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'sudep' Sudden Death in Epilepsy
Death can change everything – priorities, perceptions, abilities, view of the world, view of ourselves, relationships and so on. Sudden death brings with it the added dimensions of being unexpected, untimely and sometimes traumatic. The shock of the death can also be exacerbated because the family had not been told of any risk – or even told there was no risk. Research commissioned by Epilepsy Bereaved from the College of Health with bereaved relatives (Kennelly & Riesel 2002) reveals the emotional impact on the family ranging from shock and devastation, to guilt, anger, difficulty accepting the death, and loneliness. The aim of the study was to review health services and services for the investigation of death from relatives’ and carers’ perspectives to highlight issues that they themselves had identified as important in order to make recomendations on how the needs of people with epilepsy and their carers before and after death can be met in the future. “I think the ignorance of not ever thinking that it could result in death is the biggest shock.”
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Lost Children: 2,300 a Day

Reports of missing persons have increased sixfold in the past 25 years, from roughly 150,000 in 1980 to about 900,000 this year. The increase was driven in p...
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Let him Testify: Hit man's testimony vital to free innocent child

Walyer Savage Landor once said "Delay of justice is injustice" his words could of been created and inspired by the Davontae Sanford case, yet this was a stat...
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Beyond Scared Straight -Juvenile Justice Reform: Big Discrepancies in Sentences for Teenage Killers, Juvie Prisons….and More

Beyond Scared Straight -Juvenile Justice Reform: Big Discrepancies in Sentences for Teenage Killers, Juvie Prisons….and More | 'sudep' Sudden Death in Epilepsy | Scoop.it
Once again in California, those in the state with any kind of experience and/or knowledge of juvenile justice, are trying to persuade California lawmakers to please, please, please pass a law that gives kids sentenced to prison for life a chance—just a chance, no kind of guarantee—to one day make the case that they are worthy of parole. So far, as was true last year and the year before, nearly all the Republicans and far too many spineless Democrats, are unwilling to pass the thing. Thus SB9—as the bill is numbered—still is a few votes shy of being able to pass. And while advocates are not giving up, the fact that our supposedly liberal state cannot pass this watered down bill is discouraging.
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Free_dante_259421 (United States) on MixPod Music Playlist

Free_dante_259421 (United States) on MixPod Music Playlist | 'sudep' Sudden Death in Epilepsy | Scoop.it
Free_dante_259421's Playlist Profile. 27 Playlists. Create a free MySpace music playlist/player. Also for Tumblr, Friendster, Facebook, Orkut, hi5, blog, website and many more!
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Ending the Cradle to Prison Pipeline

Ending the Cradle to Prison Pipeline | 'sudep' Sudden Death in Epilepsy | Scoop.it

 Black boy born in 2001 has a one in three chance of going to prison in his lifetime and a Latino boy a one in six chance of the same fate. The U.S. has the highest incarceration rate in the world: 7.1 million adult residents. One in 33 are under some

form of correctional supervision, including prison, jail, probation, or parole.

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Gemma's Ray of Hope Epilepsy Awareness Fundraiser

Gemma's Ray of Hope Epilepsy Awareness Fundraiser | 'sudep' Sudden Death in Epilepsy | Scoop.it

Please share the link, and let's spread awareness.
Keep a look out for fundraising events!

Gemma Ray was a 17 year old local girl who passed away on the 2nd of November 2011, just two days before her 18th birthday and was 19 weeks pregnant with a baby boy (whom she was going to name Daniel). She died of a sudden Unexpected Death in Epilepsy, (SUDEP) and we as a charity are raising money for research into SUDEP as no-one really knows why it happens or what really causes this to happen, yet approximately three people a day die from Epilepsy.

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Neurology for Children, Teens, Young Adults & Sleep Medicine for ...

Neurology for Children, Teens, Young Adults & Sleep Medicine for ... | 'sudep' Sudden Death in Epilepsy | Scoop.it
Practice parameter: evaluating an apparent unprovoked first seizure in adults (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology and the American Epilepsy ...
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Beyond Scared Straight -Juvenile Justice Reform: Gemma's Ray of Hope:

Beyond Scared Straight -Juvenile Justice Reform: Gemma's Ray of Hope: | 'sudep' Sudden Death in Epilepsy | Scoop.it

Gemma’s Ray Of Hope In association with Running4Gem

Raising Epilepsy awareness and funding research into SUDEP

(Sudden unexpected death in Epilepsy)

Gemma Ray was a 17 year old local girl who passed away on the 2nd of November 2011 just two days before her 18th birthday and was 19 weeks pregnant with a baby boy (whom she was going to name Daniel). She died of a sudden Unexpected Death in Epilepsy, (SUDEP) and we as a charity are raising money for research into SUDEP as no-one really knows why it happens or what really causes this to happen, yet approximately three people a day die from Epilepsy.

Our aim as a charity is to raise money to fund research into finding out why this happens and finding a way to prevent it, whilst at the same time raise awareness about Epilepsy and SUDEP if we as a charity can make somebody aware which helps save just one life then it has to be worth it.

The aim of the charity is to focus on the Staffordshire area which is Gemma’s home county, although ultimately our goal would be to make this a national awareness,there are several fundraising events taking place in the next few months with many more planned throughout the next year.

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Running4gem

Me and my Dad (anyone else is welcome to run with us too!) will be running the Adidas Silverstone Half Marathon on 11th March 2012. ALL of the money raised w...
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Lets Help those with Epilepsy

Lets Help those with Epilepsy | 'sudep' Sudden Death in Epilepsy | Scoop.it
Epilepsy is a misfire of neurons  in the brain where your body haa a seizure  or uncontrolled movements of the body. Epilepsy is a disease...
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Risks, injuries and SUDEP - Epilepsy, epilepsy & injuries, epilepsy risks,misconceptions about epilepsy, epilepsy & family, epilepsy & living arrangements, epilepsy & safety, Triggers and managing ...

Risks, injuries and SUDEP - Epilepsy, epilepsy & injuries, epilepsy risks,misconceptions about epilepsy, epilepsy & family, epilepsy & living arrangements, epilepsy & safety, Triggers and managing ... | 'sudep' Sudden Death in Epilepsy | Scoop.it
Risks, injuries and SUDEP (Sudden Unexpected Death in Epilepsy) People face risks in all areas of life and people with epilepsy may face specific risks because of their epilepsy.
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Sudden unexpected death in epilepsy (SUDEP) | Epilepsy Action

Sudden unexpected death in epilepsy (SUDEP) | Epilepsy Action | 'sudep' Sudden Death in Epilepsy | Scoop.it
In this section Introduction Sudden unexpected death in epilepsy (SUDEP) How often SUDE...
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Lead letter: System is letting down this child

Lead letter: System is letting down this child | 'sudep' Sudden Death in Epilepsy | Scoop.it
I find myself sickened by the charges pending against 13-year-old Cristian Fernandez.
I am outraged that this child has been thrown into the criminal justice system and, hence, faces charges that carry a possible sentence of life without parole.
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Beyond Scared Straight -Juvenile Justice Reform: “you can jail a revolutionary, but you can’t jail a revolution” - Fred Hampton

Beyond Scared Straight -Juvenile Justice Reform: “you can jail a revolutionary, but you can’t jail a revolution” - Fred Hampton | 'sudep' Sudden Death in Epilepsy | Scoop.it
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2pac Mirror - Write an Inmate: Penpal Request

"Life doesn't require you to belong. You can always stand out." I am an invisible man. I am a man of substance, of flesh and bone, fiber and liquids -- and I...
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Reaching behind the Wall

In prisons across the USA Juveniles are serving life sentences, thousands upon thousands are not parole eligible, we would like to invite you to reach into t...
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Gemma's Ray of Hope: Raising awareness of SUDEP Sudden unexpected death in epilepsy

Gemma's Ray of Hope: Raising awareness of SUDEP Sudden unexpected death in epilepsy | 'sudep' Sudden Death in Epilepsy | Scoop.it

If you would like more information on

Gemma’s Ray of Hope then please contact us.

 

Or  why not give feed back about anything that you have read on the web site .

 

One of the team will get back to you as soon as possible

 

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On Life, Love and Truth: Why We Need To Talk About Epilepsy

On Life, Love and Truth: Why We Need To Talk About Epilepsy | 'sudep' Sudden Death in Epilepsy | Scoop.it
I'm thinking now of my being part of the Cause on Facebook that is called "Turn Facebook Purple For Epilepsy Awareness." Of course, turning a site a certain color is not going to provide any practical help for the problem of ...
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2012 Sharon's Ride.Run.Walk for Epilepsy - General Donation

I'm doing Sharon's Walk/Ride again to support my niece and to help fight epilepsy.
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Beyond Scared Straight -Juvenile Justice Reform: Demand A&E Tell the Truth About 'Scared Straight'

Beyond Scared Straight -Juvenile Justice Reform: Demand A&E Tell the Truth About 'Scared Straight' | 'sudep' Sudden Death in Epilepsy | Scoop.it

On January 13, 2011, A&E launched the “Beyond Scared Straight” program series earning it the highest ratings in the station’s history. With 3.8 million views, Bob DeBitetto, President and General Manager of A&E Network and BIO Channel, says that, "We could not be more proud to have undertaken this groundbreaking series and the audience response is extremely rewarding. Beyond Scared Straight' truly exemplifies our unique brand of highly engaging programming with a focus on excellent storytelling and first-class auspices."

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Sudden unexpected death in epilepsy (SUDEP): don’t ask, don’t tell? -- Morton et al. 77 (2): 199 -- Journal of Neurology, Neurosurgery & Psychiatry

Sudden unexpected death in epilepsy (SUDEP): don’t ask, don’t tell? -- Morton et al. 77 (2): 199 -- Journal of Neurology, Neurosurgery & Psychiatry | 'sudep' Sudden Death in Epilepsy | Scoop.it

Abstract
Background: The National Institute for Clinical Excellence in the UK has issued guidelines stating all individuals with epilepsy be given information about sudden unexpected death in epilepsy (SUDEP).

Methods: We conducted a survey of current practice among UK neurologists, using a questionnaire sent to all practising neurologists in the UK listed on the Association of British Neurologists database, asking under what circumstances they told patients about SUDEP.

Results: Of the validated respondents, 5% discussed SUDEP with all patients, 26% with a majority, 61% with a few, and 7.5% with none. The commonest reasons for SUDEP to be discussed were the patient asking about it and the neurologist counselling people with known risk factors for SUDEP.

Conclusions: The variation we found, although not necessarily in tune with the guidelines, reflects the variation in patients’ need for knowledge about their condition.

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Sudden Unexpected Death in Epilepsy | Health | Patient UK

Sudden Unexpected Death in Epilepsy | Health | Patient UK | 'sudep' Sudden Death in Epilepsy | Scoop.it
Sudden Unexpected Death in Epilepsy - Sudden unexpected death occurs in a small number of people who have epilepsy. People most at risk are those w...
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