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Five things the NHS must learn about empowering patients

Five things the NHS must learn about empowering patients | Storytelling and healthcare | Scoop.it
Despite the huge changes to the NHS, there has been little progress in terms of patient empowerment, writes Meg Hillier
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NHS must do more to empower patients
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Patient Voices - AIDS and H.I.V. - Interactive Feature - NYTimes.com

Patient Voices - AIDS and H.I.V. - Interactive Feature - NYTimes.com | Storytelling and healthcare | Scoop.it

Tat is it like to live with H.I.V.? Does the stigma associated with AIDS still exist? Eight men and women living with H.I.V speak about their experiences.

The Lifeboat Project's insight:

"What is it like to live with AIDS today? Have improved treatments changed the outlook of someone with H.I.V.? Does the stigma associated with AIDS still exist? Eight men and women speak about their experiences."

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Once Upon A Time and Happy Endings: Storytelling in Healthcare Marketing | WomenOlogy

Once Upon A Time and Happy Endings: Storytelling in Healthcare Marketing | WomenOlogy | Storytelling and healthcare | Scoop.it
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Storytelling in health care - Polon

Storytelling in health care - Polon | Storytelling and healthcare | Scoop.it
Storytelling is a powerful communication tool – nowhere more so than in healthcare.
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Ethics Consult: To Tell or Not to Tell

Ellen Kolton, MPH, is a patient advocate at the Boston Medical Center and a member of its Ethics Committee, for which she coordinates and reports on its consults.
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#Daring2Share Chat (with tweets) · lifeboat_hiv

This is a summary of our #Daring2Share Twitter Chat about 'fair storytelling'.
The Lifeboat Project's insight:

Lifeboat: HIV - Daring to Share is a participative web-documentary where five families living in Europe today tell their stories of living with HIV. This is where you can find the project: lifeboatfilms.org/ 

 Today Manuela Maiguashca, one of the three filmmakers in the Lifeboat team, hosted our first live Twitter Chat #Daring2Share talking about the ethics of telling other people's stories. We were lucky to have with us Mirjam Schulpen who is a participant in our project and the amazing blogger Mark S. King ( myfabulousdisease.com/ ) We asked six questions and got some pretty amazing and honest answers. This is the conversation as it happened: 
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The tongue-tied storyteller in Rwanda: Lina Srivastava at TEDxTransmedia 2013

Lina Srivastava is an internationally known transmedia activist working with new narrative forms and distribution technologies to advance human rights and gl...

Via Simon Staffans, Anca Toader
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Simon Staffans's curator insight, October 29, 2013 1:29 PM

Lina on the ethics of telling other people's stories.

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Last Laugh - with Alexei Sayle

Last Laugh - with Alexei Sayle | Storytelling and healthcare | Scoop.it
http://www.dyingmatters.org Comedian Alexei Sayle confronts attitudes towards terminal illness and society's last taboo in the short film Last Laugh, which w...

Via Manuela Maiguashca
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Manuela Maiguashca's curator insight, November 6, 2013 5:21 PM

Great little film in which four terminally ill people talk about the fact that real stories of death are still taboo in our society. Is it fair to leave these stories out? Is your story less important because you are at the end of your life? Can't we learn from each other, especially as we journey through the end of life? Shouldn't everyone be listening?

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Stories

Stories | Storytelling and healthcare | Scoop.it
(...)
The Lifeboat Project's insight:

Emotive Storytelling, the Heart and Science of Persuasion aim to "rediscover of the ancient wisdom of storytelling and combine it with advances in neuroscience, virtual agents, and digital media. The use of narrative to influence health behavior is being rediscovered, and research has increasingly supported this strategy. Today, these seminal forces and technologies are combining to drive user engagement, adherence and behavior change in healthcare, marketing, education and business."

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Lifeboat

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Our webdocumentary about 5 families living with HIV in Europe today. In these films mothers and fathers talk about why it still is so difficult to talk openly about being HIV positive. 

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Matt Jameson Evans, Co-founder and Chairman, HealthUnlocked : Doctorpreneurs

Matt Jameson Evans, Co-founder and Chairman, HealthUnlocked : Doctorpreneurs | Storytelling and healthcare | Scoop.it
For doctors who are passionate about leading change in healthcare, creating new opportunities and driving innovation
The Lifeboat Project's insight:

Patient to patient story-telling can play a huge role in empowerment and wellness. Health Unlocked is a platform where patients share their clinical experiences online. This helps them to actively participate in their treatments whilst still maintaining connection with their physicians. We met Health Unlocked in London Sept 2013 during Social Media Week and found their work extremely interesting. HIV patient groups are included in their platform.

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#482 Storytelling our way to health

#482 Storytelling our way to health | Storytelling and healthcare | Scoop.it
Storytelling is so intertwined with our health it’s not surprising the healthcare field is gradually catching on. Columbia University’s College of Physicians and Surgeons has a whole Program in Nar...
The Lifeboat Project's insight:

"The care of the sick unfolds in stories. The effective practice of healthcare requires the ability to recognize, absorb, interpret, and act on the stories and plights of others. Medicine practiced with narrative competence is a model for humane and effective medical practice. It addresses the need of patients and caregivers to voice their experience, to be heard and to be valued, and it acknowledges the power of narrative to change the way care is given and received."

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Home - Speaking Volumes - HIV stories, HIV experiences

Home - Speaking Volumes - HIV stories, HIV experiences | Storytelling and healthcare | Scoop.it
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Creative multimedia project using the audio book format to protect the identities of HIV positive people who share their experiences of living with the virus in Sussex, UK. 

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Portraits of Reconciliation

Portraits of Reconciliation | Storytelling and healthcare | Scoop.it
20 years after the genocide in Rwanda, these perpetrators and survivors are standing for forgiveness.
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Wedding, Career, Chemo: When Cancer Derails the Millennial Dream

Wedding, Career, Chemo: When Cancer Derails the Millennial Dream | Storytelling and healthcare | Scoop.it
'I'm too young for this.' During chemo, Jenna Benn, 29, watched as her peers reached life milestones she abruptly had to set aside.
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Storyteller Beth Ohlsson uses fairy tales to heal real-life traumas

Storyteller Beth Ohlsson uses fairy tales to heal real-life traumas | Storytelling and healthcare | Scoop.it
When Beth Ohlsson started work as an addiction counselor at the Frederick County Adult Detention Center, she had no idea how to begin relating to her clients. Friend and storyteller Susan Gordon suggested she tell them stories.
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Storytelling for Health

Storytelling for Health | Storytelling and healthcare | Scoop.it
Stories unite us, engage us and move us to take action. They help us understand complex issues, raise awareness and inspire public engagement.
#health #storytelling #healthcare
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Emotional Healthcare and Data Storytelling

For more information, visit: http://strataconf.com/rx Amik Ahmad discusses why data doesn't matter and how storytelling with data is key for practitioners in...
The Lifeboat Project's insight:

"People need stories - that's how we learn things and that's how we change our behaviour".

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Narrative Humility: Sayantani DasGupta at TEDxSLC

Sayantani is a physican and writer, originally trained in pediatrics and public health, who is a faculty member in the Master's Program in Narrative Medicine...

Via Manuela Maiguashca
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Manuela Maiguashca's curator insight, November 6, 2013 12:18 PM

A wonderful speech in which DasGupta talks about our "cultural crisis of hearing" - we hear only the stories we've been conditioned to hear. Technology and information multi-tasking dominate our time. Listening is a skill we need to re-learn. Only then can we tell stories that matter.

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Through Positive Eyes

Through Positive Eyes | Storytelling and healthcare | Scoop.it
A global photographic collaboration with Gideon Mendel and the UCLA Art & Global Health Center
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Graying of AIDS

Graying of AIDS | Storytelling and healthcare | Scoop.it
The Lifeboat Project's insight:

"By 2015 more than half of all people living with HIV in the US will be over 50.

It doesn’t matter how old you are: anyone can become infected with HIV. Thanks to advances in medical treatment, people are living longer with the virus—in some cases more than 20 years (and counting). At the same time, older adults are rarely targeted in HIV prevention campaigns and may not realize that their behaviors can put them at risk for HIV infection. As the population of older Americans at risk for—or living with—HIV/AIDS grows, the daily realities and challenges of their lives remain largely invisible in our youth-oriented culture.

The Graying of AIDS combines portraits and oral histories of both long-term survivors and older adults who contracted HIV later in life with HIV/AIDS information to increase awareness, sensitivity, and collaboration among care-giving professionals."

 
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Patient Voices: About the Patient Voices programme

Patient Voices: About the Patient Voices programme | Storytelling and healthcare | Scoop.it
The Lifeboat Project's insight:

"The idea for Patient Voices (captured in Patient Voices: the rationale) arose from the desire to harness the power of patients' stories to bring to life the 20-credit e-learning coursesClinical Governance Matters and Clinical Governance Works that the Royal College of Nursing had commissioned Pip Hardy to write for the UKHEP BSc (Hons) in Health Sciences. Digital stories provided the perfect format with which to to put patients' experiences firmly at the heart of healthcare. The first Patient Voices digital stories were funded by the NHS Clinical Governance Support Team."

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TEDxAtlanta - Dr. Rita Charon - Honoring the Stories of Illness

Dr. Rita Charon asks, "What might medicine be for?" when we, as mortals, live our lives in the glare of our deaths. Thank you to Definition 6 for providing i...
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Dr. Rita Charon talks about 'Narrative Medicine' and its health impact.

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