gibbings' lab connect the dots that cause ALS | Faculty of Medicine | University of Ottawa | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
There is currently no cure for Amyotrophic Lateral Sclerosis (ALS), but new research published in Nature Communications coming out of the Gibbings lab is bringing us closer.
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Fundraiser by Catherine Scott : Need accessible furniture 4 Anthony- #Donate 

Fundraiser by Catherine Scott : Need accessible furniture 4 Anthony- #Donate  | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Catherine Scott needs your help today!

Need accessible furniture 4 Anthony - Our son, Anthony Carbajal, has ALS, also known as Amyotrophic Lateral Sclerosis. He  is moving back home - yay!!!, and we are so excited to shower him with love. It has been an incredibly difficult journey for him this past year, but he's on the right track to happiness and joy. We are raisin

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ALS Saved My Life......until it didn't /Author: Dr. Jenni Berebitsky

ALS Saved My Life......until it didn't /Author: Dr. Jenni Berebitsky | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Most people know life will not necessarily go as they planned. But what do we do when nothing goes as we had hoped? How do we cope with unpredictable changes in body and spirit – changes that require constant shifting of our view of our self, other people, and the world? Jenni, diagnosed in 2009 with Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig’s disease), has been forced to find answers to these questions every day. With the hope of helping others move forward after life-altering events, Jenni shares her story of life with ALS, outlining both the practical and existential changes needed to adapt and thrive. Embodying the idea that courage does not always roar, Jenni reveals the combination of self-reflection, radical acceptance, grit, and social support that have allowed her to remain true to herself while living her life to the fullest.

 

Amazon Link to Purchase: https://www.amazon.com/ALS-Saved-Life-until-didnt/dp/0692066691

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Using graphene to detect ALS, other neurodegenerative diseases | EurekAlert! Science News

Using graphene to detect ALS, other neurodegenerative diseases | EurekAlert! Science News | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Graphene can determine whether cerebrospinal fluid comes from a person with ALS, MS or from someone without a neurodegenerative disease.
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ALS Organizations Collaborate to Advance New Therapeutic into Human Trials - AT-1501

ALS Organizations Collaborate to Advance New Therapeutic into Human Trials - AT-1501 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Boston, MA (November 28, 2018) — Several ALS organizations announced on Wednesday that the first participant was successfully given a dose of AT-1501 in the first in-human trial of the potential treatment for ALS. AT-1501 was developed by the ALS Therapy Development Institute (ALS TDI), with support from The ALS Association, ALS ONE, and ALS Finding a Cure®, and is being brought into trials by Anelixis Therapeutics, Inc., a for-profit subsidiary of ALS TDI.

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Our #ALS Research/ PROJECT ALS 

Our #ALS Research/ PROJECT ALS  | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Project ALS has been committed to finding a cure for ALS for more than 20 years. Check out our research to understand what progress we've made, what causes ALS and much more.
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Spark- Clinical Study May Be of Interest to You

Spark- Clinical Study May Be of Interest to You | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Have you been recently diagnosed with Parkinson’s disease?

If so, the SPARK clinical study may be of interest to you.

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Former Syracuse football legend Tim Green says he has ALS

Former Syracuse football legend Tim Green says he has ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Former Syracuse football legend Tim Green says he has ALS.
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Sanofi and Denali to Develop Small Molecules to Treat ALS, Other Diseases

Sanofi and Denali to Develop Small Molecules to Treat ALS, Other Diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Denali Therapeutics and Sanofi are working to advance in clinical trials small molecules that block the RIPK1 enzyme to possibly treat diseases like ALS.
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Gene therapy injection into spinal cord halts ALS in adult mice

Gene therapy injection into spinal cord halts ALS in adult mice | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A new way to deliver DNA to spinal nerve cells brings us a step closer to a gene therapy for amyotrophic lateral sclerosis
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Renee Zellweger, Courteney Cox Honor Publicist Nanci Ryder at ALS Walk –

Renee Zellweger, Courteney Cox Honor Publicist Nanci Ryder at ALS Walk – | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Nanci Ryder may have lost her ability to use her voice in the four years since she was diagnosed with ALS, but that doesn’t mean the legendary publicist wasn’t heard on Sunday at the LA County Walk…
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Could a phone camera help organizations keep disabled customers onboard?

Could a phone camera help organizations keep disabled customers onboard? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

A phone camera could transform how organizations help customers with a disability and boost customer service teams within the public and private sector.

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7 mothers who lost their thriving teenage daughters to ALS -via DAILYmail

7 mothers who lost their thriving teenage daughters to ALS -via DAILYmail | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

7 mothers who lost their teenage daughters to ALS: It's a disease so rare in kids that the CDC has only counted a handful... now their families are uniting to fight for a cure"...........................

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Father's dying wish granted as he watches all 3 daughters get 'married'

Father's dying wish granted as he watches all 3 daughters get 'married' | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
RIDGEFIELD, Wash. (KATU) - A father battling ALS had one wish before he died; he wanted to see his three daughters get married. Akhil Jhaveri's family isn't sure he has enough time left on this earth to see each of his daughters walk down the aisle. We don
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ALS MAP: the ALS Medicare Access Project

ALS MAP: the ALS Medicare Access Project | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Medicare and Health Care for People living with ALS

 

Medicare is available for certain people with disabilities who are under age 65. These individuals must have received Social Security Disability benefits for 24 months or have End Stage Renal Disease (ESRD) or Amyotrophic Lateral Sclerosis (ALS, also known as Lou Gehrig’s disease).

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Motor neurone disease is one of, if not the most, cruellest of diseases

Motor neurone disease is one of, if not the most, cruellest of diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Australian doctors are trialling a new drug they hope will help slow the progress of motor neurone disease, which is on the rise.
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