#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE*

Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Like everyone diagnosed with ALS, it came with no warning and through no fault of the one diagnosed. That's exactly the story with Carmelo Diaz. Carmelo was a star tennis player in Puerto Rico. He met the love of his life, Bere, and they started a family. He taught tennis. She taught school........................................................

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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

Final Farewell To Mike Lopez Jr.

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

Memorial Video Link:  https://vimeo.com/57326971

#TEAMMikeLopez      #TEAMUp4Acure

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

 

To Order: Visit Us on Facebook: https://www.facebook.com/BelieveCourageHopeJewelry/

 

 #TEAMMikeLopez #TEAMUp4ACure

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7 mothers who lost their thriving teenage daughters to ALS -via DAILYmail

7 mothers who lost their thriving teenage daughters to ALS -via DAILYmail | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

7 mothers who lost their teenage daughters to ALS: It's a disease so rare in kids that the CDC has only counted a handful... now their families are uniting to fight for a cure"...........................

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Father's dying wish granted as he watches all 3 daughters get 'married'

Father's dying wish granted as he watches all 3 daughters get 'married' | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
RIDGEFIELD, Wash. (KATU) - A father battling ALS had one wish before he died; he wanted to see his three daughters get married. Akhil Jhaveri's family isn't sure he has enough time left on this earth to see each of his daughters walk down the aisle. We don
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ALS MAP: the ALS Medicare Access Project

ALS MAP: the ALS Medicare Access Project | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Medicare and Health Care for People living with ALS

 

Medicare is available for certain people with disabilities who are under age 65. These individuals must have received Social Security Disability benefits for 24 months or have End Stage Renal Disease (ESRD) or Amyotrophic Lateral Sclerosis (ALS, also known as Lou Gehrig’s disease).

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Motor neurone disease is one of, if not the most, cruellest of diseases

Motor neurone disease is one of, if not the most, cruellest of diseases | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Australian doctors are trialling a new drug they hope will help slow the progress of motor neurone disease, which is on the rise.
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Together - ALS, every day and never stop searching for a cure.

Pat’s words and optimism are what inspire researchers like Pablo to #GoBoldly every day and never stop searching for a cure to end ALS.

 

Link: https://goboldly.com/als 

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Watch the Moment When ALS Patient Who Inspired the Ice Bucket Challenge Speaks With His Voice Again

Watch the Moment When ALS Patient Who Inspired the Ice Bucket Challenge Speaks With His Voice Again | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Project Revoice is recreating the voices of ALS patients – such as Pat Quinn – so they can embrace the familiarity of their own voices, after the disease takes their vocal chords.
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Terance Mathis Celebrity Golf Classic - To Benefit Emory ALS Center- Monday, Sep 17, 2018 - TEAM Up 4 A Cure!

Terance Mathis Celebrity Golf Classic - To Benefit Emory ALS Center- Monday, Sep 17, 2018 - TEAM Up 4 A Cure! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Hosted by Terance Mathis, the former All-American and Pro Bowl wide receiver,
  • Golfers in threesomes will be grouped with celebrity team captains from the NFL, MLB, other sports, and entertainers from the Atlanta area.
  • Lunch will be provided and there will be fun contests on the course.
  • An awards reception will follow the round. 
  • Helicopter Ball Drop will take place before the round on Monday. Purchase a golf ball for $10 - Prize $500   Presence/Participation in the golf tournament is not required, but appreciated. ANYONE can buy a ball to support the event!
  • The funds raised from the tournament will benefit the Emory ALS Center. Located in Atlanta, the Emory ALS Center is one of the largest clinical centers for ALS in the United States. 
  • The team approach to ALS care and research bridges multiple disciplines and departments who work together, all with the same goal, but with different expertise and viewpoints. Their slogan, “Celebrate Life, Imagine a Cure,” is what they do every day. www.als.emory.edu
  • LODGING INFORMATION: We have arranged a discount rate and block of rooms at the Hyatt Place Johns Creek hotel for Sunday, September 16th. Link to reservations coming soon.
  • Registration includes Pairings Party at Topgolf Alpharetta on Sunday, September 16th. Golf games, Food, Drink Tickets, Silent Auction, Guest Speaker.
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ALS Pathways - ALS Support at Every Turn-Helpful Amyotrophic lateral sclerosis (ALS) information

ALS Pathways - ALS Support at Every Turn-Helpful Amyotrophic lateral sclerosis (ALS) information | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Helpful Amyotrophic lateral sclerosis (ALS) information about monitoring and managing ALS for patients and caregivers.
  • Keeping track of your ALS
  • Preparing for the road ahead
  • Reaching out for help
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ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics

ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

All centers are now enrolling in our Phase 3 clinical trial of #NurOwn® #ALS See ClinicalTrials.gov for site contacts: http://bit.ly/2FOUwoF

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O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon

O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A Trabuco Canyon woman who has been working with UC Irvine doctors studying experimental treatments for amyotrophic lateral sclerosis, or ALS, plans to "roll" in the Los Angeles Marathon this Sunday with her husband and children by her side.
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How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough

How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
USC stem cell researcher Justin Ichida provides an update on his work (thanks in part to the ailing publicist).

 

"We have made a major discovery in our search to find a cure for ALS. Feb. 5 on Nature.com, we announced that we have used stem cell technology to create nerve cells in a Petri dish from an actual ALS patient".

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Could a phone camera help organizations keep disabled customers onboard?

Could a phone camera help organizations keep disabled customers onboard? | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

A phone camera could transform how organizations help customers with a disability and boost customer service teams within the public and private sector.

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BID for an amazing Yankee Legends Experience via ALS Association/BID BY: 8/26/2018

BID for an amazing Yankee Legends Experience via ALS Association/BID BY: 8/26/2018 | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 Join The ALS Association as we raise funds throughout the month of August through our National online auction in support of people living with ALS.

 

 

  • Check back frequently as we add new packages throughout the month. Every Bid Adds Up! #ALSAuction  All sales are final. 
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uOttawa researchers in Dr. Derrick Gibbings' lab connect the dots that cause ALS | Faculty of Medicine | University of Ottawa

uOttawa researchers in Dr. Derrick Gibbings' lab connect the dots that cause ALS | Faculty of Medicine | University of Ottawa | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
There is currently no cure for Amyotrophic Lateral Sclerosis (ALS), but new research published in Nature Communications coming out of the Gibbings lab is bringing us closer.
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Fundraiser by Catherine Scott : Need accessible furniture 4 Anthony- #Donate 

Fundraiser by Catherine Scott : Need accessible furniture 4 Anthony- #Donate  | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Catherine Scott needs your help today!

Need accessible furniture 4 Anthony - Our son, Anthony Carbajal, has ALS, also known as Amyotrophic Lateral Sclerosis. He  is moving back home - yay!!!, and we are so excited to shower him with love. It has been an incredibly difficult journey for him this past year, but he's on the right track to happiness and joy. We are raisin

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ALS Saved My Life......until it didn't /Author: Dr. Jenni Berebitsky

ALS Saved My Life......until it didn't /Author: Dr. Jenni Berebitsky | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Most people know life will not necessarily go as they planned. But what do we do when nothing goes as we had hoped? How do we cope with unpredictable changes in body and spirit – changes that require constant shifting of our view of our self, other people, and the world? Jenni, diagnosed in 2009 with Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig’s disease), has been forced to find answers to these questions every day. With the hope of helping others move forward after life-altering events, Jenni shares her story of life with ALS, outlining both the practical and existential changes needed to adapt and thrive. Embodying the idea that courage does not always roar, Jenni reveals the combination of self-reflection, radical acceptance, grit, and social support that have allowed her to remain true to herself while living her life to the fullest.

 

Amazon Link to Purchase: https://www.amazon.com/ALS-Saved-Life-until-didnt/dp/0692066691

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Former San Francisco 49ers great Dwight Clark dies at 61 after battling ALS

Former San Francisco 49ers great Dwight Clark dies at 61 after battling ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dwight Clark, the former 49ers star best known for "The Catch" that won the NFC Championship Game in 1982, has died at the age of 61.
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Congress passes 'right to try' experimental drug bill, allowing the critically ill to bypass FDA - Chicago Tribune

Congress passes 'right to try' experimental drug bill, allowing the critically ill to bypass FDA - Chicago Tribune | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The House passed "right-to-try" legislation that would allow the critically ill to bypass the Food and Drug Administration to obtain experimental medications.
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Army veterans, father and his son that is fighting ALS honored together for military service

Army veterans, father and his son that is fighting ALS honored together for military service | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Via Parkinsons Foundation: Aware in Care kit- Tools and info to share with hospital staff during a planned or emergency hospital visit

Via Parkinsons Foundation: Aware in Care kit- Tools and info to share with hospital staff during a planned or emergency hospital visit | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.

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MIT’s new headset reads the ‘words in your head’ –

MIT’s new headset reads the ‘words in your head’ – | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
There’s always been a glaring issue with voice computing: Talking to a voice assistant with other people around makes you feel like a bit of a weirdo. It’s a big part of the reason we’ve been seeing the technology start to take off in the home, where people feel a little less self-conscious talking…
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BRAVO! House approves 'right-to-try' bill, sending legislation to Senate

BRAVO! House approves 'right-to-try' bill, sending legislation to Senate | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Republicans passed a controversial bill aimed at helping some dying patients get new access to experimental therapies, resurrecting legislation that suffered a major setback just a week ago.

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Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking

Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
By Dr. Richard Bedlack I woke up this morning to the terrible news that Stephen Hawking died. While I never met the man, and didn’t really understand all he was saying about black holes, I learned a lot from him about what is possible for people with ALS. At his diagnosis, Hawking was reportedly told…
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