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Melanoma Treatment Options: What is it Worth to Extend ONE Life? - YouTube

Stage IV melanoma patient, Patricia Garcia-Prieto shares her story and her struggle with stage IV melanoma -- and considers the cost benefit of extending her...
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How much is my life worth (to be worth saving)?

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Spotlight on Rheumatoid Arthritis (RA) Videos - YouTube

Spotlight on Rheumatoid Arthritis (RA) Videos - YouTube | The patient movement | Scoop.it
The videos were filmed as part of the Rheumatoid Arthritis Awareness Week held between 13 to 19 June 2016 to spread awareness of the condition and wha
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videos from people with RA

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Achieving universal health coverage through patient access

Achieving universal health coverage through patient access | The patient movement | Scoop.it
Access to healthcare is a basic human right and one of the fundamental principles of European health systems. Treatment should be timely and accessible to every patient who needs it, not only to those who can pay for it. Regrettably, this is not a reality for all.Patient access is a key priority for the European Patients’ Forum (EPF), and one of our strategic goals for 2014 - 2020. In our vision, health systems should enable equitable access to sustainable and high-quality healthcare for all patients.A Definition of Access from the Patients’ Perspective
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European Patients' Forum on access to medicines

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The fight against waste in health services at the center of the 10th European Day of Patients' Rights

The fight against waste in health services at the center of the 10th European Day of Patients' Rights | The patient movement | Scoop.it
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Civic patient groups fight medical wastage

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Cancer charities criticise NICE's 'last-century methodology' - PMLiVE

Cancer charities criticise NICE's 'last-century methodology' - PMLiVE | The patient movement | Scoop.it
PatientView's insight:

Once again patient groups and NICE clash

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World Down Syndrome Day 2016 - ITALY - #MyFriendsMyCommunity

Down Syndrome International presents a global video journey promoting inclusion of people with Down syndrome. "My Friends, My Community" features interview
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Andrew Herxheimer (4 November 1925 – 21 February 2016)

Andrew Herxheimer (4 November 1925 – 21 February 2016) | The patient movement | Scoop.it
Andrew Herxheimer was a champion of evidence-based medicine and founder of the Drugs and Therapeutics Bulletin.
PatientView's insight:

Thanks for all your support Andrew

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World Kidney Day advocates for access to prevention and treatment of kidney disease for all children worldwide

World Kidney Day advocates for access to prevention and treatment of kidney disease for all children worldwide | The patient movement | Scoop.it
Author: Luca Segantini, Executive director of the International Society of Nephrology Tomorrow, 10th of March, we celebrate World Kidney Day.
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Stop op bezuinigingen op patiëntenorganisaties

Stop op bezuinigingen op patiëntenorganisaties | The patient movement | Scoop.it
Minister Schippers en staatssecretaris Van Rijn van VWS zetten een rem op de bezuinigingen van patiënten- en gehandicaptenorganisaties
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Cutback for patient groups in the Netherlands

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A new educational toolbox on medicines research & development

www.eupati.eu - European patient groups and patient advocates are invited to use the toolbox to discover the latest educational resources, to educate and train patient…
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At last an explanation of what drug R&D is about for those who see it all as a black box

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We Love Life Diabetes

We Love Life Diabetes Building a community led self care toolkit together
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Loved their slogan

"When "I" is replaced with "We" even illness becomes wellness"

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PatientView study on biosimilars presented at European Commission workshop

PatientView study on biosimilars presented at European Commission workshop | The patient movement | Scoop.it
On 6 October 2015 the European Commission´s  Directorate General for Internal Market, Industry, Entrepreneurship and SMEs (DG GROW), organized a workshop on Access to and Uptake of Biosimilar Medicinal Products. The objective of the workshop were to gather all relevant interested parties in order to facilitate a multi-stakeholder exchange of information, experiences and reflection on…
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Annick Valentin Smith's curator insight, December 16, 2015 1:29 PM

SURVEY RESULTS :

Little awareness of biosimilars among patients

Little understanding of biosimilars among patients

Need for clear, understandable patient-focused information

Patient groups and internet are  the two most important sources of information for patients

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Junior doctors' strike: what do the experts think?

Junior doctors' strike: what do the experts think? | The patient movement | Scoop.it
Junior doctors are due to start a series of strikes starting on December 1st, with two days of full walk-out on December 8 and December 15th. The controversial plans for the first such action in the history of the NHS have sparked a wide range of views
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Patient Association on the forthcoming junior doc strike in UK

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Sarcoma UK joins with leading cancer charities to call for reform of NICE

Sarcoma UK joins with leading cancer charities to call for reform of NICE | The patient movement | Scoop.it
Sarcoma UK is one of 15 leading UK cancer charities that have today called on David Cameron to review the National Institute for Health and Care Excellence (NICE) appraisal process for new medicine
PatientView's insight:

More on the cancer charities and NICE

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Patient-centricity: Ghost in the machine - PharmaTimes Magazine May 2016

Patient-centricity: Ghost in the machine - PharmaTimes Magazine May 2016 | The patient movement | Scoop.it
In the complex machine of modern healthcare, until recently the patient has been a small cog. In this special in-depth feature, we ask stakeholders from across healthcare to share their insights on how engaging patients is transforming the industry - Magazine Article - Pharmatimes
PatientView's insight:

Good article...but I believe pharma patient group relationships are also about managing expectations... on both sides

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World Hepatitis Alliance supports UK member in fight for patient rights | World Hepatitis Alliance

World Hepatitis Alliance supports UK member in fight for patient rights | World Hepatitis Alliance | The patient movement | Scoop.it
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Another patient group clash with the NHS

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Take Action: For many patients and their families, advocacy... : Neurology Now

Take Action: For many patients and their families, advocacy... : Neurology Now | The patient movement | Scoop.it
An abstract is unavailable.
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MS International Federation to update the Principles for Quality of Life | MS International Federation

MS International Federation to update the Principles for Quality of Life | MS International Federation | The patient movement | Scoop.it
Collaborative work has begun to update the ‘gold standard’ for quality of life
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Is it an industry or a movement we are creating?

Is it an industry or a movement we are creating? | The patient movement | Scoop.it
In his Guardian blog yesterday, Dick Vinegar, asks a genuinely good question:  'Who is fighting the patient's corner?' He writes about his recent attendance at a Westminster Health Forum conference about Healthwatch, and voices concern that all we are doing is creating just another bureaucracy in the name of patients.  A thick, muddy, layer of…
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"But I do fear that we are at times in danger of creating an industry that reflects the interests of its managers and owners, rather than the social movement – a group of people with a common ideology who try together to achieve certain general goals – that I hear many people aspire too. " SImon's comment is something we all need to heed

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The patient’s view on brain imaging: European Federation of Neurological Associations | Blog

The patient’s view on brain imaging: European Federation of Neurological Associations | Blog | The patient movement | Scoop.it

The ESR spoke with Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA) about how her organisation supports patients with brain disorders and how well patients are informed about the role of radiology in...

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About EFNA

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THE GLOBAL JOURNAL

THE GLOBAL JOURNAL | The patient movement | Scoop.it
Everywhere, non-governmental organisations (NGOs) are changing the world; making it a better and more habitable place for everyone.
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Just came across this ... interesting how health features highly

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18 THINGS MENTALLY STRONG PEOPLE DO WITH FOUR SPORT PSYCHOLOGY HIGHLIGHTS | Portland Sport Psychology

18 THINGS MENTALLY STRONG PEOPLE DO WITH FOUR SPORT PSYCHOLOGY HIGHLIGHTS | Portland Sport Psychology | The patient movement | Scoop.it
Do you mentally rebound after a missed shot or poor first round?
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What a great summary of mental well-being has wider implications than just sport

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How a top Republican became a champion for the NIH

How a top Republican became a champion for the NIH | The patient movement | Scoop.it
Oklahoma Republican Tom Cole had little connection to health care policy before being appointed to lead a panel that funds medical research programs.
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AGE General Assembly and Annual Conference 2015 looked at a human-rights based approach to ensure dignified ageing - AGE Platform Europe

AGE General Assembly and Annual Conference 2015 looked at a human-rights based approach to ensure dignified ageing - AGE Platform Europe | The patient movement | Scoop.it
AGE Platform Europe is a European network of around 150 organisations of and for people aged 50+; representing directly over 28 million older people in Europe.
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"2016 may see more rights for patients ..

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