Breast Cancer and Healing ~ The Pink Paper
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Breast Cancer and Healing ~ The Pink Paper
Breast cancer prevention and healing news, information and inspiration for THRIVERS of strength & spirit. The Pink Paper is your online source of HOPE. Be empowered. Say "Yes" to Health, Happiness and Hope.
Curated by Natalie Palmer
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All About Us - Advanced Breast Cancer Community

All About Us - Advanced Breast Cancer Community | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"The global Count Us, Know Us, Join Us survey found that women with advanced breast cancer (ABC) are looking for resources specific to their needs. To help address this, the Count Us, Know Us, Join Us program is launching the All About Us magazine, a resource tailored specifically for the advanced breast cancer community."


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Natalie Palmer's insight:

This is another magazine developed by a big pharma company. Do we really need another???

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Curated by A4BC.ORG's curator insight, September 18, 2013 12:14 PM

Here is a magazing with specific resources dedicated to the advanced breast cancer community.

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Watch "IOM: Something Alarming Has Happened to Cancer Care" Video at Haymarket: Chemotherapy Advisor

Watch "IOM: Something Alarming Has Happened to Cancer Care" Video at Haymarket: Chemotherapy Advisor | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"In this video, Peter B. Bach, MD, Center for Health Policy and Outcomes, Memorial Sloan-Kettering Cancer Center, discusses the findings of the recent Institute of Medicine (IOM) Report: Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis (www.iom.edu/qualitycancercare)."

 

 


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Curated by A4BC.ORG's curator insight, September 18, 2013 2:17 PM

Dr. Bach talks about the high costs of cancer care and how difficult it is for the cancer patient to afford medicines, tests and everything that goes with cancer care.

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It Is Time to Work Together!

It Is Time to Work Together! | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Only by working together will we ever be able to achieve the overriding goal we all share -- a future without breast cancer!

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Yes, it is time for us all to work together!

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Curated by A4BC.ORG's curator insight, September 16, 2013 12:30 PM

This article is so great. I reblogged it and am putting it here too. 

Maria Fowler's comment, October 1, 2013 8:18 PM
Time to work together, I am open to partnering with others on my website. www.metaplasticbc.com
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Pink cement truck raising awareness & money for breast cancer treatment | wcsh6.com

Pink cement truck raising awareness & money for breast cancer treatment | wcsh6.com | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"LIMERICK, Maine (NEWS CENTER) -- You may have seen it driving around town, in a parade, or recently at the Susan G. Komen Race For the Cure: a giant pink cement truck.

It's owned by the company F.R. Carroll, Inc., and everywhere it goes it raises eyebrows, and awareness for breast cancer; a cause that hits home for the company.

They say the truck attracts plenty of attention, and people often stop to ask more about."


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Curated by A4BC.ORG's curator insight, September 12, 2013 12:57 PM

 Oh no! How absurd. The sad thing is probably that they think they are doing a great service.

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Think Before You Pink »

Think Before You Pink » | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

With Breast Cancer Action’s Think Before You Pink® Toolkit, you’ll get the resources, information, and tools you need to:

 

take action to hold pinkwashing corporations accountable; deepen your understanding of the politics of breast cancer; ask questions before buying pink ribbon productshelp others learn the truth about breast cancer and pink ribbon marketing.

 


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Natalie Palmer's insight:

We've definitely been "pink washed." There's plenty of breast cancer awareness, now we need prevention, prevention, prevention.

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Curated by A4BC.ORG's curator insight, September 9, 2013 1:40 PM

This is a great kit to help understand "pinkwashing", the truth about bresat cancer and pink ribbon marketing.

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House Call: Myths and Facts About Pain and Cancer

House Call: Myths and Facts About Pain and Cancer | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"About 7 in 10 cancer patients experience pain at some point during cancer treatment, but some patients are hesitant to take medicine for their pain—often because they have been misinformed.

The following are common myths—and the facts that prove them wrong—about cancer pain and its treatment.

MYTH: All cancer patients live in pain.
FACT: Most cancer-related pain can be treated. Doctors can prescribe narcotics (such as morphine, fentanyl, or hydrocodone) and anti-inflammatory, antiepileptic, and antidepressant drugs to relieve pain. These medicines are available in many forms such as pills, liquids, and patches. If medicine alone does not work, nondrug treatments such as massage, hypnosis, and breathing and relaxation exercises can help. For patients with pain that cannot be treated with medicine, other treatments like radiation therapy, nerve blocks, and surgery are sometimes used to relieve pain. "


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Natalie Palmer's insight:

Good to know.

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Curated by A4BC.ORG's curator insight, September 11, 2013 1:40 PM

This article is really helpful to anyone experiencing pain from cancer.

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Quest to solve breast cancer - Albany Times Union

Quest to solve breast cancer - Albany Times Union | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Quest to solve breast cancer
Albany Times Union
Rensselaer. Notions of the Capital Region as a scientific Smallbany frustrate Douglas Conklin.
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New Survey on MBC Symptom Control

New Survey on MBC Symptom Control | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"MBCN urges you to participate in this important survey—the MBC Symptom Control Survey, designed by respected, long-time metastatic breast cancer advocate Musa Mayer.

If you are living with metastatic breast cancer, please take part in this brief survey about how you and your treatment team are dealing with the symptoms and side effects you have from your metastatic breast cancer and its treatments.

The Survey results will be featured in a presentation at ABC2, the Advanced Breast Cancer Second International Consensus Conference, to be held in Lisbon, Portugal, November 7-9, 2013, and shared on the  AdvancedBC.org  website immediately after the conference."


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Natalie Palmer's insight:

If you are living with metastatic breast cancer, the MBCN is looking for you to take part in a brief survey about how you and your treatment team are dealing with the symptoms and side effects you have from your metastatic breast cancer and its treatments...

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Upcoming research to be presented at the 2013 Breast Cancer Symposium | Science Codex

Upcoming research to be presented at the 2013 Breast Cancer Symposium | Science Codex | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"SAN FRANSISCO, CA – Five additional studies of note are among those that will be presented at the 2013 Breast Cancer Symposium, taking place September 7-9, 2013 at the San Francisco Marriott Marquis in San Francisco, California. Two studies examine cognitive function in women who undergo treatment for early-stage breast cancer; a third evaluates impact of tumor genotyping on clinical trial enrollment; and the final two evaluate the outcomes of different treatment approaches."

 

 


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Curated by A4BC.ORG's curator insight, September 7, 2013 2:21 PM

Abstracts metioned.

.

Saturday, September 7

Abstract #48: Receptor status change from primary to residual breast cancer after neoadjuvant chemotherapy (NCT) and analysis of survival outcome.

See: http://breastcasym.org/content/119434-135

Abstract # 55: Ten-year outcomes of accelerated partial breast irradiation compared with whole breast irradiation: A matched-pair analysis.

See: http://breastcasym.org/content/119521-135


Sunday, September 8 Presentations

Abstract # 105: Prospective study of cognitive function (cog fcn) in women with early-stage breast cancer (BC): Relationship between perceived and measurable cognitive deficits.

See: http://breastcasym.org/content/119651-135

Abstract # 104: Prospective study of cognitive function (cog fcn) in women with early-stage breast cancer (ESBC): Predictors of cognitive decline.

See: http://breastcasym.org/content/119653-135

Abstract # 145: Impact of routine tumor genotyping on enrollment in targeted therapy trials for metastatic breast cancer (MBC): 4-year review.

See: http://breastcasym.org/content/119609-135



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How to Avoid "Catching" a Bad Mood

How to Avoid "Catching" a Bad Mood | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

A recent University of Notre Dame study of 103 pairs of roommates found that negative thinking patterns can be passed from person to person, just like the flu.

 


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The BioSync Team's curator insight, September 3, 2013 10:46 AM

5 tips to become depression-proof and avoid catching the "bad mood' flu ... and, for the really good news, happiness is contagious too!

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Living Amidst the Potential Late Effects of Cancer Treatment

Living Amidst the Potential Late Effects of Cancer Treatment | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Niki Barr, PhD addresses two realities that impact the life of a survivor: the unknown and uncertainty regarding late effects offering tools to help.

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Natalie Palmer's insight:

Things to think about after cancer treatment...

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Curated by A4BC.ORG's curator insight, August 26, 2013 1:45 PM

This is a great article that addresses how to approach the late effects of breast cancer by using wonderful techniques to help deal with all of the changes that happen as a result of treatment.

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Broccoli: 6 Reasons to Eat This Healthy Common Superfood (+ Recipes!)

Broccoli: 6 Reasons to Eat This Healthy Common Superfood (+ Recipes!) | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Welcome Green Monsters! One Green Planet is your online guide to making conscious choices that help people, animals and the planet. (RT @OneGreenPlanet: #Broccoli: 6 Reasons to Eat This Healthy Common #Superfood (+ #Recipes!

Via Romeo Mascardo
Natalie Palmer's insight:

Cruciferous vegetables, like broccoli, have been shown to reduce adverse effects of estrogen and help to prevent pre-cancerous cells from developing into cancerous tumors.

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Breast Cancer Risk & Its Relationship with HRT, BMI, & Breast Density

Breast Cancer Risk & Its Relationship with HRT, BMI, & Breast Density | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Breast cancer risk associated with use of hormone replacement therapy (HRT) among postmenopausal women was variable when analyzed by race/ethnicity, body mass index (BMI), and breast density, according to a new study published September 3 in the...

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Graham Player Ph.D.'s curator insight, September 4, 2013 3:29 AM

Hormone replacement therapy (HRT) has been previously reported as associated with increased risk of breast cancer. A new study published in the Journal of the National Cancer Institute has analyzed the relationships between hormone replacement therapy (HRT), body mass index (BMI), and breast density.

Reported findings indicate:
- A greater than 20% increased risk in breast cancer when associated with HRT use among white women and Hispanic women, but not black women
- HRT use was more strongly associated with breast cancer risk in women with low or normal BMI, but no association was observed among women with a high BMI
- Women with denser breasts had an increased likelihood of breast cancer among those who reported HRT use
- HRT use was not associated with breast cancer for women with high BMI with low breast density
- HRT use was associated with a statistically significant higher risk of breast cancer for women with low or normal BMI and high breast density

Comments have been made that these findings could indicate HRT may be used for some women without increasing breast cancer risk, and could be used to help identify women who may use HRT to relieve postmenopausal symptoms without increasing their risk of breast cancer. However can only be speculation at this stage, as details on HRT type and duration of use were not available in the study.

Tambre Leighn's curator insight, September 7, 2013 2:51 PM

Yet more evidence that personalized care MUST be the approach and survivors and caregivers need to be informed and ask the questions from a "how does this apply to me".  Even those with similar diagnoses can have completely different responses to treatment.  Know your body and insist that your uniqueness be factored into medical decisions.

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Watch "Breast Cancer & African American Women" Video at oncologynurseadvisor

Watch "Breast Cancer & African American Women" Video at oncologynurseadvisor | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Worta McCaskill-Stevens, MD, Program Director of the Minority-Based Community Clinical Oncology Program, at the National Cancer Institute (NCI), speaks to African American women about what they need to know about breast cancer and breast cancer...

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Natalie Palmer's insight:

National Cancer Institute's, De. Worta McCaskill-Stevens, Director of the Minority-Based Community Clinical Oncology Program speaking to African American women about breast cancer. Read more here...

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Diagnosis and Treatment of Lymphedema After Breast Cancer

Diagnosis and Treatment of Lymphedema After Breast Cancer | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

 

OBJECTIVE:

To examine factors associated with variations in diagnosis and rehabilitation treatments received by women with self-reported lymphedema resulting from breast cancer care.

DESIGN:

A large, population-based, prospective longitudinal telephone survey.

SETTING:

California, Florida, Illinois, and New York.

PARTICIPANTS:

Elderly (65+ years) women identified from Medicare claims as having had an incident breast cancer surgery in 2003.

INTERVENTIONS:

Not applicable.

MAIN OUTCOME MEASURES:

Self-reported incidence of lymphedema symptoms, formal diagnosis of lymphedema, treatments for lymphedema.

RESULTS:

Of the 450 breast cancer survivors with lymphedema who participated in the study, 290 (64.4%) were formally diagnosed with the condition by a physician. An additional 160 (35.6%) reported symptoms consistent with lymphedema (ie, arm swelling on the side of surgery that is absent on the contralateral arm) but were not formally diagnosed. Of those who reported being diagnosed by a physician, 39 (13.4%) received complete decongestive therapy that included multiple components of treatment (ie, manual lymphatic drainage, bandaging with short stretch bandages, the use of compression sleeves, skin care, and remedial exercises); 24 (8.3%) wre treated with manual lymphatic drainage only; 162 (55.9%) used bandages, compression garments, or a pneumatic pump only; 8 (2.8%) relied solely on skin care or exercise to relieve symptoms; and 65 (22.4%) received no treatment at all. Multivariate regressions revealed that race (African American), lower income, and lower levels of social support increased a woman's probability of having undiagnosed lymphedema. Even when they were formally diagnosed, African American women were more likely to receive no treatment or to be treated with bandages/compression only rather than to receive the multimodality, comprehensive decongestive therapy.


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Curated by A4BC.ORG's curator insight, September 19, 2013 11:44 AM

CONCLUSIONS:

Lymphedema is a disabling chronic condition related to breast cancer treatment. Our results suggest that a substantial proportion of persons reporting symptoms were not formally diagnosed with the condition, thereby reducing their opportunity for treatment. The variation in rehabilitation treatments received by women who were formally diagnosed with the condition by a physician suggests that lymphedema might not have been optimally addressed in many cases despite the availability of effective interventions.

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The Organic Center  |   7 Simple Steps to Save on Organic

The Organic Center  |   7 Simple Steps to Save on Organic | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

Organic food production methods promote biodiversity, the biological cycling of nutrients, and plant and animal health. Certified organic farmers may not use toxic synthetic pesticides, artificial fertilizers, and unnecessary hormones or antibiotics. Instead, they use practices that restore, maintain, and enhance soil and ecosystem health. GMOs, artificial ingredients, or trans fats may not be used.


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The BioSync Team's curator insight, September 16, 2013 6:57 PM

We always check our favorite organic products websites for coupons and it's amazing how this simple savings routine really adds up over time.


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Kirk Fontaine's comment, September 17, 2013 9:39 AM
thanks for posting Biosnyc , I have a friend who is a newly diagnosed diabetic
The BioSync Team's comment, September 17, 2013 11:03 AM
Kirk, Life Extension Foundation is a very good resource links for products, articles and medical abstracts on Diabetes:
http://www.lef.org/search/products.aspx?q=diabetes
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Schoolgirl banned from the classroom because her hair is too short after she shaved it off to raise £1,000 for charity

Schoolgirl banned from the classroom because her hair is too short after she shaved it off to raise £1,000 for charity | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"Schoolgirl banned from the classroom because her hair is too short after she shaved it off to raise £1,000 for charity

Charlotte Duggan, 12, shaved off her long hair to raise money for Breast Cancer CampaignTeachers banned her from class and put her in isolation for two daysShe was inspired to complete the fundraising stunt by her grandmother's successful battle against the diseaseBut headmistress insists pupils were warned about drastic styles before summer holiday


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Natalie Palmer's insight:

Punished for doing something nice for a breast cancer charity? This is sad.

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Curated by A4BC.ORG's curator insight, September 12, 2013 1:33 PM

This is pretty sad that they would kick this girl out of school beacuse she cut her hair very short for a Breast Cancer Campaign. 

Pacific Cove's curator insight, September 12, 2013 4:55 PM

This is a perfect example of an archaic procedure and educator.  The more important news is her grandmother's successful battle against Cancer. 


She adds: 'I couldn’t believe it when she told me what had happened. She should be proud of what she has done. She should be able to hold her head up high.  'I think it’s absolutely ridiculous that they made her feel like she had done something wrong.'




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Identifying Indolent vs Potentially Aggressive DCIS, More Research Needed

Identifying Indolent vs Potentially Aggressive DCIS, More Research Needed | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

"Cancer Network: Dr. Boolbol, why is the topic of overdiagnosis of breast cancer being featured as the welcome session at this year’s Breast Cancer Symposium? How large is the problem?


Dr. Boolbol: It is a very interesting topic that has really gained a lot of attention in the media. We felt that since ASCO is the leading cancer organization that this would be a good place to cover this topic and really agree or disagree with what is out there in the news today.

As far as how large a topic and problem this is, I think that we have to remember several things. Number one, this is a highly controversial topic within the medical world, within the cancer world, and within the world at large. This whole topic of overdiagnosis has been going on and been discussed for years, and remains very controversial."

 


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Curated by A4BC.ORG's curator insight, September 10, 2013 12:15 PM

Dr. Boolbol summed up the issue very well by sayiing, "this remains a very controversial issue. Not all physicians in the cancer world agree on the term “overdiagnosis” or even what it means. The major take-away message is that we need more research in this area. Until we have a way or a definitive test or definitive markers to determine which DCIS is indolent and will not create any sort of problem and which DCIS will go on to potentially create a problem, it is difficult to differentiate who we treat and who we do not treat.

And that is why the discussion between the physician and the patient is so important. 


From #BCS13

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Exercise May Be the Most Effective Weapon Against Aging - HealthNews

Exercise May Be the Most Effective Weapon Against Aging - HealthNews | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Exercise May Be the Most Effective Weapon Against Aging
HealthNews
Keeping active may be the secret to staying young for both mice and men.
Natalie Palmer's insight:

Exercising for at least 150 minutes a week has proven health benefits.

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New test to detect early stages of breast cancer

New test to detect early stages of breast cancer | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
According to the American Cancer Society, about 232,340 new cases of invasive breast cancer will be diagnosed in women in 2013, and about 39,620 women will die from the disease.

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Natalie Palmer's insight:

This article is about the new teat called the Mammary Aspiration Specimen Cytology Test System (MASCT). 

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Curated by A4BC.ORG's curator insight, September 5, 2013 5:37 PM

Here's another story about the new test to detect breast cancer called the Mammary Aspiration Specimen Cytology Test System (MASCT). The test is non-invasive and painless. It finds the changes that lead up to breast cancer, so it catches these changes very early. It involves a heating pad and a homemade breast pump. According to Dr. Steven Quay decisions could be made about treatment very early, For examploe if the test shows "hyperplasia" one can make changes in their lifestyle to avoid this becoming breast cancer.This test notes early changes in the cells of the breast. It for the population of women in their 20's and 30's. I am sure we will hear more about it as well as articles of concern for overtreatment. 





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ASCO: Few Women Accurately ID Their Breast Cancer Risk --Doctors Lounge

ASCO: Few Women Accurately ID Their Breast Cancer Risk --Doctors Lounge | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

" Most women overestimate or underestimate their risk of breast cancer, with fewer than one in 10 accurately estimating their risk, according to a study to be presented at the American Society of Clinical Oncology's 2013 Breast Cancer Symposium, held from Sept. 7 to 9 in San Francisco.

Jonathan D. Herman, M.D., from Hofstra North Shore-LIJ Medical School in New Hide Park, N.Y., and colleagues surveyed 9,873 women from 21 mammography centers on Long Island to compare their perceived breast cancer risk with their calculated risk. Patients were questioned regarding their demographics, personal risk factors, and their perceived risk.

The researchers found that 9.4 percent of women accurately estimated their risk, 44.7 percent underestimated their risk, and 45.9 percent overestimated their risk. For African-Americans, 8.7 percent were in line with risk, 57.6 percent underestimated their risk, and 33.7 percent overestimated their risk. For Asian women the corresponding figures were 10.2, 58.8, and 31 percent; for Hispanics the figures were 8.9, 50.4, and 40.8 percent; and for Caucasians the figures were 10.2, 38.6, and 51.3 percent."


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15 Beliefs That Are Keeping You Unhappy

15 Beliefs That Are Keeping You Unhappy | Breast Cancer and Healing ~ The Pink Paper | Scoop.it

We often tell ourselves stories about our lives, our goals and our dreams. We put so much urgency into these stories that often they morph into rigid rules. This habit can hold us back from embracing change and growth.


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The BioSync Team's curator insight, September 7, 2013 10:42 AM

I would add a strong book recommendation ... it's a book that I read in the late sixties and am reading/enjoying it again ... 3 Magic Words!


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Five Ways To Never Be Stressed Again - Dr. Mark Hyman

Five Ways To Never Be Stressed Again - Dr. Mark Hyman | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Everybody feels stress and knows it intimately, but very few of us think about what stress actually is. Stress is a thought. That’s it. No more, no less.
Natalie Palmer's insight:

Who isn't looking for ways to never be stressed again! Dr. Hyman shares his insights in a way that's accessible for all.

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Making Our Voices Heard “Above the Clamor of Vested Interest” | Breast Cancer Action

Making Our Voices Heard “Above the Clamor of Vested Interest” | Breast Cancer Action | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
"Breast Cancer Action has a long history of protesting toxic industries and practices that increase our risk of breast cancer, so Russell-Jones’ analysis of how the public, politicians, and industry behave in a debate about regulating toxic practices sounds very familiar. The task for advocates is to learn from our history and “make our voices heard above the clamor of vested interest.”- See more at: http://bcaction.org/2013/08/21/making-our-voices-heard-above-the-clamor-of-vested-interest/#sthash.ptfnYbNa.dpuf ;
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Natalie Palmer's insight:

You can take action right now to help stop breast cancer before it starts:

Ask your Senators to support the strongest possible regulation of toxic chemicals in our everyday products. Tell President Obama to reject a proposal that would allow private companies to drill and frack for oil and gas on public lands.  Follow the links on the page to send a pre-written letter to the President and your representatives. 
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Curated by A4BC.ORG's curator insight, August 29, 2013 6:36 PM
Follow the links on the page to send a pre-written letter to the President and your representatives. 
Tambre Leighn's curator insight, September 7, 2013 2:49 PM

Advocacy becomes a path for many whose lives are affected by cancer.  Investing your energy in creating healthy change through advocacy can be a great way to channel the anger and frustration survivors and caregivers sometimes feel about a diagnosis or how treatment and survivorship is impacting their lives.

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Exposed - The mammogram myth and the pinkwashing of America

Exposed - The mammogram myth and the pinkwashing of America | Breast Cancer and Healing ~ The Pink Paper | Scoop.it
Breast cancer may be America’s favorite cause, but why are so few people talking about how to prevent it?

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Curated by A4BC.ORG's curator insight, September 3, 2013 4:46 PM

This article has lots of intersting information about questioning mammograms, pinkwashing, toxic chemicals, cosmetic companies with toxic chemicals known to cause breast cancer in their cosmetics, and drug companies making toxic chemicals while selling drugs like tamoxifen to treat breast cancer. It especially looks at trying to think more about prevention and also looks at companies that profit from breast cancer while giving money to help breast cancer.