#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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ALS strikes at random, killing young and old

ALS strikes at random, killing young and old | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Pat and Bob Suvoy show their son, Bobby, who died at 16. The Redford teen was healthy and strong, until his legs failed at 15. "Nobody should bury a child," his aunt said. "People have to know: This is not an old person's disease.............
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#ALS AWARENESS #LouGehrigsDisease #PARKINSONS
Raising ALS | Lou Gehrigs Disease & Parkinsons Disease AWARENESS to the NEXT LEVEL!
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Michael Lopez Jr. Celebration Of Life - Saying Good Bye to All American "Magic Mike" RIP: 1/13/2013 - In Loving Memory of Michael - Forever in Our Hearts #19

★ Final Farewell To Mike Lopez Jr.★

It is hard to imagine anyone who followed football in Oregon in the 1980′s not remembering his name. It struck fear into many an opponent and his #19 was called and shouted often at Oregon State where he did some legendary things. He was one of the greatest athletes to every come out of Oregon and was an All American and named Gatorade Player Of The Year. The 1981 Graduate of Aloha was truly special in every way and was known by those closest to him as “Magic Mike”! ♥

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ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics

ALS Clinical Trial Now Enrolling/Bainstorm Cell Therapeutics | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

All centers are now enrolling in our Phase 3 clinical trial of #NurOwn® #ALS See ClinicalTrials.gov for site contacts: http://bit.ly/2FOUwoF

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Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA

Inspirational & Unique | One of a Kind | Sterling Silver Jewelry | Hand Stamped-Made in Oregon | USA | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

*Our Unique & Inspirational Jewelry can be customized especially for you or as a gift*

Be CREATIVE! Design your own Unique Piece of Inspiration|Each Piece is Handcrafted In Oregon|Sent to you with Hope-Inspiration-Strength-Courage.

Help TEAM UP for A CURE!

To Order, Visit: www.TEAMCureALSfundraiser.com 

 #TEAMMikeLopez #TEAMUp4ACure

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Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking

Dr. Richard Bedlack/Duke ALS Clinic-What I Learned from Stephen Hawking | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
By Dr. Richard Bedlack I woke up this morning to the terrible news that Stephen Hawking died. While I never met the man, and didn’t really understand all he was saying about black holes, I learned a lot from him about what is possible for people with ALS. At his diagnosis, Hawking was reportedly told…
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Stephen Hawking Dies at 76; His Mind Roamed the Cosmos - The New York Times

Stephen Hawking Dies at 76; His Mind Roamed the Cosmos - The New York Times | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A physicist and best-selling author, Dr. Hawking did not allow his physical limitations to hinder his quest to answer “the big question: Where did the universe come from?”
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Excessive calcium in the brain may be behind Parkinson's | Daily

Excessive calcium in the brain may be behind Parkinson's | Daily | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Researchers from Cambridge University found excessive levels of calcium triggers nerve cell death, despite the mineral being critical for communication in the brain.
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Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE*

Help Support Carmelo after Hurricane Maria while he fights ALS! *DONATE* | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Like everyone diagnosed with ALS, it came with no warning and through no fault of the one diagnosed. That's exactly the story with Carmelo Diaz. Carmelo was a star tennis player in Puerto Rico. He met the love of his life, Bere, and they started a family. He taught tennis. She taught school........................................................

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Rep. Brian Fitzpatrick invites ALS patient to State of the Union- Championing the RIGHT TO TRY NOW Bill

Rep. Brian Fitzpatrick invites ALS patient to State of the Union- Championing the RIGHT TO TRY NOW Bill | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Matt Bellina, diganosed with ALS in 2014 and a Military Veteran will be attending the State of the Union Address at the U.S. Capitol tonight as a guest of Rep. Brian Fitzpatrick.  Bellina has been an active voice in support of Right to Try laws, traveling to Washington, D.C., frequently to testify before senate and house committees. A retired U.S. Navy lieutenant commander, Bellina, 34, the father of three is slowly losing basic motor functions as the disease progressively attacks his central nervous system.

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5 Important Things the ALS Association Does - ALS News Today

5 Important Things the ALS Association Does - ALS News Today | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The ALS Association was founded in 1985 and is dedicated to helping patients who suffer from amyotrophic lateral sclerosis (ALS). The non-profit organization operates with a global scope, coordinating their research with some of the world’s top scientists. Here are six more things this incredible organization does: Research The ALS Association has raised more than …
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Raymond Wesley Rose III, 45, professor who took fight against ALS on the road to raise public awareness

Raymond Wesley Rose III, 45, professor who took fight against ALS on the road to raise public awareness | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Dr. Rose spoke out to whomever would listen, explaining with candor and humor the disease that afflicted him. His life was lesson in tenacity and courage.
- Bonnie L. Cook, Philadelphia Inquirer and Daily News
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Blue Devil of the Week: Leading the Fight Against ALS - Dr. Richard Bedlack

Blue Devil of the Week: Leading the Fight Against ALS - Dr. Richard Bedlack | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Name: Dr. Richard Bedlack Position: Associate professor of neurology and director of Duke’s ALS Clinic Years at Duke: 22, since he came to Duke as an intern in 1995.

 

Richard Bedlack creates a bright atmosphere for those fighting a dark disease...............

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How Team Gleason helped rescue a desperate ALS patient from hurricane-ravaged Puerto Rico

How Team Gleason helped rescue a desperate ALS patient from hurricane-ravaged Puerto Rico | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Carmelo Diaz's wife: 'We couldn't have stayed on the island. He would have died.'
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BrainStorm Enrolls First Patients in Phase 3 Trial of NurOwn® in ALS

BrainStorm Enrolls First Patients in Phase 3 Trial of NurOwn® in ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Oct. 16, 2017 /PRNewswire/ -- BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI) today announced that the first patients have been enrolled in the Phase 3 clinical trial of NurOwn® for the treatment of amyotrophic lateral sclerosis (ALS) at the Massachusetts General Hospital and UC Irvine Medical Center in California.

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MIT’s new headset reads the ‘words in your head’ –

MIT’s new headset reads the ‘words in your head’ – | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
There’s always been a glaring issue with voice computing: Talking to a voice assistant with other people around makes you feel like a bit of a weirdo. It’s a big part of the reason we’ve been seeing the technology start to take off in the home, where people feel a little less self-conscious talking…
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BRAVO! House approves 'right-to-try' bill, sending legislation to Senate

BRAVO! House approves 'right-to-try' bill, sending legislation to Senate | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Republicans passed a controversial bill aimed at helping some dying patients get new access to experimental therapies, resurrecting legislation that suffered a major setback just a week ago.

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O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon

O.C. Mom Fighting Against ALS Will Participate in L.A. Marathon | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
A Trabuco Canyon woman who has been working with UC Irvine doctors studying experimental treatments for amyotrophic lateral sclerosis, or ALS, plans to "roll" in the Los Angeles Marathon this Sunday with her husband and children by her side.
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How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough

How Nanci Ryder's ALS Fight Sparked a Medical Breakthrough | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
USC stem cell researcher Justin Ichida provides an update on his work (thanks in part to the ailing publicist).

 

"We have made a major discovery in our search to find a cure for ALS. Feb. 5 on Nature.com, we announced that we have used stem cell technology to create nerve cells in a Petri dish from an actual ALS patient".

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Accomplished Tulsa-area runner now faces life with ALS

Accomplished Tulsa-area runner now faces life with ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

 Kelvin Reid has completed five 100-mile races, but now he's had to trade in his tennis shoes for a wheelchair after doctors diagnosed him with ALS.“I’ve run for years and I run because it is something I’m good at,” he said.

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Like Steve Gleason, use your voice for change | Editorial-CONGRESS APPROVED

Like Steve Gleason, use your voice for change | Editorial-CONGRESS APPROVED | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Early Friday morning Congress approved the Steve Gleason Enduring Voices Act. It makes coverage by Medicare and Medicaid of speech-generating technology a permanent benefit.
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TEAM GLEASON to fund Critical Voice Banking for pALS through ModelTalker

Team Gleason to fund Critical Voice Banking for pALS through ModelTalker

 

This technology will allow those living with ALS to continue

using their own voice to communicate

New Orleans, LA

- January 31, 2018 - Team Gleason is excited to announce that all people living with ALS in the United States who would like to “bank”their voice to use after they have lost the ability to speak can do so at no cost to them through a partnership with ModelTalker starting tomorrow.

 

Steve Gleason had the opportunity to create his own synthetic voice through the process of voice banking when he was first diagnosed with ALS in 2011. Steve’s motto was and has

always been that “until there is a medical cure for ALS, I believe technology can act as a cure.”

Steve believes that with the availability of the correct technology, equipment, and sense of purpose, it is possible for ALS patients to live for decades.

 

FOLLOW LINK for Additional Info:

http://www.teamgleason.org/wp-content/uploads/2018/01/Model-Talker-Press-Release-6.pdf

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Super Bowl surprise for Lakeville man with ALS - No White Flags!

Super Bowl surprise for Lakeville man with ALS - No White Flags! | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

LAKEVILLE, Minn. – A Lakeville man with months to live gets a surprise of a lifetime from a person who knows exactly what he’s going through.

There are people who talk about a bucket list and those who live it; Greg Gelhorn is the latter.

“Greg's vacations aren't vacations, they are adventures,” said Derek Fessler, Greg’s brother-in-law....................................

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Live Like Lou – Phi Delta Theta is Committed to the Fight Against Lou Gehrig’s Disease – Phi Delta Theta Fraternity

Live Like Lou – Phi Delta Theta is Committed to the Fight Against Lou Gehrig’s Disease – Phi Delta Theta Fraternity | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Exploring opportunities to make a multi-year, multi-million dollar pledge to a leading ALS research center in the United States will be an initial focus, similar to what LiveLikeLou executed with the LiveLikeLou Center for ALS Research at the University of Pittsburgh. Patient care and.............................................

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Pfizer drug Co., pocketing a big tax cut from Trump, will end investment in Alzheimer's and Parkinson's research

Pfizer drug Co., pocketing a big tax cut from Trump, will end investment in Alzheimer's and Parkinson's research | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Despite promises that the big GOP corporate tax cut would lead to more corporate investment, Pfizer is steering $10 billion to its shareholders and ending its investment in Alzheimer's and Parkinson's research...............

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ALS Researchers Find Cell Stress Unleashes Downward Spiral of Toxic Protein Production

ALS Researchers Find Cell Stress Unleashes Downward Spiral of Toxic Protein Production | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it

Cell stress, such as a viral infection, may trigger the production of faulty proteins from the C9orf72 gene, a leading contributor of amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD), say researchers at the University of Michigan.

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Dwight Clark’s pals shower him with love and laughs

Dwight Clark’s pals shower him with love and laughs | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
The men who were there Sunday - the 49ers from 1981, the franchise's first Super Bowl season - love to talk about "The Catch," to recall it fondly, but there is an almost unspoken fear factor.

What if it never happened? What if Joe Montana's fall-away pass does not thread that cosmic needle? What if Dwight Clark does not bound off that invisible trampoline and snag the ball with his fingertips?

Because of everything that The Catch set in motion - all those Super Bowl wins! - it's scary to think what would have happened i
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Remembering Chris Rosati, who spread happiness while battling ALS

Remembering Chris Rosati, who spread happiness while battling ALS | #ALS AWARENESS #LouGehrigsDisease #PARKINSONS | Scoop.it
Chris Rosati's journey came to an end this week. He died of ALS at just 46 years old
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