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Latest Facts & Figures Report | Alzheimer's Association

Latest Facts & Figures Report | Alzheimer's Association | The patient movement | Scoop.it
Get the latest Facts & Figures report, providing annual statistics on the impact of Alzheimer's disease and dementia. Learn how many Americans are living with the disease, economic and caregiver burden, death rate and other key measures.
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June, is Alzheimer's & Brain Awareness Month.
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Impatient patients demand drug fix

Impatient patients demand drug fix | The patient movement | Scoop.it
Two major groups surprised industry with their specific demands for “a European approach to the market.”
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Patients take the initiative on drug pricing

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EuroMedLab 2015: Placing patients in charge of their health | MedTech Views

EuroMedLab 2015: Placing patients in charge of their health | MedTech Views | The patient movement | Scoop.it
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Self-care in the making 

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Five Rude Emails You Send Every Day

Five Rude Emails You Send Every Day | The patient movement | Scoop.it
Even the most likeable and well-mannered among us can still look like jerks in an email. Writing an email that comes across just like you do in person is a fine art. During a conversation, you adjust your tone, facial expression, gestures and posture in order to fit the mood of [...]
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Important key messages here when emails patient groups

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Help me to improve access for people with MS

I just donated to the MS International Federation, to improve access for people with MS around the world. Be a part of this. Donate too.
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MS and employment - people speak about it 

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Navigating Patient Assistance Programs - Hemophilia Federation of America

Navigating Patient Assistance Programs - Hemophilia Federation of America | The patient movement | Scoop.it
With the uncertainty of healthcare, many in the bleeding disorders community are concerned about the future of cost and access to factor products. Co-payments and out-of-pocket expenses can be devastating on a family’s budget. Many manufacturers of factor products have co-pay assistance programs that can provide a source of relief. Manufacturer Co-Pay Programs Manufacturer Co-pay/Co-insurance …
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More patient groups should so this!!

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BooknHeal.com - Get help.

BooknHeal.com - Get help. | The patient movement | Scoop.it
BooknHeal aims to connect patients with mental health experts worldwide. We are creating a solution that makes it easy to get help.
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What a great idea a crowd source mental health  network 

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Experts by Experience 2015: A compilation of patients’ stories

In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an…

Via Tracy Walsh
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PatientView's curator insight, March 6, 2:28 PM

WE needs thousands and thousands of these 

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'Dementia village' inspires new care - CNN.com

'Dementia village' inspires new care - CNN.com | The patient movement | Scoop.it
A Dutch dementia facility where carers act as shopkeepers to keep an eye on residents attracts global interest.
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The Dutch dementia vilaage 

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How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room

How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room | The patient movement | Scoop.it
I walked over, put my arm around her, put my head against her head and said -- Thursday. Then I give her a little squeeze.
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How to talk to someone with Alzheimer's --most helpful

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How Your Patients Use Social Media

How Your Patients Use Social Media | The patient movement | Scoop.it

How Your Patients Use Social Media

It seems as if healthcare providers have only recently considered using social media to connect with their patients. This might be due to many considerations, not the least of which is protecting patient confidentiality. Social media is a great marketing tool that will help build your practice and help your clients. Learn how your patients are using different social platforms and understand how your practice can reach out.

Growth of Social Media

According to the Pew Research Center, Facebook is the most popular site, (as of September 2014). Facebook is no longer experiencing the growth surge that it did just a few years ago, but the user is engaging with it more than they used to. LinkedIn, Instagram, and Pinterest are seeing significant growth and gaining more popularity among adults who use social media.

Who Is Using Which Platform?

Over 52 percent of adults who go online use two or more social media sites. Around 56 percent of adults 65 and older who are online use Facebook. In the younger crowd, ages 18-29, 53 percent of the ones who go online are on Instagram. When it comes to Pinterest, you will reach more women than men. LinkedIn is growing among the college-educated. Around 50% of the internet users who have higher education backgrounds use it.

Facebook is by far the most popular platform, and it seems to be home base for many people. Around 70 percent of individuals who use check in daily at least once. Just a year ago, that figure was only 63 percent. The number of people who use Facebook hasn’t changed, but how much they use it has. About 36 percent of Twitter users check in daily, but this is a 10 percent drop from last year. LinkedIn has more users, but they are not logging on with more frequency.

Using Social Media as a Tool

As a healthcare provider, you do need to be cautious about how you use social media in your practice. However, when used appropriately and with forethought, it is a good marketing tool. You can also increase your patient’s awareness of health issues that they may forget. A quick reminder to come in a get a flu shot during the season benefits the community and keeps your patients healthy.

Develop a social media strategy and risk management plan now to fully utilize the capability of it, while maintaining the legal requirements for your business. This technology has a place in your marketing plan, but you do need to proceed wisely to get the full benefits. Reach out to your patients and build your practice wisely.

 



Via Plus91
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Social media has scaled up patient empowerment by reinforcing networking

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Veena Lingam's curator insight, March 9, 11:46 PM

Responding to comments in a timely manner becomes important due  to ethical reasons contributimg to  ongoing monitoring overheads presenting stumbling blocks. 

Tiziano Galli's curator insight, March 10, 5:19 PM

Una volta deciso di "apparire" professionalmente sul web - magari aprendo un blog - e di acquisire una dimensione "sociale" attraverso  l'apertura di "profili personali/professionali" o partecipando alle community, ogni medico/sanitario dovrà, necessariamente, porsi la domanda successiva:

 

Su quale social posizionarsi?

 

Non potrà, in prima battuta, esimersi dal considerare Facebook,  perchè è la maggiore vetrina espositiva per la > parte degli utenti in rete, ma non dovrà limitarsi a questo. 

 

Dovrà prendere in considerazione il suo target specifico e ragionare su quali siti si concentra con maggiore frequenza.

 

Facciamo l'esempio di un ginecologo e la popolazione femminile. Egli potrebbe scoprire che le donne giovani e di una certa età frequentano Social differenti e quindi aprire profili, oltre che su FB anche su Instagram oppure su Tumblr.

 

Non mi dilungo per non complicare il discorso. Leggete questo articolo che tocca proprio l'aspetto della differente distribuzione dei target nei vari social. Ne ho accennato anche io nel mio libro "Medici Pazienti e social media"

 

Costruire una propria identità digitale fa parte di una sensibilità più spiccata nelle nuove generazioni. Frutto, in special modo, della capacità di "ascolto" e di analisi dei target e dei loro comportamenti.

 

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4 things you need to know about the sweeping FDA reform bill Congress just proposed

4 things you need to know about the sweeping FDA reform bill Congress just proposed | The patient movement | Scoop.it
The 21st Century Cures initiative has bipartisan support. And it could be the biggest U.S. healthcare shakeup since Obamacare, transforming core elements of the regulatory and clinical trials pathway.
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US legislation putting patients at the heart of R&D

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#Fight4Treatment with David Suchet - YouTube

Families affected by Tuberous Sclerosis and Morquio Disease call for urgent access to medicines to protect health and save lives on behalf of hundreds of pat...
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Should have circulated earlier 

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Le bracelet Google qui détecte le cancer

Le bracelet Google qui détecte le cancer | The patient movement | Scoop.it

Aujourd’hui, le cancer est responsable de plus de 150 000 décès par an. Pourtant, un dépistage précoce permettrait d’augmenter les chances de guérison.

Cela fait un petit moment que Google investit dans la sante via son laboratoire Google X, spécialisé dans les technologies de rupture. La firme de Mountain View travaille d’ailleurs sur un bracelet et une pilule capables de détecter les cellules cancéreuses qui circulent dans le corps. Le porteur du bracelet doit ingérer des nanoparticules qui circulent dans le sang, détectent les cellules cancéreuses et s’y agrippent. Elles émettent alors une fluorescence détectée par le bracelet. Ces nanoparticules et ces cellules cancéreuses circulent ensuite jusque sous le poignet de l’utilisateur, attirées par un aimant contenu dans le bracelet. Il devient ainsi possible de détecter si le corps contient des cellules cancéreuses.


Via Dominique Godefroy
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Physician 'aid in dying': California Medical Association removes opposition to bill

Physician 'aid in dying': California Medical Association removes opposition to bill | The patient movement | Scoop.it
Setting a nationwide precedent that might influence other states, the California Medical Association announced it has reversed its decades-long opposition to legislation that allows physicians to help seriously ill patients end their lives.
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A milestone in the right to die debate 

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accenture-patient-services-pharmas-best-kept-secret-research-note.pdf

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Not surprising 

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Be a part of National ALS Advocacy Day! - The ALS Association

Be a part of National ALS Advocacy Day! - The ALS Association | The patient movement | Scoop.it
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
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ALS DAY

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Online Transparency Tool - Hemophilia Federation of America

Online Transparency Tool - Hemophilia Federation of America | The patient movement | Scoop.it
When navigating the online ecosystem of the bleeding disorders community, it can be confusing as to which organizations run what site. While some organizations run pages with transparent naming, like HFA’s Facebook page, sometimes it’s not so clear. We developed this tool to shine a light on those pages and resources that may not have …
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How patient groups police drug industry transparency --

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EU Day of Solidarity between Generations - AGE Platform Europe

EU Day of Solidarity between Generations - AGE Platform Europe | The patient movement | Scoop.it
AGE Platform Europe is a European network of around 150 organisations of and for people aged 50+; representing directly over 28 million older people in Europe.
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April 29th when ages come together 

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​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
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Target: plaques (prevention)-  The amyloid precursor protein (APP) is normally broken down in the body by two enzymes (beta and gamma secretase) to amyloid beta (ABeta), which is sticky. Excessive amounts of ABeta form of plaques, that are found in the brains of people who have Alzheimer’s. There are at least five potential biological targets being investigated. BACE is just one. 

 

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​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
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The drug is funded by Eli Lilly

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Find World MS Day events

Find World MS Day events | The patient movement | Scoop.it
Find World MS Day events, whether they’re happening on your street or on the other side of the world
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World MS Day - Map now live 

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Experts by Experience 2015: A compilation of patients’ stories

In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an…
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WE needs thousands and thousands of these 

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How A Group Of Lung Cancer Survivors Got Doctors To Listen

How A Group Of Lung Cancer Survivors Got Doctors To Listen | The patient movement | Scoop.it
Lung cancer survivors who met online banded together to get an option they credited with helping them added to treatment guidelines used by cancer specialists.
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A case study of what happens when patients speak in volume 

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Preventing Deaths in Detention of Adults with Mental Health Conditions | Equality and Human Rights Commission

Preventing Deaths in Detention of Adults with Mental Health Conditions | Equality and Human Rights Commission | The patient movement | Scoop.it
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