#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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ALS \ MND has brought life into focus

ALS \ MND has brought life into focus | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Seven-year-old Colton Allen sat in his house on a frigid morning in Fort St. John, British Columbia. It was 35 degrees below zero, so school had been canceled for the day.
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

Final Farewell To Mike Lopez Jr.

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

Memorial Video Link:  https://vimeo.com/57326971

#TEAMMikeLopez      #TEAMUp4Acure

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Together - ALS, every day and never stop searching for a cure.

Pat’s words and optimism are what inspire researchers like Pablo to #GoBoldly every day and never stop searching for a cure to end ALS.

 

Link: https://goboldly.com/als 

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

 

To Order: Visit Us on Facebook: https://www.facebook.com/BelieveCourageHopeJewelry/

 

 #TEAMMikeLopez #TEAMUp4ACure

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Terance Mathis Celebrity Golf Classic - To Benefit Emory ALS Center- Monday, Sep 17, 2018 - TEAM Up 4 A Cure!

Terance Mathis Celebrity Golf Classic - To Benefit Emory ALS Center- Monday, Sep 17, 2018 - TEAM Up 4 A Cure! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Hosted by Terance Mathis, the former All-American and Pro Bowl wide receiver,
  • Golfers in threesomes will be grouped with celebrity team captains from the NFL, MLB, other sports, and entertainers from the Atlanta area.
  • Lunch will be provided and there will be fun contests on the course.
  • An awards reception will follow the round. 
  • Helicopter Ball Drop will take place before the round on Monday. Purchase a golf ball for $10 - Prize $500   Presence/Participation in the golf tournament is not required, but appreciated. ANYONE can buy a ball to support the event!
  • The funds raised from the tournament will benefit the Emory ALS Center. Located in Atlanta, the Emory ALS Center is one of the largest clinical centers for ALS in the United States. 
  • The team approach to ALS care and research bridges multiple disciplines and departments who work together, all with the same goal, but with different expertise and viewpoints. Their slogan, “Celebrate Life, Imagine a Cure,” is what they do every day. www.als.emory.edu
  • LODGING INFORMATION: We have arranged a discount rate and block of rooms at the Hyatt Place Johns Creek hotel for Sunday, September 16th. Link to reservations coming soon.
  • Registration includes Pairings Party at Topgolf Alpharetta on Sunday, September 16th. Golf games, Food, Drink Tickets, Silent Auction, Guest Speaker.
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ALS Pathways - ALS Support at Every Turn-Helpful Amyotrophic lateral sclerosis (ALS) information

ALS Pathways - ALS Support at Every Turn-Helpful Amyotrophic lateral sclerosis (ALS) information | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Helpful Amyotrophic lateral sclerosis (ALS) information about monitoring and managing ALS for patients and caregivers.
  • Keeping track of your ALS
  • Preparing for the road ahead
  • Reaching out for help
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ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics

ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

All centers are now enrolling in our Phase 3 clinical trial of #NurOwn® #ALS See ClinicalTrials.gov for site contacts: http://bit.ly/2FOUwoF

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O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon

O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A Trabuco Canyon woman who has been working with UC Irvine doctors studying experimental treatments for amyotrophic lateral sclerosis, or ALS, plans to "roll" in the Los Angeles Marathon this Sunday with her husband and children by her side.
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How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough

How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
USC stem cell researcher Justin Ichida provides an update on his work (thanks in part to the ailing publicist).

 

"We have made a major discovery in our search to find a cure for ALS. Feb. 5 on Nature.com, we announced that we have used stem cell technology to create nerve cells in a Petri dish from an actual ALS patient".

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Accomplished Tulsa-area runner now faces life with ALS

Accomplished Tulsa-area runner now faces life with ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 Kelvin Reid has completed five 100-mile races, but now he's had to trade in his tennis shoes for a wheelchair after doctors diagnosed him with ALS.“I’ve run for years and I run because it is something I’m good at,” he said.

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Like Steve Gleason, use your voice for change | Editorial-CONGRESS APPROVED

Like Steve Gleason, use your voice for change | Editorial-CONGRESS APPROVED | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Early Friday morning Congress approved the Steve Gleason Enduring Voices Act. It makes coverage by Medicare and Medicaid of speech-generating technology a permanent benefit.
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TEAM GLEASON to fund Critical Voice Banking for pALS through ModelTalker

Team Gleason to fund Critical Voice Banking for pALS through ModelTalker

 

This technology will allow those living with ALS to continue

using their own voice to communicate

New Orleans, LA

- January 31, 2018 - Team Gleason is excited to announce that all people living with ALS in the United States who would like to “bank”their voice to use after they have lost the ability to speak can do so at no cost to them through a partnership with ModelTalker starting tomorrow.

 

Steve Gleason had the opportunity to create his own synthetic voice through the process of voice banking when he was first diagnosed with ALS in 2011. Steve’s motto was and has

always been that “until there is a medical cure for ALS, I believe technology can act as a cure.”

Steve believes that with the availability of the correct technology, equipment, and sense of purpose, it is possible for ALS patients to live for decades.

 

FOLLOW LINK for Additional Info:

http://www.teamgleason.org/wp-content/uploads/2018/01/Model-Talker-Press-Release-6.pdf

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Super Bowl surprise for Lakeville man with ALS - No White Flags!

Super Bowl surprise for Lakeville man with ALS - No White Flags! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

LAKEVILLE, Minn. – A Lakeville man with months to live gets a surprise of a lifetime from a person who knows exactly what he’s going through.

There are people who talk about a bucket list and those who live it; Greg Gelhorn is the latter.

“Greg's vacations aren't vacations, they are adventures,” said Derek Fessler, Greg’s brother-in-law....................................

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Live Like Lou – Phi Delta Theta is Committed to the Fight Against Lou Gehrig’s Disease – Phi Delta Theta Fraternity

Live Like Lou – Phi Delta Theta is Committed to the Fight Against Lou Gehrig’s Disease – Phi Delta Theta Fraternity | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Exploring opportunities to make a multi-year, multi-million dollar pledge to a leading ALS research center in the United States will be an initial focus, similar to what LiveLikeLou executed with the LiveLikeLou Center for ALS Research at the University of Pittsburgh. Patient care and.............................................

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Congress passes 'right to try' experimental drug bill, allowing the critically ill to bypass FDA - Chicago Tribune

Congress passes 'right to try' experimental drug bill, allowing the critically ill to bypass FDA - Chicago Tribune | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The House passed "right-to-try" legislation that would allow the critically ill to bypass the Food and Drug Administration to obtain experimental medications.
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Watch the Moment When ALS Patient Who Inspired the Ice Bucket Challenge Speaks With His Voice Again

Watch the Moment When ALS Patient Who Inspired the Ice Bucket Challenge Speaks With His Voice Again | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Project Revoice is recreating the voices of ALS patients – such as Pat Quinn – so they can embrace the familiarity of their own voices, after the disease takes their vocal chords.
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Army veterans, father and his son that is fighting ALS honored together for military service

Army veterans, father and his son that is fighting ALS honored together for military service | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
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Via Parkinsons Foundation: Aware in Care kit- Tools and info to share with hospital staff during a planned or emergency hospital visit

Via Parkinsons Foundation: Aware in Care kit- Tools and info to share with hospital staff during a planned or emergency hospital visit | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.

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MIT’s new headset reads the ‘words in your head’ –

MIT’s new headset reads the ‘words in your head’ – | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
There’s always been a glaring issue with voice computing: Talking to a voice assistant with other people around makes you feel like a bit of a weirdo. It’s a big part of the reason we’ve been seeing the technology start to take off in the home, where people feel a little less self-conscious talking…
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BRAVO! House approves 'right-to-try' bill, sending legislation to Senate

BRAVO! House approves 'right-to-try' bill, sending legislation to Senate | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Republicans passed a controversial bill aimed at helping some dying patients get new access to experimental therapies, resurrecting legislation that suffered a major setback just a week ago.

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Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking

Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
By Dr. Richard Bedlack I woke up this morning to the terrible news that Stephen Hawking died. While I never met the man, and didn’t really understand all he was saying about black holes, I learned a lot from him about what is possible for people with ALS. At his diagnosis, Hawking was reportedly told…
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Stephen Hawking Dies at 76; His Mind Roamed the Cosmos - The New York Times

Stephen Hawking Dies at 76; His Mind Roamed the Cosmos - The New York Times | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A physicist and best-selling author, Dr. Hawking did not allow his physical limitations to hinder his quest to answer “the big question: Where did the universe come from?”
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Excessive calcium in the brain may be behind Parkinson's | Daily

Excessive calcium in the brain may be behind Parkinson's | Daily | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers from Cambridge University found excessive levels of calcium triggers nerve cell death, despite the mineral being critical for communication in the brain.
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Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE*

Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Like everyone diagnosed with ALS, it came with no warning and through no fault of the one diagnosed. That's exactly the story with Carmelo Diaz. Carmelo was a star tennis player in Puerto Rico. He met the love of his life, Bere, and they started a family. He taught tennis. She taught school........................................................

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Rep. Brian Fitzpatrick invites ALS patient to State of the Union- Championing the RIGHT TO TRY NOW Bill

Rep. Brian Fitzpatrick invites ALS patient to State of the Union- Championing the RIGHT TO TRY NOW Bill | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Matt Bellina, diganosed with ALS in 2014 and a Military Veteran will be attending the State of the Union Address at the U.S. Capitol tonight as a guest of Rep. Brian Fitzpatrick.  Bellina has been an active voice in support of Right to Try laws, traveling to Washington, D.C., frequently to testify before senate and house committees. A retired U.S. Navy lieutenant commander, Bellina, 34, the father of three is slowly losing basic motor functions as the disease progressively attacks his central nervous system.

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5 Important Things the ALS Association Does - ALS News Today

5 Important Things the ALS Association Does - ALS News Today | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association was founded in 1985 and is dedicated to helping patients who suffer from amyotrophic lateral sclerosis (ALS). The non-profit organization operates with a global scope, coordinating their research with some of the world’s top scientists. Here are six more things this incredible organization does: Research The ALS Association has raised more than …
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