The patient movement
Follow
Find
1.2K views | +2 today
 
Scooped by PatientView
onto The patient movement
Scoop.it!

Worldwide cancer mortality statistics : Cancer Research UK

Worldwide cancer mortality statistics : Cancer Research UK | The patient movement | Scoop.it
Worldwide cancer mortality statistics
PatientView's insight:

The extent of problem with cancer expertly visualized by @CRCUK

more...
No comment yet.
The patient movement
Your new post is loading...
Your new post is loading...
Rescooped by PatientView from Social Media and Healthcare
Scoop.it!

Understanding Patients' Needs with Social Media Analytics

Understanding Patients' Needs with Social Media Analytics | The patient movement | Scoop.it

Among the 50 largest drug makers in the world, more than half still aren’t actively using social media to engage healthcare consumers or patients. Most of them primarily use social media as a broadcasting channel, and no more than 10 are on Twitter, Facebook or YouTube.

Even with drug makers’ recent increases in digital spending, the pharmaceutical industry is repeatedly said to be a laggard in adoption of social media.

Drugmakers’ common excuse for remaining social media wallflowers is largely due to the regulatory uncertainty and the doubts on how to measure social ROI.

1/ The rise of the empowered patient

With the role of social media rapidly expanding, patients are increasingly turning to popular social networks, such as Twitter, Facebook, YouTube, blogs and forums obtaining and sharing information related to their health.

In the US, for example, over one third of consumers manage their own health and are using social media to help them make important healthcare decisions.

The consequent empowerment of the patient in making decisions around their treatment has led them to be more aware and have a greater say in the treatment process.

But it’s not just patients who go to social media to voice their opinions. The pharma industry has multiple stakeholders who actively research and discuss online, including patients, physicians, payers, caregivers, providers and advocacy groups.

This trend only heightens the imperative need for pharmaceutical companies and regulators to take notice and contribute to the overall healthcare discussion, particularly to the appropriate use of medicines.

But how do you actually know what physicians are saying about your drug?
Can you identify your patients’ primary concerns about your market leading product?

What are the conversation themes around managing the disease?
How does the online reputation of your brand compare to competitors?
Are patients switching brands and if so, why?

2/ Using social media as a research tool

The most immediate benefit that social media has to offer pharmaceutical companies is as a research tool.

The answers to the questions above require a more proactive embrace of social media analytics tools by pharmaceutical manufacturers.

Social media analytics tools, such as Brandwatch Analytics, can mine not only Twitter but also public forums, blogs, news sites, Facebook and other social networks to uncover patients and physicians’ sentiments and opinions.

One of our clients, Creation Healthcare, did exactly such a thing not too long ago. They indexed half a million healthcare professional profiles across thousands of sites using Brandwatch Analytics to understand how treatments and products are perceived by those who may prescribe them every day.

The online market research consultancy was able to spot healthcare trends and concerns months before others did. Offering unrivaled insight into the views of healthcare professionals, Creation Healthcare’s research business attracted six times more clients than before.

Identifying the opinions of healthcare professionals and patients is, indeed, a complicated process, particularly because of the amount of noise and spam surrounding pharmaceuticals. With boolean operators and rules, you can filter out spammy websites and irrelevant views.

3/ Using social media to foster discussions with your stakeholders

Understanding the kind of people who make up the conversation in your niche can prove far more insightful than listening only to those who mention your product or brand.

In a recent report we analyzed thousands of mentions online using social media analyticsto understand people’s attitude towards HIV treatment and to inform targeted messaging.

Their target audience is often seen as being the healthcare professional. But when analyzing all HIV discussion on social media, it turns out it’s the patients, caregivers and those that actually aren’t directly affected by HIV who offer the most powerful insights.

The general public spoke nearly three times more about HIV treatment than healthcare professionals, suggesting a general interest in the topic and that online influencers may differ from offline.

Diving deeper into this data, we noticed that the different stakeholders are chatting about HIV in entirely different places.

Data like this could dramatically impact how a drug manufacturer develops its communication strategies and targets its messaging.

4/ Building tailored marketing strategies

As shown below, social media analytics can be applied at various stages of a drug lifecycle; right from your drug discovery stage (understanding unmet needs) to the launch (improving your brand messaging) to the maturity stage (monitoring brand reputation and intimately connecting patients and physicians).

Insights generated during each stage can be utilized across all departments in your company.

If you’re still analyzing the conversation about your own brand or products, then now is the time to rethink your social media activities.

While social media is not a panacea, it provides an arguably underused opportunity across the business to research, understand and boost discussions with all healthcare consumers.

There’s no such thing as having a remarkable drug without having tailored strategies to appeal to your own target audience.

Forget the mass market, segment and evaluate healthcare conversations by the different stakeholders. Find out what they are talking about online and how your organization can fit into that.



Via Plus91
more...
No comment yet.
Scooped by PatientView
Scoop.it!

Dutch pioneers take visionary Parkinson’s healthcare to US

Dutch pioneers take visionary Parkinson’s healthcare to US | The patient movement | Scoop.it
Leading Dutch neurologists sign agreement to spread innovative Parkinson's healthcare initiative to West Michigan, US, during a tour with the royal couple.
PatientView's insight:

Europe can teach US some things!!

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Parkinson's For One Day (with images, tweets) · SusannahFox

Gretchen Church was my partner on Saturday, June 6, 2015, teaching me how to manage life with the physical challenges that come with Parkinson's disease. Our tweets tell the story...
PatientView's insight:

Parkinson's fr one day 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Impatient patients demand drug fix

Impatient patients demand drug fix | The patient movement | Scoop.it
Two major groups surprised industry with their specific demands for “a European approach to the market.”
PatientView's insight:

Patients take the initiative on drug pricing

more...
No comment yet.
Scooped by PatientView
Scoop.it!

EuroMedLab 2015: Placing patients in charge of their health | MedTech Views

EuroMedLab 2015: Placing patients in charge of their health | MedTech Views | The patient movement | Scoop.it
PatientView's insight:

Self-care in the making 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Five Rude Emails You Send Every Day

Five Rude Emails You Send Every Day | The patient movement | Scoop.it
Even the most likeable and well-mannered among us can still look like jerks in an email. Writing an email that comes across just like you do in person is a fine art. During a conversation, you adjust your tone, facial expression, gestures and posture in order to fit the mood of [...]
PatientView's insight:

Important key messages here when emails patient groups

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Help me to improve access for people with MS

I just donated to the MS International Federation, to improve access for people with MS around the world. Be a part of this. Donate too.
PatientView's insight:

MS and employment - people speak about it 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Navigating Patient Assistance Programs - Hemophilia Federation of America

Navigating Patient Assistance Programs - Hemophilia Federation of America | The patient movement | Scoop.it
With the uncertainty of healthcare, many in the bleeding disorders community are concerned about the future of cost and access to factor products. Co-payments and out-of-pocket expenses can be devastating on a family’s budget. Many manufacturers of factor products have co-pay assistance programs that can provide a source of relief. Manufacturer Co-Pay Programs Manufacturer Co-pay/Co-insurance …
PatientView's insight:

More patient groups should so this!!

more...
No comment yet.
Scooped by PatientView
Scoop.it!

BooknHeal.com - Get help.

BooknHeal.com - Get help. | The patient movement | Scoop.it
BooknHeal aims to connect patients with mental health experts worldwide. We are creating a solution that makes it easy to get help.
PatientView's insight:

What a great idea a crowd source mental health  network 

more...
No comment yet.
Rescooped by PatientView from Compassion in Healthcare
Scoop.it!

Experts by Experience 2015: A compilation of patients’ stories

In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an…

Via Tracy Walsh
more...
PatientView's curator insight, March 6, 2:28 PM

WE needs thousands and thousands of these 

Scooped by PatientView
Scoop.it!

'Dementia village' inspires new care - CNN.com

'Dementia village' inspires new care - CNN.com | The patient movement | Scoop.it
A Dutch dementia facility where carers act as shopkeepers to keep an eye on residents attracts global interest.
PatientView's insight:

The Dutch dementia vilaage 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room

How to Deal with Repetitive Questions and Communicate More Effectively | Alzheimer's Reading Room | The patient movement | Scoop.it
I walked over, put my arm around her, put my head against her head and said -- Thursday. Then I give her a little squeeze.
PatientView's insight:

How to talk to someone with Alzheimer's --most helpful

more...
No comment yet.
Rescooped by PatientView from Social Media and Healthcare
Scoop.it!

How Your Patients Use Social Media

How Your Patients Use Social Media | The patient movement | Scoop.it

How Your Patients Use Social Media

It seems as if healthcare providers have only recently considered using social media to connect with their patients. This might be due to many considerations, not the least of which is protecting patient confidentiality. Social media is a great marketing tool that will help build your practice and help your clients. Learn how your patients are using different social platforms and understand how your practice can reach out.

Growth of Social Media

According to the Pew Research Center, Facebook is the most popular site, (as of September 2014). Facebook is no longer experiencing the growth surge that it did just a few years ago, but the user is engaging with it more than they used to. LinkedIn, Instagram, and Pinterest are seeing significant growth and gaining more popularity among adults who use social media.

Who Is Using Which Platform?

Over 52 percent of adults who go online use two or more social media sites. Around 56 percent of adults 65 and older who are online use Facebook. In the younger crowd, ages 18-29, 53 percent of the ones who go online are on Instagram. When it comes to Pinterest, you will reach more women than men. LinkedIn is growing among the college-educated. Around 50% of the internet users who have higher education backgrounds use it.

Facebook is by far the most popular platform, and it seems to be home base for many people. Around 70 percent of individuals who use check in daily at least once. Just a year ago, that figure was only 63 percent. The number of people who use Facebook hasn’t changed, but how much they use it has. About 36 percent of Twitter users check in daily, but this is a 10 percent drop from last year. LinkedIn has more users, but they are not logging on with more frequency.

Using Social Media as a Tool

As a healthcare provider, you do need to be cautious about how you use social media in your practice. However, when used appropriately and with forethought, it is a good marketing tool. You can also increase your patient’s awareness of health issues that they may forget. A quick reminder to come in a get a flu shot during the season benefits the community and keeps your patients healthy.

Develop a social media strategy and risk management plan now to fully utilize the capability of it, while maintaining the legal requirements for your business. This technology has a place in your marketing plan, but you do need to proceed wisely to get the full benefits. Reach out to your patients and build your practice wisely.

 



Via Plus91
PatientView's insight:

Social media has scaled up patient empowerment by reinforcing networking

more...
Veena Lingam's curator insight, March 9, 11:46 PM

Responding to comments in a timely manner becomes important due  to ethical reasons contributimg to  ongoing monitoring overheads presenting stumbling blocks. 

Tiziano Galli's curator insight, March 10, 5:19 PM

Una volta deciso di "apparire" professionalmente sul web - magari aprendo un blog - e di acquisire una dimensione "sociale" attraverso  l'apertura di "profili personali/professionali" o partecipando alle community, ogni medico/sanitario dovrà, necessariamente, porsi la domanda successiva:

 

Su quale social posizionarsi?

 

Non potrà, in prima battuta, esimersi dal considerare Facebook,  perchè è la maggiore vetrina espositiva per la > parte degli utenti in rete, ma non dovrà limitarsi a questo. 

 

Dovrà prendere in considerazione il suo target specifico e ragionare su quali siti si concentra con maggiore frequenza.

 

Facciamo l'esempio di un ginecologo e la popolazione femminile. Egli potrebbe scoprire che le donne giovani e di una certa età frequentano Social differenti e quindi aprire profili, oltre che su FB anche su Instagram oppure su Tumblr.

 

Non mi dilungo per non complicare il discorso. Leggete questo articolo che tocca proprio l'aspetto della differente distribuzione dei target nei vari social. Ne ho accennato anche io nel mio libro "Medici Pazienti e social media"

 

Costruire una propria identità digitale fa parte di una sensibilità più spiccata nelle nuove generazioni. Frutto, in special modo, della capacità di "ascolto" e di analisi dei target e dei loro comportamenti.

 

Scooped by PatientView
Scoop.it!

Me, Not HAE

Me, Not HAE | The patient movement | Scoop.it
Through May 30, visit Shire's www.MeNotHAE.com to make a wish to support the HAE community and grow the HAE Wish Tree!
PatientView's insight:

This looks a good initiative backed by pharma 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Visualize the Effects of Lupus on the Body

Visualize the Effects of Lupus on the Body | The patient movement | Scoop.it
Lupus is an autoimmune disease that can affect almost any part of the body, especially the skin, blood, joints, kidneys, heart, lungs, and brain. Learn more.
PatientView's insight:

Infographic -Lupus explained from Healthline  

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Global Voice for Rare Disease Patients Launches Today: Rare Diseases International - NORD (National Organization for Rare Disorders)

Global Voice for Rare Disease Patients Launches Today: Rare Diseases International - NORD (National Organization for Rare Disorders) | The patient movement | Scoop.it
        Madrid and Washington, D.C.—May 28, 2015—The global voice for rare disease patients launches today.  More than 60 patient representatives from 30 countries are gathering in Madrid, Spain for the inauguration of Rare Diseases International (RDI) and to adopt a joint declaration to advocate for rare diseases as an international public health Read more >
more...
No comment yet.
Scooped by PatientView
Scoop.it!

Physician 'aid in dying': California Medical Association removes opposition to bill

Physician 'aid in dying': California Medical Association removes opposition to bill | The patient movement | Scoop.it
Setting a nationwide precedent that might influence other states, the California Medical Association announced it has reversed its decades-long opposition to legislation that allows physicians to help seriously ill patients end their lives.
PatientView's insight:

A milestone in the right to die debate 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

accenture-patient-services-pharmas-best-kept-secret-research-note.pdf

PatientView's insight:

Not surprising 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Be a part of National ALS Advocacy Day! - The ALS Association

Be a part of National ALS Advocacy Day! - The ALS Association | The patient movement | Scoop.it
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
PatientView's insight:

ALS DAY

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Online Transparency Tool - Hemophilia Federation of America

Online Transparency Tool - Hemophilia Federation of America | The patient movement | Scoop.it
When navigating the online ecosystem of the bleeding disorders community, it can be confusing as to which organizations run what site. While some organizations run pages with transparent naming, like HFA’s Facebook page, sometimes it’s not so clear. We developed this tool to shine a light on those pages and resources that may not have …
PatientView's insight:

How patient groups police drug industry transparency --

more...
No comment yet.
Scooped by PatientView
Scoop.it!

EU Day of Solidarity between Generations - AGE Platform Europe

EU Day of Solidarity between Generations - AGE Platform Europe | The patient movement | Scoop.it
AGE Platform Europe is a European network of around 150 organisations of and for people aged 50+; representing directly over 28 million older people in Europe.
PatientView's insight:

April 29th when ages come together 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
PatientView's insight:

Target: plaques (prevention)-  The amyloid precursor protein (APP) is normally broken down in the body by two enzymes (beta and gamma secretase) to amyloid beta (ABeta), which is sticky. Excessive amounts of ABeta form of plaques, that are found in the brains of people who have Alzheimer’s. There are at least five potential biological targets being investigated. BACE is just one. 

 

more...
No comment yet.
Scooped by PatientView
Scoop.it!

​New trial to treat Alzheimer's seen as "game changing"

​New trial to treat Alzheimer's seen as "game changing" | The patient movement | Scoop.it
"For the first time I think we have a chance to really change the course of Alzheimer's disease," says the lead doctor on the clinical trial
PatientView's insight:

The drug is funded by Eli Lilly

more...
No comment yet.
Scooped by PatientView
Scoop.it!

Find World MS Day events

Find World MS Day events | The patient movement | Scoop.it
Find World MS Day events, whether they’re happening on your street or on the other side of the world
PatientView's insight:

World MS Day - Map now live 

more...
No comment yet.