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"My blog has led to four people having a transplant that their medical teams didn't even know existed"

A short film about a Michael Seres (@mjseres), who is changing people's lives through awareness and social media.


Via Andrew Spong
PatientView's insight:

Nothing needs be said 

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Denise Silber's comment, March 1, 8:11 AM
Come meet Michael Seres and Andrew Spong in Paris at Doctors 2.0 & You conference June 5-6, 2014
Denise Silber's curator insight, March 1, 8:14 AM

Thank you Andrew for drawing our attention to the film about the amazing Michael Seres @mjseres whom we are so grateful to know. He will be back with us at Doctors 2.0 & You Paris, June 5-6, and involved in more than one activity.

 
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New report: Patient groups and their impact on access to medicines

New report: Patient groups and their impact on access to medicines | The patient movement | Scoop.it
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Let's Stop Trying to Force Consumers to 'Engage' With Their Health Care

Let's Stop Trying to Force Consumers to 'Engage' With Their Health Care | The patient movement | Scoop.it
Health care is full of buzzwords. The latest is “engagement.” The theory behind it is that all will be well if we can just get people—especially those with chronic diseases—more involved with their illnesses. But what if the opposite is true? Let’s do a simple experiment. Imagine you have a chronic [...]
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Ah yes but ...more engagement to begin could mean less engagement eventually - think of that 

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PatientView

PatientView | The patient movement | Scoop.it
 PatientView/myhealth apps is happy to attend the latest EPHA meeting and we encourage you to go along as well Registration LINK: EPHA Day 1 OPENING (09h00 – 10h30): A game of two halves - bringing...
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Do people need a consumer champion for health and social care?

Do people need a consumer champion for health and social care? | The patient movement | Scoop.it
People are unaware of their rights under the NHS constitution and the situation is less clear in social care, writes Anna Bradley
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Handle with care: patient-centric market research - PMLiVE

Handle with care: patient-centric market research - PMLiVE | The patient movement | Scoop.it
Working with patients to gather insight aimed at transforming brand communications can be a delicate business
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wyke_190614.pdf

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My presentation at a medcommsnetworking event on patient perspectives on clinical trials other presentations can be found here http://www.medcommsnetworking.co.uk/event61.html

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Portugal Set to Introduce Its First Drug Consumption Room

Portugal Set to Introduce Its First Drug Consumption Room | The patient movement | Scoop.it
Portugal's capital city, Lisbon, has announced that it is exploring opening the country's first ever drug consumption room (DCR), a positive, though somewhat belated d
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Latest Facts & Figures Report | Alzheimer's Association

Latest Facts & Figures Report | Alzheimer's Association | The patient movement | Scoop.it
Get the latest Facts & Figures report, providing annual statistics on the impact of Alzheimer's disease and dementia. Learn how many Americans are living with the disease, economic and caregiver burden, death rate and other key measures.
PatientView's insight:
June, is Alzheimer's & Brain Awareness Month.
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Home

Home | The patient movement | Scoop.it
European Patients' Academy on Therapeutic Innovation (EUPATI) is project funded by the Innovative Medicines Initiative. The \"European Patients' Academy on Therapeutic Innovation\" (EUPATI) will provide scientifically reliable, objective, comprehensive information to patients on pharmaceutical R&D. It will increase the capacity of well-informed patients to be effective advocates and advisors, e.g. in clinical trials, with regulatory authorities and in ethics committees.
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Focus on the patients academy

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Spread Awareness

Spread Awareness | The patient movement | Scoop.it
75 years ago Lou Gehrig delivered his famous farewell speech. Within two years, he died from ALS at age 37. Read his and other ALS stories at ALSA.org/75 to support cutting-edge research to find treatments and a cure for ALS.
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ALS awareness month

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Global Health TV

Global Health TV | The patient movement | Scoop.it
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World Malaria Day was on 25th april 2014 coverage by Global Health TV

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Childhood and adolescent cancer statistics, 2014 - Ward - 2014 - CA: A Cancer Journal for Clinicians - Wiley Online Library

Childhood and adolescent cancer statistics, 2014 - Ward - 2014 - CA: A Cancer Journal for Clinicians - Wiley Online Library | The patient movement | Scoop.it
PatientView's insight:

The International Brain Tumour alliance highlights, a report by the American Cancer Society for estimates of childhood (birth to 14 years) and adolescent (15 to 19 years) cancers in the USA in 2014 indicates that brain and CNS tumours are in second place (21%) in the childhood category and in third place (10%) in the adolescent category. The estimated number of cases was 2,780. In 2010 the estimated number of survivors of these tumours was 59,083.

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Year of the Brain in Europe in 2014

Year of the Brain in Europe in 2014 | The patient movement | Scoop.it
European Brain Council
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Just discovered 2014 is YEAR OF THE BRAIN

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World Duchenne Day

World Duchenne Day | The patient movement | Scoop.it

th

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Missed this

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Getting rare diseases on the map in New Zealand

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• BENCHMARKING

• BENCHMARKING | The patient movement | Scoop.it
PatientView's Benchmarking Studies,  2011-2014 For  publications before 2011,  please contact us   
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Our latest study benchmarking the patient movement 

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Patients group calls for 'clear' information about controversial Coventry NHS trial

Patients group calls for 'clear' information about controversial Coventry NHS trial | The patient movement | Scoop.it
Concerns raised about trial which will see cardiac arrest patients given placebo instead of adrenalin
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CAIRNET

CAIRNET | The patient movement | Scoop.it
CAIRNET
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Results: schizophrenia and social inclusion

Results: schizophrenia and social inclusion | The patient movement | Scoop.it

lusion Results from study to help understand social inclusion and People Living with Schizophrenia, which was conducted last year (July - September 2013) 140117 - Social Inclusion Research    

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Results of patient and carer survey on social inclusion and schizophrenia undertaken July-September 2013

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Alzheimer Europe - News - Policy Watch - Friday 30 May 2014 - World Dementia Council publishes statement of purpose

Alzheimer Europe - News - Policy Watch - Friday 30 May 2014 - World Dementia Council publishes statement of purpose | The patient movement | Scoop.it
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Melanoma Treatment Options: What is it Worth to Extend ONE Life? - YouTube

Stage IV melanoma patient, Patricia Garcia-Prieto shares her story and her struggle with stage IV melanoma -- and considers the cost benefit of extending her...
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How much is my life worth (to be worth saving)?

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Last chance to register for today's CCSN webinar on Setting the Advocacy Agenda!

Last chance to register for today's CCSN webinar on Setting the Advocacy Agenda! | The patient movement | Scoop.it
PatientView's insight:

Free introduction to advocacy on today;s webinar with Canadian Cancer Survivor Network 

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RITA

RITA | The patient movement | Scoop.it
The future of care for the elderly.
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trying to get my head round RITA

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1745-6215-15-62.pdf

support patient 

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UK study shows Patient Information Leaflets do not

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Worldwide cancer mortality statistics : Cancer Research UK

Worldwide cancer mortality statistics : Cancer Research UK | The patient movement | Scoop.it
Worldwide cancer mortality statistics
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The extent of problem with cancer expertly visualized by @CRCUK

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