For anyone with a life-changing condition, the choices you make in telling (or not telling) others about your diagnosis are a big deal. There can be both benefits and risks to openly discussing your condition, whether it’s on a website, at work or amongst friends. To find out more, we conducted a poll amongst 3,858 patients with 10 different conditions, including ALS/PLS/PMA (N=429), Multiple Sclerosis (N=436), Parkinson’s Disease (N=580), HIV (N=137), Mood Conditions (N=513), Fibromyalgia (N=1,031), Chronic Fatigue Syndrome / ME (N=129), Epilepsy (N=347), and Organ Transplants (N=256).
How openly have you shared your diagnosis with various people in your life? This was the focus of the poll. We asked you to answer this question across seven different networks, including your immediate family, extended family, neighbors, work/school peers, friends from childhood, current circle of friends, and friends/followers on social networking sites such as Facebook and Twitter.