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Spread Awareness

Spread Awareness | The patient movement | Scoop.it
75 years ago Lou Gehrig delivered his famous farewell speech. Within two years, he died from ALS at age 37. Read his and other ALS stories at ALSA.org/75 to support cutting-edge research to find treatments and a cure for ALS.
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ALS awareness month

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EU Day of Solidarity between Generations - AGE Platform Europe

EU Day of Solidarity between Generations - AGE Platform Europe | The patient movement | Scoop.it
AGE Platform Europe is a European network of around 150 organisations of and for people aged 50+; representing directly over 28 million older people in Europe.
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April 29th when ages come together 

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​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
PatientView's insight:

Target: plaques (prevention)-  The amyloid precursor protein (APP) is normally broken down in the body by two enzymes (beta and gamma secretase) to amyloid beta (ABeta), which is sticky. Excessive amounts of ABeta form of plaques, that are found in the brains of people who have Alzheimer’s. There are at least five potential biological targets being investigated. BACE is just one. 

 

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​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
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The drug is funded by Eli Lilly

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Find World MS Day events

Find World MS Day events | The patient movement | Scoop.it
Find World MS Day events, whether they’re happening on your street or on the other side of the world
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World MS Day - Map now live 

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Experts by Experience 2015: A compilation of patients’ stories

In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an…
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WE needs thousands and thousands of these 

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How A Group Of Lung Cancer Survivors Got Doctors To Listen

How A Group Of Lung Cancer Survivors Got Doctors To Listen | The patient movement | Scoop.it
Lung cancer survivors who met online banded together to get an option they credited with helping them added to treatment guidelines used by cancer specialists.
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A case study of what happens when patients speak in volume 

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Preventing Deaths in Detention of Adults with Mental Health Conditions | Equality and Human Rights Commission

Preventing Deaths in Detention of Adults with Mental Health Conditions | Equality and Human Rights Commission | The patient movement | Scoop.it
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"Is anyone there?" Is your online health community a ghost town?

"Is anyone there?" Is your online health community a ghost town? | The patient movement | Scoop.it

Colleen Young writes: "If you want to build a thriving community, focus on the people, help them connect and get them talking. To be successful, a community needs activity."


Via Andrew Spong
PatientView's insight:

agree with andrew S an important lesson for e-communities

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Andrew Spong's curator insight, February 24, 9:04 AM

A great post from expert community management practitioner, Colleen Young. Make sure you don't miss the comments, too.

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Homeopathy, measles and the reign of unreason - FT.com

Homeopathy, measles and the reign of unreason - FT.com | The patient movement | Scoop.it
I read an angry new book this week. Edzard Ernst’s A Scientist in Wonderland alleges that his Exeter university unit, dedicated to research into complementary medicine, was closed because Prince Charles did not like its conclusions — particularly
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More patients need to be in the frontline says the FT

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Social networking patient expectations

As social networking is examined in the broader context of the health care field, and specifically the field of pharmacy, it is important to consider the persp…

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Experts by Experience 2015: A compilation of patients’ stories

In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an…

Via Tracy Walsh
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PatientView's curator insight, March 6, 2:28 PM

WE needs thousands and thousands of these 

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'Dementia village' inspires new care - CNN.com

'Dementia village' inspires new care - CNN.com | The patient movement | Scoop.it
A Dutch dementia facility where carers act as shopkeepers to keep an eye on residents attracts global interest.
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The Dutch dementia vilaage 

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How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room

How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room | The patient movement | Scoop.it
I walked over, put my arm around her, put my head against her head and said -- Thursday. Then I give her a little squeeze.
PatientView's insight:

How to talk to someone with Alzheimer's --most helpful

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How Your Patients Use Social Media

How Your Patients Use Social Media | The patient movement | Scoop.it

How Your Patients Use Social Media

It seems as if healthcare providers have only recently considered using social media to connect with their patients. This might be due to many considerations, not the least of which is protecting patient confidentiality. Social media is a great marketing tool that will help build your practice and help your clients. Learn how your patients are using different social platforms and understand how your practice can reach out.

Growth of Social Media

According to the Pew Research Center, Facebook is the most popular site, (as of September 2014). Facebook is no longer experiencing the growth surge that it did just a few years ago, but the user is engaging with it more than they used to. LinkedIn, Instagram, and Pinterest are seeing significant growth and gaining more popularity among adults who use social media.

Who Is Using Which Platform?

Over 52 percent of adults who go online use two or more social media sites. Around 56 percent of adults 65 and older who are online use Facebook. In the younger crowd, ages 18-29, 53 percent of the ones who go online are on Instagram. When it comes to Pinterest, you will reach more women than men. LinkedIn is growing among the college-educated. Around 50% of the internet users who have higher education backgrounds use it.

Facebook is by far the most popular platform, and it seems to be home base for many people. Around 70 percent of individuals who use check in daily at least once. Just a year ago, that figure was only 63 percent. The number of people who use Facebook hasn’t changed, but how much they use it has. About 36 percent of Twitter users check in daily, but this is a 10 percent drop from last year. LinkedIn has more users, but they are not logging on with more frequency.

Using Social Media as a Tool

As a healthcare provider, you do need to be cautious about how you use social media in your practice. However, when used appropriately and with forethought, it is a good marketing tool. You can also increase your patient’s awareness of health issues that they may forget. A quick reminder to come in a get a flu shot during the season benefits the community and keeps your patients healthy.

Develop a social media strategy and risk management plan now to fully utilize the capability of it, while maintaining the legal requirements for your business. This technology has a place in your marketing plan, but you do need to proceed wisely to get the full benefits. Reach out to your patients and build your practice wisely.

 



Via Plus91
PatientView's insight:

Social media has scaled up patient empowerment by reinforcing networking

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Veena Lingam's curator insight, March 9, 11:46 PM

Responding to comments in a timely manner becomes important due  to ethical reasons contributimg to  ongoing monitoring overheads presenting stumbling blocks. 

Tiziano Galli's curator insight, March 10, 5:19 PM

Una volta deciso di "apparire" professionalmente sul web - magari aprendo un blog - e di acquisire una dimensione "sociale" attraverso  l'apertura di "profili personali/professionali" o partecipando alle community, ogni medico/sanitario dovrà, necessariamente, porsi la domanda successiva:

 

Su quale social posizionarsi?

 

Non potrà, in prima battuta, esimersi dal considerare Facebook,  perchè è la maggiore vetrina espositiva per la > parte degli utenti in rete, ma non dovrà limitarsi a questo. 

 

Dovrà prendere in considerazione il suo target specifico e ragionare su quali siti si concentra con maggiore frequenza.

 

Facciamo l'esempio di un ginecologo e la popolazione femminile. Egli potrebbe scoprire che le donne giovani e di una certa età frequentano Social differenti e quindi aprire profili, oltre che su FB anche su Instagram oppure su Tumblr.

 

Non mi dilungo per non complicare il discorso. Leggete questo articolo che tocca proprio l'aspetto della differente distribuzione dei target nei vari social. Ne ho accennato anche io nel mio libro "Medici Pazienti e social media"

 

Costruire una propria identità digitale fa parte di una sensibilità più spiccata nelle nuove generazioni. Frutto, in special modo, della capacità di "ascolto" e di analisi dei target e dei loro comportamenti.

 

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4 things you need to know about the sweeping FDA reform bill Congress just proposed

4 things you need to know about the sweeping FDA reform bill Congress just proposed | The patient movement | Scoop.it
The 21st Century Cures initiative has bipartisan support. And it could be the biggest U.S. healthcare shakeup since Obamacare, transforming core elements of the regulatory and clinical trials pathway.
PatientView's insight:

US legislation putting patients at the heart of R&D

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#Fight4Treatment with David Suchet - YouTube

Families affected by Tuberous Sclerosis and Morquio Disease call for urgent access to medicines to protect health and save lives on behalf of hundreds of pat...
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Should have circulated earlier 

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Le bracelet Google qui détecte le cancer

Le bracelet Google qui détecte le cancer | The patient movement | Scoop.it

Aujourd’hui, le cancer est responsable de plus de 150 000 décès par an. Pourtant, un dépistage précoce permettrait d’augmenter les chances de guérison.

Cela fait un petit moment que Google investit dans la sante via son laboratoire Google X, spécialisé dans les technologies de rupture. La firme de Mountain View travaille d’ailleurs sur un bracelet et une pilule capables de détecter les cellules cancéreuses qui circulent dans le corps. Le porteur du bracelet doit ingérer des nanoparticules qui circulent dans le sang, détectent les cellules cancéreuses et s’y agrippent. Elles émettent alors une fluorescence détectée par le bracelet. Ces nanoparticules et ces cellules cancéreuses circulent ensuite jusque sous le poignet de l’utilisateur, attirées par un aimant contenu dans le bracelet. Il devient ainsi possible de détecter si le corps contient des cellules cancéreuses.


Via Dominique Godefroy
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NHS: Campaigners attack plans to share patients' personal data with taxman

NHS: Campaigners attack plans to share patients' personal data with taxman | The patient movement | Scoop.it
SCOTTISH ministers are considering opening up an electronic database 
of people registered with a GP to 
120 public bodies, including HM Revenue and Customs
PatientView's insight:

Another example of gov not helping the cause of big data

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PatientView's curator insight, February 22, 6:43 AM

Another example of gov not helping the cause of big data 

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To the woman who tutted at me using the disabled toilets...

To the woman who tutted at me using the disabled toilets... | The patient movement | Scoop.it
Dear lady who loudly tutted at me using the disabled loos, I know you saw me running in, with my able bodied legs and all. You saw me opening the door with my two working arms. You saw me without a...
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Thought this too important too overlook

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Portal launched by Waltham nonprofit promotes patient-centered multiple sclerosis research - The Boston Globe

Portal launched by Waltham nonprofit promotes patient-centered multiple sclerosis research - The Boston Globe | The patient movement | Scoop.it
Caroline Kyriakou is among the first group of patients that will be sharing their medical data and their ideas for new research directions with one another and with scientists through a new patient portal called iConquerMS. The national portal was formally launched Tuesday by a Waltham nonprofit organization called Accelerated Cure Project.
PatientView's insight:

More good ideas for co-creation with patients

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GenomeSeqWeek | Genetic Alliance UK | February 2015

GenomeSeqWeek | Genetic Alliance UK | February 2015 | The patient movement | Scoop.it
GenomeSeqWeek, four events in February 2015 exploring the impact of whole genome sequencing | sponsored by Genetic Alliance UK
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@GeneticAll_UK this has meaning for us all 

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1st Global Conference On Patient Centered Care

1st Global Conference On Patient Centered Care | The patient movement | Scoop.it
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1st Global Conference on patient centred care 

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